Hi there!

[Guest guest]

>

> Hi

> I'm so happy you joined us. Does anyone else in your family have

> heterochromia aka dicrhomia. Join the crowd, especially with odd,

> sometimes funny reactions. The only negative reaction I recall was

> when I was around six. An older woman, heck when your six

practically

> anyone seems old. She saw me and then screamed a SUPER LOUD scream

> directly into my ear. It hurt both physically and emotionally.

> I burst into tears. In retrospect I can't be certain it was

because

> of my heterochromia but then again I suspect it was.

> BTW my eyes are that way because of Waardenburg syndrome. Wonder if

> there are other members here with it. Inherited from my father.

> Glad you joined the group

> Lynda

> http://disabilityinfo.ms11.net

> > It is sooooo great to meet some other people like me! Ive never

> > actually met another person w/ heterochomia. I'll have to scan in

a

> > picture but I have one blue eye and one brown. I've actaully

never

> > gotten any negative feedback about it, if anyhitng people think

it's

> > pretty neat. I found the site while googling heterochromia and

then

> > joined here, it was so funny to read the odd reactions from

people

> > because it's exactly what I get ( although no one has ever

attempted to

> > poke me in the eye thank god!) I get " oh wow! my dog has the

SAME

> > thing! " a lot. Gee thanks. But anyway it's great to meet you all.

If

> > anybody has any more info on heterochromia i'd sure like to hear

it.

> > Also, my driver's liscense actually states that i'm dichromatic,

> > anybody else?

> >

>when my son was born, I was scared, I was afraid that poeple would

judge him stare at him, cnd pick at him. but now that he is 7 years

old I realize that there was no reason to be, as alot of the time

poeple dont evan notice that he has 2 different colored eyes as one

is brawn and one is hazel... is when I tell them that I have gotten

some different repliees, some people just stare, others say oh

cool...and alot of people ask me if he has photograpic memory. And as

for the kids at school, my son has only incountered a few that have

made fun of him for it. but my son is proud, as he knows this makes

him special as he has one from mom and one from dad. that makes him

happy.

[Guest guest]

If it makes you feel any better, I have tinted whites too. Mine are

bluish. It's never been a problem though, I see fine.

>

> I wanted to welcome myself to the group. I don't have Heterochromia,

> but my daughter does. She is 4 and has a brown eye and a blue eye.

> Oddly though, the white of her brown eye is also quite dark on one

> side. I have not yet had her checked by an ophthalmologist but the

> paediatrician seemed to think that she was fine.

>

> After reading more about it though, I will have her checked out by a

> specialist.

>

[Guest guest]

In a message dated 11/14/2007 12:46:55 P.M. Pacific Standard Time, sungirll35@... writes:

And I need more information about the group. Like, What is the group goal?

What kind of info about the group would you like? I don't think I have seen any responses to this and sorry I am so far behind in responding to posts. This one grabbed me to respond to though.

As one of the group co-owner/moderators, I think I can say there really are no rules other than play nice together LOL!!

We don't have to post our stats in any way, shape or form, unless we want to. Some people just post a hey, I gained or lost or maintained this week or month. Others go so far as to share the actual on-scale numbers. Whatever you feel comfortable sharing.

Group goal...? I would hope since ultimately this is a weight loss eSupport group that the goal is to lose weight and get healthier. It can mean different things to different people. Some are starting out, some are close to or at goal, having lost 100 lbs (give or take). The journey is a shared struggle.

Me: I like having a sounding board. Get on here and ramble my thoughts to the universe vs going in and scrounging through the cupboards out of boredom, stress, depression or just plain habit.

We have a file section that has recipes, etc in it so feel free to add to that and send a message to the group that you added something. Others share articles they come across that are helpful.

I've been doing "something" for weight loss this time around almost 2.5 years and am roughly 53 lbs into this. Really, I am just trying to make healthier eating choices, add in water and exercise and keep the scale going down. If I lose .2 a week or 2.2 a week I am happy. There are ups and downs on my graph, so it isn't a continual loss over here.

I haven't exercised "officially" now for 4 weeks. One full month. I was sick for a good two weeks and then vacation for a week. So really only 1 week that I have been "healthy" that I haven't done anything. Shame on me. LOL!! Soooooo. The real goal for this week is to get back to Curves. With the holiday, I am not even sure their schedule so I might only be able to go twice. Might be more.

I also walk a lot and have exercise DVDs that I like to do, so I have stuff I can do.

Hope you are all having a great weekend,

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hello! My name is Ariel and I am a proud mommy to a 12 month old

with positional plagiocephly named Kayden! I live in Okinawa, Japan

with my husband who is active duty military. Kayden had congenital

torticollis which caused his plagio. Thankfully the tort is no

longer present thanks to pt, but his headshape has not changed.

Right now we are going through the process of getting treatment for

Kayden. Tricare, our military medical insurance provider, will not

cover the cost of bands or helmets. Kayden's deveolpmental pedi is

sending pictures of his head to surgeons in Hawaii to see if we

should have a consultation. Helmets/bands are pretty much a no-go

for us because we are all the way over here. If we were in the

states we would probably opt for the band, but since we would not be

able to all of the follow up appointments required for the band, it

looks like it's not an option.

The thought of surgery really frightens me. I was wondering if

there is anyone here who's child has had it?

Well, it's nice to meet you all!

Ariel

[Guest guest]

Hi Ariel,

welcome to the group. Tricare is known for not paying for this - what

a shame. As for surgery vs a helmet, the band is totally non-invasive

- the exact opposite of surgery. Do you have any family in the US you

could stay with for 3 mo or so? I know it would be difficult to be

away from your husband for so long, even if it is possible, but I

would choose this over surgery. I've really only heard of surgery when

the brain growth is restricted because the sutures fuse too early

(craniosystosis).

Good luck either way.

-christine

>

> Hello! My name is Ariel and I am a proud mommy to a 12 month old

> with positional plagiocephly named Kayden! I live in Okinawa, Japan

> with my husband who is active duty military. Kayden had congenital

> torticollis which caused his plagio. Thankfully the tort is no

> longer present thanks to pt, but his headshape has not changed.

>

> Right now we are going through the process of getting treatment for

> Kayden. Tricare, our military medical insurance provider, will not

> cover the cost of bands or helmets. Kayden's deveolpmental pedi is

> sending pictures of his head to surgeons in Hawaii to see if we

> should have a consultation. Helmets/bands are pretty much a no-go

> for us because we are all the way over here. If we were in the

> states we would probably opt for the band, but since we would not be

> able to all of the follow up appointments required for the band, it

> looks like it's not an option.

>

> The thought of surgery really frightens me. I was wondering if

> there is anyone here who's child has had it?

>

> Well, it's nice to meet you all!

> Ariel

>

[Guest guest]

How sad that you would have to do that to get insurance to pay for

medical treatment. However at 12 mo, I wouldn't wait too long for

insurance to approve ahead of time so maybe this is the way to go.

The ides of banding your child can be overwhelming at first, but it

isn't that bad once you get started. And often within a few weeks you

can start to see improvement. Will you be getting your daughter's band

soon?

-christine

sydney 2 yrs starband grad

> > >

> > > Hello! My name is Ariel and I am a proud mommy to a 12 month

> old

> > > with positional plagiocephly named Kayden! I live in Okinawa,

> > Japan

> > > with my husband who is active duty military. Kayden had

> > congenital

> > > torticollis which caused his plagio. Thankfully the tort is no

> > > longer present thanks to pt, but his headshape has not changed.

> > >

> > > Right now we are going through the process of getting treatment

> > for

> > > Kayden. Tricare, our military medical insurance provider, will

> > not

> > > cover the cost of bands or helmets. Kayden's deveolpmental pedi

> > is

> > > sending pictures of his head to surgeons in Hawaii to see if we

> > > should have a consultation. Helmets/bands are pretty much a no-

> go

> > > for us because we are all the way over here. If we were in the

> > > states we would probably opt for the band, but since we would

> not

> > be

> > > able to all of the follow up appointments required for the band,

> > it

> > > looks like it's not an option.

> > >

> > > The thought of surgery really frightens me. I was wondering if

> > > there is anyone here who's child has had it?

> > >

> > > Well, it's nice to meet you all!

> > > Ariel

> > >

> >

>