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Kerry, You have shown us all again just how brave and strong you are.

I cannot even imagine what all those tubes and drains were like. I just

had one chest tube after the OLB

and I was truly in agony. 4 tubes and other drains? That sounds

unsurmountable to me.

Yet you write about them and the removal as if it was just a simple

thing.

Now I know that the procedures are not simple.

Keep fighting kid...we are all here to help absorb whatever pain is too

much!!!!

HAPPY NEW YEAR 2009 TO YOU AND KEVIN AND THE FAMILY.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Kerry wrote:

It's so hard to know where to begin or how much detail. I had a

bilateral transplant so I had 2 incisions in my back, 4 garden hose

(no joke) drains in the front and 2 morphine drip lines, too. When

I last emailed I had the morphine lines and 2 of the drainage tubes

removed. It was a huge relief because hurting in the front and back

made me want to take short tensed up shallow breaths. On Christmas,

I got the other 2 drains pulled. I was able to clean up a little

more, get out of a hospital gown and actually move out of bed

myself. I was able to take deeper breaths and had a temporary

handle on the pain. I took a step forward, then a couple steps back

because I would end up going from pain relief to a white knuckle

ride before more relief. All thru this, the docs were saying things

were progressing well and actually talked about me getting released

much earlier than expected. After a very painful Friday night I

begged for something different. I was at near max dose of what I

was on, of course they can't just sedate you or you wouldn't be able

to work the new lungs and I have some medication allergies that

limit my options. I'm actually in a greater amount of pain now, but

I feel like I can work thru a continuous level easier than the

rollercoaster ride (except at night, it's hard to distract yourself

from the pain in the overnight). Anyway, I am doing the exercises,

walking the halls, doing breathing exercises, eating, learning about

all my medications, about this steroid induced diabetes (I'm just

going to plan on it being temporary, once the steroids amounts are

weaned down over the next year). I did my pulmonary rehab this

morning and passed it (and that is really impressive because I've

been struggling w/ a little wheezing the past day). It was cool to

be able to walk a farther distance today w/ my new lungs than I had

done in the last year on up to 8 liters of oxygen. One of the most

exciting things was finally viewing the xrays of the before and

after. My old lungs were almost completely opaque. With the new

lungs, you instead see space, air and the funny thing... ribs!

Depending on how the pain relief goes overnight and some of the

medications being completed and/or changed over today I might

actually get released tomorrow. It's up to the surgeon and the

pulmonologist and I think about a half dozen coordinators.

Thanks to all for the encouragement, your joy and encouragement has

come thru loud and clear. and I discussed again today how

amazing it is to feel so many well wishes and prayers for us.

I did talk to Judy as you know the other day and I told her I would

update again and needed to share w/ everyone that I had a wonderful

visit w/ Lucian and Gretchen on Friday. They brought me a wonderful

hospital care package and I was able to share with them some of the

wonderful things that I thought I learned from Joyce and showed them

some very concrete examples of how she was still helping me thru

this. We all passed around the tissues.

Love to all,

Kerry (bilateral transplant 12/18/08)

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Kerry, You have shown us all again just how brave and strong you are.

I cannot even imagine what all those tubes and drains were like. I just

had one chest tube after the OLB

and I was truly in agony. 4 tubes and other drains? That sounds

unsurmountable to me.

Yet you write about them and the removal as if it was just a simple

thing.

Now I know that the procedures are not simple.

Keep fighting kid...we are all here to help absorb whatever pain is too

much!!!!

HAPPY NEW YEAR 2009 TO YOU AND KEVIN AND THE FAMILY.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Kerry wrote:

It's so hard to know where to begin or how much detail. I had a

bilateral transplant so I had 2 incisions in my back, 4 garden hose

(no joke) drains in the front and 2 morphine drip lines, too. When

I last emailed I had the morphine lines and 2 of the drainage tubes

removed. It was a huge relief because hurting in the front and back

made me want to take short tensed up shallow breaths. On Christmas,

I got the other 2 drains pulled. I was able to clean up a little

more, get out of a hospital gown and actually move out of bed

myself. I was able to take deeper breaths and had a temporary

handle on the pain. I took a step forward, then a couple steps back

because I would end up going from pain relief to a white knuckle

ride before more relief. All thru this, the docs were saying things

were progressing well and actually talked about me getting released

much earlier than expected. After a very painful Friday night I

begged for something different. I was at near max dose of what I

was on, of course they can't just sedate you or you wouldn't be able

to work the new lungs and I have some medication allergies that

limit my options. I'm actually in a greater amount of pain now, but

I feel like I can work thru a continuous level easier than the

rollercoaster ride (except at night, it's hard to distract yourself

from the pain in the overnight). Anyway, I am doing the exercises,

walking the halls, doing breathing exercises, eating, learning about

all my medications, about this steroid induced diabetes (I'm just

going to plan on it being temporary, once the steroids amounts are

weaned down over the next year). I did my pulmonary rehab this

morning and passed it (and that is really impressive because I've

been struggling w/ a little wheezing the past day). It was cool to

be able to walk a farther distance today w/ my new lungs than I had

done in the last year on up to 8 liters of oxygen. One of the most

exciting things was finally viewing the xrays of the before and

after. My old lungs were almost completely opaque. With the new

lungs, you instead see space, air and the funny thing... ribs!

Depending on how the pain relief goes overnight and some of the

medications being completed and/or changed over today I might

actually get released tomorrow. It's up to the surgeon and the

pulmonologist and I think about a half dozen coordinators.

Thanks to all for the encouragement, your joy and encouragement has

come thru loud and clear. and I discussed again today how

amazing it is to feel so many well wishes and prayers for us.

I did talk to Judy as you know the other day and I told her I would

update again and needed to share w/ everyone that I had a wonderful

visit w/ Lucian and Gretchen on Friday. They brought me a wonderful

hospital care package and I was able to share with them some of the

wonderful things that I thought I learned from Joyce and showed them

some very concrete examples of how she was still helping me thru

this. We all passed around the tissues.

Love to all,

Kerry (bilateral transplant 12/18/08)

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.0/1866 - Release Date: 12/27/2008 8:49 PM

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Kerry, You have shown us all again just how brave and strong you are.

I cannot even imagine what all those tubes and drains were like. I just

had one chest tube after the OLB

and I was truly in agony. 4 tubes and other drains? That sounds

unsurmountable to me.

Yet you write about them and the removal as if it was just a simple

thing.

Now I know that the procedures are not simple.

Keep fighting kid...we are all here to help absorb whatever pain is too

much!!!!

HAPPY NEW YEAR 2009 TO YOU AND KEVIN AND THE FAMILY.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Kerry wrote:

It's so hard to know where to begin or how much detail. I had a

bilateral transplant so I had 2 incisions in my back, 4 garden hose

(no joke) drains in the front and 2 morphine drip lines, too. When

I last emailed I had the morphine lines and 2 of the drainage tubes

removed. It was a huge relief because hurting in the front and back

made me want to take short tensed up shallow breaths. On Christmas,

I got the other 2 drains pulled. I was able to clean up a little

more, get out of a hospital gown and actually move out of bed

myself. I was able to take deeper breaths and had a temporary

handle on the pain. I took a step forward, then a couple steps back

because I would end up going from pain relief to a white knuckle

ride before more relief. All thru this, the docs were saying things

were progressing well and actually talked about me getting released

much earlier than expected. After a very painful Friday night I

begged for something different. I was at near max dose of what I

was on, of course they can't just sedate you or you wouldn't be able

to work the new lungs and I have some medication allergies that

limit my options. I'm actually in a greater amount of pain now, but

I feel like I can work thru a continuous level easier than the

rollercoaster ride (except at night, it's hard to distract yourself

from the pain in the overnight). Anyway, I am doing the exercises,

walking the halls, doing breathing exercises, eating, learning about

all my medications, about this steroid induced diabetes (I'm just

going to plan on it being temporary, once the steroids amounts are

weaned down over the next year). I did my pulmonary rehab this

morning and passed it (and that is really impressive because I've

been struggling w/ a little wheezing the past day). It was cool to

be able to walk a farther distance today w/ my new lungs than I had

done in the last year on up to 8 liters of oxygen. One of the most

exciting things was finally viewing the xrays of the before and

after. My old lungs were almost completely opaque. With the new

lungs, you instead see space, air and the funny thing... ribs!

Depending on how the pain relief goes overnight and some of the

medications being completed and/or changed over today I might

actually get released tomorrow. It's up to the surgeon and the

pulmonologist and I think about a half dozen coordinators.

Thanks to all for the encouragement, your joy and encouragement has

come thru loud and clear. and I discussed again today how

amazing it is to feel so many well wishes and prayers for us.

I did talk to Judy as you know the other day and I told her I would

update again and needed to share w/ everyone that I had a wonderful

visit w/ Lucian and Gretchen on Friday. They brought me a wonderful

hospital care package and I was able to share with them some of the

wonderful things that I thought I learned from Joyce and showed them

some very concrete examples of how she was still helping me thru

this. We all passed around the tissues.

Love to all,

Kerry (bilateral transplant 12/18/08)

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.0/1866 - Release Date: 12/27/2008 8:49 PM

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Hi Kerry,

I am so proud for you with your new lungs and that you are doing so well. Hopefully the pain will go away soon for you. I will keep you in my thoughts and prayers for a speedy recovery. What a wonderful Christmas and New Year's gift!! You are truly blessed indeed.CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08Mississippi

Subject: Kerry 10 day updateTo: Breathe-Support Date: Sunday, December 28, 2008, 10:32 PM

It's so hard to know where to begin or how much detail. I had a bilateral transplant so I had 2 incisions in my back, 4 garden hose (no joke) drains in the front and 2 morphine drip lines, too. When I last emailed I had the morphine lines and 2 of the drainage tubes removed. It was a huge relief because hurting in the front and back made me want to take short tensed up shallow breaths. On Christmas, I got the other 2 drains pulled. I was able to clean up a little more, get out of a hospital gown and actually move out of bed myself. I was able to take deeper breaths and had a temporary handle on the pain. I took a step forward, then a couple steps back because I would end up going from pain relief to a white knuckle ride before more relief. All thru this, the docs were saying things were progressing well and actually talked about me getting released much earlier than expected. After a very painful

Friday night I begged for something different. I was at near max dose of what I was on, of course they can't just sedate you or you wouldn't be able to work the new lungs and I have some medication allergies that limit my options. I'm actually in a greater amount of pain now, but I feel like I can work thru a continuous level easier than the rollercoaster ride (except at night, it's hard to distract yourself from the pain in the overnight). Anyway, I am doing the exercises, walking the halls, doing breathing exercises, eating, learning about all my medications, about this steroid induced diabetes (I'm just going to plan on it being temporary, once the steroids amounts are weaned down over the next year). I did my pulmonary rehab this morning and passed it (and that is really impressive because I've been struggling w/ a little wheezing the past day). It was cool to be able to walk a farther distance

today w/ my new lungs than I had done in the last year on up to 8 liters of oxygen. One of the most exciting things was finally viewing the xrays of the before and after. My old lungs were almost completely opaque. With the new lungs, you instead see space, air and the funny thing... ribs! Depending on how the pain relief goes overnight and some of the medications being completed and/or changed over today I might actually get released tomorrow. It's up to the surgeon and the pulmonologist and I think about a half dozen coordinators.Thanks to all for the encouragement, your joy and encouragement has come thru loud and clear. and I discussed again today how amazing it is to feel so many well wishes and prayers for us.I did talk to Judy as you know the other day and I told her I would update again and needed to share w/ everyone that I had a wonderful visit w/ Lucian and Gretchen on

Friday. They brought me a wonderful hospital care package and I was able to share with them some of the wonderful things that I thought I learned from Joyce and showed them some very concrete examples of how she was still helping me thru this. We all passed around the tissues.Love to all,Kerry (bilateral transplant 12/18/08)

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Hi Kerry,

I am so proud for you with your new lungs and that you are doing so well. Hopefully the pain will go away soon for you. I will keep you in my thoughts and prayers for a speedy recovery. What a wonderful Christmas and New Year's gift!! You are truly blessed indeed.CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08Mississippi

Subject: Kerry 10 day updateTo: Breathe-Support Date: Sunday, December 28, 2008, 10:32 PM

It's so hard to know where to begin or how much detail. I had a bilateral transplant so I had 2 incisions in my back, 4 garden hose (no joke) drains in the front and 2 morphine drip lines, too. When I last emailed I had the morphine lines and 2 of the drainage tubes removed. It was a huge relief because hurting in the front and back made me want to take short tensed up shallow breaths. On Christmas, I got the other 2 drains pulled. I was able to clean up a little more, get out of a hospital gown and actually move out of bed myself. I was able to take deeper breaths and had a temporary handle on the pain. I took a step forward, then a couple steps back because I would end up going from pain relief to a white knuckle ride before more relief. All thru this, the docs were saying things were progressing well and actually talked about me getting released much earlier than expected. After a very painful

Friday night I begged for something different. I was at near max dose of what I was on, of course they can't just sedate you or you wouldn't be able to work the new lungs and I have some medication allergies that limit my options. I'm actually in a greater amount of pain now, but I feel like I can work thru a continuous level easier than the rollercoaster ride (except at night, it's hard to distract yourself from the pain in the overnight). Anyway, I am doing the exercises, walking the halls, doing breathing exercises, eating, learning about all my medications, about this steroid induced diabetes (I'm just going to plan on it being temporary, once the steroids amounts are weaned down over the next year). I did my pulmonary rehab this morning and passed it (and that is really impressive because I've been struggling w/ a little wheezing the past day). It was cool to be able to walk a farther distance

today w/ my new lungs than I had done in the last year on up to 8 liters of oxygen. One of the most exciting things was finally viewing the xrays of the before and after. My old lungs were almost completely opaque. With the new lungs, you instead see space, air and the funny thing... ribs! Depending on how the pain relief goes overnight and some of the medications being completed and/or changed over today I might actually get released tomorrow. It's up to the surgeon and the pulmonologist and I think about a half dozen coordinators.Thanks to all for the encouragement, your joy and encouragement has come thru loud and clear. and I discussed again today how amazing it is to feel so many well wishes and prayers for us.I did talk to Judy as you know the other day and I told her I would update again and needed to share w/ everyone that I had a wonderful visit w/ Lucian and Gretchen on

Friday. They brought me a wonderful hospital care package and I was able to share with them some of the wonderful things that I thought I learned from Joyce and showed them some very concrete examples of how she was still helping me thru this. We all passed around the tissues.Love to all,Kerry (bilateral transplant 12/18/08)

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Kerry...what an encouraging report! Golly, you must be going through so much. Especially the darn pain.

I know you are a trooper so keep on keepin'on.

Love

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Kerry 10 day update

It's so hard to know where to begin or how much detail. I had a bilateral transplant so I had 2 incisions in my back, 4 garden hose (no joke) drains in the front and 2 morphine drip lines, too. When I last emailed I had the morphine lines and 2 of the drainage tubes removed. It was a huge relief because hurting in the front and back made me want to take short tensed up shallow breaths. On Christmas, I got the other 2 drains pulled. I was able to clean up a little more, get out of a hospital gown and actually move out of bed myself. I was able to take deeper breaths and had a temporary handle on the pain. I took a step forward, then a couple steps back because I would end up going from pain relief to a white knuckle ride before more relief. All thru this, the docs were saying things were progressing well and actually talked about me getting released much earlier than expected. After a very painful Friday night I begged for something different. I was at near max dose of what I was on, of course they can't just sedate you or you wouldn't be able to work the new lungs and I have some medication allergies that limit my options. I'm actually in a greater amount of pain now, but I feel like I can work thru a continuous level easier than the rollercoaster ride (except at night, it's hard to distract yourself from the pain in the overnight). Anyway, I am doing the exercises, walking the halls, doing breathing exercises, eating, learning about all my medications, about this steroid induced diabetes (I'm just going to plan on it being temporary, once the steroids amounts are weaned down over the next year). I did my pulmonary rehab this morning and passed it (and that is really impressive because I've been struggling w/ a little wheezing the past day). It was cool to be able to walk a farther distance today w/ my new lungs than I had done in the last year on up to 8 liters of oxygen. One of the most exciting things was finally viewing the xrays of the before and after. My old lungs were almost completely opaque. With the new lungs, you instead see space, air and the funny thing... ribs! Depending on how the pain relief goes overnight and some of the medications being completed and/or changed over today I might actually get released tomorrow. It's up to the surgeon and the pulmonologist and I think about a half dozen coordinators.Thanks to all for the encouragement, your joy and encouragement has come thru loud and clear. and I discussed again today how amazing it is to feel so many well wishes and prayers for us.I did talk to Judy as you know the other day and I told her I would update again and needed to share w/ everyone that I had a wonderful visit w/ Lucian and Gretchen on Friday. They brought me a wonderful hospital care package and I was able to share with them some of the wonderful things that I thought I learned from Joyce and showed them some very concrete examples of how she was still helping me thru this. We all passed around the tissues.Love to all,Kerry (bilateral transplant 12/18/08)

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Kerry,

I am so proud of you! Dealing with horrible pain is hard but know that

we are praying for you. How exciting to have new lungs! I know when

the pain has subsided that it will be much easier. I would love to see

you walking up and down the halls with no hose in your nose!

Love & Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>

> It's so hard to know where to begin or how much detail. I had a

> bilateral transplant so I had 2 incisions in my back, 4 garden hose

> (no joke) drains in the front and 2 morphine drip lines, too. When

> I last emailed I had the morphine lines and 2 of the drainage tubes

> removed. It was a huge relief because hurting in the front and back

> made me want to take short tensed up shallow breaths. On Christmas,

> I got the other 2 drains pulled. I was able to clean up a little

> more, get out of a hospital gown and actually move out of bed

> myself. I was able to take deeper breaths and had a temporary

> handle on the pain. I took a step forward, then a couple steps back

> because I would end up going from pain relief to a white knuckle

> ride before more relief. All thru this, the docs were saying things

> were progressing well and actually talked about me getting released

> much earlier than expected. After a very painful Friday night I

> begged for something different. I was at near max dose of what I

> was on, of course they can't just sedate you or you wouldn't be able

> to work the new lungs and I have some medication allergies that

> limit my options. I'm actually in a greater amount of pain now, but

> I feel like I can work thru a continuous level easier than the

> rollercoaster ride (except at night, it's hard to distract yourself

> from the pain in the overnight). Anyway, I am doing the exercises,

> walking the halls, doing breathing exercises, eating, learning about

> all my medications, about this steroid induced diabetes (I'm just

> going to plan on it being temporary, once the steroids amounts are

> weaned down over the next year). I did my pulmonary rehab this

> morning and passed it (and that is really impressive because I've

> been struggling w/ a little wheezing the past day). It was cool to

> be able to walk a farther distance today w/ my new lungs than I had

> done in the last year on up to 8 liters of oxygen. One of the most

> exciting things was finally viewing the xrays of the before and

> after. My old lungs were almost completely opaque. With the new

> lungs, you instead see space, air and the funny thing... ribs!

> Depending on how the pain relief goes overnight and some of the

> medications being completed and/or changed over today I might

> actually get released tomorrow. It's up to the surgeon and the

> pulmonologist and I think about a half dozen coordinators.

>

> Thanks to all for the encouragement, your joy and encouragement has

> come thru loud and clear. and I discussed again today how

> amazing it is to feel so many well wishes and prayers for us.

>

> I did talk to Judy as you know the other day and I told her I would

> update again and needed to share w/ everyone that I had a wonderful

> visit w/ Lucian and Gretchen on Friday. They brought me a wonderful

> hospital care package and I was able to share with them some of the

> wonderful things that I thought I learned from Joyce and showed them

> some very concrete examples of how she was still helping me thru

> this. We all passed around the tissues.

>

> Love to all,

> Kerry (bilateral transplant 12/18/08)

>

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Kerry Hello, this is transplanted 09-24-08, Im home now after my three months past on Christmas eve, what a wonderful present!!! I know what your going through and it only gets better, so hang in there!!! Isn't it great to not have the hose in the nose, now:? KS t-09-24-08

To: Breathe-Support Sent: Sunday, December 28, 2008 10:32:40 PMSubject: Kerry 10 day update

It's so hard to know where to begin or how much detail. I had a bilateral transplant so I had 2 incisions in my back, 4 garden hose (no joke) drains in the front and 2 morphine drip lines, too. When I last emailed I had the morphine lines and 2 of the drainage tubes removed. It was a huge relief because hurting in the front and back made me want to take short tensed up shallow breaths. On Christmas, I got the other 2 drains pulled. I was able to clean up a little more, get out of a hospital gown and actually move out of bed myself. I was able to take deeper breaths and had a temporary handle on the pain. I took a step forward, then a couple steps back because I would end up going from pain relief to a white knuckle ride before more relief. All thru this, the docs were saying things were progressing well and actually talked about me getting released much earlier than expected. After a very painful

Friday night I begged for something different. I was at near max dose of what I was on, of course they can't just sedate you or you wouldn't be able to work the new lungs and I have some medication allergies that limit my options. I'm actually in a greater amount of pain now, but I feel like I can work thru a continuous level easier than the rollercoaster ride (except at night, it's hard to distract yourself from the pain in the overnight). Anyway, I am doing the exercises, walking the halls, doing breathing exercises, eating, learning about all my medications, about this steroid induced diabetes (I'm just going to plan on it being temporary, once the steroids amounts are weaned down over the next year). I did my pulmonary rehab this morning and passed it (and that is really impressive because I've been struggling w/ a little wheezing the past day). It was cool to be able to walk a farther distance

today w/ my new lungs than I had done in the last year on up to 8 liters of oxygen. One of the most exciting things was finally viewing the xrays of the before and after. My old lungs were almost completely opaque. With the new lungs, you instead see space, air and the funny thing... ribs! Depending on how the pain relief goes overnight and some of the medications being completed and/or changed over today I might actually get released tomorrow. It's up to the surgeon and the pulmonologist and I think about a half dozen coordinators.Thanks to all for the encouragement, your joy and encouragement has come thru loud and clear. and I discussed again today how amazing it is to feel so many well wishes and prayers for us.I did talk to Judy as you know the other day and I told her I would update again and needed to share w/ everyone that I had a wonderful visit w/ Lucian and Gretchen on

Friday. They brought me a wonderful hospital care package and I was able to share with them some of the wonderful things that I thought I learned from Joyce and showed them some very concrete examples of how she was still helping me thru this. We all passed around the tissues.Love to all,Kerry (bilateral transplant 12/18/08)

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