RE: /Re:Life after VVS Surgery

[Guest guest]

What types of procedures actually diagnose VV or LS?

Hi ,

It is strange – but pain – which ruled my life – is hard to describe after the fact. I don't know what "certain" type of pain you mean. My original gyno - before he sent me to the vulvar specialist diagnosed me with VV, along with pudendal neuropathy. The specialist (Dr.

– The "V" Book) diagnosed me with LS, which also "supposedly" causes pain. So I had pain from three different sources.

My pain was all over the entire perineum/vulvar area. At times it looked inflamed to me, other times it didn't. It burned unbearably, itched some of the time. I could NOT be touched anywhere in the entire area, but the 6 0'clock area was the worse. When I went for my pre-surgery LS check up with Dr. , she said everything looked just as bad as ever. There was nothing more she could do for me as I had tried everything. I took all the medications, topicals and huge amounts of narcotics she had suggested. I even had a pain management doctor. She thought I was so bad that even a vestibulectomy would not help me. BUT, I did not listen to her – I listened to the surgeon who was going to do my pudendal decompression surgery. He told me he could do the vestibulectomy at the same time, and I would be fine. I thought what did I have to lose – I did not think I could get any worse. He was right – I did great.

Does this answer your question?

nne

From:

VulvarDisorders [mailto:VulvarDisorders

] On Behalf Of femifestoSent: Monday, September 03, 2007 9:13 AMTo:

VulvarDisorders Subject: Re:Life after VVS Surgery

perhaps you both could describe more specifically what type of painyou have/had? isn't it known to be more helpful for certain types of pain?

julie_,_._,___

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http://www.homekeepermamaof3.blogspot.com

[Guest guest]

Hi ,

Yes, I had pain all over my labia skin –

I had pain everywhere. My pain was acute – all the time, but worse when

touched. This probably does not make a lot of sense, but I was on fire with a

deep throbbing pain – more intense in certain spots.

I did not ask Dr. Conway about

long-term outcome and truthfully, I really do not want to hear what it is in

case there is some negativity with it. I am just going to pray everyday that it

does not come back. And no, I do not have anything that describes the

procedure. I sort of blocked it out of mind, as I was so concerned about my

pudendal nerve surgery, especially the crisis two days before the surgery when

I did not think my insurance was going to pay for it. Dr. Conway

made very light about the Vestibulectomy – just told me it would take

away any residue contact pain after the PN surgery. In fact he jokingly threw

it in as a two-for-one – that’s his personality!

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of femifesto

Sent: Monday, September 03, 2007 4:25 PM

To:

VulvarDisorders

Subject: /Re:Life after

VVS Surgery

yes, so did you have pain in/on your labial skin also?

or just around

the opening? i've never looked into surgery too much, but now that i

only have pain in one spot (it used to be more generalized) it seems

like an option to keep open. i think what i've read is that surgery is

not helpful in dyesthetic or generalized vulvodynia, but can be

helpful for localized pain that only happens on contact.

i feel that i am somewhere in between---the pain is localized and

spontaneous (i.e. not just on contact), though it is much worse when

pressure is applied to the area.

what does dr. conway

have to say about the long-term outcome of this

surgery? i don't know if it was the same procedure, and i'm sure it

was written a long time ago, but i read one article (from the vpf i

think) which said that the success rate dropped dramatically for

surgery after long-term follow up.

do you have any articles or links that describe the specific procedure?

i am SOOOOOOO HAPPY for you!