Re: Greetings from Ontario

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Greetings from Ontario

 

Hi! I am a " newbie " here and wanted to drop by and say hello. :-)

[Guest guest]

Welcome to the group!

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> Greetings from Ontario

>

> Hi! I am a " newbie " here and wanted to drop by and say hello. :-)

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[Guest guest]

Welcome to our cozy group! Please post and tell us about yourself; when you were dx'd, about you and your family, etc. We are a fun group!hugs from Kate in NYTo: MSersLife Sent: Sun, April 24, 2011 7:20:01 PMSubject: Greetings from Ontario

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

[Guest guest]

welcome from SW Oklahoma - the gateway to the beautiful Wichita Mountains God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there.

To: MSersLife Sent: Sun, April 24, 2011 6:20:01 PMSubject: Greetings from Ontario

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

[Guest guest]

Welcome to our group from a

neighbor many, many, many miles south from you!.

I'm sorry that you had need to find us, but extremely happy that

you did!. I think you will find that you may have just found

yourself a new home with tons of people who are great in the

support department; have a tremendous amount of knowledge or

experience with the MonSter; and even more than a few of us

(should we not know the answer to a question) will provide you

with a link to finding the answer.

This is the most fantastic, lovable, and caring MiSmatched group

of people it's been my pleasure to know! I hope that you will

feel at home here as well. When you're ready to share, we'll be

happy to listen. Until then, it's okay to "lurk" as well (just

try not to wait too long, because we are also a semi-nosy group

as well... LOL).

Until then...

HUGS from

|)onna in PA (we also have another Donna in the group too)

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

------------------------------------

[Guest guest]

Greetings all!

Thank you for all of your kind words of welcome! J I am searching for support now as although I do keep a positive attitude there are times when my MS gets to me and I have no one to share my issues with or anyone who can relate to how I am feeling or what I can do next.

I have had MS for 16 years now. Considering all, I am doing fairly well. I have no right to complain. Lately though my legs have been feeling REALLY heavy. I wonder if it is all from the stress in my life. I am a single Mom now (for the last 2 yrs) and have a lot in my current home to manage on my own. I sound like I am whining now L I do try and hire others to help me out………

I was on Avonex for 2 years but took myself off it 3 years ago when the prefilled med came along as I had a violent reaction to it. I am patiently waiting for a new oral drug (can’t remember the name of it!) to be approved in Canada. The FDA approved the drug in 2009 and Canada does follow suit but it does take time.

I have botx injections (every 1 ½) into my bladder for my spastic bladder resulting in frequent bathroom visits. I highly recommend this to everyone who has the same problem as I did. The botox works amazingly well.

That’s it for now as I don’t want to scare you away!

Sandy

To: MSersLife Sent: Mon, April 25, 2011 1:04:22 PMSubject: Re: Greetings from Ontario

Welcome to our group from a neighbor many, many, many miles south from you!.I'm sorry that you had need to find us, but extremely happy that you did!. I think you will find that you may have just found yourself a new home with tons of people who are great in the support department; have a tremendous amount of knowledge or experience with the MonSter; and even more than a few of us (should we not know the answer to a question) will provide you with a link to finding the answer.This is the most fantastic, lovable, and caring MiSmatched group of people it's been my pleasure to know! I hope that you will feel at home here as well. When you're ready to share, we'll be happy to listen. Until then, it's okay to "lurk" as well (just try not to wait too long, because we are also a semi-nosy group as well... LOL).Until then...HUGS from|)onna in PA (we also have another

Donna in the group too) Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

------------------------------------

[Guest guest]

Dear Sandy,Don't fret--you won't scare any of us away! It would take A LOT to make that happen.I hadn't heard of botox for spastic bladder. That's good to know.How old are your children? Being a single Mom has got to be a challenge, and no...you're not whining...you should hear ME sometimes! I have 5 kids, and sometimes when my husband is working 5 to 7 days a week, 14 to 18 hours a day, I FEEL like a single mom, but of course have the income and security, so can't feel totally what it's like. 3 of my kids are still in the house. They are: 17, 14 and 11. The 19 and 22 year olds are out of the house.Keep posting and letting us know about yourself.hugs,KateTo: MSersLife Sent: Mon, April 25, 2011 2:23:46 PMSubject: Re: Greetings from Ontario

Greetings all!

Thank you for all of your kind words of welcome! J I am searching for support now as although I do keep a positive attitude there are times when my MS gets to me and I have no one to share my issues with or anyone who can relate to how I am feeling or what I can do next.

I have had MS for 16 years now. Considering all, I am doing fairly well. I have no right to complain. Lately though my legs have been feeling REALLY heavy. I wonder if it is all from the stress in my life. I am a single Mom now (for the last 2 yrs) and have a lot in my current home to manage on my own. I sound like I am whining now L I do try and hire others to help me out………

I was on Avonex for 2 years but took myself off it 3 years ago when the prefilled med came along as I had a violent reaction to it. I am patiently waiting for a new oral drug (can’t remember the name of it!) to be approved in Canada. The FDA approved the drug in 2009 and Canada does follow suit but it does take time.

I have botx injections (every 1 ½) into my bladder for my spastic bladder resulting in frequent bathroom visits. I highly recommend this to everyone who has the same problem as I did. The botox works amazingly well.

That’s it for now as I don’t want to scare you away!

Sandy

To: MSersLife Sent: Mon, April 25, 2011 1:04:22 PMSubject: Re: Greetings from Ontario

Welcome to our group from a neighbor many, many, many miles south from you!.I'm sorry that you had need to find us, but extremely happy that you did!. I think you will find that you may have just found yourself a new home with tons of people who are great in the support department; have a tremendous amount of knowledge or experience with the MonSter; and even more than a few of us (should we not know the answer to a question) will provide you with a link to finding the answer.This is the most fantastic, lovable, and caring MiSmatched group of people it's been my pleasure to know! I hope that you will feel at home here as well. When you're ready to share, we'll be happy to listen. Until then, it's okay to "lurk" as well (just try not to wait too long, because we are also a semi-nosy group as well... LOL).Until then...HUGS from|)onna in PA (we also have another

Donna in the group too) Hi! I am a "newbie" here and wanted to drop by and say hello. :-)------------------------------------

[Guest guest]

Welcome, welcome, welcome!! Which Ontario? California or Canada?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, April 24, 2011 4:20:01 PMSubject: Greetings from Ontario

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)------------------------------------

[Guest guest]

Hi Sandy! You said your legs feel really heavy. Is it hard to walk? I get that at times and I describe it as walking through jello. Every step is an effort and it feels like weights have been added to my legs. Perhaps you are having a flare?I am the creator of this group. I always say I created a group of friends! lol I live in the high mountains in Arizona. We live off grid with our electric power coming for our solar panels and wind generator. I am a mother of two adult children and 8 grandkids ages 7 to 24. I raised my kids as a single mother so I understand your position. It's not easy, is it? How old are your children?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, April 25, 2011 11:23:46 AMSubject: Re: Greetings from Ontario

Greetings all!

Thank you for all of your kind words of welcome! J I am searching for support now as although I do keep a positive attitude there are times when my MS gets to me and I have no one to share my issues with or anyone who can relate to how I am feeling or what I can do next.

I have had MS for 16 years now. Considering all, I am doing fairly well. I have no right to complain. Lately though my legs have been feeling REALLY heavy. I wonder if it is all from the stress in my life. I am a single Mom now (for the last 2 yrs) and have a lot in my current home to manage on my own. I sound like I am whining now L I do try and hire others to help me out………

I was on Avonex for 2 years but took myself off it 3 years ago when the prefilled med came along as I had a violent reaction to it. I am patiently waiting for a new oral drug (can’t remember the name of it!) to be approved in Canada. The FDA approved the drug in 2009 and Canada does follow suit but it does take time.

I have botx injections (every 1 ½) into my bladder for my spastic bladder resulting in frequent bathroom visits. I highly recommend this to everyone who has the same problem as I did. The botox works amazingly well.

That’s it for now as I don’t want to scare you away!

Sandy

To: MSersLife Sent: Mon, April 25, 2011 1:04:22 PMSubject: Re: Greetings from Ontario

Welcome to our group from a neighbor many, many, many miles south from you!.I'm sorry that you had need to find us, but extremely happy that you did!. I think you will find that you may have just found yourself a new home with tons of people who are great in the support department; have a tremendous amount of knowledge or experience with the MonSter; and even more than a few of us (should we not know the answer to a question) will provide you with a link to finding the answer.This is the most fantastic, lovable, and caring MiSmatched group of people it's been my pleasure to know! I hope that you will feel at home here as well. When you're ready to share, we'll be happy to listen. Until then, it's okay to "lurk" as well (just try not to wait too long, because we are also a semi-nosy group as well... LOL).Until then...HUGS from|)onna in PA (we also have another

Donna in the group too) Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

------------------------------------

[Guest guest]

My kids are 9, 21 and 26. My oldest just delivered my first grandchild one week ago today. My leg issues might be from the stress worrying about my daughter during her pregnancy. Any suggestions for the heaviness or just time?Take care,Sandy Sender: MSersLife Date: Mon, 25 Apr 2011 15:02:33 -0700 (PDT)To: <MSersLife >ReplyTo: MSersLife Subject: Re: Greetings from Ontario Hi Sandy! You said your legs feel really heavy. Is it hard to walk? I get that at times and I describe it as walking through jello. Every step is an effort and it feels like weights have been added to my legs. Perhaps you are having a flare?I am the creator of this group. I always say I created a group of friends! lol I live in the high mountains in Arizona. We live off grid with our electric power coming for our solar panels and wind generator. I am a mother of two adult children and 8 grandkids ages 7 to 24. I raised my kids as a single mother so I understand your position. It's not easy, is it? How old are your children?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, April 25, 2011 11:23:46 AMSubject: Re: Greetings from OntarioGreetings all!Thank you for all of your kind words of welcome! J I am searching for support now as although I do keep a positive attitude there are times when my MS gets to me and I have no one to share my issues with or anyone who can relate to how I am feeling or what I can do next. I have had MS for 16 years now. Considering all, I am doing fairly well. I have no right to complain. Lately though my legs have been feeling REALLY heavy. I wonder if it is all from the stress in my life. I am a single Mom now (for the last 2 yrs) and have a lot in my current home to manage on my own. I sound like I am whining now L I do try and hire others to help me out………I was on Avonex for 2 years but took myself off it 3 years ago when the prefilled med came along as I had a violent reaction to it. I am patiently waiting for a new oral drug (can’t remember the name of it!) to be approved in Canada. The FDA approved the drug in 2009 and Canada does follow suit but it does take time.I have botx injections (every 1 ½) into my bladder for my spastic bladder resulting in frequent bathroom visits. I highly recommend this to everyone who has the same problem as I did. The botox works amazingly well. That’s it for now as I don’t want to scare you away!Sandy To: MSersLife Sent: Mon, April 25, 2011 1:04:22 PMSubject: Re: Greetings from Ontario Welcome to our group from a neighbor many, many, many miles south from you!.I'm sorry that you had need to find us, but extremely happy that you did!. I think you will find that you may have just found yourself a new home with tons of people who are great in the support department; have a tremendous amount of knowledge or experience with the MonSter; and even more than a few of us (should we not know the answer to a question) will provide you with a link to finding the answer.This is the most fantastic, lovable, and caring MiSmatched group of people it's been my pleasure to know! I hope that you will feel at home here as well. When you're ready to share, we'll be happy to listen. Until then, it's okay to "lurk" as well (just try not to wait too long, because we are also a semi-nosy group as well... LOL).Until then...HUGS from|)onna in PA (we also have anotherDonna in the group too) Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

------------------------------------

[Guest guest]

Congratulations on becoming a grandma! How very exciting for you. You are entering a new chapter in your life...I'm so happy for you.hugs,KateTo: MSersLife Sent: Mon, April 25, 2011 6:14:42 PMSubject: Re: Greetings from Ontario

My kids are 9, 21 and 26. My oldest just delivered my first grandchild one week ago today. My leg issues might be from the stress worrying about my daughter during her pregnancy. Any suggestions for the heaviness or just time?Take care,Sandy

Sender: MSersLife

Date: Mon, 25 Apr 2011 15:02:33 -0700 (PDT)To: <MSersLife >ReplyTo: MSersLife

Subject: Re: Greetings from Ontario

Hi Sandy! You said your legs feel really heavy. Is it hard to walk? I get that at times and I describe it as walking through jello. Every step is an effort and it feels like weights have been added to my legs. Perhaps you are having a flare?I am the creator of this group. I always say I created a group of friends! lol I live in the high mountains in Arizona. We live off grid with our electric power coming for our solar panels and wind generator. I am a mother of two adult children and 8 grandkids ages 7 to 24. I raised my kids as a single mother so I understand your position. It's not easy, is it? How old are your children?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: Sandy

To: MSersLife Sent: Mon, April 25, 2011 11:23:46 AMSubject: Re: Greetings from Ontario

Greetings all!

Thank you for all of your kind words of welcome! J I am searching for support now as although I do keep a positive attitude there are times when my MS gets to me and I have no one to share my issues with or anyone who can relate to how I am feeling or what I can do next.

I have had MS for 16 years now. Considering all, I am doing fairly well. I have no right to complain. Lately though my legs have been feeling REALLY heavy. I wonder if it is all from the stress in my life. I am a single Mom now (for the last 2 yrs) and have a lot in my current home to manage on my own. I sound like I am whining now L I do try and hire others to help me out………

I was on Avonex for 2 years but took myself off it 3 years ago when the prefilled med came along as I had a violent reaction to it. I am patiently waiting for a new oral drug (can’t remember the name of it!) to be approved in Canada. The FDA approved the drug in 2009 and Canada does follow suit but it does take time.

I have botx injections (every 1 ½) into my bladder for my spastic bladder resulting in frequent bathroom visits. I highly recommend this to everyone who has the same problem as I did. The botox works amazingly well.

That’s it for now as I don’t want to scare you away!

Sandy

To: MSersLife Sent: Mon, April 25, 2011 1:04:22 PMSubject: Re: Greetings from Ontario

Welcome to our group from a neighbor many, many, many miles south from you!.I'm sorry that you had need to find us, but extremely happy that you did!. I think you will find that you may have just found yourself a new home with tons of people who are great in the support department; have a tremendous amount of knowledge or experience with the MonSter; and even more than a few of us (should we not know the answer to a question) will provide you with a link to finding the answer.This is the most fantastic, lovable, and caring MiSmatched group of people it's been my pleasure to know! I hope that you will feel at home here as well. When you're ready to share, we'll be happy to listen. Until then, it's okay to "lurk" as well (just try not to wait too long, because we are also a semi-nosy group as well... LOL).Until then...HUGS from|)onna in PA (we also have another

Donna in the group too) Hi! I am a "newbie" here and wanted to drop by and say hello. :-)------------------------------------

[Guest guest]

Welcome to the group. Margaret A. CoteTo: MSersLife Sent: Monday, April 25, 2011 4:42 PMSubject: Re: Greetings from Ontario

Welcome, welcome, welcome!! Which Ontario? California or Canada?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, April 24, 2011 4:20:01 PMSubject: Greetings from Ontario

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)------------------------------------

[Guest guest]

Sandy...

Oh my girl.. what makes you think you don't have a right to

complain??? You most certainly do have the right to complain..

and even whine... anytime you want!!..

First off (first reason).. you're female -- that automatically

gives us the right to complain!

Secondly.. you're a mother -- that also automatically gives us

the right to complain!

Thirdly... you're a single parent... even more an automatic

right to complain!

And last but not least.. you live with the MonSter.. so you most

definitely have every right in the world to complain, stomp,

scream, slam doors, cry, and whine if you want to.. We'll be

right here beside you the whole way!!! <grin>..

You go girl & give'em heck!!!.. I think that you're

fantastic managing the house, the kids and everything else.. all

the while pushing on through all the chaos you have going right

now...

My legs seem to get heavier at different times.. evening is

especially good for the heaviness.. and if I'm exposed to

temperatures over 72 degrees in the summer (got to be between 74

& 76 in the house during the winter though).. Sad part,

during the summer, is that by the time I realize that it's too

warm for me.. it's also too late, and the legs are heavier.. I

did realize that if I've had a restful nights sleep (even with

the numerous potty runs during the night) and I start to feel

tired (and heavy) enough to take a nap.. it's too hot in the

house.. AND if I eat anything with MSG in it (so I don't get to

have General T'so anymore, at least not very often).. things

that were a bit numb to start with, will get much much worse..

(lately I've actually thought my feet were gone!)..

You might be having the same thing going on, with your legs

feeling heavier.. if you didn't have the heat sensitivity thing

going before.. you might now be starting to experiencing just

that.... I've found that.. if I'm at home, soaking my head down,

will help alleviate some of the heat sensitivity.. Wouldn't hurt

if you could rig something up to wear around your wrists that is

cold as well.. or around your neck.. that helps too..

Again.. good to hear from you.. Sorry to hear about the heavy

legs thing too.. Hope you star feeling better real soon too...

HUGS

|)onna (who is off to take a nap, because not sleeping well last

night, and her Vicodin -- molar extracted yesterday) is kicking

butt this morning..)

Greetings all!

Thank you for all of your kind words of

welcome!  J  I am searching for

support now as although I do keep a positive attitude

there are times when my MS gets to me and I have no one to

share my issues with or anyone who can relate to how I am

feeling or what I can do next.

I have had MS for 16 years now.  Considering all, I am doing fairly

well.  I have no right to complain.   Lately though

my legs have been feeling REALLY heavy.  I

wonder if it is all from the stress in my life.  I am a single Mom now (for the last 2

yrs) and have a lot in my current home to manage on my

own.   I sound like I am whining

now L  I do try and hire others to help me

out………

I was on Avonex for 2 years but took myself

off it 3 years ago when the prefilled med came along as I

had a violent reaction to it.   I

am patiently waiting for a new oral drug (can’t remember

the name of it!) to be approved in Canada. 

The FDA approved the drug in 2009 and Canada does

follow suit but it does take time.

I have botx injections (every 1 ½) into my

bladder for my spastic bladder resulting in frequent

bathroom visits.  I highly

recommend this to everyone who has the same problem as I

did.  The botox works amazingly

well.

That’s it for now as I don’t want to scare

you away!

Sandy

 

From:

|)onna

To:

MSersLife

Sent: Mon,

April 25, 2011 1:04:22 PM

Subject:

Re: Greetings from Ontario

 

Welcome to our group

from a neighbor many, many, many miles south from

you!.

I'm sorry that you had need to find us, but

extremely happy that you did!.  I think you will

find that you may have just found yourself a new

home with tons of people who are great in the

support department; have a tremendous amount of

knowledge or experience with the MonSter; and even

more than a few of us (should we not know the answer

to a question) will provide you with a link to

finding the answer.

This is the most fantastic, lovable, and caring

MiSmatched group of people it's been my pleasure to

know!  I hope that you will feel at home here as

well.  When you're ready to share, we'll be happy to

listen.  Until then, it's okay to "lurk" as well

(just try not to wait too long, because we are also

a semi-nosy group as well... LOL).

Until then...

HUGS from

|)onna in PA (we also have another Donna in the

group too)

Hi! I am a "newbie" here and wanted to drop by and say hello. :-)

------------------------------------