Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Hello , Welcome to Atkins Challengers. I can't believe you joined 250 locarb mailing lists! You must be getting a tremendous amount of mail. I hope you like our little low key corner and choose to stay around a while. We are a chatty, friendly group of people. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 He is adorable! What a wonderful picture! Beth Norma, That's a great idea. I just went and posted his picture that we had taken with Santa on Saturday. >Oh what an adorable age! Maybe you could post a picture at >http://groups.yahoo.com/group/AtkinsChallengers and go to the photo >section. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 He is adorable! What a wonderful picture! Beth Norma, That's a great idea. I just went and posted his picture that we had taken with Santa on Saturday. >Oh what an adorable age! Maybe you could post a picture at >http://groups.yahoo.com/group/AtkinsChallengers and go to the photo >section. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 He is adorable! What a wonderful picture! Beth Norma, That's a great idea. I just went and posted his picture that we had taken with Santa on Saturday. >Oh what an adorable age! Maybe you could post a picture at >http://groups.yahoo.com/group/AtkinsChallengers and go to the photo >section. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , A very warm welcome to you and your family too. I am always saddened when little ones are afflicted with IgAN. I know as a mother that has to break your heart. Both flank pain and fatigue seems to go with IgAN unfortunately. I can tell you that we have many parents of children with IgAN so you are in good company there. It is good that his protein seems to be minimal, and hopefully the biopsy in July will give you a more definitive diagnosis. I hope you find this board very supportive. Welcome again, In a message dated 5/31/2005 10:22:57 A.M. Pacific Daylight Time, ashbug369@... writes: I am so glad to find this group. My 6 year old son started with kidney pain and hematuria at 4 years old. He was at the time diagnosed with kidney stones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , A very warm welcome to you and your family too. I am always saddened when little ones are afflicted with IgAN. I know as a mother that has to break your heart. Both flank pain and fatigue seems to go with IgAN unfortunately. I can tell you that we have many parents of children with IgAN so you are in good company there. It is good that his protein seems to be minimal, and hopefully the biopsy in July will give you a more definitive diagnosis. I hope you find this board very supportive. Welcome again, In a message dated 5/31/2005 10:22:57 A.M. Pacific Daylight Time, ashbug369@... writes: I am so glad to find this group. My 6 year old son started with kidney pain and hematuria at 4 years old. He was at the time diagnosed with kidney stones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2005 Report Share Posted May 31, 2005 Hi , A very warm welcome to you and your family too. I am always saddened when little ones are afflicted with IgAN. I know as a mother that has to break your heart. Both flank pain and fatigue seems to go with IgAN unfortunately. I can tell you that we have many parents of children with IgAN so you are in good company there. It is good that his protein seems to be minimal, and hopefully the biopsy in July will give you a more definitive diagnosis. I hope you find this board very supportive. Welcome again, In a message dated 5/31/2005 10:22:57 A.M. Pacific Daylight Time, ashbug369@... writes: I am so glad to find this group. My 6 year old son started with kidney pain and hematuria at 4 years old. He was at the time diagnosed with kidney stones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Hello , I have breast implants at the age of 35. I am now 54. I was diagnosed with bc on left breast in October last year. It was 1.5 cm-had lumpectomy then radiation. They did a stereotactic biopsy on me. It probably hurt more than most did. It was bruised for about a month. I hope that you will hang here and have a good support group. We are here for you. Sharon C Los Angeles CA SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Hello , I have breast implants at the age of 35. I am now 54. I was diagnosed with bc on left breast in October last year. It was 1.5 cm-had lumpectomy then radiation. They did a stereotactic biopsy on me. It probably hurt more than most did. It was bruised for about a month. I hope that you will hang here and have a good support group. We are here for you. Sharon C Los Angeles CA SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Hello , I have breast implants at the age of 35. I am now 54. I was diagnosed with bc on left breast in October last year. It was 1.5 cm-had lumpectomy then radiation. They did a stereotactic biopsy on me. It probably hurt more than most did. It was bruised for about a month. I hope that you will hang here and have a good support group. We are here for you. Sharon C Los Angeles CA SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Dear ; Welcome to the group. I am so sorry that Tyler's illness brings you here, but glad that you found us. Our son was diagnosed ~4 years ago with PSC + UC, but he's been pretty stable since then. He's been taking high-dose ursodiol for the PSC, rifampin for itching, asacol for the UC, and vitamin, folic acid and fish oil supplements. His latest blood test results have been the best since his diagnosis, with his alkaline phosphatase now at 154 [the first time below 200 since his diagnosis, and now just slightly above the upper limit of normal]. He was diagnosed just before going to college. He's now graduated and is going on to do an M.D./Ph.D. at Indiana University School of Medicine [starting today!]. While we were also devastated by the diagnosis, we have learned [with advice and support form this wonderful group] to take every day as it comes, to enjoy every good day, and not to stress ourselves out too much with worry about what 'might' be in the future. Although we have read a lot about the disease and its many complications, and we feel somewhat prepared to deal with issues as they may arise, we try not to think about this all the time. Instead we try to celebrate his accomplishments such as his recent graduation, and the excitement of his new career etc. We find that work on the PSC Partners Seeking a Cure Foundation is therapeutic as it provides an opportunity to do something positive to potentially change the course of the disease for others over the long term by raising awareness of PSC and dollars for research. I like to think of this as a war against a devastating disease, where our weapons are not swords, but rather $ and words ($words). I'm delighted that you can help in fundraising and plan to come to the conference next year. The friendships you make here online and at the conference do make a difference! About the CA19-9 marker, it is possible that Tyler's doctor may not be too concerned because this marker can rise due to bile-duct strictures (stenoses), and can fall after the strictures are opened by dilitation: _____________________ Z Gastroenterol. 2005 Jun;43(6):587-90. Impact of dominant stenoses on the serum level of the tumor marker CA19-9 in patients with primary sclerosing cholangitis. sen-Benz C, Stiehl A. Abteilung für Gastroenterologie, Medizinische Klinik IV, Universitätskliniken Köln, Germany. .Benz@... BACKGROUND/AIMS: Patients with primary sclerosing cholangitis (PSC) have an increased risk of developing hepatobiliary tumors. The tumor marker CA19-9 was claimed to indicate the occurrence of bile duct carcinoma. This study aimed to assess whether increased serum levels of CA19-9 in PSC patients with dominant stenoses indicate bile duct carcinoma. METHODS: The study cohort comprised 106 patients treated over a median time of 5.0 years (range 0.5 - 13 years). All patients were treated with ursodeoxycholic acid (UDCA) and whenever they developed dominant stenoses by endoscopic dilatation of these stenoses. In endoscopically treated patients, CA19-9 levels were measured before and 3, 6, 12 and 24 months after endoscopic dilatation. RESULTS: Of the 106 patients, 22 carcinoma-free patients and 3 patients with bile duct carcinoma had elevated CA 19 - 9 levels. In 14 out of 25 patients with elevated CA19-9 levels, dominant stenoses were diagnosed and treated by endoscopic dilatation. In 71.4 % of the endoscopically treated patients, CA19-9 levels decreased following the endoscopic intervention. CONCLUSIONS: In PSC patients, increased serum levels of CA19-9 are rarely due to the development of bile duct carcinoma. In patients with dominant stenoses, the relief of biliary obstruction by endoscopic dilatation may lead to a decrease of the serum levels of CA19-9. PMID: 15986288. _____________________ So it may be that Tyler's doctors will be watching to see if his serum CA19-9 levels come down after a recent ERCP? Please feel free to ask questions! Best regards, Dave (father of (22); PSC 07/03; UC 08/03) West Lafayette, IN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 -----Original Message----- In 1999 Jodi wrote, " My son was just diagnosed with PSC about six weeks ago. My son, , is 9 1/2 , If you go to the Yahoo group web site and look under photos, you can see a picture of showing off his transplant scar! Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (33) UC 91 - PSC 99 Listed 7/21/06 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 > In 1999 Jodi wrote, " My son was just diagnosed with PSC about six weeks > ago. My son, , is 9 1/2 > > , > If you go to the Yahoo group web site and look under photos, you can see > a picture of showing off his transplant scar! The photo is at: http://health.ph.groups.yahoo.com/group//photos/view/eba8?b=6 Quote Link to comment Share on other sites More sharing options...
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