Re: Publicity ideas for pulmonary fibrosis

[Guest guest]

>

> As I was reading literature from Gift of Life Speakers Training, I

thought some of these ideas would be good for pulmonary fibrosis.

>  

> Here's a list of places to present, if you can't speak, bring

family or friends with you who can speak for you. Bring literature

with you to hand out. Make a poster for display.

>  

> Religious institutions–churches, synagogues, men's clubs, women's

clubs, sisterhoods

> Educational institutions–schools, colleges, health classes,

individual classes, PTAs

> Civic Organizations–Rotary, Lion's Club,

> Health Fairs–set up a table with literature

> Social Groups– Social Club meetings/ breakfast, luncheon, dinner

meetings

> Senior Centers

> Community Centers

> Libraries

>  

> Hospitals and Medical Centers– " in-service training " – there are a

lot of doctors, nurses and other medical personnel who don't know

much about pulmonary fibrosis, perhaps meeting someone with the

disease will make a difference in their training and/or practice

>  

> Support groups– since rehab groups seem to have mostly COPD

members, maybe those of us with pulmonary fibrosis can present or

bring in literature

>  

> Messages on telephone answering machine– if it's a wrong number,

the person might hang up and say " What in the world is Pulmonary

Fibrosis? "

>  

> Local television talk show

> Local radio talk show where people call in

> Reunions–high school or college

> AARP meetings

> Local newspaper writers, editors

> Local sporting events, including little league, set up a display

table with literature

> Shopping centers, malls, department stores, supermarkets–set up

display tables with literature

>  

> Maybe your grandchildren, children, nieces or nephews could do a

research paper on pulmonary fibrosis to present to the class; talk to

the teacher or principal about doing a poster contest for pulmonary

fibrosis

>  

> Create a bumper sticker– I wonder if blank bumper stickers can be

purchased at an office supply store, or craft store such as Staples,

's, AC , Joanne Fabrics

>  

> Do it yourself t-shirts for yourselves, family and friends

>  

> My vision of a poster is a large butterfly with details about the

disease in each wing, either words or pictures [include a picture or

drawing of someone with a " hose in his/her nose " ] or a dragon without

its fire

>  

> Sources for literature: Pulmonary Fibrosis Foundation [acorn],

Coalition for Pulmonary Fibrosis [butterfly], internet

>  

> The idea is that if we start publicizing on a small scale, maybe it

will grow and be recognized on a larger scale.

>  

> Some people have managed to get published in local Newspapers

[Peggy and someone in Arizona].

>  

> Tell your personal story with the disease, keep it short and to the

point. Present the facts.

> Limit the negatives. Give some statistics. Tell the audience where

they can get more information.

>  

> You need to contact the appropriate people for permission to do

this.

>  

> Sometimes I have the ideas, I need to motivate myself to act on

them.

>

> Pink Joyce IPF 3/06  Pennsylvania

>pink Joyce, those are great ideas. You can get the brochures from

the organizations listed above.

KathyS54/dx10-04/tx.

[Guest guest]

great suggestions thanks for all your input; patti ipf 06,raynauds, scleroderma, pulm hypertension

[Guest guest]

great suggestions thanks for all your input; patti ipf 06,raynauds, scleroderma, pulm hypertension

[Guest guest]

great suggestions thanks for all your input; patti ipf 06,raynauds, scleroderma, pulm hypertension