Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Just a quick comment regarding the need to be off HC supplements prior to testing...... I usually get my testing done through a company called Labrix. When I read all of the posts saying to be off cortisol, I had my pharmacist (who I go through to get the tests done) contact Labrix and they said that it is not necessary to be off HC prior to testing, and that if you want to see how your body is reacting to the HC you should stay on it for testing. Has anyone else had tests done with Labrix? Anyone else talked with them? It is certainly frustrating that all of these testing companies don't follow the same protocols. Lexie > > We can't help you on this list when you test while on adrenal support. We > can only help with test results that are from not being on anything for 2 > weeks. DHEA, Cortef and Isocort all throw your results off. More than likely > that is why all show high on the tests. You can trust your doctor (which I > would not) OR you can go off all of them for 2 weeks prior to testing and > retest. > > My instincts? That your doctor is full of it, gave you bad advice and that > you are really low in cortisol which is why you feel shaky going off. Your > doctor is also messing with your thyroid. > > Ask you doctor who s/he can figure out your adrenal levels when even the > tests say that supplementing throws off results? Call Diagnos tech or > wherever you got them done. They will confirm that it will throw off the > results being on supplementation. Then get a new doctor. > > Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I haven't used them but the reason to be off is to know where your baseline is. I have done them both before and after cortisol and it DOES make a difference in the testing. Before cortisol showed my accurate state...stage 7 fatigue. After, stage 5 which means it is helping but I have a long way to go. If you never have the baseline test done without the cortisol, you never know what your real adrenal function is. Cheri -----Original Message----- Just a quick comment regarding the need to be off HC supplements prior to testing...... I usually get my testing done through a company called Labrix. When I read all of the posts saying to be off cortisol, I had my pharmacist (who I go through to get the tests done) contact Labrix and they said that it is not necessary to be off HC prior to testing, and that if you want to see how your body is reacting to the HC you should stay on it for testing. Has anyone else had tests done with Labrix? Anyone else talked with them? It is certainly frustrating that all of these testing companies don't follow the same protocols. Lexie . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I haven't heard of them before, but Val has been trying for some time to find a way to make sense out of tests taken while on HC and hasn't had any luck. From everything I've gathered you can tell pretty easily if you are on the correct dose by graphing your temps and doing the blood pressure thing. Plus it doesn't cost anything! Otherwise, the only reason i see to retest would be to see how much if any your adrenal glands have healed and how they produce on their own without supplementation. And there is no way to do that without going off of all HC and adreanl support supplements. :-) Cherie A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort. Herm Albright > Just a quick comment regarding the need to be off HC supplements > prior to testing...... > > I usually get my testing done through a company called Labrix. When > I read all of the posts saying to be off cortisol, I had my > pharmacist (who I go through to get the tests done) contact Labrix > and they said that it is not necessary to be off HC prior to testing, > and that if you want to see how your body is reacting to the HC you > should stay on it for testing. > > Has anyone else had tests done with Labrix? Anyone else talked with > them? It is certainly frustrating that all of these testing > companies don't follow the same protocols. > > > Lexie > > > No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.11/1244 - Release Date: 1/25/2008 7:44 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Thanks, Cheri. I do agree that my doctor is full of it and is really messing me up. I did have a baseline done before going on HC and I was below the range on everything. So, I've been on HC and Isocort for over 8 months now plus taking a ton of other adrenal support stuff. I have been working so hard to take care of them. Is it possible that they can still be low after all I've done? That's why my doc thought I was now high in cortisol and says that I should have only been on HC for 3 months. I've only cut back the Isocort by 7.5 and I do feel bad. Why would my adrenals still be messed up? Maybe because of the over dose of thyroid meds 4 months ago? Does the decrease in thyroid meds effect the adrenals just like the increases? I'm so discouraged now and afraid to go back to a doctor. > > We can't help you on this list when you test while on adrenal support. We > can only help with test results that are from not being on anything for 2 > weeks. DHEA, Cortef and Isocort all throw your results off. More than likely > that is why all show high on the tests. You can trust your doctor (which I > would not) OR you can go off all of them for 2 weeks prior to testing and > retest. > > My instincts? That your doctor is full of it, gave you bad advice and that > you are really low in cortisol which is why you feel shaky going off. Your > doctor is also messing with your thyroid. > > Ask you doctor who s/he can figure out your adrenal levels when even the > tests say that supplementing throws off results? Call Diagnos tech or > wherever you got them done. They will confirm that it will throw off the > results being on supplementation. Then get a new doctor. > > Cheri > ] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Unless you were on a HIGH enough dose of HC you possibly sdid not do much to heal the adrenals. AND I am finding for most ofus it is taking about 2 years to heal them where the HC is no longer needed. You can check for high cortilsl by doing several things, one is seeing if your bP is high, another would be glucose testing. These are not indpendent of other things such as too low thyroid which will alos raise glucose and BP. But they would be indicators. You can also test RT3 to see if thta is blocking the thyrod from working properly which will keep adrenals stressed. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Thanks, . My average bp is 97/66 and my glucose at home is usually between 100 and 117 fasting. My glucose from the lab is normal. So that is probably not really high enough to be indicating high cortisol, right? When and IF I decide to brave it back out into the doctor world, I will get a Rt3 done. Thanks again. I feel better already just having a better idea of what is really going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Yes, it is very possible you are still low, especially if your baseline showed low in everything. I cannot believe your doc is looking at labs while on cortisol and wanting you to lower things. 8 months isn't a very long period, especially with Isocort as part of the plan which isn't strong enough for most of us. You have only been on HC 3 months. As said, many people take 2 years. Can you post your original labs (the baseline ones?). That will help us determine what stage you are at and how effective your treatment is. The overdose of thyroid meds can certainly have made you worse...which again, means more HC is needed. You really need to graph your temps via www.drrind.com. All your symptoms scream too low of cortisol. I think you are undertreated. Your doc is giving bad advice. Please post your old labs as well as exactly what your HC and Isocort treatment is again (the amount of doses and the times you take them). Thanks, Cheri -----Original Message----- Thanks, Cheri. I do agree that my doctor is full of it and is really messing me up. I did have a baseline done before going on HC and I was below the range on everything. So, I've been on HC and Isocort for over 8 months now plus taking a ton of other adrenal support stuff. I have been working so hard to take care of them. Is it possible that they can still be low after all I've done? That's why my doc thought I was now high in cortisol and says that I should have only been on HC for 3 months. I've only cut back the Isocort by 7.5 and I do feel bad. Why would my adrenals still be messed up? Maybe because of the over dose of thyroid meds 4 months ago? Does the decrease in thyroid meds effect the adrenals just like the increases? I'm so discouraged now and afraid to go back to a doctor. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 In december 2006 my cortisol was: 5.1 (7-10) 3.0 (3-6) 1.5 (2-4) 1.0 (<1.5) I started 9 pellets of Isocort April 2007. Interestingly enough I just found another test I had done in May while on this level of Isocort. It was: 16 (13-24) 9 (5-10) 3 (3-8) 6 (1-4) I was still having lots of symptoms and added the HC in June 2007. I had been on 20mg HC and 5 Isocort until about 2 weeks ago when she had me reduce to 2 Isocort and keeping HC at 20. I felt good on the original dose, but because of the swelling, puffiness, hot flashes, and anxiousness she said it was too much cortisol. Plus my thyroid labs showed hyper so they weren't hypo symptoms according to her.I now take 10mg HC with 2 Isocort in am and then 10mg at noon. I use to also take 1 Isocort before bed and she had me cut that out. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 In december 2006 my cortisol was: 5.1 (7-10) 3.0 (3-6) 1.5 (2-4) 1.0 (<1.5) I started 9 pellets of Isocort April 2007. Interestingly enough I just found another test I had done in May while on this level of Isocort. It was: 16 (13-24) 9 (5-10) 3 (3-8) 6 (1-4) I was still having lots of symptoms and added the HC in June 2007. I had been on 20mg HC and 5 Isocort until about 2 weeks ago when she had me reduce to 2 Isocort and keeping HC at 20. I felt good on the original dose, but because of the swelling, puffiness, hot flashes, and anxiousness she said it was too much cortisol. Plus my thyroid labs showed hyper so they weren't hypo symptoms according to her.I now take 10mg HC with 2 Isocort in am and then 10mg at noon. I use to also take 1 Isocort before bed and she had me cut that out. Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 OK...so if I understand it correctly from what you and are saying...there really isn't much value in even taking the isocort if I am already taking HC. I should just stick to the HC and forget the isocort?? > > Yes, she is counting right, however, 5 mg of HC is stronger than 5 mg of > Isocort so keep that in mind. If you do a combo you might be more like 27.5 > mg of cortisol when you are taking 32.5 mg combo. > > I was on 35 mg Isocort and still no where near enough. When I went to 25 mg > HC cream I was getting better results than 35 mg Isocort. on 35 mg of HC > cream compared to 35 mg of Isocort there was a HUGE difference. > > Cheri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 OK...so if I understand it correctly from what you and are saying...there really isn't much value in even taking the isocort if I am already taking HC. I should just stick to the HC and forget the isocort?? > > Yes, she is counting right, however, 5 mg of HC is stronger than 5 mg of > Isocort so keep that in mind. If you do a combo you might be more like 27.5 > mg of cortisol when you are taking 32.5 mg combo. > > I was on 35 mg Isocort and still no where near enough. When I went to 25 mg > HC cream I was getting better results than 35 mg Isocort. on 35 mg of HC > cream compared to 35 mg of Isocort there was a HUGE difference. > > Cheri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 >>OK...so if I understand it correctly from what you and are saying...there really isn't much value in even taking the isocort if I am already taking HC. I should just stick to the HC and forget the isocort??<< I would. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 >>OK...so if I understand it correctly from what you and are saying...there really isn't much value in even taking the isocort if I am already taking HC. I should just stick to the HC and forget the isocort??<< I would. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
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