Re: Success with Derealization!

[Guest guest]

My daughter used to really stress me out a lot with her issues, and one day when I left her house and she had been screaming and yelling, I felt disconnected....like my hands were NOT my hands, and I was driving home. Very weird and scary feeling! She probably knocked all of my available cortisol OUT of me! During this illness, I have had to, and am still learning to "disconnect" from other people's stresses and not take them on. That's mostly why I am in the shape I'm in.....from trying) to solve everyone else's issues...(Family). Not good.

--- On Fri, 6/ 18/10, keickholt13 wrote

Subject: Re: Success with Derealization!To: RT3_T3 Date: Friday, June 18, 2010, 4:40 PM

I agree. I went low on cortisol yesterday when I left the house and immediately started to feel anxious and a twinge of the DP. I KNOW it's cortisol/aldosterone related.Kathleen>

[Guest guest]

I had something like this happen when I tried Pred instead of HC for a few days.

BIG mistake!! I almost passed out, was seeing spots, it was really scary. I know

the low sodium feeling, just didn't know how to differentiate between it and low

cortisol. It's still hard, but I think I'm starting to get a handle on it.

I had one doc who used to tell me to try salt before taking more HC. I guess he

was smarter than I gave him credit for. Too bad he didn't undersand rt3 and kept

wanting me on Armour! lol

My hubby is wonderful, too, very understanding. I mean, we both loved to do

physical things, ski, etc., and then I just fell apart. Havent' been able to ski

for 2 years. And of course, I could barely work, which didn't help. But I feel

so well now we actually booked a ski trip for next February. Yes, I know that's

a long way off but I got a room with the best view, LOL!!!

Kathleen

> > > >

> > > > That is wonderful! I found great improvements with florinef as well

My BF always talks about sodium in our bodies like a battery with low fluids.

Without enough salt nothing can communicate leaving us all foggy, confused,

aggitated etc. I am sure it will present differently from person to person but

still the same idea generally.

> > > > Great to hear you feel so much better Kathleen

> > > >

> > > > Kitty

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: keickholt13 <keickholt13@>

> > > > To: RT3_T3

> > > > Sent: Wed, June 16, 2010 12:20:55 PM

> > > > Subject: Success with Derealization!

> > > >

> > > >  

> > > > I am posting this here and to the NTH Adreanl group since so many seem

to suffer from this debilitating condition, which I will abbreviate as DP (for

depersonalization, which is pretty much the same thing and most have both).

> > > >

> > > > Anyway, long story short, it went almost completely away once I

increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of

shakiness, trembling, feeling spaced out all the time, feeling like I was going

to " fade out. " None of which helps with the DP of course.

> > > >

> > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY

GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2

hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of

anxiety here and there and some spaciness, which I attribute to the stress of

traveling and how hot it was causing some salt loss, but overall, the trip went

off without a hitch and I'm home without a trace of DP left.

> > > >

> > > > I actually think the Florinef helped the DP. Why? I don't know for sure.

Maybe it's because Florinef helps with being spaced out or dizzy due to

electrolyte imbalances and those sorts of things really aggravate DP. Or maybe

it's just that ANY insufficiency of adrenal hormones leads to anxiety and

anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.

> > > >

> > > > Anyway, for anyone suffering from this condition of DP, please hang in

there! And get those dern adrenals fixed. :-)

> > > >

> > > > Kathleen

> > > >

> > >

> >

>

[Guest guest]

You lucky DOG!!!! :-)))

I'm glad to find SOMEONE else who can't take t3 at bed, either. I thought I was

the only person here. It just wakes me right up.

I think I got gung ho and lowered the HC too fast once I started Florinef (which

you warned me not to do!) and now I am getting adreanline rushes big time at

night. So I went back to my old dose of HC today and hopefully I will sleep

better now.

But how could you sleep without HC when you were taking 45 during the day? You

didn't get low cortisol at night? Maybe you had enough reserves to get through?

I thought maybe my HPA axis kicks in at night and makes too high of cortisol but

this waking up with heart pounding now seems more like adrenaline to me. Just

waking constantly, that might be more high cortisol. Have you tried seriphos?

I wanted to do a sleep study but it became apparent all they cared about was

sleep apnea and restless leg syndrome, neither of which I have. GRHHH. I was

hoping maybe they'd test my cortisol and adrenaline (if you can test that) every

time I wake up. I may see if I can get them to do that. If nothing else, it may

help me qualify for rx Xyrem from a local GP. It's used for narcolepsy and off

label for insomnia, but was undergoing FDA approval for insomnia last I heard.

Ambien and Lunesta do nothing for me anymore and I read a post once by Val that

when you're having an adrenaline rush, NOTHING will put you to sleep, which also

makes me suspect adrenline rushes, but who knows. However, Xyrem works every

time no matter what.

Kathleen

> > >

> > > That is wonderful! I found great improvements with florinef as well My

BF always talks about sodium in our bodies like a battery with low fluids.

Without enough salt nothing can communicate leaving us all foggy, confused,

aggitated etc. I am sure it will present differently from person to person but

still the same idea generally.

> > > Great to hear you feel so much better Kathleen

> > >

> > > Kitty

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: keickholt13 <keickholt13@>

> > > To: RT3_T3

> > > Sent: Wed, June 16, 2010 12:20:55 PM

> > > Subject: Success with Derealization!

> > >

> > >  

> > > I am posting this here and to the NTH Adreanl group since so many seem to

suffer from this debilitating condition, which I will abbreviate as DP (for

depersonalization, which is pretty much the same thing and most have both).

> > >

> > > Anyway, long story short, it went almost completely away once I increased

my HC. Unfortunately, I had to take a lot of HC due to my symptoms of shakiness,

trembling, feeling spaced out all the time, feeling like I was going to " fade

out. " None of which helps with the DP of course.

> > >

> > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY

GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2

hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of

anxiety here and there and some spaciness, which I attribute to the stress of

traveling and how hot it was causing some salt loss, but overall, the trip went

off without a hitch and I'm home without a trace of DP left.

> > >

> > > I actually think the Florinef helped the DP. Why? I don't know for sure.

Maybe it's because Florinef helps with being spaced out or dizzy due to

electrolyte imbalances and those sorts of things really aggravate DP. Or maybe

it's just that ANY insufficiency of adrenal hormones leads to anxiety and

anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.

> > >

> > > Anyway, for anyone suffering from this condition of DP, please hang in

there! And get those dern adrenals fixed. :-)

> > >

> > > Kathleen

> > >

> >

>

[Guest guest]

That's interesting because I remember even as a child, I would take on other

people's feelings, I mean it was like I was feeling their pain. I was always a

sensitive kid, but because I hid everything, no one thought of me that way. I

think it's us sensitive types (as well as type A personalities) that end up with

these adrenal problems as we burn them out from all the stress.

But yes, that weird feeling, it's horrid, but luckily, for MOST people, it's

transient and just passes. That's how it's supposed to work. More and more, I

know this is cortisol related. Gee, I am surprised I did so much in my life

before getting " sick " as I was having these issues at 14, but always would

bounce back. Then one day, at 35, no more bounce back.

Kathleen

> >

>

[Guest guest]

Kathleen,Are you getting your florinef from a prescription or internet pharmacy?Also, glad to hear that you booked a ski trip. I live in Colorado and I haven't snowboarded in years because of the problems. I hope that once I get better, I too will be able to hit the slopes again.

Mike

 

I had something like this happen when I tried Pred instead of HC for a few days. BIG mistake!! I almost passed out, was seeing spots, it was really scary. I know the low sodium feeling, just didn't know how to differentiate between it and low cortisol. It's still hard, but I think I'm starting to get a handle on it.

I had one doc who used to tell me to try salt before taking more HC. I guess he was smarter than I gave him credit for. Too bad he didn't undersand rt3 and kept wanting me on Armour! lol

My hubby is wonderful, too, very understanding. I mean, we both loved to do physical things, ski, etc., and then I just fell apart. Havent' been able to ski for 2 years. And of course, I could barely work, which didn't help. But I feel so well now we actually booked a ski trip for next February. Yes, I know that's a long way off but I got a room with the best view, LOL!!!

Kathleen

> > > >

> > > > That is wonderful! I found great improvements with florinef as well My BF always talks about sodium in our bodies like a battery with low fluids. Without enough salt nothing can communicate leaving us all foggy, confused, aggitated etc. I am sure it will present differently from person to person but still the same idea generally.

> > > > Great to hear you feel so much better Kathleen

> > > >

> > > > Kitty

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: keickholt13 <keickholt13@>

> > > > To: RT3_T3

> > > > Sent: Wed, June 16, 2010 12:20:55 PM

> > > > Subject: Success with Derealization!

> > > >

> > > >  

> > > > I am posting this here and to the NTH Adreanl group since so many seem to suffer from this debilitating condition, which I will abbreviate as DP (for depersonalization, which is pretty much the same thing and most have both).

> > > >

> > > > Anyway, long story short, it went almost completely away once I increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of shakiness, trembling, feeling spaced out all the time, feeling like I was going to " fade out. " None of which helps with the DP of course.

> > > >

> > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2 hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of anxiety here and there and some spaciness, which I attribute to the stress of traveling and how hot it was causing some salt loss, but overall, the trip went off without a hitch and I'm home without a trace of DP left.

> > > >

> > > > I actually think the Florinef helped the DP. Why? I don't know for sure. Maybe it's because Florinef helps with being spaced out or dizzy due to electrolyte imbalances and those sorts of things really aggravate DP. Or maybe it's just that ANY insufficiency of adrenal hormones leads to anxiety and anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.

> > > >

> > > > Anyway, for anyone suffering from this condition of DP, please hang in there! And get those dern adrenals fixed. :-)

> > > >

> > > > Kathleen

> > > >

> > >

> >

>

-- Mike

[Guest guest]

Whatever works for you, Kitty, that's what I say. I'm glad you sleep better. I

think broken sleep is better than simply not being able to get back to sleep at

all.

Yes, i went back up on HC yesterday and slept tons better! i did need 2.5 HC

about 3 am, which is when the body normally tries to start producing cortisol

for the next day. And that seemed to wrok fine. So I guess maybe I had just

lowered my overall HC dose way too soon.

Most sleep aids don't give me hangovers. Ambien is very short acting, the half

life is only 2 or 3 hours. But if you're sensitive, it may affect you. If I fell

back asleep, I wouldn't worry about taking sleep meds, either. It's only when I

wake and can't get back to sleep at all that I want them. :-)

Why did you refuse the sleep machine? I hear they are very uncomfortable unless

you get someone who knows how to adjust them properly. I know one guy who says

he sleeps like a baby now that he has his machine.

Kathleen

> > > >

> > > > That is wonderful! I found great improvements with florinef as well

My BF always talks about sodium in our bodies like a battery with low fluids.

Without enough salt nothing can communicate leaving us all foggy, confused,

aggitated etc. I am sure it will present differently from person to person but

still the same idea generally.

> > > > Great to hear you feel so much better Kathleen

> > > >

> > > > Kitty

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: keickholt13 <keickholt13@>

> > > > To: RT3_T3

> > > > Sent: Wed, June 16, 2010 12:20:55 PM

> > > > Subject: Success with Derealization!

> > > >

> > > > ÃÆ'‚ÂÂÂ

> > > > I am posting this here and to the NTH Adreanl group since so many seem

to suffer from this debilitating condition, which I will abbreviate as DP (for

depersonalization, which is pretty much the same thing and most have both).

> > > >

> > > > Anyway, long story short, it went almost completely away once I

increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of

shakiness, trembling, feeling spaced out all the time, feeling like I was going

to " fade out. " None of which helps with the DP of course.

> > > >

> > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY

GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2

hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of

anxiety here and there and some spaciness, which I attribute to the stress of

traveling and how hot it was causing some salt loss, but overall, the trip went

off without a hitch and I'm home without a trace of DP left.

> > > >

> > > > I actually think the Florinef helped the DP. Why? I don't know for sure.

Maybe it's because Florinef helps with being spaced out or dizzy due to

electrolyte imbalances and those sorts of things really aggravate DP. Or maybe

it's just that ANY insufficiency of adrenal hormones leads to anxiety and

anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.

> > > >

> > > > Anyway, for anyone suffering from this condition of DP, please hang in

there! And get those dern adrenals fixed. :-)

> > > >

> > > > Kathleen

> > > >

> > >

> >

>

[Guest guest]

My sleep apnea is very mild and I am a very restless sleeper. I am only 33 and can't imagine being tied to a machine for the rest of my life! I think my apnea was more from allergies anyway since I don't snore anymore that I know of.

Kitty

To: RT3_T3 Sent: Sat, June 19, 2010 11:36:20 AMSubject: Re: Success with Derealization!

Whatever works for you, Kitty, that's what I say. I'm glad you sleep better. I think broken sleep is better than simply not being able to get back to sleep at all.Yes, i went back up on HC yesterday and slept tons better! i did need 2.5 HC about 3 am, which is when the body normally tries to start producing cortisol for the next day. And that seemed to wrok fine. So I guess maybe I had just lowered my overall HC dose way too soon.Most sleep aids don't give me hangovers. Ambien is very short acting, the half life is only 2 or 3 hours. But if you're sensitive, it may affect you. If I fell back asleep, I wouldn't worry about taking sleep meds, either. It's only when I wake and can't get back to sleep at all that I want them. :-)Why did you refuse the sleep machine? I hear they are very uncomfortable unless you get someone who knows how to adjust them properly. I know one guy who says he sleeps like a baby now that he has his

machine. Kathleen> > > >> > > > That is wonderful! I found great improvements with florinef as well My BF always talks about sodium in our bodies like a battery with low fluids. Without enough salt nothing can communicate leaving us all foggy, confused, aggitated etc. I am sure it will present differently from person to person but still the same idea generally. > > >

> Great to hear you feel so much better Kathleen > > > > > > > > Kitty> > > > > > > > > > > > > > > > > > > > ________________________________> > > > From: keickholt13 <keickholt13@>> > > > To: RT3_T3 > > > > Sent: Wed, June 16, 2010 12:20:55 PM> > > > Subject: Success with Derealization!> > > > > > > > ÃÆ'‚ > > > > I am posting this here and to the NTH Adreanl group since so many seem to suffer from this debilitating condition, which I will abbreviate as DP (for depersonalization, which is pretty much the same thing and most have both).>

> > > > > > > Anyway, long story short, it went almost completely away once I increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of shakiness, trembling, feeling spaced out all the time, feeling like I was going to "fade out." None of which helps with the DP of course.> > > > > > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2 hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of anxiety here and there and some spaciness, which I attribute to the stress of traveling and how hot it was causing some salt loss, but overall, the trip went off without a hitch and I'm home without a trace of DP left.> > > > > > > > I actually think the Florinef helped the DP. Why? I don't know for sure. Maybe it's because Florinef

helps with being spaced out or dizzy due to electrolyte imbalances and those sorts of things really aggravate DP. Or maybe it's just that ANY insufficiency of adrenal hormones leads to anxiety and anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.> > > > > > > > Anyway, for anyone suffering from this condition of DP, please hang in there! And get those dern adrenals fixed. :-)> > > > > > > > Kathleen> > > >> > >> >>