Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 hi terri, ive been having the " jerks " too. legs, arms, hands in my sleep too. it does feel wierd and it makes for restless nights....the painkillers make me hyper, not sleepy end up laying awake alot of the times. is this part of the fibromyalgia? thanks for the get well wishes, that alone makes me feel better, excuse the typo's left handed finger pecking peg yitzie4u@... wrote: Hi Peg, I get muscle spasms so bad that my arms feel like jello at times too... I also get them bad enough where my entire body jerks out so hard when I am sleeping that it wakes me up.. I was wonderring if anyone ever goes thru that one.. It is very scary.. I hope you are feeling better.. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 hi terri, ive been having the " jerks " too. legs, arms, hands in my sleep too. it does feel wierd and it makes for restless nights....the painkillers make me hyper, not sleepy end up laying awake alot of the times. is this part of the fibromyalgia? thanks for the get well wishes, that alone makes me feel better, excuse the typo's left handed finger pecking peg yitzie4u@... wrote: Hi Peg, I get muscle spasms so bad that my arms feel like jello at times too... I also get them bad enough where my entire body jerks out so hard when I am sleeping that it wakes me up.. I was wonderring if anyone ever goes thru that one.. It is very scary.. I hope you are feeling better.. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 hi terri, ive been having the " jerks " too. legs, arms, hands in my sleep too. it does feel wierd and it makes for restless nights....the painkillers make me hyper, not sleepy end up laying awake alot of the times. is this part of the fibromyalgia? thanks for the get well wishes, that alone makes me feel better, excuse the typo's left handed finger pecking peg yitzie4u@... wrote: Hi Peg, I get muscle spasms so bad that my arms feel like jello at times too... I also get them bad enough where my entire body jerks out so hard when I am sleeping that it wakes me up.. I was wonderring if anyone ever goes thru that one.. It is very scary.. I hope you are feeling better.. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 that' s intersting missy, the same thing happened with valium. the neurologist prescribes it to help with the spasms but it makes me hper, couldnt sleep w/that drug either,stopped taking drug because it didnt help with the spasms. i quess i should speak with the doctor about it .i cant take perocet at all makes me very sick to my stomach and itchy. never broke out in hives. thanks for the info missy..peg parrot004@... wrote: ....the painkillers make me hyper, not sleepy end up laying awake alot of the This is a side effect from the pain meds. I get the same thing from percocet and the MSIR. I try not to take it in the afternoon/evening (when I most need it!) The doc has also given me Zanaflex to battle this side effect. It is like you take meds to counter the other meds...bad cycle. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 that' s intersting missy, the same thing happened with valium. the neurologist prescribes it to help with the spasms but it makes me hper, couldnt sleep w/that drug either,stopped taking drug because it didnt help with the spasms. i quess i should speak with the doctor about it .i cant take perocet at all makes me very sick to my stomach and itchy. never broke out in hives. thanks for the info missy..peg parrot004@... wrote: ....the painkillers make me hyper, not sleepy end up laying awake alot of the This is a side effect from the pain meds. I get the same thing from percocet and the MSIR. I try not to take it in the afternoon/evening (when I most need it!) The doc has also given me Zanaflex to battle this side effect. It is like you take meds to counter the other meds...bad cycle. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 patidu@... wrote: Peg writes, > Sorry about the previous blank e-mail I sent, Having a hard time for the > past couple days. Spasms are at there max, my right arm feels like jello, > cant grasp anything or hold it. Has anyone experienced this symptom? Hi Peg, So sorry to learn that it's been a bad couple of days. I certainly can relate to that. I'm so desperate to find a way to have a day without pain. Even the little things that I do causes a great deal of pain shortly after. There is a certain amount of consolation knowing that we're not alone. I've had pain in my arms for the past several years. My forearms are sore as boils most of the time. Some days my wrists feel as though I had fallen on them. Pains shoot in the tops of my hands .... especially the left side. I don't know the cause except for blaming it on FM. Be assured that I empathize with what you have shared. My mind goes berserk sometimes trying to keep it all together. lol Take Care! God Bless, Sparky aka Larry --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi, I've been taking Zanaflex for the past 6 weeks. There isn't any change in my pain or the muscle soreness. I see the doctor tomorrow, and he'll probably up the dosage or put me on something else. And, I don't know what that something else could be ... I've taken so many drugs the past 4 years. Sparky parrot004@... wrote: I didn't say that the Zanaflex worked!!! LOL. We are doing a trial with it. It seemed to work for the first week or so, then slowly got less effective. So, he is telling me to take more...what a pain! Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Peg, My pain meds make me as energetic as I can possibly get with this dd... My rheumy told me that major jerks like that are very common with fibro.. Something that has to do with your brain waves trying to tell you to go to sleep buy your body is doing something else?? Also restless leg syndrome can do this with your legs.. I don't know sometimes I get so tired of hearing my rheumy tell me all my symptoms are related to fibro.. I am sure he is right because I have had what seems like a million mri's, catscans, xrays,and blood work to rule out everything else possible.. Plus fibro has so many unexplainable symtoms... anyways it is 7:00 a.m Monday here and I wanted to tell you I hope you are feeling better. I have to get ready for school and then get my two little ones up for school as well.. Again, hope all is well for you and everyone else here!!!! Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Peg, My pain meds make me as energetic as I can possibly get with this dd... My rheumy told me that major jerks like that are very common with fibro.. Something that has to do with your brain waves trying to tell you to go to sleep buy your body is doing something else?? Also restless leg syndrome can do this with your legs.. I don't know sometimes I get so tired of hearing my rheumy tell me all my symptoms are related to fibro.. I am sure he is right because I have had what seems like a million mri's, catscans, xrays,and blood work to rule out everything else possible.. Plus fibro has so many unexplainable symtoms... anyways it is 7:00 a.m Monday here and I wanted to tell you I hope you are feeling better. I have to get ready for school and then get my two little ones up for school as well.. Again, hope all is well for you and everyone else here!!!! Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi Peg, My pain meds make me as energetic as I can possibly get with this dd... My rheumy told me that major jerks like that are very common with fibro.. Something that has to do with your brain waves trying to tell you to go to sleep buy your body is doing something else?? Also restless leg syndrome can do this with your legs.. I don't know sometimes I get so tired of hearing my rheumy tell me all my symptoms are related to fibro.. I am sure he is right because I have had what seems like a million mri's, catscans, xrays,and blood work to rule out everything else possible.. Plus fibro has so many unexplainable symtoms... anyways it is 7:00 a.m Monday here and I wanted to tell you I hope you are feeling better. I have to get ready for school and then get my two little ones up for school as well.. Again, hope all is well for you and everyone else here!!!! Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Missy, What is msir and zanaflex???My next appt. with my rheumy is this Friday and maybe I should ask him about something to help with the side effect of my pain med( percocet) making me hyper.. thanks in advance Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Missy, What is msir and zanaflex???My next appt. with my rheumy is this Friday and maybe I should ask him about something to help with the side effect of my pain med( percocet) making me hyper.. thanks in advance Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Missy, What is msir and zanaflex???My next appt. with my rheumy is this Friday and maybe I should ask him about something to help with the side effect of my pain med( percocet) making me hyper.. thanks in advance Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 MSIR is a type of morphine, and the zanaflex is a muscle relaxer. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 been taken vicodin for the past week. really doesn't help, makes me sick to my stomach... Peg, are you taking the Vicodon with milk or food. I take it also and on my bottle of medication it has a notice that it needs to be taken with milk of food or it could upset your stomach. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 been taken vicodin for the past week. really doesn't help, makes me sick to my stomach... Peg, are you taking the Vicodon with milk or food. I take it also and on my bottle of medication it has a notice that it needs to be taken with milk of food or it could upset your stomach. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 been taken vicodin for the past week. really doesn't help, makes me sick to my stomach... Peg, are you taking the Vicodon with milk or food. I take it also and on my bottle of medication it has a notice that it needs to be taken with milk of food or it could upset your stomach. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 hi terri, been taken vicodin for the past week. really doesnt help, makes me sick to my stomach... cant take the pain any more, normally i force my self to get up and clean, cook, laundry animals and kids and go to work. sounds like you haven't been able to do too much latel. that makes me upset because i've always been active with my children. went sledding and skating etc. cant do that too much any more. haven't done it at all lately. they miss there " old " mom and i miss the old me. my youngest just turned 12 yesterday. i had wanted to go white water rafting when they were older and now that the boys are my body decides to rebell. i give you alot of credit because i know it would be really difficult trying to care for young children and deal with all the pain and fatigue. one of the major reasons i have decided not to have another child now. thanks for your support terri, hopefully i can do the same for you sometime. peg yitzie4u@... wrote: Hi Peg, My pain meds make me as energetic as I can possibly get with this dd... My rheumy told me that major jerks like that are very common with fibro.. Something that has to do with your brain waves trying to tell you to go to sleep buy your body is doing something else?? Also restless leg syndrome can do this with your legs.. I don't know sometimes I get so tired of hearing my rheumy tell me all my symptoms are related to fibro.. I am sure he is right because I have had what seems like a million mri's, catscans, xrays,and blood work to rule out everything else possible.. Plus fibro has so many unexplainable symtoms... anyways it is 7:00 a.m Monday here and I wanted to tell you I hope you are feeling better. I have to get ready for school and then get my two little ones up for school as well.. Again, hope all is well for you and everyone else here!!!! Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 tizjewel wrote: > I've found alot of companionship with our " Teddy " he's > a chowchow looks like a teddy bear and our growing > black and white kitten " Snuggles " . Pets can help a lot with taking your mind off things and amusing you with their antics! I find a lot of comfort with my cats. Do the cat and dog play together? Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 tizjewel wrote: > I've found alot of companionship with our " Teddy " he's > a chowchow looks like a teddy bear and our growing > black and white kitten " Snuggles " . Pets can help a lot with taking your mind off things and amusing you with their antics! I find a lot of comfort with my cats. Do the cat and dog play together? Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 I had that done last year Cindy. I'm sorry to say it didn't help at all. It was very painful to pee for a few days but nothing unbearable. Maybe it will help you but for me it did not. Good luck. Ellie (unknown) Well, I went to the urologist yesterday (they rescheduled my appointment) and after a few minutes of questions and an examination of pressing on all the sore spots! he is scheduling me in to test for IC. I have to wait 5 months for a time in the hospital. Has anyone had their bladder stretched and filled with water with a tube going through their urethra (spelling:) ). I must say, it sounds quite painful. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 I had that done last year Cindy. I'm sorry to say it didn't help at all. It was very painful to pee for a few days but nothing unbearable. Maybe it will help you but for me it did not. Good luck. Ellie (unknown) Well, I went to the urologist yesterday (they rescheduled my appointment) and after a few minutes of questions and an examination of pressing on all the sore spots! he is scheduling me in to test for IC. I have to wait 5 months for a time in the hospital. Has anyone had their bladder stretched and filled with water with a tube going through their urethra (spelling:) ). I must say, it sounds quite painful. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 --- Ellie jewell@...> wrote: > I had that done last year Cindy. I'm sorry to > say it didn't help at all. It was very painful > to pee for a few days but nothing unbearable. > Maybe it will help you but for me it did not. > Good luck. Ellie > (unknown) > > > Well, I went to the urologist yesterday > (they > rescheduled my appointment) and after a few > minutes of > questions and an examination of pressing on > all the > sore spots! he is scheduling me in to test > for IC. I > have to wait 5 months for a time in the > hospital. Has > anyone had their bladder stretched and filled > with > water with a tube going through their urethra > (spelling:) ). I must say, it sounds quite > painful. > > Cindy > > > > > [Non-text portions of this message have been > removed] > > Hi Cindy, I had a hydrodistension done last March. They put me to sleep. I woke up on a gurney while they were pushing me to recovery. When I woke up, it felt like I had a full bladder. I sat right up on the gurney and yelled, " I have to pee. " I heard one of the nurses say to the other, " Distension? " Anyway, my bladder really was empty. They gave me morphine, and then I was fine. Some people feel better after having it done. Not so with me. The uro put me on Elmiron and Vicodin, and I'm much better. Joanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 --- Ellie jewell@...> wrote: > I had that done last year Cindy. I'm sorry to > say it didn't help at all. It was very painful > to pee for a few days but nothing unbearable. > Maybe it will help you but for me it did not. > Good luck. Ellie > (unknown) > > > Well, I went to the urologist yesterday > (they > rescheduled my appointment) and after a few > minutes of > questions and an examination of pressing on > all the > sore spots! he is scheduling me in to test > for IC. I > have to wait 5 months for a time in the > hospital. Has > anyone had their bladder stretched and filled > with > water with a tube going through their urethra > (spelling:) ). I must say, it sounds quite > painful. > > Cindy > > > > > [Non-text portions of this message have been > removed] > > Hi Cindy, I had a hydrodistension done last March. They put me to sleep. I woke up on a gurney while they were pushing me to recovery. When I woke up, it felt like I had a full bladder. I sat right up on the gurney and yelled, " I have to pee. " I heard one of the nurses say to the other, " Distension? " Anyway, my bladder really was empty. They gave me morphine, and then I was fine. Some people feel better after having it done. Not so with me. The uro put me on Elmiron and Vicodin, and I'm much better. Joanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 --- Ellie jewell@...> wrote: > I had that done last year Cindy. I'm sorry to > say it didn't help at all. It was very painful > to pee for a few days but nothing unbearable. > Maybe it will help you but for me it did not. > Good luck. Ellie > (unknown) > > > Well, I went to the urologist yesterday > (they > rescheduled my appointment) and after a few > minutes of > questions and an examination of pressing on > all the > sore spots! he is scheduling me in to test > for IC. I > have to wait 5 months for a time in the > hospital. Has > anyone had their bladder stretched and filled > with > water with a tube going through their urethra > (spelling:) ). I must say, it sounds quite > painful. > > Cindy > > > > > [Non-text portions of this message have been > removed] > > Hi Cindy, I had a hydrodistension done last March. They put me to sleep. I woke up on a gurney while they were pushing me to recovery. When I woke up, it felt like I had a full bladder. I sat right up on the gurney and yelled, " I have to pee. " I heard one of the nurses say to the other, " Distension? " Anyway, my bladder really was empty. They gave me morphine, and then I was fine. Some people feel better after having it done. Not so with me. The uro put me on Elmiron and Vicodin, and I'm much better. Joanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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