Re: causes of PN/PNE/Vulvodynia

September 3, 2007

C,

Mine all started with two things that happened within a few weeks of

each other in 2003 - going on birth control pills and receiving the Hep

B. vaccine series. I feel that both probably contributed.

Melinda

September 3, 2007

My case is not typical –

I went into full-blown menopause 2 years ago

(severe hot flashes, etc.) with no other warnings. Odd - as I had had a

hysterectomy more than 30 years ago (they left in the ovaries). The hot flashes

were so severe and disabling that I started HRT. Within six months, I developed

VV, LS, and PN. My PN started with just a slight twinge of pain on the left

side of my vagina and my inner thigh. Within another six months, I was completely

in bed 24/7 on massive doses of narcotics. Some conclusions my doctor made –

“skinny butt” women are more prone to PN (which I am). The majority

of the women he has seen have small frames and skinny butts. In addition, I

could have a birth defect where the Alcocks canal is too narrow for the

pudendal nerve. Another observation – I was a computer programmer before

I retired (I use to design web pages for corporations) and I spent 18+ hours a

day sitting on a hard office chair. After retirement, I started a genealogy project

and spent 18+hours a day at home doing research (curled up in a ball) on another

hard computer chair. So sitting on a hard surface for many hours might be my

cause. Also during my life, I have fallen several times on my tailbone, once

with a small fracture. That is my story …

Some of the reasons that my doctor has seen

that developed into PN, besides sitting to much: truck drivers (but that is

sitting), horseback riding, cyclists, hikers & climbers, hysterectomies, difficult

childbirth, severe constipation and weight lifting.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Carolyn52192@...

Sent: Monday, September 03, 2007 3:55 PM

To:

VulvarDisorders ; happypelvis

Subject: causes of

PN/PNE/Vulvodynia

Can we review how everyone thinks that

their issues started?

I was never a runner and worked my way up

to 4-5 miles and am wondering if this could have been the catalyst for all my V

issues. I was, however, diagnosed (but I believe misdiagnosed) with a

bacterial infection and took clindesse an antibiotic and shortly after all the

nerve burning started. I was just curious (especially nne) thoughts on how these things happened

C

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September 4, 2007

My clitoradynia started two weeks after I began taking antibiotics for a bladder/kidney infection. This was about 8 months ago. I haven't been normal since. I was on antibiotics for about 70-80 days total. Carolyn52192@... wrote: Can we review how everyone thinks that their issues started? I was never a runner and worked my way up to 4-5 miles and am wondering if this could have been the catalyst for all my V issues. I was, however, diagnosed (but I believe

misdiagnosed) with a bacterial infection and took clindesse an antibiotic and shortly after all the nerve burning started. I was just curious (especially nne) thoughts on how these things happened CGet a sneak peek of the all-new AOL.com.

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.

September 4, 2007

This is all just speculation, since I won't get to see a specialist to

confirm or dismiss my theory until the 14th, but I feel it was a

combination of being given birth control pills that were too strong

(OrthoTriCycline-i weighed 88lbs at the time, and the pills are gauged

for a 150lb woman, and apparently these were " high dosed " for a woman

of that size, or something to that effect), and stress. the symptoms

didn't start very seriously until a few years after the pills, but i

started having the lower ab cramping about a year ago and was

officially diagnosed last November. again, this is just speculation,

but i can't think of anything else-never had a UTI or yeast infection

or anything of that sort.

Beth

Can we

review how everyone thinks that their issues started?

> I was never a runner and worked my way up to 4-5 miles and am

wondering if this could have been the catalyst for all my V issues.

I was, however, diagnosed (but I believe misdiagnosed) with a

bacterial infection and took clindesse an antibiotic and shortly

after all the nerve burning started. I was just curious (especially

nne) thoughts on how these things happened

>

> C

>

> ---------------------------------

> Get a sneak peek of the all-new AOL.com.

>

> ---------------------------------

> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s

user panel and lay it on us.

>

September 4, 2007