Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 I am learning that a lot of people must keep the bar on their children 24 hours a day. Is this true? If so, did you children flip out like mine did? There is a woman that I know and her son was born with club foot. There was no casting done or special shoes worn. She massaged his foot everyday, several times a day and corrected the condition. I don't know how true it is. Does anyone think that is possible? ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). Ask away any questions you have. Someone here is bound to have the answer! Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks for adding clarification to my post . I do think the way I replied back on it may have been a bit confusing ... because it appears that you address to me something that I actually already said ... ? The portion above the " +++++ " was not my text; my text was below that in response to it. My e-mail's do not insert " forward " marks, so I have to use alternate ways of showing bits I am replying to ... Angel Re: Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 So my son not being instructed to have the bar on 24/7 is normal. The 24/7 thing would come in to play after he had tenotomy? If I am wrong just ignore me..I gonna read everyone's email again. _____ From: kitaki Sent: Thursday, July 15, 2004 6:36 PM To: nosurgery4clubfoot Subject: Re: Re: Thanks for adding clarification to my post . I do think the way I replied back on it may have been a bit confusing ... because it appears that you address to me something that I actually already said ... ? The portion above the " +++++ " was not my text; my text was below that in response to it. My e-mail's do not insert " forward " marks, so I have to use alternate ways of showing bits I am replying to ... Angel Re: Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Ok, I thinkPerhaps I misread your original post or something, but how normal treatment goes is that your child has all necessary casting followed DIRECTLY by the tenotomy if needed, then is put in the bar/shoes 23/7 for 3 months, followed by 16/18 hours per day. Could you perhaps tell us precisely what treatment your son has had so far (number of casts, where you are at now, etc)? Angel Re: Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Ok, he was born January 30, 2004, he received his first cast when he was 6 days old. It was changed weekly for 4 weeks. He then was put into another cast that he wore for 3 weeks after that cast the doctor was going to put him in another cast for another 3 weeks but after examining his foot he decided that he was ready for the shoes and bar instead of another cast. He indicated that Christian should wear the shoes 24/7 but the bar should be worn at night 10 - 12 hours at a time. At his exam on Tuesday, the doctor said that his foot looked fine and we should keep doing what we are doing. He said he would determine if Christian need the tenotomy when he starts walking. What do you think? _____ From: kitaki Sent: Thursday, July 15, 2004 7:56 PM To: nosurgery4clubfoot Subject: Re: Re: Ok, I thinkPerhaps I misread your original post or something, but how normal treatment goes is that your child has all necessary casting followed DIRECTLY by the tenotomy if needed, then is put in the bar/shoes 23/7 for 3 months, followed by 16/18 hours per day. Could you perhaps tell us precisely what treatment your son has had so far (number of casts, where you are at now, etc)? Angel Re: Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Those are some very serious modifications to the Ponseti Method - ones that could have very negative long term effects for your son. Based on what you describe, I would say that your son doesnt like the shoes because his foot is not fully corrected and they hurt. A child with a tight achilles tendon in need of a tenotomy should not be put into the shoes. They will NOT correct, they can only hold correction. Also, the straight-last shoes alone do nothing. It is the bar that prevents relapse. I recently asked Dr Ponseti about straight last shoes for everyday use, and even for my son who has very resistant and difficult feet, he said there is not benefit to using straight last shoes. Where are you located? Perhaps we could refer you to a nearby doctor that uses the Ponseti method UNMODIFIED for a second opinion. Angel Re: Kitaki, In the real Ponseti " non-surgical " method, the FAB/DBB is worn full time 24/7 for 3 months after the tenotomy casts are removed. Then it is worn while the child is sleeping for 2-4 years depending on results at doctors check-ups. Dr. Ponseti is moving towards being more cautious and keeping the FAB/DBB on more towards 4 years than not. has prepared a checklist for parents who are interested in following the " REAL " Ponseti method at her links site at: http://pages.ivillage.com/ponseti_links/id13.html Yes, there are positional clubfeet that could be corrected with massage and parental physical therapy. But real clubfeet need treatment by doctors. In some clubfoot treatment books, they define " real " clubfeet as those that need to have a posterior release type of surgery which they define as being needed about 90% of the time. But with the use of the " real " Ponseti method, almost no children would have to have the posterior release types of surgery. In the U of Iowa's 1963 study on the 286 clubfeet that they treated between 1948 and 1956, 46 of the children had clubfeet so mild that only 1-3 casts were needed. They considered those clubfeet as positional and did not include them in their study on " real " clubfeet. I assume that Iowa did not have to brace those mild positional types of feet. So I would think that there will be some children born with what some doctor might say are clubfeet that could be corrected at home by the parents. But I wouldn't recommend that anyone do that. and (3-17-99) > I am > learning that a lot of people must keep the bar on their children 24 hours a > day. Is this true? If so, did you children flip out like mine did? > > There is a woman that I know and her son was born with club foot. There was > no casting done or special shoes worn. She massaged his foot everyday, > several times a day and corrected the condition. I don't know how true it > is. Does anyone think that is possible? > > ++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > > Some children " flip " and others do not. The biggest reason for it is usually the baby is trying to kick by alternating their feet and cant. You can remedy this frustration by teaching baby to kick simultaneously with both feet. You do this by grasping the bar and pushing the knees in and then back out. You can make a game of it. Very soon the baby learns how to do it. However, if baby is still upset after learning how to kick, then you might need to check some other things, like the length of the bar and the fit of the shoes. > > To my knowledge, the only kind of clubfoot that can be resolved the way you described the woman you met did is positional clubfoot, which is not true clubfoot, only a foot that has loose outside tendons and muscles and tight inside ones due to foot position in utero. One of my daughters had this and, yes, just stretching and normal development resolved it completely; but my son has true clubfoot and no amount of massaging would have helped it. There is a stretching and straping method called the French Method, but I dont think that is what you described because the French Method involves intense physiotherapy and taping of the foot (someone else likely has more information on this). > > Ask away any questions you have. Someone here is bound to have the answer! > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Pam keep me posted if you go in earlier than December. messaged me on yahoo messenger and she said the baby was sick. So we didn't talk long. I hope it isn't anything serious with the baby. I won't be online tomorrow night in chat have some old friends stopping in on their way to Georgia. Let me know if got a hold of Dr.Dobbs yet. You know I hope Isabella's shoes last until November. Her toes are almost at the ends now. Oh and I didn't tell you the morning we were leaving to go to St.Louis I went in to wake up Isabella and her left foot was out of her brace. She slept all night with out that shoe in the brace. I was so upset and worried. Dr.Dobbs said not to worry one night won't hurt her just to check on her in the middle of the night to see if she didn't take it off. I guess she got bored and wasn't tired when I laid her down to sleep so she decided to take her shoe off. She tried to get the other one but it didn't work. What was weird is her laces were still tied and her buckle was still on buckled where you can see the second hold. Like I always do. She never got it out before. Dr.Dobbs said she is very flexible and that is a great sign. LOL. Dr.Dobbs said he is designing a new brace to. Email me at mikeleslie3032@... if you want me to explain what he said its going to be like. Talk to ya later > Thank you pam for thinking of us. When Does Jarred go back next? > > > I'm so glad to hear. Sorry you had a little scare there though. He > is supposed to go back Dec 16th, but I don't think his shoes will > make it that long. > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I didn't realize you were that far along either! It seems like only yesterday you told the group you were expecting and it seems just as recent that you told us your little one has straight tootsies. Time flies! I'm sure you're reading though! Hope your blood pressure cooperates! I can't remember if I ever responded to your email to me when we were in Iowa City this summer. I didn't read it until we returned - I was bummed because it would have been so nice to meet you! Next time! (we'll be there again in June next year! - if not earlier, depending on whether or not our newborn in January has clubfoot. If that's the case, we'll be there in January!) Take care of yourself! Holly Zachary 7/27/02 Right C/F Treated by Dr. Ponseti DBB nights only #2 due: 1/8 > , > > Wow! You are already (already you say--right!) 37 weeks! How are > your feeling? What is Jakob thinking about all that's getting ready > to happen? I knew that you live in Iowa, but I didn't know that you > never knew about Dr. Poseti until he was 2 years-old. I hope that > blood pressure stays down and you have a great labor! > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I didn't realize you were that far along either! It seems like only yesterday you told the group you were expecting and it seems just as recent that you told us your little one has straight tootsies. Time flies! I'm sure you're reading though! Hope your blood pressure cooperates! I can't remember if I ever responded to your email to me when we were in Iowa City this summer. I didn't read it until we returned - I was bummed because it would have been so nice to meet you! Next time! (we'll be there again in June next year! - if not earlier, depending on whether or not our newborn in January has clubfoot. If that's the case, we'll be there in January!) Take care of yourself! Holly Zachary 7/27/02 Right C/F Treated by Dr. Ponseti DBB nights only #2 due: 1/8 > , > > Wow! You are already (already you say--right!) 37 weeks! How are > your feeling? What is Jakob thinking about all that's getting ready > to happen? I knew that you live in Iowa, but I didn't know that you > never knew about Dr. Poseti until he was 2 years-old. I hope that > blood pressure stays down and you have a great labor! > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I didn't realize you were that far along either! It seems like only yesterday you told the group you were expecting and it seems just as recent that you told us your little one has straight tootsies. Time flies! I'm sure you're reading though! Hope your blood pressure cooperates! I can't remember if I ever responded to your email to me when we were in Iowa City this summer. I didn't read it until we returned - I was bummed because it would have been so nice to meet you! Next time! (we'll be there again in June next year! - if not earlier, depending on whether or not our newborn in January has clubfoot. If that's the case, we'll be there in January!) Take care of yourself! Holly Zachary 7/27/02 Right C/F Treated by Dr. Ponseti DBB nights only #2 due: 1/8 > , > > Wow! You are already (already you say--right!) 37 weeks! How are > your feeling? What is Jakob thinking about all that's getting ready > to happen? I knew that you live in Iowa, but I didn't know that you > never knew about Dr. Poseti until he was 2 years-old. I hope that > blood pressure stays down and you have a great labor! > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Thanks for asking about us For the most part, I feel pretty good considering how pregnant I am this late in July. The high blood pressure thing seems to have been a one time occurrence which of course happened at the doctor's office. We were sent directly to Labor & Delivery for the first of the non-stress tests. Seems like a bit of a time waster to me since I also have to find someone to take Jakob while I go twice a week for the monitoring - but better safe than sorry Jakob is so excited he doesn't know what to do He had asked Santa for a new baby on his Christmas list last year, so he's ready. His patience is starting to wear thin. When he told his kindergarten class during a round of " good news / bad news, " , his statement was " the good news is my mom is having a baby. The bad news is I have to wait until August.. " He is planning everything he wants to teach his brother - especially ALL about Star Wars. I think one of the biggest things about living in or close enough to Iowa City that you get referred to UIHC is that you're more likely to see Dr. Weinstein, Dr. Dietz, or Dr. Morcuende than Dr. Ponseti directly. I think the first mention I heard regarding Dr. Ponseti was when Jakob was about 18 months old and we met Joy and Rose the first time. We first met Dr. Ponseti in January 2000, just before Jakob turned 2. It seems strange looking back, but I honestly wouldn't change our experience with Dr. Weinstein for anything. Holly wrote: > I didn't realize you were that far along either! It seems like only > yesterday you told the group you were expecting and it seems just as > recent that you told us your little one has straight tootsies. Time > flies! I'm sure you're reading though! Hope your blood pressure > cooperates! I can't remember if I ever responded to your email to > me when we were in Iowa City this summer. I didn't read it until we > returned - I was bummed because it would have been so nice to meet > you! Next time! (we'll be there again in June next year! - if not > earlier, depending on whether or not our newborn in January has > clubfoot. If that's the case, we'll be there in January!) > > Take care of yourself! > > Holly > Zachary 7/27/02 > Right C/F > Treated by Dr. Ponseti > DBB nights only > #2 due: 1/8 > > > > , > > > > Wow! You are already (already you say--right!) 37 weeks! How are > > your feeling? What is Jakob thinking about all that's getting > ready > > to happen? I knew that you live in Iowa, but I didn't know that > you > > never knew about Dr. Poseti until he was 2 years-old. I hope that > > blood pressure stays down and you have a great labor! > > > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Thanks for asking about us For the most part, I feel pretty good considering how pregnant I am this late in July. The high blood pressure thing seems to have been a one time occurrence which of course happened at the doctor's office. We were sent directly to Labor & Delivery for the first of the non-stress tests. Seems like a bit of a time waster to me since I also have to find someone to take Jakob while I go twice a week for the monitoring - but better safe than sorry Jakob is so excited he doesn't know what to do He had asked Santa for a new baby on his Christmas list last year, so he's ready. His patience is starting to wear thin. When he told his kindergarten class during a round of " good news / bad news, " , his statement was " the good news is my mom is having a baby. The bad news is I have to wait until August.. " He is planning everything he wants to teach his brother - especially ALL about Star Wars. I think one of the biggest things about living in or close enough to Iowa City that you get referred to UIHC is that you're more likely to see Dr. Weinstein, Dr. Dietz, or Dr. Morcuende than Dr. Ponseti directly. I think the first mention I heard regarding Dr. Ponseti was when Jakob was about 18 months old and we met Joy and Rose the first time. We first met Dr. Ponseti in January 2000, just before Jakob turned 2. It seems strange looking back, but I honestly wouldn't change our experience with Dr. Weinstein for anything. Holly wrote: > I didn't realize you were that far along either! It seems like only > yesterday you told the group you were expecting and it seems just as > recent that you told us your little one has straight tootsies. Time > flies! I'm sure you're reading though! Hope your blood pressure > cooperates! I can't remember if I ever responded to your email to > me when we were in Iowa City this summer. I didn't read it until we > returned - I was bummed because it would have been so nice to meet > you! Next time! (we'll be there again in June next year! - if not > earlier, depending on whether or not our newborn in January has > clubfoot. If that's the case, we'll be there in January!) > > Take care of yourself! > > Holly > Zachary 7/27/02 > Right C/F > Treated by Dr. Ponseti > DBB nights only > #2 due: 1/8 > > > > , > > > > Wow! You are already (already you say--right!) 37 weeks! How are > > your feeling? What is Jakob thinking about all that's getting > ready > > to happen? I knew that you live in Iowa, but I didn't know that > you > > never knew about Dr. Poseti until he was 2 years-old. I hope that > > blood pressure stays down and you have a great labor! > > > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Thanks for asking about us For the most part, I feel pretty good considering how pregnant I am this late in July. The high blood pressure thing seems to have been a one time occurrence which of course happened at the doctor's office. We were sent directly to Labor & Delivery for the first of the non-stress tests. Seems like a bit of a time waster to me since I also have to find someone to take Jakob while I go twice a week for the monitoring - but better safe than sorry Jakob is so excited he doesn't know what to do He had asked Santa for a new baby on his Christmas list last year, so he's ready. His patience is starting to wear thin. When he told his kindergarten class during a round of " good news / bad news, " , his statement was " the good news is my mom is having a baby. The bad news is I have to wait until August.. " He is planning everything he wants to teach his brother - especially ALL about Star Wars. I think one of the biggest things about living in or close enough to Iowa City that you get referred to UIHC is that you're more likely to see Dr. Weinstein, Dr. Dietz, or Dr. Morcuende than Dr. Ponseti directly. I think the first mention I heard regarding Dr. Ponseti was when Jakob was about 18 months old and we met Joy and Rose the first time. We first met Dr. Ponseti in January 2000, just before Jakob turned 2. It seems strange looking back, but I honestly wouldn't change our experience with Dr. Weinstein for anything. Holly wrote: > I didn't realize you were that far along either! It seems like only > yesterday you told the group you were expecting and it seems just as > recent that you told us your little one has straight tootsies. Time > flies! I'm sure you're reading though! Hope your blood pressure > cooperates! I can't remember if I ever responded to your email to > me when we were in Iowa City this summer. I didn't read it until we > returned - I was bummed because it would have been so nice to meet > you! Next time! (we'll be there again in June next year! - if not > earlier, depending on whether or not our newborn in January has > clubfoot. If that's the case, we'll be there in January!) > > Take care of yourself! > > Holly > Zachary 7/27/02 > Right C/F > Treated by Dr. Ponseti > DBB nights only > #2 due: 1/8 > > > > , > > > > Wow! You are already (already you say--right!) 37 weeks! How are > > your feeling? What is Jakob thinking about all that's getting > ready > > to happen? I knew that you live in Iowa, but I didn't know that > you > > never knew about Dr. Poseti until he was 2 years-old. I hope that > > blood pressure stays down and you have a great labor! > > > > Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 >I think one of the biggest things about living in or close enough to >Iowa City that you get referred to UIHC is that you're more likely to >see Dr. Weinstein, Dr. Dietz, or Dr. Morcuende than Dr. Ponseti >directly. I think the first mention I heard regarding Dr. Ponseti was >when Jakob was about 18 months old and we met Joy and Rose the first >time. We first met Dr. Ponseti in January 2000, just before Jakob >turned 2. It seems strange looking back, but I honestly wouldn't >change >our experience with Dr. Weinstein for anything. > I know what you mean. Dr. Dobbs has been such a great Dr. and done such great things for . It would have been nice to have been able to have been seen by Dr. Ponseti, but even in hindsight I wouldn't change anything. Pam and (8-12-01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 I have to admit I'm not a militant about brace time either. There are days he goes hours over, and days he's an hour or two behind. I've steadfastly refused to let this deal dictate our lives or in any way define who we are or who they are as children. I used to keep a list of dr. appointments, etc., take notes, all that junk then after a few months the list was so long it depressed me so I just quit. With Everett I didn't even start keeping notes, we just take it as it comes and let it go once it's over with. The 23 hour routine was actually easier to adhere to than the 18 hour routine, but this new 12-14 deal is real simple. I look forward to putting them on in the evening now knowing they'll come off sooner in the morning and we can regain some normalcy at home the next day. He so loves to be outdoors but I'd never let him down in the grass/dirt with the shoes on - well here it's so darn hot that the morning is the only good play time so now he can go out and play in the yard while I water my plants and feed the rabbits and pig. That said I have to laugh at not bathing babies - if you saw my Everett! WOW~ that kid earns about two or three baths a day. You'd think I turned him loose in the pig pen. The other day he was in his little wadey pool with the water hose on trickle.....he decided dirt was more fun than the pool so he made himself a mud hole. He was very methodical about it. He'd hold the hose there a moment, then pull it away and feel the mud. Add more water, feel, more water, feel.....finally it was just right I guess cuz he sat in it at that point. s. Re: > Dr. Frick says in >October we can cut down to 18 hours. We are currently on the 23/7 schedule. >Although we often only make it 22 hours because I like to let her play in her >saucer or jumper for a little while and then bathe her and then it is almost >always over an hour that they are off. I know that some people might >disagree >with that... well, you won't get disagreement from me :~} I'm less than accurate on bracing at times too. I try to make up for it the next day though if it's a serious violation (which to me is 2 or more hours). Reduced hours is a big fun and exciting change you'll enjoy. And if you do them all at once, you get more time to relax about it when she's on her free time. But that's just how it works best for me, non-scheduler at heart :~} This got me to thinking, when we were doing 23/7 she often got more actually. But that is because I don't hardly bathe my babies lol. At least when they're little. What a hassle! hehe... kinda like baby food I guess. And sometimes it was more hassle to take them off and put them back on again than it was to just leave them on. She often fell asleep at the time I would choose and I just let it go. And... babies typically don't get dirty... I remember with Darbi, she hardly ever got bathed. I think I bathed her maybe once a week at times when she was really little. Just wiped her down otherwise. So she often either didn't get the shoes off or only when I changed her clothes for the evening. Sure, I took her out for her hour free a lot more than I left her in, but I just let her be free and play didn't bathe her every time. Of course Kaitlin is older than Darbs was too. Heck, I just recently started bathing her almost daily... but that's because she smears her food on her head lol. A few days ago she had 3 showers! She loves showers. They go quicker than baths I think (that is with a walker baby realistically 2 min to wash up and bath time is done. I love combining my shower with her bath and it just simplified it for me when she was little, a 3-9mo sitter in a little bathtub chair as the tub filled from the shower. And now as she stands in the shower, I don't have to lean over the tub to wash her hair. She's always showered with me though, as did the boys so they got used to showers right quick and love them now and fight over who is going to *stand in* hehe... It's a mess in there with all three of them! Anyway, that's drifted off point... > Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 I have to admit I'm not a militant about brace time either. There are days he goes hours over, and days he's an hour or two behind. I've steadfastly refused to let this deal dictate our lives or in any way define who we are or who they are as children. I used to keep a list of dr. appointments, etc., take notes, all that junk then after a few months the list was so long it depressed me so I just quit. With Everett I didn't even start keeping notes, we just take it as it comes and let it go once it's over with. The 23 hour routine was actually easier to adhere to than the 18 hour routine, but this new 12-14 deal is real simple. I look forward to putting them on in the evening now knowing they'll come off sooner in the morning and we can regain some normalcy at home the next day. He so loves to be outdoors but I'd never let him down in the grass/dirt with the shoes on - well here it's so darn hot that the morning is the only good play time so now he can go out and play in the yard while I water my plants and feed the rabbits and pig. That said I have to laugh at not bathing babies - if you saw my Everett! WOW~ that kid earns about two or three baths a day. You'd think I turned him loose in the pig pen. The other day he was in his little wadey pool with the water hose on trickle.....he decided dirt was more fun than the pool so he made himself a mud hole. He was very methodical about it. He'd hold the hose there a moment, then pull it away and feel the mud. Add more water, feel, more water, feel.....finally it was just right I guess cuz he sat in it at that point. s. Re: > Dr. Frick says in >October we can cut down to 18 hours. We are currently on the 23/7 schedule. >Although we often only make it 22 hours because I like to let her play in her >saucer or jumper for a little while and then bathe her and then it is almost >always over an hour that they are off. I know that some people might >disagree >with that... well, you won't get disagreement from me :~} I'm less than accurate on bracing at times too. I try to make up for it the next day though if it's a serious violation (which to me is 2 or more hours). Reduced hours is a big fun and exciting change you'll enjoy. And if you do them all at once, you get more time to relax about it when she's on her free time. But that's just how it works best for me, non-scheduler at heart :~} This got me to thinking, when we were doing 23/7 she often got more actually. But that is because I don't hardly bathe my babies lol. At least when they're little. What a hassle! hehe... kinda like baby food I guess. And sometimes it was more hassle to take them off and put them back on again than it was to just leave them on. She often fell asleep at the time I would choose and I just let it go. And... babies typically don't get dirty... I remember with Darbi, she hardly ever got bathed. I think I bathed her maybe once a week at times when she was really little. Just wiped her down otherwise. So she often either didn't get the shoes off or only when I changed her clothes for the evening. Sure, I took her out for her hour free a lot more than I left her in, but I just let her be free and play didn't bathe her every time. Of course Kaitlin is older than Darbs was too. Heck, I just recently started bathing her almost daily... but that's because she smears her food on her head lol. A few days ago she had 3 showers! She loves showers. They go quicker than baths I think (that is with a walker baby realistically 2 min to wash up and bath time is done. I love combining my shower with her bath and it just simplified it for me when she was little, a 3-9mo sitter in a little bathtub chair as the tub filled from the shower. And now as she stands in the shower, I don't have to lean over the tub to wash her hair. She's always showered with me though, as did the boys so they got used to showers right quick and love them now and fight over who is going to *stand in* hehe... It's a mess in there with all three of them! Anyway, that's drifted off point... > Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Kori, Glad to know that about the time! I thought everyone had egg timers and followed the hour down to the minute. LOL. I know you think I am kidding about that, I'm not. I know how serious following the schedule is, I just thought I was some kind of slacker for not owning a stopwatch! ;-) As for bathing...Kaitlin is into 'solid' food now...need I say more? What a messy little eater she is! She HAS to feed herself too. She won't let me put the spoon in her mouth for her...she will grab the end with the food on it if I dare try. She is such an independent little booger :-). Of course she still needs mommy to put the food on the spoon for her. If I am one-second late, she has thrown the spoon and pulled the bowl to her mouth as if she thinks she can skip the spoon part altogether! Nevermind that most of her meal ends up on her belly instead of in it! I've gotten a little wiser after lots of mopping and bought some bowls with suction cups on the bottom of them! It really is alot of fun though and I love every second of it. As for crawling...I always heard that it can be done with the DBB on, but I never believed it. Kaitlin is creeping/crawling. Not sure which it classifies as. She gets on all fours and reaches forward and then pushes/hops with her legs until she is flat again then starts all over again. I am guessing that is still considered creeping although I am not 100% sure since she has the bar on and I can't picture any other way since her legs have to move together... Is that how babies crawl with the brace? Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Yes, Naomi, I saw the cute picture you sent of Jonah. I thought it was really cute how his feet turned out like he was still in the FAB. So cute that it made me smile when I saw it. I even showed it to my husband that night. (I know I used the word 'cute' a lot...but there is no better adjetive-sp? to describe it!) It is so neat to see how our babies adapt to the brace and incorporate it into everything so naturally and easily. I just can't picture what you mean about moving the legs from side to side. How does that help them move forward? I guess I will understand if that is how Kaitlin ends up crawling. I'm just glad she has found a way to get around other than rolling :-). I am sure to be biased, but Kaitlin is very happy and very assertive for a baby. Her personality is SO BIG for such a little thing! She is the bright little star of my life. I just can't imagine what she will be like when she is 3 and can talk... Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Yes, Naomi, I saw the cute picture you sent of Jonah. I thought it was really cute how his feet turned out like he was still in the FAB. So cute that it made me smile when I saw it. I even showed it to my husband that night. (I know I used the word 'cute' a lot...but there is no better adjetive-sp? to describe it!) It is so neat to see how our babies adapt to the brace and incorporate it into everything so naturally and easily. I just can't picture what you mean about moving the legs from side to side. How does that help them move forward? I guess I will understand if that is how Kaitlin ends up crawling. I'm just glad she has found a way to get around other than rolling :-). I am sure to be biased, but Kaitlin is very happy and very assertive for a baby. Her personality is SO BIG for such a little thing! She is the bright little star of my life. I just can't imagine what she will be like when she is 3 and can talk... Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Yes, Naomi, I saw the cute picture you sent of Jonah. I thought it was really cute how his feet turned out like he was still in the FAB. So cute that it made me smile when I saw it. I even showed it to my husband that night. (I know I used the word 'cute' a lot...but there is no better adjetive-sp? to describe it!) It is so neat to see how our babies adapt to the brace and incorporate it into everything so naturally and easily. I just can't picture what you mean about moving the legs from side to side. How does that help them move forward? I guess I will understand if that is how Kaitlin ends up crawling. I'm just glad she has found a way to get around other than rolling :-). I am sure to be biased, but Kaitlin is very happy and very assertive for a baby. Her personality is SO BIG for such a little thing! She is the bright little star of my life. I just can't imagine what she will be like when she is 3 and can talk... Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 , Jonah started crawling while he was still in the FAB full-time(he got a late start in the Ponseti method). He looked like one of those wind up toy dogs: on all fours, his little butt and legs and the bar swinging from side to side. He still sort of crawls that way out of the FAB--I mean, he doesn't really move his legs independantly. And his feet point right out to the sides. It looks sort of funny, but he's very fast. I just posted a picture of him crawling on CFPics--I don't know if you're on that. I can send it to you if you'd like. Your daughter, by the way, sounds very much the way my little girl was at about that age. She's 3 now and exceptionally bright and wonderful and so very intent on pushing her mama's buttons... Naomi The Family Naomi Hannah Jonah(06/20/03, bilateral clubfoot, FAB 16/7) mjz28ss@... wrote: Kori, Glad to know that about the time! I thought everyone had egg timers and followed the hour down to the minute. LOL. I know you think I am kidding about that, I'm not. I know how serious following the schedule is, I just thought I was some kind of slacker for not owning a stopwatch! ;-) As for bathing...Kaitlin is into 'solid' food now...need I say more? What a messy little eater she is! She HAS to feed herself too. She won't let me put the spoon in her mouth for her...she will grab the end with the food on it if I dare try. She is such an independent little booger :-). Of course she still needs mommy to put the food on the spoon for her. If I am one-second late, she has thrown the spoon and pulled the bowl to her mouth as if she thinks she can skip the spoon part altogether! Nevermind that most of her meal ends up on her belly instead of in it! I've gotten a little wiser after lots of mopping and bought some bowls with suction cups on the bottom of them! It really is alot of fun though and I love every second of it. As for crawling...I always heard that it can be done with the DBB on, but I never believed it. Kaitlin is creeping/crawling. Not sure which it classifies as. She gets on all fours and reaches forward and then pushes/hops with her legs until she is flat again then starts all over again. I am guessing that is still considered creeping although I am not 100% sure since she has the bar on and I can't picture any other way since her legs have to move together... Is that how babies crawl with the brace? Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hi . I know there are moms on here who have had the sandals for awhile but I wanted to share our experience too. My son Ethan was miserable in his DBB from day 1. He had blisters, sores and pressure marks. He was out of the shoes more than in. If he had the shoes on he was cranky and had to be comforted constantly. I couldn't even play with Dylan unless I was carrying Ethan at the same time. He wouldn't nap or sleep through the night. I had emailed Dr Ponseti with pictures thinking that maybe his feet were not fully corrected and he said they looked great but they were a little short and chubby and that we should get the 's. We were worried about the cost too so we went back to the orthotist and he modified the Markells....extra padding, cutting holes in the heel...we tried slitting the tongue then we tried no tongue. I emailed Dr Ponseti again and he again advised us to get the 's. I called and talked to him at length about the shoes and he was extremely helpful and answered all of my questions. We ordered them and recieved them in about a week and a half. Ethan cried the first time I put them on but he had been bare foot for 2 weeks. As soon as I got them buckled he stopped crying and smiled at me!!!! I hadn't seen him smile with his shoes on....EVER!!! He now takes naps, sleeps through the night IN HIS OWN BED, plays on the floor with his brother and is even starting to scoot with it on. I know the Markell's are great shoes and work for most babies but apparently some just need some special shoes. I am so glad that I took Dr Ponseti's advise and kick myself that I didn't do it the first time he told me to. To make my very long story short (sorry to ramble but I LOVE THESE SANDALS) I know the cost is an issue, cause it sure was for us, but now that I have the sandals, I would pay TWICE that much to see my beautiful baby boy smiling and happy in his shoes. Tina Dylan 3-21-00 Ethan 3-06-04 bcf 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Thank you Tina! I think that is the route we are going to take. I just know how my daughter is and I think we will all be better off if we just go for the s. will also be at Dr. Herzenbergs conference this weekend so I can ask him many questions, etc. I know the Markells work great for many, but not for us. We are just a couple weeks away (I think) from getting them so I will let you know how it goes. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Thank you Tina! I think that is the route we are going to take. I just know how my daughter is and I think we will all be better off if we just go for the s. will also be at Dr. Herzenbergs conference this weekend so I can ask him many questions, etc. I know the Markells work great for many, but not for us. We are just a couple weeks away (I think) from getting them so I will let you know how it goes. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
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