Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 There are 2 muscles that run along the front of the neck and when these muscles are too tight (in my case it's most of the time) it affects balance and dizziness. Questions Hugs to everyone I have several questions. One is has anyone ever expereinced dizziness from maybe so much pain? I have not been able turn my head certain ways because I get really dizzy and feel lightheaded. I have stabbing pains in my ears and the back of my head hurts. I have been have really severe pain in the back of my neck and it radiates down to my shoulder blades and it burns so bad. Could it be that? I even though it was the fluid pill causing this but I did not take it today and it is still bad. I will not go to the doctor till Tuesday so any input would be helpful. You know you have to go in there and help them to idagnose you with our problem. I have another question. About the palpations in your throat what is that?? I also have that there is a bout six months but it goes and comes and it does not last long. I never told the doc because I figured it was the fibro. About the dizziness I can't look down or up I get really dizzy. It is like I have to keep my head very still and at night it is worst. thanks Fay ******* Dear Fay, The lightheadestment, etc, that you descibe comes to me due to stopped up sinus cavitites. This is something several people I have talked to experience. The best reliever of the pain I have found is actually a decogestant, Guaifen/P-ehed tablets. A large number of people I spoke with who had fibro from another group, always used to say they believed fibro was helped taking Guaifen. I am not sure if it helps that, or just my breathing. Becky " There are only two ways to live your life.One is as though nothing is a miracle. The other is as though everything is a miracle. " ~Albert Einstein~*We are all visitors to this time, this place,We are just passing through.Our purpose here is to observe,to learn,to grow,to LOVE...and then we return home.~Aborigine philosophy~8^) Not Chuck,just stuck in this body. " Becky " --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 it's time to ask the doc for supplemental O2 even if you don't use it 24/7, you need it in the house for when you need it like when your SAT goes under 90% my doc ordered it before i thouhgt i was ready she said that she was ordering it in case i need if for exertion gradually i started using it for exertion then when i really needed it, about a year later, i was glad it was in the house Pink Joyce IPF 3/06 Pennsylvania Donate Life Subject: BreathingTo: Breathe-Support Date: Monday, December 29, 2008, 9:42 PM Lou how scary for you.I pray for all of us everyday. I am having a real problem breathing myself. I have not been on oxygen yet but feel I am heading there quickly. I quit the cytoxan on the 23rd and thought I would start to feel better but just the opposite has happened.I can barely walk 20 feet without my o2 dropping into the 80's. My blood work was horrible so my Dr said to stop the cytoxan immediately. I have a urinary tract infection and started to take cipro today but I cant believe this would affect my breathing and coughing. I cough non stop and even though I felt lousy before this is way worse.It only takes a few minutes to get up over 90 again but I cannot move or do anything. Did anybody else get an infection anywhere other than there lungs and feel this bad? I sure hope tomorrow I feel better. IPF 2/07 Scleroderma raynauds and sjogren 4/08 il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 I have been getting alot of infections, all over the place. most are in socially inconvenient places, making sitting and walking even more uncomfortable. I have been placed on z pack several times in the past few months, this is my third batch. I even have paper cuts that get infected! and considering that I work with files all day, that is an issue. Doc says that infections are due to the fact they are suppressing my immune system, nothing that they can do for now. so, you are not alone. But I have no solutions, so if you find one PLEASE let me know. Later, NSIP 08 > > Subject: Breathing > To: Breathe-Support > Date: Monday, December 29, 2008, 9:42 PM > Lou how scary for you.I pray for all of us everyday. I > am having a real problem breathing myself. I have not been > on oxygen yet but feel I am heading there quickly. I quit > the cytoxan on the 23rd and thought I would start to feel > better but just the opposite has happened.I can barely walk > 20 feet without my o2 dropping into the 80's. My blood > work was horrible so my Dr said to stop the cytoxan > immediately.I have a urinary tract infection and started to > take cipro today but I cant believe this would affect my > breathing and coughing. I cough non stop and even though I > felt lousy before this is way worse.It only takes a few > minutes to get up over 90 again but I cannot move or do > anything. Did anybody else get an infection anywhere other > than there lungs and feel this bad? I sure hope tomorrow I > feel better. > IPF 2/07 Scleroderma raynauds and sjogren 4/08 il Quote Link to comment Share on other sites More sharing options...
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