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Re: New here and would love some advice! (very long)

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CT is trained specifically to band babies. They have also been

around the longest. As for other banding companies, it truly

depends on the experience of the ortho. We had a great experience

with CT and the results our son got. I'm not sure that you need PT,

Oesteopath and a Chiro...could they be contradicting one another's

work? I would ask your ped. if a neurosurgeon (or another

specialist doctor) is necessary or not OR if you feel a specialist

is necessary then demand a referral. I would NOT base who you have

band your son with on if they use a scanner or cast...the casting is

not that bad and it is so quick. Some of the CTs now have the

scanner thing. I wouldn't wait too much longer if you are going to

band...the earlier the better (quicker and better results). Good

luck.

>

> Hello, my name is and I have a son who will turn 7 months

> old on Tuesday. To make a long story kinda short..he has plagio

and

> torticollis. It took his pediatrician 4 months to beleive me that

he

> seemed " off " , finally he referred us to Early Intervention and

they

> said he has tort. We have been seeing both a Chiropractor and

> Osteopath, and the Chiropractor doesnt want to call it torticollis

> because his whole right side is involved and he says it is birth

> related and he is going thru and " unwinding " process. The Osteo

says

> you can call it torticollis, but with it involves more than

> just his neck muscle, so its more than that. She also said he has

the

> Plagio thing. I am having a very hard time, because the

pediatrician

> is so laid back about it all. The Chiro doesnt even think he needs

> the PT he is getting 1x a week (I do), and both the Chiro and the

> Osteopath think that this will resolve with their treatment and

time,

> no need for helmet/bands or testing. In fact the Chiro is actually

> against the helmet/band. So I have been going by their advice to

> continue treatments they are doing...but his head shape really

bugs

> me, and his face has some asymetry (sp?) His one ear is forward a

> bit, as well as his forhead. ANd his right eye seems to turn in.

We

> took him to a pediatric optimoligist for his eye and she thought

it

> just " looked " like it turned in (strambisis) because of the bridge

of

> his nose..but it still really bugs me.

>

> So anyway, I have been going back and forth on whether I should

just

> continue the PT and trust the Chiro and Osteopath that it will

> resolve. Or whether I should take him to Cranial Tech or Childrens

> Memorial and get him looked at and consider a band... and maybe

xrays

> or something. I posted on the torticollis website too, but I

wanted

> to ask the plagio board what you thought. What would you all do?

Is

> anyone in a similar situation?

>

> Oh, last question. I dont know whether to take him to Crainial

Tech

> or to Childrens Memorial Hospital who has the Starscanner

equipment

> that actually maps the head, and a cranialfacial surgeon and a

> neurosurgen. What would the difference be? Does Cranial tech check

> for what would be causing the plagio and tort and stuff, do they

> recommend testing or anything, or do they just evaluate the

headshape

> and recommend to band or not? Should I go with the place with the

> cranialfacial surgeon and neurosurgen since he has other stuff

going

> on like tort as well as plagio so they can check him for more

wrong

> or what is causing it? I dont know the difference between Cranial

> Tech and other locations.

>

> Also, what is better.. the band from Cranial or other helmets. It

> seems like everyone really likes the DOC band thingy. Can you tell

me

> why?

>

> I'm so sorry if I am asking too many questions... I did this on

the

> tort board too. Its just so nice to finally have someone to talk

to

> about it who knows what I am going through! I am so glad I found

> these boards!

>

> Thank you!

>

>

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My son, who is 6. 5 months old, is getting his DocBand this Thursday,

1/10. He has Plagiocephaly and Torticollis. I noticed the

torticollis at 3 months and his pediatrician said not to worry about

it. I took him back at 4 months and spoke of my concerns and the

pediaitrician again said not to worry. At 5 months, I said enough is

enough and took my son for a free evaluaciton at Cranial Tech. There

they calssified him as moderate to severe with his plagiocephaly.

So, first thing first, go with your gut if you think he needs more

attention than the pediaitrician is giving you. We are currently

going to PT once a week for the torticollis and between the PT and

stretching that seems to be getting better. We tried all the re-

positioning techniques for the plagio, but it didn't work because my

son is a back sleeper and would just wiggle himself to the position

he wanted to be in. I think you should check out Cranial Tech now,

early intervention is key to helping your child.

I hope this information helps and remember we are our childern's

voices right now in life, so speak up for him:)

>

> Hello, my name is and I have a son who will turn 7 months

> old on Tuesday. To make a long story kinda short..he has plagio and

> torticollis. It took his pediatrician 4 months to beleive me that

he

> seemed " off " , finally he referred us to Early Intervention and they

> said he has tort. We have been seeing both a Chiropractor and

> Osteopath, and the Chiropractor doesnt want to call it torticollis

> because his whole right side is involved and he says it is birth

> related and he is going thru and " unwinding " process. The Osteo

says

> you can call it torticollis, but with it involves more than

> just his neck muscle, so its more than that. She also said he has

the

> Plagio thing. I am having a very hard time, because the

pediatrician

> is so laid back about it all. The Chiro doesnt even think he needs

> the PT he is getting 1x a week (I do), and both the Chiro and the

> Osteopath think that this will resolve with their treatment and

time,

> no need for helmet/bands or testing. In fact the Chiro is actually

> against the helmet/band. So I have been going by their advice to

> continue treatments they are doing...but his head shape really bugs

> me, and his face has some asymetry (sp?) His one ear is forward a

> bit, as well as his forhead. ANd his right eye seems to turn in. We

> took him to a pediatric optimoligist for his eye and she thought it

> just " looked " like it turned in (strambisis) because of the bridge

of

> his nose..but it still really bugs me.

>

> So anyway, I have been going back and forth on whether I should

just

> continue the PT and trust the Chiro and Osteopath that it will

> resolve. Or whether I should take him to Cranial Tech or Childrens

> Memorial and get him looked at and consider a band... and maybe

xrays

> or something. I posted on the torticollis website too, but I wanted

> to ask the plagio board what you thought. What would you all do? Is

> anyone in a similar situation?

>

> Oh, last question. I dont know whether to take him to Crainial

Tech

> or to Childrens Memorial Hospital who has the Starscanner equipment

> that actually maps the head, and a cranialfacial surgeon and a

> neurosurgen. What would the difference be? Does Cranial tech check

> for what would be causing the plagio and tort and stuff, do they

> recommend testing or anything, or do they just evaluate the

headshape

> and recommend to band or not? Should I go with the place with the

> cranialfacial surgeon and neurosurgen since he has other stuff

going

> on like tort as well as plagio so they can check him for more wrong

> or what is causing it? I dont know the difference between Cranial

> Tech and other locations.

>

> Also, what is better.. the band from Cranial or other helmets. It

> seems like everyone really likes the DOC band thingy. Can you tell

me

> why?

>

> I'm so sorry if I am asking too many questions... I did this on the

> tort board too. Its just so nice to finally have someone to talk to

> about it who knows what I am going through! I am so glad I found

> these boards!

>

> Thank you!

>

>

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