Preliminary Results from the Parental Resilience Survey and request for more participants

[Guest guest]

Dear List mates

For those that are interested in the preliminary results for

the Parental Resilience Survey that information is belowand for those who would like for their

experiences and voice to be included in the final study results, the survey

link is https://www.surveymonkey.com/s/Z89NVV8

Preliminary Study Results

The preliminary study results are indicating that the survey

supports further need for agency support for families to support mom's and dad's

in addition to their child (or children) and further families raising an ASD

child do in fact experience different stressors than families raising typical

children and it is important that both Mom and Dad remain resilient for their

families to be strong.

While for those of us raising ASD children, this isn't a

surprise, this fact is not evident in the published literature, nor to many

State agencies.

Given the new Health Care changes that are now in effect,

this current lack of "evidence based" literature does not support

either continued care or additional care for families with ASD children,

potentially placing current federal and state funding at risk for our families.

With both budget cuts at the federal and state levels, this

lack of published literature is not helping our families. Moreover, the

lack of current published literature only supports private insurance companies

justification for insurance claim denials.

So to further support adding to the published family ASD

literature, I am planning on publishing not only the Dissertation, but

several other articles from the data collected, in hopes that this data will

help support continued care that support families raising an ASD child. To

date, the preliminary data supports this cause, however to be accepted in the

peer reviewed journals, I need a min number of survey responses (which I are

very close at obtaining).

For those who still would like for your experience and voice

to be included in final study results here is the offiacial University IRB

study announcement.

Parental Resilience Survey Request

My Name is Curtis Cripe. I am a stepfather of

an ASD child, health care professional, and a Doctorial candidate

with Northcentral University School of Behavioral Health Sciences, Prescott,

Arizona. Currently I am conducting a research study that, through your

participation, can help other parents, agencies, and potentially government

programs. The study is exploring in families raising special needs children how

resilient parents can help keep their families strong. This study is focusing

on the relationship between each parent's resiliency and how that affects the

entire family's resilience and parental stress.

As you are well aware, families raising special needs

children face unique challenges that parents are required to navigate that

differ from families who are not raising an special needs child. These

differences are often not understood by family therapists and other support

agency members. It is hoped that the results of this study will help influence

family therapists by showing what these relationships are when raising a

special needs child.

The survey should take approximately 20-40 minutes to

complete (depending upon your internet connection speed and the time you spend

on each question). The survey can be completed by families with both parents,

or single parent families. If both parents complete the survey

they are required to complete the survey at the same time. It is

hoped that many families with both parents do complete the survey, so I can

show the relationship between both parents' resilience and how that affects the

family.

Here is the link to the survey. Please either click on the

link or copy it into a browser

https://www.surveymonkey.com/s/Z89NVV8

A copy of your results that show how resilient each parent is

within your family, your overall family resiliency, and how much stress each

parent is under will be available after completing the survey. These

standardized survey instruments are the same instruments that a family

therapist would use, but would require three separate meetings.

Therefore, there is value in your results of the survey to you and your

family beyond the value this study can bring to other families facing the same

challenges.

Thank you in advance for your participation.

Curtis