Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 wow thanks Kathleen! still waiting to hear from Nick or Val too...But.. the reason I am confused is because yeah, I keep thinking the feeling of no oxegen is low t3..so I take more..but Val said it was high( over range) and then I felt some better lowering it but then had the horrible hip pain. Now Im back upping the dose to 87mcg and feeling the heart thing..but also stomach pains like hyper...thats why Im confused. Cant find a happy medium..and not sure why I feel this exhaustion. I will take more magnesium..and right now will try potassium. I skipped my t3 dose this morning because of how bad I feel..in the stomach. Subject: Re: whoops I was low pulse/ low sodiumTo: RT3_T3 Date: Friday, May 14, 2010, 12:46 PM Leisa,Low cortisol can cause your feeling dizzy, not wanting to stand, even if your sodium is good.Low carb can make your potassium too low and I think yours looks like you could take some. Certainly, being mid-range, it couldn't hurt anything to try.Potassium has helped with my pounding heart greatly, although I know you said you actually feel like you can't get enough oxygen. I think that is "air hunger" and is generally a hypo symptom.Magnesium helps everything; it is so important to the body, period, so I would supp it if you are low! It DOES affect your heart very much.Yes, your ft3 was high BUT if by any chance you have thyroid resistance, it will be high, but maybe not that high...And, of course, low cortisol will make the t3 pool and not get into the cells, which (1) makes you feel hypo even though on higher doses of t3 and (2) could be causing some of your symptoms.Kathleen> > > > Subject: Re: whoops I was low pulse/ low sodium> To: RT3_T3 > Date: Thursday, May 13, 2010, 11:45 PM> > > > > > > > > > > > > maybe low potassium and magnesium? Are you taking anything for either? My heart would pound very hard before I started to supplement both things. Maybe you need to go to HC? Not sure since I don't know the entire history.> > Kitty> > > > > > > To: RT3_T3 > Sent: Thu, May 13, 2010 10:24:23 PM> Subject: whoops I was low pulse/ low sodium> > > > Help. I was low sodium..then low potassium> Now recently Im so tired and sqeezing like no oxygen in heart.> Well the bloodwork came back...I dont understand but,> sodium 147 H (135-145)> potassium 4.0 (3.5- 5.2)> anion gap 19 H (4-18)> urine osmoality 220 L (300-900)> and WBC still is and always LOW> MCH is LOW> ANY CLUES? I do eat very low carb. I dont take salt, but try to eat plenty..especially since it's always been low. I have been trying to take more Isocort due to exhaustion. > I was told by my Dr and Val to lower my t3 from 100mcg to 75mg..due to 7.5 ft3.> But then my hair got worse and I got a severe incapacitating hip tendonitis that caused me to not be able to walk for months. > I recently went back up on t3 in between the 2 amounts to 87.mcg. I take 12-15 isocort a day. Thank you, leisa>------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 > >wow thanks Kathleen! still waiting to hear from Nick or Val too. I'll agree, soounds adrenal. are you on HC?? Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Thanks Nick, Im on 14 isocort a day. I did very poorly on hc..and always well done on isocort. I have creeped up to this amount>>wow thanks Kathleen! still waiting to hear from Nick or Val too.I'll agree, soounds adrenal. are you on HC??Nick-- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Thanks Nick, Im on 14 isocort a day. I did very poorly on hc..and always well done on isocort. I have creeped up to this amount>>wow thanks Kathleen! still waiting to hear from Nick or Val too.I'll agree, soounds adrenal. are you on HC??Nick-- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Dear Kathleen, Thank you. I have been considering trying for disability, but doubt my problem would be recognized, as Dr's refuse to give it a name. I would love to work from home! If you have any ideas, please share. Thanks for saying that the lack of breath can also be low cortisol, and not necessarily low t3. Okay..Ill try more Isocort..but 6 more is too much to jump up, I think. Ill try 2 extra..? That would be about 25 miligrams..?By the way what is a good break down of when to take. I usually have better energy in the am and comatose there on out, so I take 7am 3 isocort 11:30 4 isocort 1:30 3 or 4 isocort 3:30 3 isocort I do have the same potassium, and did feel better taking it..I just get so confused about how much salt/potassium and symptoms regarding. One bad thing I have is swelling of my legs...I think it means I need potassium when that happens. Normally a bodys own system regulates this constant see-saw. Do you know what Magnesium Malate is ? I take that. I also have the magnesium oil, but seems I feel bad when taking it. I believe it could be so strong that it possibly throws potassium lower? No sure though. Finally re t3. I struggle with being able to handle 75mcg, but having hypo symtoms OR 87. and better hypo symtoms, but profound adrenal symptoms...so yes I think I need Isocort upped..at this point, what is my Dr afraid of? I am already addicted to it. Thank you again, leisa Subject: Re: whoops I was low pulse/ low sodiumTo: RT3_T3 Date: Sunday, May 16, 2010, 10:49 AM Leisa,Sorry you are feeling so unwell at work. :-( If I weren't able to work from home, I would be unemployed myself. So please do NOT worry yet. I have been at this 5 years and only NOW starting to see a light at the end of the tunnel.Ok, Nick wrote and said he agreed it sounds adrenal.I know when, at the prompting of one doc who was sure I was going to kill myself with HC, I weaned off before ready, I remember having this episodes of not being able to breathe, like I couldn't get in enough air. It woke me up several times and was scary but would happen during the day as well. And no, I don't have sleep apena. I was having a ton of other low cortisol symptoms, so I never what it was. I read on the STTM site that air hunger is low cortisol for some people, maybe because when your cortisol is low, the t3 can't get into your cells, I don't know.At any rate, your 14 Isocort only equals about 21 mg HC. I just did the math. I am guessing you need more! I was only taking 11.25 HC because I was scared of it and went up to 25 at Val's encouragement and OMG, what a difference. Why not try taking more Isocrot and at least see if it helps you? Taking more for a few days is not going to hurt you one bit and you caould easily go back down after a few days if you saw no improvemment at all.Also, the potassium -- I had to take about 3500 mg to get the effects of relaxing my heart and stopping the pounding (along with raising HC, which also causes pounding when it's too in me). I just use NOW brand powered K+. 1/4 tsp is 750 mg K+ so it's very easy to take and it's dirt cheap! :-)I also bumped my magnesium back up since I'm taking at least 1:1 ratio with calcium. Yes, I take a LOT of magnesium, at least 1000 mg a day, but boy did it help with my heart and also to relax. If you take mag glycinate, it shouldn't cause too many bowel problems. Or the topical is good, too, I saw you were doing espsom baths. I think you can even buy magnesium cream.If the 87.5 t3 seesm to make you feel better and your labs are high, it could be pooling because your cortisol is low. And the oxygen thing -- it didn't go away decreasing the t3, so again, I think you may need more Isocort. I know Dr. Lowe's patient all have very high ft3 because most of his patients are thyroid resistant and just need a lot, but unfortunately, I have not idea what their actual ranges are. But ft3 of 700 -- if Val said that is too high, I trust her completely and likely you are pooling due t low cortsiol.Why not try an extra 6 Isocort today and see if you feel better?Kathleen>> wow thanks Kathleen! still waiting to hear from Nick or Val too...But..> the reason I am confused is because yeah, I keep thinking the feeling of no oxegen is low t3..so I take more..but Val said it was high( over range) and then I felt some better lowering it but then had the horrible hip pain. > Now Im back upping the dose to 87mcg and feeling the heart thing..but also stomach pains like hyper...thats why Im confused. Cant find a happy medium..and not sure why I feel this exhaustion.> I will take more magnesium..and right now will try potassium. I skipped my t3 dose this morning because of how bad I feel..in the stomach.> ------------------------------------We are not medical professionals here, just patients sharing our experiences. Please use this information with the help of a competent doctor. Quote Link to comment Share on other sites More sharing options...
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