Re: Re: Incidence and epidemology of PSC?

[Guest guest]

Penny D,

last week was really boring. there was no hospital bed available Monday, so

got sent home. Went back onTuesday and they did all the " cheap " tests..ie

bloods, cxray, 24 hour urine. They then spent 4 days deciding which of the

standard list of tests I'd already done and they would accept the results of

rather thsn hsve me do thrm again. They scanned in my mri, liver ultrasound

and CT, so hopefully wont have to redo them. I spoke at length with the

coordinator, with the physio, with the dietician and social worker. They

also redid the blood gases, confirming the diagnosis of hepatic pulmonary

syndrome. the ampunt of shunt has increased to 15% from 12.7% 6 weeks ago,

but this may be within machine error.

Expensive tests couldn't be done publicly, so I had a bone marrow biopsy

Thursday, and doing the combined gastroscopy/colonscopy tomorrow. FUN fun

fun.

I have tried to join the Aussie list, but am having trouble registering with

google. I will keep trying.

Meanwhile...must drink the drink, can feel it gurgling inside me already.

Chat soon,

Penny T