Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 I had RAI treatment 6 years ago and I'm now on 150mcg of thyroxine per day. My blood test results are: Free T4 is 20.6 pmol/L (reference range 11.5 - 23.0 pmol/L). Free T3 is 7.0 pmol/L (reference range 2.3 - 4.9 pmol/L). TSH is 2.47 mU/L (reference range 0.35 - 5.5 mU/L) What I am unclear of is what a high FT3 means when FT4 and TSH are within 'range' and also where do I go from here. I'm on thyroxine, but is there medication I can take to bring my FT3 levels back within range? From what I've read a high FT3 could mean blocked receptor cells. Anyone know any more about this, I've done a search on google, but didn't find anything helpful or understandable. thanks for all replies buzz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 buzzvadar wrote: > > I had RAI treatment 6 years ago and I'm now on 150mcg of thyroxine > per day. > > My blood test results are: > > Free T4 is 20.6 pmol/L (reference range 11.5 - 23.0 pmol/L). > Free T3 is 7.0 pmol/L (reference range 2.3 - 4.9 pmol/L). > TSH is 2.47 mU/L (reference range 0.35 - 5.5 mU/L) > > What I am unclear of is what a high FT3 means when FT4 and TSH are > within 'range' and also where do I go from here. I'm on thyroxine, > but is there medication I can take to bring my FT3 levels back within > range? From what I've read a high FT3 could mean blocked receptor > cells. Anyone know any more about this, I've done a search on google, > but didn't find anything helpful or understandable. Hi Buzz, glad you asked as my fT3 just went high, on it's own, but I'm on PTU still. In your case you can probably lower the fT3, by taking slightly less thyroxine, as the typical fT4 level on those not receiving thyroxine is far lower than 20.6. In my case the fT4 is only just above the bottom of it's range. Are you having symptoms, or was it a routine test? If so hyper or hypo symptoms? If you're not having symptoms I wouldn't change anything based on the one test. Only thing that seems odd with your results is the TSH being relatively high, I'd expect it to be below one with fT's like that, certainly 2.47 is well above average TSH. Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Alright Simon, I don't seem to be suffering the normal symptoms of either hypo or hyper, but I suffer severely from irritable bowel syndrome. Somehow during my RAI my gut got affected and has never recovered. The thing is, back in 1995 I got irritable bowel syndrome just after I had become hyper. A few months later I had RAI, had a severe reaction to it and I went even more hyper. But my bowel problem cleared up. The second time I have RAI, my bowel problem comes back and doesn't seem to want to go. I'm (sort of) convinced that a thyroid hormone is the key to me feeling better so I was actually glad my FT3 is high. Though what can be done about it, I'll see what an endo says. thanks buzz > > > > I had RAI treatment 6 years ago and I'm now on 150mcg of thyroxine > > per day. > > > > My blood test results are: > > > > Free T4 is 20.6 pmol/L (reference range 11.5 - 23.0 pmol/L). > > Free T3 is 7.0 pmol/L (reference range 2.3 - 4.9 pmol/L). > > TSH is 2.47 mU/L (reference range 0.35 - 5.5 mU/L) > > > > What I am unclear of is what a high FT3 means when FT4 and TSH are > > within 'range' and also where do I go from here. I'm on thyroxine, > > but is there medication I can take to bring my FT3 levels back within > > range? From what I've read a high FT3 could mean blocked receptor > > cells. Anyone know any more about this, I've done a search on google, > > but didn't find anything helpful or understandable. > > Hi Buzz, > > glad you asked as my fT3 just went high, on it's own, but I'm on > PTU still. > > In your case you can probably lower the fT3, by taking slightly > less thyroxine, as the typical fT4 level on those not receiving > thyroxine is far lower than 20.6. In my case the fT4 is only > just above the bottom of it's range. > > Are you having symptoms, or was it a routine test? If so hyper > or hypo symptoms? If you're not having symptoms I wouldn't > change anything based on the one test. > > Only thing that seems odd with your results is the TSH being > relatively high, I'd expect it to be below one with fT's like > that, certainly 2.47 is well above average TSH. > > Simon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 buzzvadar wrote: > > I don't seem to be suffering the normal symptoms of either hypo or > hyper, but I suffer severely from irritable bowel syndrome. Somehow > during my RAI my gut got affected and has never recovered. The thing > is, back in 1995 I got irritable bowel syndrome just after I had > become hyper. Diarrhea is a common symptom of hyper, whether it counts as IBS is a question of terminology. My doctor had me labelled as either IBS or hyperthyroid when he sent of the blood samples that finally diagnosed my Grave's, but that all cleared with the Carbimazole. > A few months later I had RAI, had a severe reaction to > it and I went even more hyper. But my bowel problem cleared up. The > second time I have RAI, my bowel problem comes back and doesn't seem > to want to go. I'm (sort of) convinced that a thyroid hormone is the > key to me feeling better so I was actually glad my FT3 is high. > Though what can be done about it, I'll see what an endo says. I'm coming to the conclusion that my remaining bowel problems, very minor as they are, may be due to gluten.... My doctor hasn't given any suggestions yet, but if my cough isn't better in the morning I'm going to visit, before Faye murders me for depriving her of sleep. Anyway I think too much thyroxine has to be top of your list of likely causes, although I'd be very careful on reducing it, as hypo creeps up so quietly. Please let me know what the endo suggests, although with my results so different it probably won't apply, it is all education. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Alright Simon, Thanks for the reply. How long did you have diarrhea before it was sorted? I got thyrotoxicosis in 1989, managed to sort my thyroid out due to carbimazole by 1992 and relapsed into hyper in Nov 1994 and that's when the gut problems started. Because I've had IBS type symptoms for so long I'm hoping that my body is used to it. I've been put on Prozac to see if it can do anything about my mind-gut connection. At the moment I seem to be going through a bout of constipation at same thyroxine dose. I've been on a restricted diet - no milk products, no wheat products and it didn't help at all - apart from the weight loss. I lived on a staple diet of cooked vegetables, chicken and rice cakes for three weeks. The only fruit I ate was bananas. I've read in places that starch could be a problem, in which case rice cakes was a bad idea. thanks buzz > > > > I don't seem to be suffering the normal symptoms of either hypo or > > hyper, but I suffer severely from irritable bowel syndrome. Somehow > > during my RAI my gut got affected and has never recovered. The thing > > is, back in 1995 I got irritable bowel syndrome just after I had > > become hyper. > > Diarrhea is a common symptom of hyper, whether it counts as IBS > is a question of terminology. My doctor had me labelled as > either IBS or hyperthyroid when he sent of the blood samples > that finally diagnosed my Grave's, but that all cleared with the > Carbimazole. > > > A few months later I had RAI, had a severe reaction to > > it and I went even more hyper. But my bowel problem cleared up. The > > second time I have RAI, my bowel problem comes back and doesn't seem > > to want to go. I'm (sort of) convinced that a thyroid hormone is the > > key to me feeling better so I was actually glad my FT3 is high. > > Though what can be done about it, I'll see what an endo says. > > I'm coming to the conclusion that my remaining bowel problems, > very minor as they are, may be due to gluten.... > > My doctor hasn't given any suggestions yet, but if my cough > isn't better in the morning I'm going to visit, before Faye > murders me for depriving her of sleep. > > Anyway I think too much thyroxine has to be top of your list of > likely causes, although I'd be very careful on reducing it, as > hypo creeps up so quietly. > > Please let me know what the endo suggests, although with my > results so different it probably won't apply, it is all > education. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 buzzvadar wrote: > > Thanks for the reply. How long did you have diarrhea before it was > sorted? I have to plead I can't recall, it was a long time ago. I think for me the diarrhea was most noticable immediately before I was diagnosed, but then when you are losing weight rapidly these things take on greater importance. > I've been on a restricted diet - no milk products, no wheat products > and it didn't help at all - apart from the weight loss. I lived on a > staple diet of cooked vegetables, chicken and rice cakes for three > weeks. The only fruit I ate was bananas. I've read in places that > starch could be a problem, in which case rice cakes was a bad idea. Oh well, at least you'll go back to a normal diet knowing what isn't a problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Alright Simon, I might try the restricted diet again - see if it makes a difference is time round, but it is difficult to stick to! I also posted a message to ThyroidUK (who I've seen on one of your posts) about high FT3 and got a response back saying get an adrenal saliva test done. So I'll look into that. buzz > > > > Thanks for the reply. How long did you have diarrhea before it was > > sorted? > > I have to plead I can't recall, it was a long time ago. I think > for me the diarrhea was most noticable immediately before I was > diagnosed, but then when you are losing weight rapidly these > things take on greater importance. > > > I've been on a restricted diet - no milk products, no wheat products > > and it didn't help at all - apart from the weight loss. I lived on a > > staple diet of cooked vegetables, chicken and rice cakes for three > > weeks. The only fruit I ate was bananas. I've read in places that > > starch could be a problem, in which case rice cakes was a bad idea. > > Oh well, at least you'll go back to a normal diet knowing what > isn't a problem. Quote Link to comment Share on other sites More sharing options...
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