Re: FOR ALL WHO READ THIS BOARD...................

[Guest guest]

ML, I am sorry you are having such a hard time. One tip for you, maybe two. Tape your canula on your face. Use paper tape and it won't be so rough on your skin.  When turning up your machine if it goes to 10 do not go above the line, it is only pulling regular air. You may need to get a machine that goes to 15. I am happy you are getting along so well with your eye surgery.Keep us posted. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  JUST REMEMBER, GOD LOVES ALL OF US SO MUCH. HE IS CONTINUALLY BLESSING US NO MATTER HOW WE HATE THIS DISEASE. GOD HAS PLANNED OUR LIVES FOR HIS WILL TO BE DONE WITH EACH OF US AND DON'T FORGET, WE WOULDN'T EVEN BE HERE IF IT WEREN'T FOR HIM AND HIM ALONE.I AM SO GRATEFUL FOR THE WAY I WAS RAISED BY MY PARENTS, GOOD AND BAD AND EACH THING WE EXPERIENCE EACH DAY IS US "GROWING" IN GOD'S PLAN FOR US, NO MATTER IF WE KNOW WHAT THAT IS OR NOT, IS NOT IMPORTANT, THERE IS NO TOMORROW, JUST TODAY. WE MUST LOVE IT TO PIECES, GOOD OR BAD, AND JUST KNOW THAT WHEN GOD IS READY WE WILL JOIN HIM, LOOK DOWN ON YOU, ALL OF YOU AND TELL YOU HOW WONDERFUL IT REALLY IS AND FOR YOU TO THOROUGHLY EACH AND EVERY BREATH WE ARE GIVEN.LAST NIGHT I WOKE UP AT 4:45 AND I COULD NOT BREATHE AT ALL. IN OR OUT. COULD'T FIND MY CANNULA, I WAS TOO WEAK TO REACH FOR EARL, COULDN'T CALL OUT EITHER, OR BREATHE. FOUND THE CANNULA SECONDS LATER AND AFTER A MIN OR SO, GOT UP AND TURNED IT UP TO 9. I WAS SO FRIGHTENED, BUT THOUGHT THAT GOD HAD COME TO TAKE ME THEN. IT SEEMED SO VERY VERY CLOSE FOR ME. I AM FINE TODAY BUT VERY VERY VULNERABLE TO FEELINGS. MY FAMILY IS WONDERFUL AND SO THOUGHTFUL. I JUST SOMETIMES FEEL I AM NOT LONG AWAY, BUT THAT IS GOD'S TURN NEXT. I TRY MY BEST TO DO WHAT I SHOULD.\THE ANESTHESIOLOGIST FROM MY EYE SURGURY CALLED ME THIS AFTERNOON AND SHE WANTED TO KNOW HOW I WAS FEELING AND IF I HAD ANY PROBLEMS, I SAID NO AND THAT IT WAS GETTING BETTER EVERY DAY. I HAVE BEEN VERY FAITHFUL WITH MY DROPS. AM SEEING A LITTLE BETTER, BUT IT WILL ONLY HAVE BEEN A WEEK TOMORROW. SEE SURG. TOMORROW 8AM SHARP. HAVE CALL INTO "PULMODUDE" TOO AS I AM WONDERING WHAT TO DO AFTER I REACH #10. TOLD HIS NURSE IT IS HARDER AND HARDER TO BREATHE AND THE INCREASE IN ANXIETY PILLS HAS HELPED SOME.I LOVE YOU ALL SO MUCH.PLEASE STAND BESIDE MEWHEN I GET ACTING CRAZY.\MARY LOUIPF - 02

[Guest guest]

ML...we're always here for you friend.

I would have been panicky too had I awakened and couldn't breathe.

Yes, it's one day at a time and God is in charge of it all.

Thanks for the card!

Love ya.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

FOR ALL WHO READ THIS BOARD...................

JUST REMEMBER, GOD LOVES ALL OF US SO MUCH. HE IS CONTINUALLY BLESSING US NO MATTER HOW WE HATE THIS DISEASE. GOD HAS PLANNED OUR LIVES FOR HIS WILL TO BE DONE WITH EACH OF US AND DON'T FORGET, WE WOULDN'T EVEN BE HERE IF IT WEREN'T FOR HIM AND HIM ALONE.I AM SO GRATEFUL FOR THE WAY I WAS RAISED BY MY PARENTS, GOOD AND BAD AND EACH THING WE EXPERIENCE EACH DAY IS US "GROWING" IN GOD'S PLAN FOR US, NO MATTER IF WE KNOW WHAT THAT IS OR NOT, IS NOT IMPORTANT, THERE IS NO TOMORROW, JUST TODAY. WE MUST LOVE IT TO PIECES, GOOD OR BAD, AND JUST KNOW THAT WHEN GOD IS READY WE WILL JOIN HIM, LOOK DOWN ON YOU, ALL OF YOU AND TELL YOU HOW WONDERFUL IT REALLY IS AND FOR YOU TO THOROUGHLY EACH AND EVERY BREATH WE ARE GIVEN.LAST NIGHT I WOKE UP AT 4:45 AND I COULD NOT BREATHE AT ALL. IN OR OUT. COULD'T FIND MY CANNULA, I WAS TOO WEAK TO REACH FOR EARL, COULDN'T CALL OUT EITHER, OR BREATHE. FOUND THE CANNULA SECONDS LATER AND AFTER A MIN OR SO, GOT UP AND TURNED IT UP TO 9. I WAS SO FRIGHTENED, BUT THOUGHT THAT GOD HAD COME TO TAKE ME THEN. IT SEEMED SO VERY VERY CLOSE FOR ME. I AM FINE TODAY BUT VERY VERY VULNERABLE TO FEELINGS. MY FAMILY IS WONDERFUL AND SO THOUGHTFUL. I JUST SOMETIMES FEEL I AM NOT LONG AWAY, BUT THAT IS GOD'S TURN NEXT. I TRY MY BEST TO DO WHAT I SHOULD.\THE ANESTHESIOLOGIST FROM MY EYE SURGURY CALLED ME THIS AFTERNOON AND SHE WANTED TO KNOW HOW I WAS FEELING AND IF I HAD ANY PROBLEMS, I SAID NO AND THAT IT WAS GETTING BETTER EVERY DAY. I HAVE BEEN VERY FAITHFUL WITH MY DROPS. AM SEEING A LITTLE BETTER, BUT IT WILL ONLY HAVE BEEN A WEEK TOMORROW. SEE SURG. TOMORROW 8AM SHARP. HAVE CALL INTO "PULMODUDE" TOO AS I AM WONDERING WHAT TO DO AFTER I REACH #10. TOLD HIS NURSE IT IS HARDER AND HARDER TO BREATHE AND THE INCREASE IN ANXIETY PILLS HAS HELPED SOME.I LOVE YOU ALL SO MUCH.PLEASE STAND BESIDE MEWHEN I GET ACTING CRAZY.\MARY LOUIPF - 02

[Guest guest]

Lou- I pray you can feel God's loving arms around you always, and that you take comfort from the idea that if you live, you live in Him, and if you die, you die in Him. I'm sure it was terrifying not to breathe, and I do know what extreme anxiety feels like. I am praying for you to feel that peace that knows no understanding. Hugs, BSher Bauman wrote: ML...we're always here

for you friend. I would have been panicky too had I awakened and couldn't breathe. Yes, it's one day at a time and God is in charge of it all. Thanks for the card! Love ya. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! FOR ALL WHO READ THIS BOARD................... JUST REMEMBER, GOD LOVES ALL OF US SO MUCH. HE IS CONTINUALLY BLESSING US NO MATTER HOW WE HATE THIS DISEASE. GOD HAS PLANNED OUR LIVES FOR HIS WILL TO BE DONE WITH EACH OF US AND DON'T FORGET, WE WOULDN'T EVEN BE HERE IF IT WEREN'T FOR HIM AND HIM ALONE.I AM SO GRATEFUL FOR THE WAY I WAS RAISED BY MY PARENTS, GOOD AND BAD AND EACH THING WE EXPERIENCE EACH DAY IS US "GROWING" IN GOD'S PLAN FOR US, NO MATTER IF WE KNOW WHAT THAT IS OR NOT, IS NOT IMPORTANT, THERE IS NO TOMORROW, JUST TODAY. WE MUST LOVE IT TO PIECES, GOOD OR BAD, AND JUST KNOW THAT WHEN GOD IS READY WE WILL JOIN HIM, LOOK DOWN ON YOU, ALL OF YOU AND TELL YOU HOW WONDERFUL IT REALLY IS AND FOR YOU TO THOROUGHLY EACH

AND EVERY BREATH WE ARE GIVEN.LAST NIGHT I WOKE UP AT 4:45 AND I COULD NOT BREATHE AT ALL. IN OR OUT. COULD'T FIND MY CANNULA, I WAS TOO WEAK TO REACH FOR EARL, COULDN'T CALL OUT EITHER, OR BREATHE. FOUND THE CANNULA SECONDS LATER AND AFTER A MIN OR SO, GOT UP AND TURNED IT UP TO 9. I WAS SO FRIGHTENED, BUT THOUGHT THAT GOD HAD COME TO TAKE ME THEN. IT SEEMED SO VERY VERY CLOSE FOR ME. I AM FINE TODAY BUT VERY VERY VULNERABLE TO FEELINGS. MY FAMILY IS WONDERFUL AND SO THOUGHTFUL. I JUST SOMETIMES FEEL I AM NOT LONG AWAY, BUT THAT IS GOD'S TURN NEXT. I TRY MY BEST TO DO WHAT I SHOULD.\THE ANESTHESIOLOGIST FROM MY EYE SURGURY CALLED ME THIS AFTERNOON AND SHE WANTED TO KNOW HOW I WAS FEELING AND IF I HAD ANY PROBLEMS, I SAID NO AND THAT IT WAS GETTING BETTER EVERY DAY. I HAVE BEEN VERY FAITHFUL WITH MY DROPS. AM SEEING A LITTLE BETTER, BUT IT WILL ONLY HAVE BEEN A WEEK TOMORROW. SEE SURG. TOMORROW 8AM SHARP.

HAVE CALL INTO "PULMODUDE" TOO AS I AM WONDERING WHAT TO DO AFTER I REACH #10. TOLD HIS NURSE IT IS HARDER AND HARDER TO BREATHE AND THE INCREASE IN ANXIETY PILLS HAS HELPED SOME.I LOVE YOU ALL SO MUCH.PLEASE STAND BESIDE MEWHEN I GET ACTING CRAZY.\MARY LOUIPF - 02 Barbara McDIPF, Sept 08Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

[Guest guest]

Lou,

Peggy's suggestions are excellent. I used to tape the tubing to my face and it made a huge difference.

I'm so happy to hear you are doing well after the cataract surgery!

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

HAPPY NEW YEAR!!

To: Breathe-Support Sent: Monday, December 29, 2008 7:11:27 PMSubject: FOR ALL WHO READ THIS BOARD...................

JUST REMEMBER, GOD LOVES ALL OF US SO MUCH. HE IS CONTINUALLY BLESSING US NO MATTER HOW WE HATE THIS DISEASE. GOD HAS PLANNED OUR LIVES FOR HIS WILL TO BE DONE WITH EACH OF US AND DON'T FORGET, WE WOULDN'T EVEN BE HERE IF IT WEREN'T FOR HIM AND HIM ALONE.I AM SO GRATEFUL FOR THE WAY I WAS RAISED BY MY PARENTS, GOOD AND BAD AND EACH THING WE EXPERIENCE EACH DAY IS US "GROWING" IN GOD'S PLAN FOR US, NO MATTER IF WE KNOW WHAT THAT IS OR NOT, IS NOT IMPORTANT, THERE IS NO TOMORROW, JUST TODAY. WE MUST LOVE IT TO PIECES, GOOD OR BAD, AND JUST KNOW THAT WHEN GOD IS READY WE WILL JOIN HIM, LOOK DOWN ON YOU, ALL OF YOU AND TELL YOU HOW WONDERFUL IT REALLY IS AND FOR YOU TO THOROUGHLY EACH AND EVERY BREATH WE ARE GIVEN.LAST NIGHT I WOKE UP AT 4:45 AND I COULD NOT BREATHE AT ALL. IN OR OUT. COULD'T FIND MY CANNULA, I WAS TOO WEAK TO REACH FOR EARL, COULDN'T CALL OUT EITHER, OR BREATHE. FOUND THE

CANNULA SECONDS LATER AND AFTER A MIN OR SO, GOT UP AND TURNED IT UP TO 9. I WAS SO FRIGHTENED, BUT THOUGHT THAT GOD HAD COME TO TAKE ME THEN. IT SEEMED SO VERY VERY CLOSE FOR ME. I AM FINE TODAY BUT VERY VERY VULNERABLE TO FEELINGS. MY FAMILY IS WONDERFUL AND SO THOUGHTFUL. I JUST SOMETIMES FEEL I AM NOT LONG AWAY, BUT THAT IS GOD'S TURN NEXT. I TRY MY BEST TO DO WHAT I SHOULD.\THE ANESTHESIOLOGIST FROM MY EYE SURGURY CALLED ME THIS AFTERNOON AND SHE WANTED TO KNOW HOW I WAS FEELING AND IF I HAD ANY PROBLEMS, I SAID NO AND THAT IT WAS GETTING BETTER EVERY DAY. I HAVE BEEN VERY FAITHFUL WITH MY DROPS. AM SEEING A LITTLE BETTER, BUT IT WILL ONLY HAVE BEEN A WEEK TOMORROW. SEE SURG. TOMORROW 8AM SHARP. HAVE CALL INTO "PULMODUDE" TOO AS I AM WONDERING WHAT TO DO AFTER I REACH #10. TOLD HIS NURSE IT IS HARDER AND HARDER TO BREATHE AND THE INCREASE IN ANXIETY PILLS HAS HELPED SOME.I LOVE

YOU ALL SO MUCH.PLEASE STAND BESIDE MEWHEN I GET ACTING CRAZY.\MARY LOUIPF - 02

[Guest guest]

I am a newbie to this group and haven't gotten to know you yet but I

want you to know you will be in my prayers each day. I can't even

imagine how you must have felt when you woke up. I pray God's grace on

you throughout this day and on your family and your doctors.

Lark IPF 12-08-2008

>

> Lou,

> Peggy's suggestions are excellent. I used to tape the tubing to my

face and it made a huge difference.

> I'm so happy to hear you are doing well after the cataract surgery!

>

> Beth in North Carolina

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

> HAPPY NEW YEAR!!

>

>

>

>

> ________________________________

> From: Lou mlpretired@...

> To: Breathe-Support

> Sent: Monday, December 29, 2008 7:11:27 PM

> Subject: FOR ALL WHO READ THIS

BOARD...................

>

>

> JUST REMEMBER, GOD LOVES ALL OF US SO MUCH. HE IS CONTINUALLY

> BLESSING US NO MATTER HOW WE HATE THIS DISEASE. GOD HAS PLANNED OUR

> LIVES FOR HIS WILL TO BE DONE WITH EACH OF US AND DON'T FORGET, WE

> WOULDN'T EVEN BE HERE IF IT WEREN'T FOR HIM AND HIM ALONE.

>

> I AM SO GRATEFUL FOR THE WAY I WAS RAISED BY MY PARENTS, GOOD AND BAD

> AND EACH THING WE EXPERIENCE EACH DAY IS US " GROWING " IN GOD'S PLAN

> FOR US, NO MATTER IF WE KNOW WHAT THAT IS OR NOT, IS NOT IMPORTANT,

> THERE IS NO TOMORROW, JUST TODAY. WE MUST LOVE IT TO PIECES, GOOD OR

> BAD, AND JUST KNOW THAT WHEN GOD IS READY WE WILL JOIN HIM, LOOK DOWN

> ON YOU, ALL OF YOU AND TELL YOU HOW WONDERFUL IT REALLY IS AND FOR

> YOU TO THOROUGHLY EACH AND EVERY BREATH WE ARE GIVEN.

>

> LAST NIGHT I WOKE UP AT 4:45 AND I COULD NOT BREATHE AT ALL. IN OR

> OUT. COULD'T FIND MY CANNULA, I WAS TOO WEAK TO REACH FOR EARL,

> COULDN'T CALL OUT EITHER, OR BREATHE. FOUND THE CANNULA SECONDS

> LATER AND AFTER A MIN OR SO, GOT UP AND TURNED IT UP TO 9. I WAS SO

> FRIGHTENED, BUT THOUGHT THAT GOD HAD COME TO TAKE ME THEN. IT SEEMED

> SO VERY VERY CLOSE FOR ME. I AM FINE TODAY BUT VERY VERY VULNERABLE

> TO FEELINGS. MY FAMILY IS WONDERFUL AND SO THOUGHTFUL. I JUST

> SOMETIMES FEEL I AM NOT LONG AWAY, BUT THAT IS GOD'S TURN NEXT. I

> TRY MY BEST TO DO WHAT I SHOULD.

> \

> THE ANESTHESIOLOGIST FROM MY EYE SURGURY CALLED ME THIS AFTERNOON AND

> SHE WANTED TO KNOW HOW I WAS FEELING AND IF I HAD ANY PROBLEMS, I

> SAID NO AND THAT IT WAS GETTING BETTER EVERY DAY. I HAVE BEEN VERY

> FAITHFUL WITH MY DROPS. AM SEEING A LITTLE BETTER, BUT IT WILL ONLY

> HAVE BEEN A WEEK TOMORROW. SEE SURG. TOMORROW 8AM SHARP.

>

> HAVE CALL INTO " PULMODUDE " TOO AS I AM WONDERING WHAT TO DO AFTER I

> REACH #10. TOLD HIS NURSE IT IS HARDER AND HARDER TO BREATHE AND THE

> INCREASE IN ANXIETY PILLS HAS HELPED SOME.

>

> I LOVE YOU ALL SO MUCH.

> PLEASE STAND BESIDE ME

> WHEN I GET ACTING CRAZY.

> \

> MARY LOU

> IPF - 02

>