Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 Thank you Joyce Links Someone posted a LINK on the crew sometime ago, showing the medical glossary of the head and spine. Could you post that link privately bacross@... pretty please. - oh it might have been a AN site... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2002 Report Share Posted December 20, 2002 Olivia, I am 27 and this is my first child. Hopefully one of many. That is a good idea about having your girlfriend in the delivery room with you! My husband I am sure will not be very calm. I am trying not to worry about NF2. Now all I worry about is feeling the baby kick. I am 27 weeks along (6 months) and I worry when I don't feel the baby kicking. Your right there is nothing we can do anyway about the tumors but, I sure do a lot of praying. Tiffney -----Original Message-----From: OKamador@... Sent: December 20, 2002 2:09 AMTo: NF2_Crew Subject: For Hi Congratulations! A little girl! I wanted a girl really bad, I cried when they told me it was going to be a boy! I feel so dumb for that now because all babies are blessings. How old are you if you don't mind me asking? Is this your first? It sounds like you have a lot of family support, that is so good. You know your baby is loved when people argue over who get's to see him on the holidays!!! I have one piece of advice, and only one cuz I was so tired of advice when I was pregnant... wait ok two things: 1. Buy "The Girlfriend's Guide to Pregnancy" by Vicki Iovine. Such a funny book! 2. When you go into the labor room take your baby's father and your best girlfriend. Because while your man is busy eating all your ice chips and controlling the tv, you girlfriend will take care of you. Your friend can take pictures when the baby is born, and hold your hand through the end, because once that baby is born all the attention you've had leaves with her. Anyways, this got long, sorry, but try not to worry about the nf2 right now. Their isn't anything you can do anyways so just keep enjoying your pregnancy. Take care!Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 >Steroids are a stimulant. >>Any ideas how to get some energy back without doing the artificial stimulant thing? If your still on the pred can you take your dosage in the AM so you get maximum effect of the stimulus and it wears out so you are " tired " enough to sleep at night - either with or without aid of a sleeping medication? Sue --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.596 / Virus Database: 379 - Release Date: 2/26/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hang in there , Just a short time to go now. We are all pulling for you and you are so close. It's great to hear how well you are doing - keep it up. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hang in there , Just a short time to go now. We are all pulling for you and you are so close. It's great to hear how well you are doing - keep it up. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 Hang in there , Just a short time to go now. We are all pulling for you and you are so close. It's great to hear how well you are doing - keep it up. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 > Michele, > I only took Coumadin while recovering from my two ablations. Before that I was on aspirin. Now I don't take anything. What interests me is your comment about the bronchitis. I have the same problem, and I also have bronchiectasis. I was spitting up blood for over 20 years. Oddly enough taking two multivitamins per day seems to have helped. It now seems that this was caused in part by low IGA sub class readings -- an immune system problem. My hemoglobin level is also a little high. Has anyone else experienced this problem? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Hi , Any antibiotic you take will effect Coumadin. I have bronchitis every winter and go through hell with the coumadin numbers. Sometimes it takes a month to get the numbers back to normal. Michele --- rdelledu@... wrote: > My first episode occured while taking Cipro. > Levaquin was later also a > problem. > > > > [Non-text portions of this message have been > removed] > > __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Okie, dokie . I'll send 'em to ya! You can downsize the calories by using sugar- free Jell-O and fat-free products like sour cream or cream cheese. Kathleen On 21 Nov 2005 at 0:41, TexasTOPS wrote: > From: mwdw@... > Subject: Re: Recipes for Grammy Pat > > In a message dated 11/20/2005 5:02:55 PM Central Standard Time, > KathleenPL@... writes: > Pat, > I have sent you some cranberry and Jell-O recipes to your email address > rather than sending to the whole group. I know a lot of people wouldn't be > interested in them Kathleen, > > I would loveto have them recipes you sent to Grammy Pat. > > Love ya, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 ,I have IC and clitoradynia. I can have sex. I just have this constant clitoral burning like I have a piece of glass constantly cutting me. The idea of having a catheter near my urethra makes me shudder. As a result, I've made the decision to treat my problems holistically.I've altered my diet (for the IC), but am thinking of taking a new pain blocking med that a neurologist recently prescribed called lyrica. All along (I've only been dealing with this for 8 months), I've felt like I have an infection- but every doctor tells me that I don't. Two docs, however, have told me they think I have lyme disease. It's so controversial, I don't know if I believe it as I've had three others tell me I don't have it. All I know, , is that this is INSANE. I could never have imagined the pain I feel or felt to anyone before January. Have you ever read Simone's book, called Along a Healing Path? It's a great book on IC.rachel metzdorf wrote: I would like to know what strength of Lidocaine you used, and what specific pain symtoms you had. What other types of numbing creams are there? I have IC, and with going to the bathroom so much, it's very hard to keep any cream on. Any others here have IC? On 9/2/07, timeflies <TIME-FLIES (AT) charter (DOT) net> wrote: Along with my pudendal nerve surgery, I ALSO had a vestibulectomy. It turned out perfect – all my surface pain is now gone – I no longer have to use Lidocaine, or any other numbing creams. (I have a medicine cabinet full) The vestibulectomy surgery was painless (less than two weeks ago). I can't even feel where the stitching was done. The only reason I am mentioning this is to dispel all the awful vestibulectomy posts that have proliferated over the years. If you have VV pain, there is a solution – there is no reason to continue to suffer. It works – it really does. I don't know how much stronger that I can write this. If you want to talk about it further, please don't hesitate to email me privately. I can truly attest that this is a good surgery. In regards to my pudendal surgery, I will still have pain from Pudendal Neuropathy for a long time. Especially butt pain – I feel like I have been kicked by a horse!! Not from the surgery itself, but from the nerves healing. nne ----My situation is very much like yours. I had a partial vestibulectomy 4 years ago and I also have LS. I'm not perfect either but substantially improved! Sandy -- Visit me at http://www.homekeepermamaof3.blogspot.com Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Ok, somebody correct me if I'm wrong, but if you have high RT3 and take T4 you will end up iwth more RT3 and feel worse? Have I missed something here? sol Gikas wrote: > I don't know that this protocol will work for me since I have high reverse T3 and I believe need more T3 than he has prescribed, but I will try it and maybe add in a little of my cytomel here and there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Sorry I didn't see that post. Lately there seem to be more and more posts and I often lag behind. Did you tell him you had reverse t3 issues? Does he buy into that? I heard none of his patients are on HC. I also heard they're all doing great. Keep us up to date on what works for you, please. Naffy > > I saw Blanchard yesterday. I posted about it. He is a pretty cool guy and I liked him. He prescribed a combination of Levoxyl (no dye tablets) and small dose of timed release T3. He also put me on 5,000 iu Vitamin D. I don't know that this protocol will work for me since I have high reverse T3 and I believe need more T3 than he has prescribed, but I will try it and maybe add in a little of my cytomel here and there. He seems workable and if something doesn't work for his patients, he's open to trying other treatments, e.g. Armour for some, etc. > > > For > > > Hi ....I read a while ago that you were going to see Blanchard. > Am I correct? > > Have you seen him? How did it go? Anything new you can share with us? > > Thanks, > Naffy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Sorry I didn't see that post. Lately there seem to be more and more posts and I often lag behind. Did you tell him you had reverse t3 issues? Does he buy into that? I heard none of his patients are on HC. I also heard they're all doing great. Keep us up to date on what works for you, please. Naffy > > I saw Blanchard yesterday. I posted about it. He is a pretty cool guy and I liked him. He prescribed a combination of Levoxyl (no dye tablets) and small dose of timed release T3. He also put me on 5,000 iu Vitamin D. I don't know that this protocol will work for me since I have high reverse T3 and I believe need more T3 than he has prescribed, but I will try it and maybe add in a little of my cytomel here and there. He seems workable and if something doesn't work for his patients, he's open to trying other treatments, e.g. Armour for some, etc. > > > For > > > Hi ....I read a while ago that you were going to see Blanchard. > Am I correct? > > Have you seen him? How did it go? Anything new you can share with us? > > Thanks, > Naffy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Sorry I didn't see that post. Lately there seem to be more and more posts and I often lag behind. Did you tell him you had reverse t3 issues? Does he buy into that? I heard none of his patients are on HC. I also heard they're all doing great. Keep us up to date on what works for you, please. Naffy > > I saw Blanchard yesterday. I posted about it. He is a pretty cool guy and I liked him. He prescribed a combination of Levoxyl (no dye tablets) and small dose of timed release T3. He also put me on 5,000 iu Vitamin D. I don't know that this protocol will work for me since I have high reverse T3 and I believe need more T3 than he has prescribed, but I will try it and maybe add in a little of my cytomel here and there. He seems workable and if something doesn't work for his patients, he's open to trying other treatments, e.g. Armour for some, etc. > > > For > > > Hi ....I read a while ago that you were going to see Blanchard. > Am I correct? > > Have you seen him? How did it go? Anything new you can share with us? > > Thanks, > Naffy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 I showed him my reverse T3 and he knew about it but he didn't seem that concerned (of course). He didn't fluff it off either. I asked him if he believed that people could have conversion problems and he said " yes " . He told me that most of his hypoT patients do well on his 98% T4 and 2% T3, and that some do better on Armour, etc. I'm not his average patient though. I'm not the average hypoT patient either. I'm mostly going to make use of the timed release T3 he's prescribed and hopefully, he'll increase the dose in two weeks so I can get double the amount because it's only a couple of micrograms. For > > > Hi ....I read a while ago that you were going to see Blanchard. > Am I correct? > > Have you seen him? How did it go? Anything new you can share with us? > > Thanks, > Naffy > > > > > > Quote Link to comment Share on other sites More sharing options...
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