Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 As hard as it is, we must remain positive, I try and think about others that have it less fortunate when I feel down.I would not trade my vv in for a colostomy bag, I would not trade my vv in for having my legs amputated. I would not trade my vv for blindness. I would not trade my vv for deafness. I would not trade my vv to live in poor barren lands of Africa and deal with starvation. I would not trade my vv in for my friend's 20 year old handicapped daughter that can not walk or talk. I would not trade my vv to be the mother of a son who was killed in Iraq. I would not trade my vv in to be in a wheelchair. There are all kind of people in this world that have situations they must cope with. We need to be strong and be thankful for the good things we have in this life. Having another birthday is a blessing and we are all blessed that we are all still here on this earth to enjoy the birds singing and to spend time with our loved ones, we also have the other women on this board that care about us and understand what we are going through... Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 As hard as it is, we must remain positive, I try and think about others that have it less fortunate when I feel down.I would not trade my vv in for a colostomy bag, I would not trade my vv in for having my legs amputated. I would not trade my vv for blindness. I would not trade my vv for deafness. I would not trade my vv to live in poor barren lands of Africa and deal with starvation. I would not trade my vv in for my friend's 20 year old handicapped daughter that can not walk or talk. I would not trade my vv to be the mother of a son who was killed in Iraq. I would not trade my vv in to be in a wheelchair. There are all kind of people in this world that have situations they must cope with. We need to be strong and be thankful for the good things we have in this life. Having another birthday is a blessing and we are all blessed that we are all still here on this earth to enjoy the birds singing and to spend time with our loved ones, we also have the other women on this board that care about us and understand what we are going through... Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 As hard as it is, we must remain positive, I try and think about others that have it less fortunate when I feel down.I would not trade my vv in for a colostomy bag, I would not trade my vv in for having my legs amputated. I would not trade my vv for blindness. I would not trade my vv for deafness. I would not trade my vv to live in poor barren lands of Africa and deal with starvation. I would not trade my vv in for my friend's 20 year old handicapped daughter that can not walk or talk. I would not trade my vv to be the mother of a son who was killed in Iraq. I would not trade my vv in to be in a wheelchair. There are all kind of people in this world that have situations they must cope with. We need to be strong and be thankful for the good things we have in this life. Having another birthday is a blessing and we are all blessed that we are all still here on this earth to enjoy the birds singing and to spend time with our loved ones, we also have the other women on this board that care about us and understand what we are going through... Get a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 , Happy happy Birthday!!!! You sound to me like you are right where you are supposed to be at this time--in reality, feeling your feelings, and hoping to get better--and that is much better than pretending that at this time your world is some kind of rainbow. Talking to other people about our problems is okay----at first and then since they can't do anything much about it, they aren't really capable of listening very much. Possibly you are safer if you keep your own counsel unfortunately. Tht doesn't mean you have to pretend to be feeling wonderful. Do what you have to do to take care of yourself, and when you are sad, be sad for heaven's sake. It's no crime. If you are depressed possibly you should seek some medical help for that. You are gluten sensitive and that causes depression among other things and if you can't control the diet, seeking other help might be needed. You are not well and you need help. Perhaps you are looking in the wrong places for that help, perhaps not but I think you should ask parents or somebody for a safe harbour for awhile. But whatever you do, don't beat yourself up. None of it is your fault and and you need to take the pressure of what everybody else thinks off your back. Stay away from people who are not healthy for you. Get a rest, girl, if you can. Hopefully next birthday will be a healthy one. Arline --- femifesto wrote: > hey guys-- > > well i just wanted to write because today is my > birthday and i am very > sad. this is my second birthday now with this > vulvar pain. thousands > of dollars and many tears later i feel i am right > where i started. ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 , Happy happy Birthday!!!! You sound to me like you are right where you are supposed to be at this time--in reality, feeling your feelings, and hoping to get better--and that is much better than pretending that at this time your world is some kind of rainbow. Talking to other people about our problems is okay----at first and then since they can't do anything much about it, they aren't really capable of listening very much. Possibly you are safer if you keep your own counsel unfortunately. Tht doesn't mean you have to pretend to be feeling wonderful. Do what you have to do to take care of yourself, and when you are sad, be sad for heaven's sake. It's no crime. If you are depressed possibly you should seek some medical help for that. You are gluten sensitive and that causes depression among other things and if you can't control the diet, seeking other help might be needed. You are not well and you need help. Perhaps you are looking in the wrong places for that help, perhaps not but I think you should ask parents or somebody for a safe harbour for awhile. But whatever you do, don't beat yourself up. None of it is your fault and and you need to take the pressure of what everybody else thinks off your back. Stay away from people who are not healthy for you. Get a rest, girl, if you can. Hopefully next birthday will be a healthy one. Arline --- femifesto wrote: > hey guys-- > > well i just wanted to write because today is my > birthday and i am very > sad. this is my second birthday now with this > vulvar pain. thousands > of dollars and many tears later i feel i am right > where i started. ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 , Happy happy Birthday!!!! You sound to me like you are right where you are supposed to be at this time--in reality, feeling your feelings, and hoping to get better--and that is much better than pretending that at this time your world is some kind of rainbow. Talking to other people about our problems is okay----at first and then since they can't do anything much about it, they aren't really capable of listening very much. Possibly you are safer if you keep your own counsel unfortunately. Tht doesn't mean you have to pretend to be feeling wonderful. Do what you have to do to take care of yourself, and when you are sad, be sad for heaven's sake. It's no crime. If you are depressed possibly you should seek some medical help for that. You are gluten sensitive and that causes depression among other things and if you can't control the diet, seeking other help might be needed. You are not well and you need help. Perhaps you are looking in the wrong places for that help, perhaps not but I think you should ask parents or somebody for a safe harbour for awhile. But whatever you do, don't beat yourself up. None of it is your fault and and you need to take the pressure of what everybody else thinks off your back. Stay away from people who are not healthy for you. Get a rest, girl, if you can. Hopefully next birthday will be a healthy one. Arline --- femifesto wrote: > hey guys-- > > well i just wanted to write because today is my > birthday and i am very > sad. this is my second birthday now with this > vulvar pain. thousands > of dollars and many tears later i feel i am right > where i started. ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi susan-- i both agree and disagree with what you're saying. the old adage that it could always be worse is true. however, in some ways i don't think suffering is quantifiable and this sort of saying can sometimes be demeaning. i already feel that my suffering is downplayed by several things: lack of understanding of the disorder among doctors and the general public, not being able to talk about it, the fact that it is not visible by just looking at me, and having the pain blamed on psychological reasons (luckily i've never had a doc say this to me, but have read it a bunch in the literature). i could be suffering in a different way. however, this condition has taken all comfort and peace out of my life, i can't do most normal things like sit, travel, have sex, etc. and not only that but i am in pretty severe 24/7 pain. i do think it has given me more compassion toward others' suffering. julie > > As hard as it is, we must remain positive, I try and think about others that > have it less fortunate when I feel down. > I would not trade my vv in for a colostomy bag, I would not trade my vv in > for having my legs amputated. I would not trade my vv for blindness. I would > not trade my vv for deafness. I would not trade my vv to live in poor barren > lands of Africa and deal with starvation. I would not trade my vv in for my > friend's 20 year old handicapped daughter that can not walk or talk. I would > not trade my vv to be the mother of a son who was killed in Iraq. I would not > trade my vv in to be in a wheelchair. > There are all kind of people in this world that have situations they must > cope with. We need to be strong and be thankful for the good things we have in > this life. > Having another birthday is a blessing and we are all blessed that we are all > still here on this earth to enjoy the birds singing and to spend time with > our loved ones, we also have the other women on this board that care about us > and understand what we are going through... > > > > > > > ************************************** Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi susan-- i both agree and disagree with what you're saying. the old adage that it could always be worse is true. however, in some ways i don't think suffering is quantifiable and this sort of saying can sometimes be demeaning. i already feel that my suffering is downplayed by several things: lack of understanding of the disorder among doctors and the general public, not being able to talk about it, the fact that it is not visible by just looking at me, and having the pain blamed on psychological reasons (luckily i've never had a doc say this to me, but have read it a bunch in the literature). i could be suffering in a different way. however, this condition has taken all comfort and peace out of my life, i can't do most normal things like sit, travel, have sex, etc. and not only that but i am in pretty severe 24/7 pain. i do think it has given me more compassion toward others' suffering. julie > > As hard as it is, we must remain positive, I try and think about others that > have it less fortunate when I feel down. > I would not trade my vv in for a colostomy bag, I would not trade my vv in > for having my legs amputated. I would not trade my vv for blindness. I would > not trade my vv for deafness. I would not trade my vv to live in poor barren > lands of Africa and deal with starvation. I would not trade my vv in for my > friend's 20 year old handicapped daughter that can not walk or talk. I would > not trade my vv to be the mother of a son who was killed in Iraq. I would not > trade my vv in to be in a wheelchair. > There are all kind of people in this world that have situations they must > cope with. We need to be strong and be thankful for the good things we have in > this life. > Having another birthday is a blessing and we are all blessed that we are all > still here on this earth to enjoy the birds singing and to spend time with > our loved ones, we also have the other women on this board that care about us > and understand what we are going through... > > > > > > > ************************************** Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi susan-- i both agree and disagree with what you're saying. the old adage that it could always be worse is true. however, in some ways i don't think suffering is quantifiable and this sort of saying can sometimes be demeaning. i already feel that my suffering is downplayed by several things: lack of understanding of the disorder among doctors and the general public, not being able to talk about it, the fact that it is not visible by just looking at me, and having the pain blamed on psychological reasons (luckily i've never had a doc say this to me, but have read it a bunch in the literature). i could be suffering in a different way. however, this condition has taken all comfort and peace out of my life, i can't do most normal things like sit, travel, have sex, etc. and not only that but i am in pretty severe 24/7 pain. i do think it has given me more compassion toward others' suffering. julie > > As hard as it is, we must remain positive, I try and think about others that > have it less fortunate when I feel down. > I would not trade my vv in for a colostomy bag, I would not trade my vv in > for having my legs amputated. I would not trade my vv for blindness. I would > not trade my vv for deafness. I would not trade my vv to live in poor barren > lands of Africa and deal with starvation. I would not trade my vv in for my > friend's 20 year old handicapped daughter that can not walk or talk. I would > not trade my vv to be the mother of a son who was killed in Iraq. I would not > trade my vv in to be in a wheelchair. > There are all kind of people in this world that have situations they must > cope with. We need to be strong and be thankful for the good things we have in > this life. > Having another birthday is a blessing and we are all blessed that we are all > still here on this earth to enjoy the birds singing and to spend time with > our loved ones, we also have the other women on this board that care about us > and understand what we are going through... > > > > > > > ************************************** Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi arline-- thanks for your good wishes. i have thought for a long time that a respite like you are describing would be a good thing. unfortunately it is not an option for me. my mother has a tiny, tiny apartment and there is no place for me to stay. if there was, i would have gone there long ago. as far as gluten goes, i did follow the diet strictly for several months with no change in pain. without having a change in my pain it became hard to totally stick to it and it felt like another source of stress. i am looking into finding a celiac group in the area to connect with folks on that. i did just discover that the restaurant p.f. changs has a gluten free menu. usually i like to avoid chains, but it is great to have a whole menu that i know is safe. i think " help " for depression has limited value unless the pain is also diminished. i am on meds for depression, and they do help (i.e. i am still here and still fighting), but like i said they can only help so much until the pain is also helped. one doctor said this in one of the NVA newsletters and i was very glad to read it. i'm not sure what you mean when you say perhaps i am not looking in the right places for help? i don't know really where else i would look. julie > > > hey guys-- > > > > well i just wanted to write because today is my > > birthday and i am very > > sad. this is my second birthday now with this > > vulvar pain. thousands > > of dollars and many tears later i feel i am right > > where i started. > > > > > ________________________________________________________________________________\ ____ > Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. > http://answers.yahoo.com/dir/?link=list & sid=396545433 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi arline-- thanks for your good wishes. i have thought for a long time that a respite like you are describing would be a good thing. unfortunately it is not an option for me. my mother has a tiny, tiny apartment and there is no place for me to stay. if there was, i would have gone there long ago. as far as gluten goes, i did follow the diet strictly for several months with no change in pain. without having a change in my pain it became hard to totally stick to it and it felt like another source of stress. i am looking into finding a celiac group in the area to connect with folks on that. i did just discover that the restaurant p.f. changs has a gluten free menu. usually i like to avoid chains, but it is great to have a whole menu that i know is safe. i think " help " for depression has limited value unless the pain is also diminished. i am on meds for depression, and they do help (i.e. i am still here and still fighting), but like i said they can only help so much until the pain is also helped. one doctor said this in one of the NVA newsletters and i was very glad to read it. i'm not sure what you mean when you say perhaps i am not looking in the right places for help? i don't know really where else i would look. julie > > > hey guys-- > > > > well i just wanted to write because today is my > > birthday and i am very > > sad. this is my second birthday now with this > > vulvar pain. thousands > > of dollars and many tears later i feel i am right > > where i started. > > > > > ________________________________________________________________________________\ ____ > Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. > http://answers.yahoo.com/dir/?link=list & sid=396545433 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi arline-- thanks for your good wishes. i have thought for a long time that a respite like you are describing would be a good thing. unfortunately it is not an option for me. my mother has a tiny, tiny apartment and there is no place for me to stay. if there was, i would have gone there long ago. as far as gluten goes, i did follow the diet strictly for several months with no change in pain. without having a change in my pain it became hard to totally stick to it and it felt like another source of stress. i am looking into finding a celiac group in the area to connect with folks on that. i did just discover that the restaurant p.f. changs has a gluten free menu. usually i like to avoid chains, but it is great to have a whole menu that i know is safe. i think " help " for depression has limited value unless the pain is also diminished. i am on meds for depression, and they do help (i.e. i am still here and still fighting), but like i said they can only help so much until the pain is also helped. one doctor said this in one of the NVA newsletters and i was very glad to read it. i'm not sure what you mean when you say perhaps i am not looking in the right places for help? i don't know really where else i would look. julie > > > hey guys-- > > > > well i just wanted to write because today is my > > birthday and i am very > > sad. this is my second birthday now with this > > vulvar pain. thousands > > of dollars and many tears later i feel i am right > > where i started. > > > > > ________________________________________________________________________________\ ____ > Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. > http://answers.yahoo.com/dir/?link=list & sid=396545433 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 --- femifesto wrote: > as far as gluten goes, i did follow the diet > strictly for several > months with no change in pain. without having a > change in my pain it > became hard to totally stick to it and it felt like > another source of > stress. i am looking into finding a celiac group in > the area to > connect with folks on that. Good, I hope you find it. i did just discover that > the restaurant > p.f. changs has a gluten free menu. usually i like > to avoid chains, > but it is great to have a whole menu that i know is > safe. Restaurant eating is very hard as nobody for the most part even knows what gluten is. " Outback " are good, too. I hardly go out because I don't want to be poisoned. > > i think " help " for depression has limited value > unless the pain is > also diminished. i am on meds for depression, and > they do help (i.e. i > am still here and still fighting), but like i said > they can only help > so much until the pain is also helped. one doctor > said this in one of > the NVA newsletters and i was very glad to read it. I think if the depression is caused or partly caused by gluten, the meds will have limited value, too. The pain of course is another reason. Hang in. > > i'm not sure what you mean when you say perhaps i am > not looking in > the right places for help? i don't know really where > else i would look. I meant that if you do not have any support people (friends) and partners that are at least sympathetic, it likely is not the right place to be. You have to judge that. The gluten thing has to be perfect. As long as any gluten is being ingested, the antibodies just keep building up and staying. Even on a perfect diet it may take months to get rid of them. Best wishes for your good health, . Arline ________________________________________________________________________________\ ____ Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. http://smallbusiness.yahoo.com/webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 --- femifesto wrote: > as far as gluten goes, i did follow the diet > strictly for several > months with no change in pain. without having a > change in my pain it > became hard to totally stick to it and it felt like > another source of > stress. i am looking into finding a celiac group in > the area to > connect with folks on that. Good, I hope you find it. i did just discover that > the restaurant > p.f. changs has a gluten free menu. usually i like > to avoid chains, > but it is great to have a whole menu that i know is > safe. Restaurant eating is very hard as nobody for the most part even knows what gluten is. " Outback " are good, too. I hardly go out because I don't want to be poisoned. > > i think " help " for depression has limited value > unless the pain is > also diminished. i am on meds for depression, and > they do help (i.e. i > am still here and still fighting), but like i said > they can only help > so much until the pain is also helped. one doctor > said this in one of > the NVA newsletters and i was very glad to read it. I think if the depression is caused or partly caused by gluten, the meds will have limited value, too. The pain of course is another reason. Hang in. > > i'm not sure what you mean when you say perhaps i am > not looking in > the right places for help? i don't know really where > else i would look. I meant that if you do not have any support people (friends) and partners that are at least sympathetic, it likely is not the right place to be. You have to judge that. The gluten thing has to be perfect. As long as any gluten is being ingested, the antibodies just keep building up and staying. Even on a perfect diet it may take months to get rid of them. Best wishes for your good health, . Arline ________________________________________________________________________________\ ____ Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. http://smallbusiness.yahoo.com/webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 --- femifesto wrote: > as far as gluten goes, i did follow the diet > strictly for several > months with no change in pain. without having a > change in my pain it > became hard to totally stick to it and it felt like > another source of > stress. i am looking into finding a celiac group in > the area to > connect with folks on that. Good, I hope you find it. i did just discover that > the restaurant > p.f. changs has a gluten free menu. usually i like > to avoid chains, > but it is great to have a whole menu that i know is > safe. Restaurant eating is very hard as nobody for the most part even knows what gluten is. " Outback " are good, too. I hardly go out because I don't want to be poisoned. > > i think " help " for depression has limited value > unless the pain is > also diminished. i am on meds for depression, and > they do help (i.e. i > am still here and still fighting), but like i said > they can only help > so much until the pain is also helped. one doctor > said this in one of > the NVA newsletters and i was very glad to read it. I think if the depression is caused or partly caused by gluten, the meds will have limited value, too. The pain of course is another reason. Hang in. > > i'm not sure what you mean when you say perhaps i am > not looking in > the right places for help? i don't know really where > else i would look. I meant that if you do not have any support people (friends) and partners that are at least sympathetic, it likely is not the right place to be. You have to judge that. The gluten thing has to be perfect. As long as any gluten is being ingested, the antibodies just keep building up and staying. Even on a perfect diet it may take months to get rid of them. Best wishes for your good health, . Arline ________________________________________________________________________________\ ____ Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. http://smallbusiness.yahoo.com/webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Hi , I am new here. I would like to know more of everyone's specific symptoms, I have not been diagnosed with Vulvodynia, but I know I have it. I have IC, and my uro and I have talked about it, so he's sending me to a specialist since I am in so much pain all the time, he does not know what else to do. Also for those of you that intercourse hurts, what do you do? I am married, and it gets pretty rough dealing with this. hi susan--i both agree and disagree with what you're saying. the old adage thatit could always be worse is true. however, in some ways i don't thinksuffering is quantifiable and this sort of saying can sometimes be demeaning. i already feel that my suffering is downplayed by several things: lackof understanding of the disorder among doctors and the general public,not being able to talk about it, the fact that it is not visible by just looking at me, and having the pain blamed on psychologicalreasons (luckily i've never had a doc say this to me, but have read ita bunch in the literature). i could be suffering in a different way. however, this condition has taken all comfort and peace out of my life, i can't do most normalthings like sit, travel, have sex, etc. and not only that but i am inpretty severe 24/7 pain. i do think it has given me more compassion toward others' suffering.julie >> As hard as it is, we must remain positive, I try and think aboutothers that > have it less fortunate when I feel down.> I would not trade my vv in for a colostomy bag, I would not trade my vv in > for having my legs amputated. I would not trade my vv forblindness. I would > not trade my vv for deafness. I would not trade my vv to live inpoor barren > lands of Africa and deal with starvation. I would not trade my vv in for my > friend's 20 year old handicapped daughter that can not walk ortalk. I would > not trade my vv to be the mother of a son who was killed in Iraq. Iwould not > trade my vv in to be in a wheelchair. > There are all kind of people in this world that have situations theymust > cope with. We need to be strong and be thankful for the good thingswe have in > this life. > Having another birthday is a blessing and we are all blessed that we are all > still here on this earth to enjoy the birds singing and to spendtime with > our loved ones, we also have the other women on this board that careabout us > and understand what we are going through... > > > > > > > ************************************** Get a sneak peek of theall-new AOL at > http://discover.aol.com/memed/aolcom30tour> -- Visit me at http://www.homekeepermamaof3.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 hi arline-- ok, this make sense. i misunderstood you. i thought you meant that i wasn't seeking proper medical care. julie > > i'm not sure what you mean when you say perhaps i am > > not looking in > > the right places for help? i don't know really where > > else i would look. > > I meant that if you do not have any support people > (friends) and partners that are at least sympathetic, > it likely is not the right place to be. You have to > judge that. > > The gluten thing has to be perfect. As long as any > gluten is being ingested, the antibodies just keep > building up and staying. Even on a perfect diet it > may take months to get rid of them. > > Best wishes for your good health, . > > Arline > > > > ________________________________________________________________________________\ ____ > Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. > http://smallbusiness.yahoo.com/webhosting > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 --- femifesto wrote: > hi arline-- > > ok, this make sense. i misunderstood you. i thought > you meant that i > wasn't seeking proper medical care. Hah!! No, , you seem to have really seen a lot of people. In my humble opinion I think the medical care available especially with women's problems is almost laughable and often counter productive and damaging. It is a terrible problem. I wish it were better. Arline ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Hi , I simply just don't have intercourse. Anything that increase the pain and pisses off the nerves, I'm not going to do. The last time I tried, (I was having pretty much pain free days at the time), it took me 2 weeks for things to calm back down to a dull roar. It's just not worth it in my opinion. As for my bf, we do other things. Sensual massage. Not just the 'same ol' same ol'. We try to keep things interesting without intercourse. he's very understanding. I let him know when the pain is too much for me to even think about being sexual in anyway. He handle's it. When the mood arises in me, I take control of him. Dawn --- " rachel metzdorf " wrote: > > Hi , I am new here. I would like to know more of everyone's specific > symptoms, I have not been diagnosed with Vulvodynia, but I know I have it. > I have IC, and my uro and I have talked about it, so he's sending me to a > specialist since I am in so much pain all the time, he does not know what > else to do. Also for those of you that intercourse hurts, what do you do? > I am married, and it gets pretty rough dealing with this. > > Quote Link to comment Share on other sites More sharing options...
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