Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Hi Quint...........came throught loud and clear........good to see you posting again! Missed you. Hugs, Darlene NS Co-Owner/Moderator HI EVERYONE ONCE AGAIN I AM TRYING TO POST I THINK I IT RIGHT NOW.WILL SEE IF THIS COME THROUGHAND WILL GET BACK TO YOU LATER......QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Hi Quint...........came throught loud and clear........good to see you posting again! Missed you. Hugs, Darlene NS Co-Owner/Moderator HI EVERYONE ONCE AGAIN I AM TRYING TO POST I THINK I IT RIGHT NOW.WILL SEE IF THIS COME THROUGHAND WILL GET BACK TO YOU LATER......QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 I really don't think they are seizures, though. Good to see you posting again Quint, you have been missed!! Marla -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ]On Behalf Of sarcdogg2@...Sent: Saturday, July 16, 2005 12:09 PMTo: NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COMSubject: MARLA DEAR SERIZURES ARE EMERGENCYS SO GET TO YOUR DR ASAP..QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 I really don't think they are seizures, though. Good to see you posting again Quint, you have been missed!! Marla -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ]On Behalf Of sarcdogg2@...Sent: Saturday, July 16, 2005 12:09 PMTo: NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COMSubject: MARLA DEAR SERIZURES ARE EMERGENCYS SO GET TO YOUR DR ASAP..QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hi Quint, Sorry to hear that you haven't been doing well. Hope to hear that your dr. puts you on Remicade . This drug seems to be helping a lot of people with sarc. Good luck. Debbie"sarcdogg2@..." wrote: WELL I AM GLAD I CAN POST AGAIN THE PROBLEM WAS SO SIMPLY I AM EMBARRASSED I DID'NT SEE IT SOONER.SO MUCH FOR THAT.ALOT HAS BEEN GOING ON WITH ME MY PREDS ARE DOWN TO 14MGS BUT MY ARTHRITIS STARTED AGAIN IN MY LEFT SHOULDER THIS IS BAD I AM LEFT HANDED HAD A SHOT IN MY SHOULDER NOW ITS FINE SO NOW ITS MY ARM.MY RHEUMATOLOGIST HAS ANOTHER PT WITH SARC & ARTHRITIS WHO IS IN A WHEELCHAIR HE PUT HIM ON REMICADE NOW HES OUT OF THE WHELLCHAIR AND DOING GREAT.SO HE THINKS I SHOULD BE ON REMICADE.WILL LET YOU KNOW NEXT WEEK IF I START. GOOD TO BE BACK POSTING....QUINTSARCDOGG2@...~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hi Quint, Sorry to hear that you haven't been doing well. Hope to hear that your dr. puts you on Remicade . This drug seems to be helping a lot of people with sarc. Good luck. Debbie"sarcdogg2@..." wrote: WELL I AM GLAD I CAN POST AGAIN THE PROBLEM WAS SO SIMPLY I AM EMBARRASSED I DID'NT SEE IT SOONER.SO MUCH FOR THAT.ALOT HAS BEEN GOING ON WITH ME MY PREDS ARE DOWN TO 14MGS BUT MY ARTHRITIS STARTED AGAIN IN MY LEFT SHOULDER THIS IS BAD I AM LEFT HANDED HAD A SHOT IN MY SHOULDER NOW ITS FINE SO NOW ITS MY ARM.MY RHEUMATOLOGIST HAS ANOTHER PT WITH SARC & ARTHRITIS WHO IS IN A WHEELCHAIR HE PUT HIM ON REMICADE NOW HES OUT OF THE WHELLCHAIR AND DOING GREAT.SO HE THINKS I SHOULD BE ON REMICADE.WILL LET YOU KNOW NEXT WEEK IF I START. GOOD TO BE BACK POSTING....QUINTSARCDOGG2@...~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hi Quint, Sorry to hear that you haven't been doing well. Hope to hear that your dr. puts you on Remicade . This drug seems to be helping a lot of people with sarc. Good luck. Debbie"sarcdogg2@..." wrote: WELL I AM GLAD I CAN POST AGAIN THE PROBLEM WAS SO SIMPLY I AM EMBARRASSED I DID'NT SEE IT SOONER.SO MUCH FOR THAT.ALOT HAS BEEN GOING ON WITH ME MY PREDS ARE DOWN TO 14MGS BUT MY ARTHRITIS STARTED AGAIN IN MY LEFT SHOULDER THIS IS BAD I AM LEFT HANDED HAD A SHOT IN MY SHOULDER NOW ITS FINE SO NOW ITS MY ARM.MY RHEUMATOLOGIST HAS ANOTHER PT WITH SARC & ARTHRITIS WHO IS IN A WHEELCHAIR HE PUT HIM ON REMICADE NOW HES OUT OF THE WHELLCHAIR AND DOING GREAT.SO HE THINKS I SHOULD BE ON REMICADE.WILL LET YOU KNOW NEXT WEEK IF I START. GOOD TO BE BACK POSTING....QUINTSARCDOGG2@...~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 Hello Kim, My faithful friend, how are you doing? I hope all is well with you and your family. Thank you so much for thinking of me. I have been thinking of you too as well. I still check the post on a daily basis. Although I have not posted anything lately, I am still their with you and everyone of my sarc brothers and sister. So do not think that I have stop caring and praying for everyone of you. Lately I have been trying to keep busy. I have been cooking dinner on Tuesday, Wednesday and Thursday. I have been baby sitting my grandson soon to be 4 years old. And what a challenge that can be! He truly wears me out! Also, I have been watering the garden. Well my grandson has been watering the garden. He loves doing that. It gives him a chance to play, get wet and escape the heat wave we've been having and it also gives him a sense of independence and control when I let him hold the water hose. Of course he gets soak and wet, (but he doesn't mind and neither do I) and he has himself a good time in the process. It also gives me a chance to unwind, watch him have fun and I also think back to the times when I was a little boy playing with the water and watering the garden at my grandparents house. So this is a win win situation for both of us huh? I have also been keeping busy with scheduling appointments for dental cleaning, neurologist, urologist and Otolaryngologist. I have decided to have the cochlear implant. And I am going through all the preliminary work for that. I am keeping busy with the household expenses. Paying bills on line is such a relief! No more checks to write, envelopes to lick or stamps to buy! On line bill payments are " marvelous darlin. " Try it sometime if you haven't already. And I am also enrolled in an on line study course that allows me to work at my own pace. This too is GREAT! I am very excited about this new venture. It keeps my mind stimualted, growing and clear, instead of being dull, stagnant and foggy! I really enjoy this course. So, that is about it for me. Also,I will be going back to Florida again during August for a visit with my Mom and other relatives. I have to take care some of my father's business regarding his estate, probate, taxes, medico-legal issues etceteras. But I am not stressed by it at all. On the contrary my dear friend, I look at it as quite a light challenge and a HUGE Blessing as well. I am looking forward to it. Since my illness, I have learned to pace myself in everything I do. So I am very good at not over doing things these days. I have finally learned how to take it easy, relax, and pace myself. And smell the roses along the way! Now isn't that grand? And I have all of this to be thankful for because of my illness. So if you know of any over achievers that want to cut back some and stop over doing it so much, please let them know that I have the perfect remedy for them! Nahhhhhh! Just kidding. Well that's about it for me my dear friend. Tomorrow I am getting up early for my biweekly barber appointment. Yep! Its time for a haircut. I am beginning to look homeless. And my wife does not like that. So take care my dear friend and sister. God bless you, keep you, strengthen you and protect you and your family at all cost. Amen. Your brother, , And thanks for your concerns. I too think of you regularly. Everytime I log on, you are with me in thougth and prayer, so that is daily my dear friend! {{{{{{{{ }}}}}}}} > , > > It is really good to hear from you, how have you been? Please write and let > us know what is going on with you. How are you feeling? What have you been > up to? > > I am alwyas thinking of you when you are quiet. > > Take care, > Kim > NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 Dear , Thank you for the wonderful letter. It was very nice this morning to read such a nice update. You sound happy and life seems good. I am glad and smiling. I needed a bit of calm and serenity this morning. Thank you for painting a very peaceful picture for me. I closed my eyes and just counted down for the next few weeks to pass and all our moving about to be over with. I am anxious to see my husband and all of us to be together again. To have my own "space and life" again. Even though leaving the older two will be very hard, it is their time to move on and the next step in their lives too. The next phase, they are excited about everything now. It sounds like you have a great time with your grandson! I remember playing in water hoses when I was young as well, and even my kids love this pasttime. Here and in Kuwait as well. You cant beat a water hose can yoiu? How wonderful that you have taken the initiative to study online! I have taken courses online before, several, and even my kids study online. The older ones have taken high school courses and university courses online, but even my younger kids, elementary and middle school age have and are taking courses online. They love it, and what a wonderful habit to teach them! Good for you , and you are right the best thing about them is that you can pace yourself and also, you can take the subject matter further, as deep as you want. I love the independence of online study. Some people don't. But I always have. I started this because I was in Kuwait and my options were limited and I missed studying so much, having had turned into such a permenant student over the years, then I discovered options for one of my children out of a particular need and our use of online study grew from there. Good luck with it, I am really happy that you discovered this. Good luck with the cochealer inplant. I do not know so much about this procedure. Will have to study up. We are still having "glitches" with our moving day...waiting around for things to work out or not and nto sure if we are going today or not... oh brother, I do wish soemtimes things would just go smoothly. Wouldnt that be nice. Take care, Kim NS Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 I too get skin lesions about 3 different types. I have a lot of small raised skin tone colored ones, you can feel them, and can only see them up close, which is good, as I have those on my face. Then I have red raised ones, under the skin, that are tender in my legs. and I have ones on my arms, or anywhere I get son, that start out looking like a blister, without the fluid in the blister, but just touch the skin and it falls off, then the skin just starts building up, it eventually leaves a scar that looks like it was a burn. They are annoying, but live able, I have a special cream too, but it really doesn't do that much, neither does cortisone cream, they just run there course and I stay out of the sun. That was probably more information then you wanted!! Marla Skin Lesions: Many of us get them and yes they do leave scars. Mayo gave me Steriod Cream to put on them to help to heal them.. The dermatologist that looked at mine said it looks like Exzema. It looked at you said with raised edges. And I told her whats the difference if that is what you think it is then put that down. Knowing there is no cure for them anyway.. A lot of us get them, I have dexamethasone cream. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 , Nothing is little with this disease, sometimes the lesions on my skin burn more then the nerve pain. today I had another lesions peel off, leaving very sore exposed skin, and that feels like nerve pain too. so no matter what we are dealing with, it is allot. Hope you find relief soon. Marla -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ]On Behalf Of Don and ClotiauxSent: Saturday, August 06, 2005 7:15 PMTo: Neurosarcoidosis Subject: Re: Hi Marla, I tell ya this has been an experience with my skin. I have the blistering, as you explained. You are right not to much helps. When I ever see the dermatologist they will probably all be gone. (that would be nice) I bet my pulmonary is going to give me a medicine to take orally and I will fight the Prednisone. What little fight I have left in me. The side effects taking Prednisone out weigh not taking it. I hope they will give me something else. Of course, every drug has side effects. I know this is a little complaint compared to the Neuro pain, but I appreciate the information. Skin Lesions: Many of us get them and yes they do leave scars. Mayo gave me Steriod Cream to put on them to help to heal them.. The dermatologist that looked at mine said it looks like Exzema. It looked at you said with raised edges. And I told her whats the difference if that is what you think it is then put that down. Knowing there is no cure for them anyway.. A lot of us get them, I have dexamethasone cream. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 , Nothing is little with this disease, sometimes the lesions on my skin burn more then the nerve pain. today I had another lesions peel off, leaving very sore exposed skin, and that feels like nerve pain too. so no matter what we are dealing with, it is allot. Hope you find relief soon. Marla -----Original Message-----From: Neurosarcoidosis [mailto:Neurosarcoidosis ]On Behalf Of Don and ClotiauxSent: Saturday, August 06, 2005 7:15 PMTo: Neurosarcoidosis Subject: Re: Hi Marla, I tell ya this has been an experience with my skin. I have the blistering, as you explained. You are right not to much helps. When I ever see the dermatologist they will probably all be gone. (that would be nice) I bet my pulmonary is going to give me a medicine to take orally and I will fight the Prednisone. What little fight I have left in me. The side effects taking Prednisone out weigh not taking it. I hope they will give me something else. Of course, every drug has side effects. I know this is a little complaint compared to the Neuro pain, but I appreciate the information. Skin Lesions: Many of us get them and yes they do leave scars. Mayo gave me Steriod Cream to put on them to help to heal them.. The dermatologist that looked at mine said it looks like Exzema. It looked at you said with raised edges. And I told her whats the difference if that is what you think it is then put that down. Knowing there is no cure for them anyway.. A lot of us get them, I have dexamethasone cream. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Good to hear from you Quint. Good luck with the Remicade. Luv, Debbie"sarcdogg2@..." wrote: HI EVERYONE JUST CHECKING IN 9/23 WAS MY SECOND REMICADE TX SO FAR SO GOOD.I HAVE A NEW E-MAIL ITS SARCDOGG@... I AM SENDING MY LOVE TO EVERYONE WILL GET BACK TO YOU SOON......QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Good to hear from you Quint. Good luck with the Remicade. Luv, Debbie"sarcdogg2@..." wrote: HI EVERYONE JUST CHECKING IN 9/23 WAS MY SECOND REMICADE TX SO FAR SO GOOD.I HAVE A NEW E-MAIL ITS SARCDOGG@... I AM SENDING MY LOVE TO EVERYONE WILL GET BACK TO YOU SOON......QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Good to hear from you Quint. Good luck with the Remicade. Luv, Debbie"sarcdogg2@..." wrote: HI EVERYONE JUST CHECKING IN 9/23 WAS MY SECOND REMICADE TX SO FAR SO GOOD.I HAVE A NEW E-MAIL ITS SARCDOGG@... I AM SENDING MY LOVE TO EVERYONE WILL GET BACK TO YOU SOON......QUINTSARCDOGG2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I read the letter and because of my income I am expected †ø spend every penny on my medical expenses which total over $2,000 a month. I don't believe living on disability and having our disease lucky at all. I pray for all of us to heal. , was not meaning that to be this ill, to live on disability is "lucky." I do believe that right now what he is feeling is that ANYTHING would be better than where he is at with his situation. You are right, living on disability, having to spend all of our income every month before getting help with medical costs, not even taking in household expenses, food, cars, etc-- that some are still not getting the help we need. It is sinful that a nation that is as "rich" as our government would like us to believe, cannot afford medical care for all its people. 's response was not a direct attack on you, it is his frustration, anger, helplessness at having coverage, but not a single doctor with a brain enough to help him. He too, like so many, have lost their homes, their jobs, their families, the ability to afford transportation, and he's at the end of his rope. All I can say, is hang-on, we'll tie a bunch of ropes together, and that way we can help each other. Please understand the emotions and frustrations that both of you have, and how very similar they are. It's just the difference in "man-speak" vs. women-speak. The subject is the same. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I read the letter and because of my income I am expected †ø spend every penny on my medical expenses which total over $2,000 a month. I don't believe living on disability and having our disease lucky at all. I pray for all of us to heal. , was not meaning that to be this ill, to live on disability is "lucky." I do believe that right now what he is feeling is that ANYTHING would be better than where he is at with his situation. You are right, living on disability, having to spend all of our income every month before getting help with medical costs, not even taking in household expenses, food, cars, etc-- that some are still not getting the help we need. It is sinful that a nation that is as "rich" as our government would like us to believe, cannot afford medical care for all its people. 's response was not a direct attack on you, it is his frustration, anger, helplessness at having coverage, but not a single doctor with a brain enough to help him. He too, like so many, have lost their homes, their jobs, their families, the ability to afford transportation, and he's at the end of his rope. All I can say, is hang-on, we'll tie a bunch of ropes together, and that way we can help each other. Please understand the emotions and frustrations that both of you have, and how very similar they are. It's just the difference in "man-speak" vs. women-speak. The subject is the same. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I think it was the " all that and a bag of chips comment " janet > > Dear > > How are feeling after being home for a few days? I hope that all is okay > after your treatments. My husband is taking me out tonight for Italian food, > quite an accomplishment on my part since it is Ramadan here and this means he > will have to have his futoor in a restaurant instead of at his parents. I > have been so tired lately, especially by mid afternoon early evening, I hope I > hae the energy to energy to actually go and really energy the evening out. > We are also supposed to go and actually buy a - wait for this!! a DINING > ROOM SET! OH I CANT WAIT! an actual table to sit at, what a luxury this will > be if it actually happens. > > I hope you are quiet because you and your grandson are playing around or > you are resting peacefully catching up on a good book. > > Take care > Kim > NS Moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I think it was the " all that and a bag of chips comment " janet > > Dear > > How are feeling after being home for a few days? I hope that all is okay > after your treatments. My husband is taking me out tonight for Italian food, > quite an accomplishment on my part since it is Ramadan here and this means he > will have to have his futoor in a restaurant instead of at his parents. I > have been so tired lately, especially by mid afternoon early evening, I hope I > hae the energy to energy to actually go and really energy the evening out. > We are also supposed to go and actually buy a - wait for this!! a DINING > ROOM SET! OH I CANT WAIT! an actual table to sit at, what a luxury this will > be if it actually happens. > > I hope you are quiet because you and your grandson are playing around or > you are resting peacefully catching up on a good book. > > Take care > Kim > NS Moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I think it was the " all that and a bag of chips comment " janet > > Dear > > How are feeling after being home for a few days? I hope that all is okay > after your treatments. My husband is taking me out tonight for Italian food, > quite an accomplishment on my part since it is Ramadan here and this means he > will have to have his futoor in a restaurant instead of at his parents. I > have been so tired lately, especially by mid afternoon early evening, I hope I > hae the energy to energy to actually go and really energy the evening out. > We are also supposed to go and actually buy a - wait for this!! a DINING > ROOM SET! OH I CANT WAIT! an actual table to sit at, what a luxury this will > be if it actually happens. > > I hope you are quiet because you and your grandson are playing around or > you are resting peacefully catching up on a good book. > > Take care > Kim > NS Moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Speaking of good books. . . .I'm on the second of the series that Matt recommended and I'm really enjoying them. The first one was the #1 Ladies Detective Agency, by Mccall . Ramblin' Rose Moderator From: NeuroSarcoid66@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Date: Wed, 12 Oct 2005 04:20:54 EDT Dear How are feeling after being home for a few days? I hope that all is okay after your treatments. My husband is taking me out tonight for Italian food, quite an accomplishment on my part since it is Ramadan here and this means he will have to have his futoor in a restaurant instead of at his parents. I have been so tired lately, especially by mid afternoon early evening, I hope I hae the energy to energy to actually go and really energy the evening out. We are also supposed to go and actually buy a - wait for this!! a DINING ROOM SET! OH I CANT WAIT! an actual table to sit at, what a luxury this will be if it actually happens. I hope you are quiet because you and your grandson are playing around or you are resting peacefully catching up on a good book. Take care Kim NS Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 --- Rose mamadogrose@...> wrote: --------------------------------- Speaking of good books. . . .I'm on the second of the series that Matt recommended and I'm really enjoying them. The first one was the #1 Ladies Detective Agency, by Mccall . Ramblin' Rose Glad you enjoyed the books- they get better as u go on - Matt --------------------------------- From: NeuroSarcoid66@... Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Date: Wed, 12 Oct 2005 04:20:54 EDT Dear How are feeling after being home for a few days? I hope that all is okay after your treatments. My husband is taking me out tonight for Italian food, quite an accomplishment on my part since it is Ramadan here and this means he will have to have his futoor in a restaurant instead of at his parents. I have been so tired lately, especially by mid afternoon early evening, I hope I hae the energy to energy to actually go and really energy the evening out. We are also supposed to go and actually buy a - wait for this!! a DINING ROOM SET! OH I CANT WAIT! an actual table to sit at, what a luxury this will be if it actually happens. I hope you are quiet because you and your grandson are playing around or you are resting peacefully catching up on a good book. Take care Kim NS Moderator ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community NS CHAT:- Has been cancelled for now. Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 , Thank you for responding. It's appreciated. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Yes I would like to see the pictures if you could send them to me. I also had what I thought was a boil in the groin area but the steroids have made my belly so big I couldn't bend over & get a good look at it! LOL I think we all have to have a little warped to deal with this disease. You've all been very helpful & I will watch for those bumps & get in to show my sarc dr if or when I get another.. grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 , Could you please email me a picture of your legs? I have never seen sarcoid of the skin. Thanks. Terri > > I have skin sarcoid, and they start as you described. They do look like spider bites and then they develop pus under them. > > I sent a picture of my sarc on my legs a while back. It was a very gross looking picture. Not sure if you saw it or not. > > I did have my spots biopsied and it did come back sarcoid. YAHOOOOOO!!! How exciting huh??? oh mylanta..... Sorry I do have a very warped sense of humor.... > > If you would like me to resend those pics let me know. I did tell someone they could put them on the website under skin sarc, but they are not there yet. Oh well, such is life in the big city. > > Oh my spots are very painful. Like if someone touches or bumps into my legs I wanna about go through the roof......... > > Take care, i hope this has helped somewhat. > > from Iowa' > Quote Link to comment Share on other sites More sharing options...
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