poll: lesions versus level of disability

[Guest guest]

I'm hoping you guys can help me out with a little information gathering. As most of you know, I now have the ability of the quad and have been placed in long-term care. Having said that, I only have the lesions. When I received my " Canadian " diagnosis in 2008, I had six lesions, so according to the multiple MRIs, I seem to be spouting one a year.

While my neurologist is 100% convinced that I do have MS, he's wondering if there aren't any other factors – either medical or psychological (such as stress) that might be affecting me. I respect his point of view, but I also remember some conversations over the years on these boards about how some people have so many lesions that their doctors don't know how they can still walk, and others have very few lesions but with the high level of disability.

What I'm asking is if you guys could share with the list (or privately if you are uncomfortable with others knowing) the number of lesions you have, where they are located (if you know) and your level of ability/disability.

To give you an idea, I'll start with myself. I now have nine lesions: two on the spine and seven on the brain. The spinal lesions are at T10 and C6 – 7, while the ones on my brain are pretty scattered, including one on the pons. At last check, my EDSS was 7.5 but I think it's now closer to eight. I'm on total care which means I need help with all aspects of daily living. I have some function in my right arm and thank God I don't seem to have any breathing issues at the moment.

What about everyone else?Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! 

School is a place where children learn to be stupid " ~ HoltSchooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new.

~ PriesnitzHow to begin to educate a child. First rule: leave him alone. Second rule:

leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence

[Guest guest]

depends where the lesions are and the size

like strokes - then some of us are just too darn stubborn to give into it

I have 3 at least in the brain - parietal and occipital

then 4 pinched nerves in the neck and three in the lumbar spine and 4 in the lower spine God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there.

To: fwms ; MSersLife Sent: Mon, May 2, 2011 6:13:12 PMSubject: poll: lesions versus level of disability

I'm hoping you guys can help me out with a little information gathering. As most of you know, I now have the ability of the quad and have been placed in long-term care. Having said that, I only have the lesions. When I received my "Canadian" diagnosis in 2008, I had six lesions, so according to the multiple MRIs, I seem to be spouting one a year.

While my neurologist is 100% convinced that I do have MS, he's wondering if there aren't any other factors – either medical or psychological (such as stress) that might be affecting me. I respect his point of view, but I also remember some conversations over the years on these boards about how some people have so many lesions that their doctors don't know how they can still walk, and others have very few lesions but with the high level of disability.

What I'm asking is if you guys could share with the list (or privately if you are uncomfortable with others knowing) the number of lesions you have, where they are located (if you know) and your level of ability/disability.

To give you an idea, I'll start with myself. I now have nine lesions: two on the spine and seven on the brain. The spinal lesions are at T10 and C6 – 7, while the ones on my brain are pretty scattered, including one on the pons. At last check, my EDSS was 7.5 but I think it's now closer to eight. I'm on total care which means I need help with all aspects of daily living. I have some function in my right arm and thank God I don't seem to have any breathing issues at the moment.

What about everyone else?Lifeportunities: transform your home-based life into freedom.

Visit the Practical Homeschooling blog!

School is a place where children learn to be stupid" ~ Holt

Schooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new.~ Priesnitz

How to begin to educate a child. First rule: leave him alone. Second rule:leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence

[Guest guest]

I have 21 lesions scattered around my brain< but I am not disabled in anyway.  Except for the electric shocks my body gives itself, I am not the normal person with MS.

[Guest guest]

I don't know where my lesions are now. I haven't had an MRI since 2006 I believe. But at that time they were scattered around in my brain. My neurologist told me he felt I had a hidden lesion in my spine that led to the transverse myelitis dx in '97. He dxed me then and was my neuro until he died in '09. Sorry, wish I could be more help to you . I think of you and your situation every day and I do keep you in my prayers.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be considered flaws or defects. To: fwms ; MSersLife Sent: Mon, May

2, 2011 4:13:12 PMSubject: poll: lesions versus level of disability

I'm hoping you guys can help me out with a little information gathering. As most of you know, I now have the ability of the quad and have been placed in long-term care. Having said that, I only have the lesions. When I received my "Canadian" diagnosis in 2008, I had six lesions, so according to the multiple MRIs, I seem to be spouting one a year.

While my neurologist is 100% convinced that I do have MS, he's wondering if there aren't any other factors – either medical or psychological (such as stress) that might be affecting me. I respect his point of view, but I also remember some conversations over the years on these boards about how some people have so many lesions that their doctors don't know how they can still walk, and others have very few lesions but with the high level of disability.

What I'm asking is if you guys could share with the list (or privately if you are uncomfortable with others knowing) the number of lesions you have, where they are located (if you know) and your level of ability/disability.

To give you an idea, I'll start with myself. I now have nine lesions: two on the spine and seven on the brain. The spinal lesions are at T10 and C6 – 7, while the ones on my brain are pretty scattered, including one on the pons. At last check, my EDSS was 7.5 but I think it's now closer to eight. I'm on total care which means I need help with all aspects of daily living. I have some function in my right arm and thank God I don't seem to have any breathing issues at the moment.

What about everyone else?Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog!

School is a place where children learn to be stupid" ~ HoltSchooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new.

~ PriesnitzHow to begin to educate a child. First rule: leave him alone. Second rule:

leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence

[Guest guest]

has 20 lesions in her brain, and 2 on her spine. Or had when she had the MRI in 2004 at least, possibly more now. But she is only minimally disabled (=it happens that she needs a cane, but most days her walking is not affected at all, she has some minor issues with her fine motor skills, in her hands, in some areas her sensitivity is lessened so that she may have trouble feeling a touch). The most disabling of her symptoms is her fatigue, and (partly connected to it) some cognitive symptoms.But the way we have had it explained to us, it's not about the amount of lesions, but rather, just as in the housing business, it's location, location, location.... ;-)love/Reb>> I'm hoping you guys can help me out with a little information gathering. As> most of you know, I now have the ability of the quad and have been placed in> long-term care. Having said that, I only have the lesions. When I received> my "Canadian" diagnosis in 2008, I had six lesions, so according to the> multiple MRIs, I seem to be spouting one a year.> > While my neurologist is 100% convinced that I do have MS, he's wondering if> there aren't any other factors – either medical or psychological (such as> stress) that might be affecting me. I respect his point of view, but I also> remember some conversations over the years on these boards about how some> people have so many lesions that their doctors don't know how they can still> walk, and others have very few lesions but with the high level of> disability.> > What I'm asking is if you guys could share with the list (or privately if> you are uncomfortable with others knowing) the number of lesions you have,> where they are located (if you know) and your level of ability/disability.> > To give you an idea, I'll start with myself. I now have nine lesions: two on> the spine and seven on the brain. The spinal lesions are at T10 and C6 – 7,> while the ones on my brain are pretty scattered, including one on the pons.> At last check, my EDSS was 7.5 but I think it's now closer to eight. I'm on> total care which means I need help with all aspects of daily living. I have> some function in my right arm and thank God I don't seem to have any> breathing issues at the moment.> > What about everyone else?> > Lifeportunities <http://www.lifeportunities.com/>: transform your home-based> life into freedom.> Visit the Practical Homeschooling <http://practical-homeschooling.org>blog!> > School is a place where children learn to be stupid" ~ Holt> > *Schooling confuses teaching with learning, grade advancement with> education, a diploma with competence, and fluency with the ability to say> something new.*> ~ Priesnitz> > How to begin to educate a child. First rule: leave him alone. Second rule:> leave him alone. Third rule: leave him alone. That is the whole beginning.> ~D.H. Lawrence>