Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi all, I've been lurking distantly for a couple of months, awaiting resurf here in Vancouver BC. Had been scheduled for BHR with DeSmet till a local surgeon convinced me to stay put and " promised " he would get to me early in '04. Looks like early Feb, at this point. One of the reasons I stayed home was my local guy (Bas Masri ... Vancouverites will be familiar with him; top reconsructive surgeon at Vancouver General and part of a group of 4 who have started doing resurfs over the past year or so) had reservations about the Birmingham hardware and has introduced something called Centrepulse - Durom (formerly Zimmer). He says MMT plays down the revision side of their story but that ultimately most of us will need one. Masri's priority was finding a resurf device that adapts seamlessly to THR hardware later, if/when it becomes necessary. He says Centrepulse makes a much fuller line than MMT in that regard - ie, better fits. Does anyone have comments about this? I'm very happy to stay home for the op, for a number of reasons (including financially... it will be mostly covered by medicare). The downside is, of course, Masri and colleagues are novices compared to people like McMinn and DeSmet. The VGH team has done some training in England with MMT and in Montreal more recently with docs using Centrepulse, but still... I feel like a bit of a guinea pig. Then again, if this procedure is going to start making serious inroads in North America, they're going to need lots more guinea pigs. Plus I'm a very straightforward case, by all measures. OA in right hip, otherwise very fit, strong bones, 51 yrs young. Other surgeons have told me not to worry so much... it's not a complex procedure in people like me. My husband says he'd like to just do it in his workshop with a drill press, planer and some real strong glue. Takers? cheers, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 a wrote: .....my local guy ... had reservations > about the Birmingham hardware and has introduced something called > Centrepulse - Durom (formerly Zimmer). He says MMT plays down the > revision side of their story but that ultimately most of us will need one. Masri's > priority was finding a resurf device that adapts seamlessly to THR hardware > later, if/when it becomes necessary. He says Centrepulse makes a much > fuller line than MMT in that regard - ie, better fits. Does anyone have > comments about this? Hi a, Actually, MMT has a very good range of components of this sort and I can assure you that the Birmingham complete metal head *does* slot beautifully onto the standard THR stem. (I had to have a standard THR stem as I had a fracture of the femoral neck and there was no alternative to having the femoral neck cut away, thus losing the head, too, and having a standard stem.) I can vouch for this personally as I asked to watch the surgery on the monitor, and the surgeon thoughtfully gave me a really good look at the tapering slot in back of the Birmingham metal " head " and how it slotted onto the standard THR stem. When I discussed this with MMT later, they told me that they have a whole range of suitable components that aren't on the website - but that surgeons trained in the technology and procedure are well aware of them. I'm posting this to reassure people who've had or are having Birmingham components. a, even if you have a different brand of component, it looks as if you are happy about your decision because of being able to stay home to have the surgery and have an experienced surgeon. All the best. Virginia (right hip, 27/08/03, Brisbane, Australia_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi Sandy, If it is any consolation to you 2 of the people I sort of know personally with a BHR are farmers........ One was verging on the obese side........ Both are continuing on their farms........ One has been highly delighted with the results........the obese one had 2 hips with problems and is just lining up for the other hip to be done so he is still getting there.........he had a bit of a hassle with the top cup part of the first hip resurface which set him back a year........ it took them a bit to establish that the cup part was loose and now it is fixed he seems to be much happier........ I think part of that may have been that his doctor is an advocate of getting out of bed and onto the hip real early......... they were much more cautious when they went back in and pinned the top cup........... As the general OS had refused to consider him for a THR because of his weight he is very happy with getting something done. Hope all goes well for your husband and he is back farming soon.......... Edith LBHR Dr. L Walter, Sydney Australia 8/02 My husband also requires resurfacing (46 years). After a year wait to see Dr Jim MacKenzie in Alberta, the flights from our home in Northern BC and return, we found out that Alberta doesn't cover the procedure. I covered that off in earlier e-mails, but to make a long story short, Ken had our Dr' s nurse phone all of the clinics we learned of in Vancouver to see if he could get in. Not hearing from the nurse, Ken also called. His hip is very bad - he's lost about ¾ ' off his left leg. This all started from an injury in 1988. Anyway, today, he received a call from Dr Duncan's office. It seems they thought that we lived in Alberta. Needless to say, after Ken's discussion with Dr Duncan's nurse, they've agreed to see him soon (Feb 6). There's no guarantee that he will have the surgery booked soon, but at least we're that much closer. Ken's quality of life has decreased significantly in the last year. He can barely walk (almost not at all without a stick) and I'm surprised that his back isn't bothering him. When he stands, his left leg dangles helplessly, or he has to stand on his toes. We raise cattle, and he had to put most of the cows out on shares with neighbours and friends because he just isn't able to get around anymore. As a consequence, he's put on a lot of weight in the last year. He is 6'2 already, so this isn't helping his hip any. He eats very sparingly, but because he isn't able to do much aerobic exercise, his cardio-vascular is suffering. On top of that after 16 years on pain killers, getting progressively stronger, I don't imagine that's much good for his stomach either. We were told when he was injured, to wait as long as he possibly could for surgery because new technology was being developed all of the time. Well, I 'm sure glad he waited! I just hope he can have the surgery soon. Have you heard anything about Dr Duncan's technique? BC does cover the cost of the surgery, but not the hardware ($3,000). Fortunately, my health care coverage through work (Sunlife) will pay 80% of the cost of the hardware too! Unfortunately, not any of the travel, hotels, etc. for either the initial consult or the surgery, but that's OK. A couple of thousand out of pocket is sure better than the $22,000 originally quoted for the surgery in Alberta. Good luck, maybe our paths will cross! Sandy Kirtzinger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 > > Have you heard anything about Dr Duncan's technique? Hi Sandy, I'm so glad you figured out a way to get help for Ken. His situation sounds dire! Clive Duncan is considered by many to be B.C.'s top hip surgeon. He's got probably the longest waiting list. I've talked with many patients who rave about him. (I'm a journalist who's done a lot of research in this area.) Ken is in very very good hands! Interesting that your extended health plan will cover the prosthetic cost. I should check with mine. Good luck! a BC does cover the cost > of the surgery, but not the hardware ($3,000). Fortunately, my health care > coverage through work (Sunlife) will pay 80% of the cost of the hardware > too! Unfortunately, not any of the travel, hotels, etc. for either the > initial consult or the surgery, but that's OK. A couple of thousand out of > pocket is sure better than the $22,000 originally quoted for the surgery in > Alberta. > > Good luck, maybe our paths will cross! > > Sandy Kirtzinger > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi Virginia, Thanks for your insights. It's amazing you were brave enough to watch your own revision surgery! I'm not actually " happy " per se. Staying home is one option among many, and I guess I'm still weighing them or I wouldn't have posted asking for comments. Best, a > > Hi a, > Actually, MMT has a very good range of components of this sort and > I can assure you that the Birmingham complete metal head *does* slot > beautifully onto the standard THR stem. (I had to have a standard > THR stem as I had a fracture of the femoral neck and there was no > alternative to having the femoral neck cut away, thus losing the > head, too, and having a standard stem.) I can vouch for this > personally as I asked to watch the surgery on the monitor, and the > surgeon thoughtfully gave me a really good look at the tapering slot > in back of the Birmingham metal " head " and how it slotted onto the > standard THR stem. When I discussed this with MMT later, they told > me that they have a whole range of suitable components that aren't on > the website - but that surgeons trained in the technology and > procedure are well aware of them. I'm posting this to reassure > people who've had or are having Birmingham components. > a, even if you have a different brand of component, it looks > as if you are happy about your decision because of being able to stay > home to have the surgery and have an experienced surgeon. All the > best. > Virginia (right hip, 27/08/03, Brisbane, Australia_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 a, I don't believe that the manufacturer of the BHR necessarily " plays down the revision side of their story " . The facts are the facts and can be obtained by perusing McMinns and De Smets published papers on data. While it is true that the early BHR device had some failures we are all certainly aware of that. The centerpulse is manufactured by Sulzer (Swiss) and they also have had a history- remember that awful recall. Zimmer has just acquired the company. And Zimmer is currently in the midst of a ceramic femoral head recall. Unless your surgeon has a crystal ball I don't believe that he or anyone can make any statements about future revisions. I'm glad that you are going in for the resurfacing. The important fact is that you are confident in your surgeon and the device. Just remember that the US devices and the BHR have been around for a number of years. Good Luck. Rock climbin' Jude LBHR De Smet 09/11/02 catching up Hi all, I've been lurking distantly for a couple of months, awaiting resurf here in Vancouver BC. Had been scheduled for BHR with DeSmet till a local surgeon convinced me to stay put and " promised " he would get to me early in '04. Looks like early Feb, at this point. One of the reasons I stayed home was my local guy (Bas Masri ... Vancouverites will be familiar with him; top reconsructive surgeon at Vancouver General and part of a group of 4 who have started doing resurfs over the past year or so) had reservations about the Birmingham hardware and has introduced something called Centrepulse - Durom (formerly Zimmer). He says MMT plays down the revision side of their story but that ultimately most of us will need one Masri's priority was finding a resurf device that adapts seamlessly to THR hardware later, if/when it becomes necessary. He says Centrepulse makes a much fuller line than MMT in that regard - ie, better fits. Does anyone have comments about this? I'm very happy to stay home for the op, for a number of reasons (including financially... it will be mostly covered by medicare). The downside is, of course, Masri and colleagues are novices compared to people like McMinn and DeSmet. The VGH team has done some training in England with MMT and in Montreal more recently with docs using Centrepulse, but still... I feel like a bit of a guinea pig. Then again, if this procedure is going to start making serious inroads in North America, they're going to need lots more guinea pigs. Plus I'm a very straightforward case, by all measures. OA in right hip, otherwise very fit, strong bones, 51 yrs young. Other surgeons have told me not to worry so much... it's not a complex procedure in people like me My husband says he'd like to just do it in his workshop with a drill press, planer and some real strong glue. Takers? cheers, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hey a, My husband also requires resurfacing (46 years). After a year wait to see Dr Jim MacKenzie in Alberta, the flights from our home in Northern BC and return, we found out that Alberta doesn’t cover the procedure. I covered that off in earlier e-mails, but to make a long story short, Ken had our Dr’ s nurse phone all of the clinics we learned of in Vancouver to see if he could get in. Not hearing from the nurse, Ken also called. His hip is very bad – he’s lost about ¾ ‘ off his left leg. This all started from an injury in 1988. Anyway, today, he received a call from Dr Duncan’s office. It seems they thought that we lived in Alberta. Needless to say, after Ken’s discussion with Dr Duncan’s nurse, they’ve agreed to see him soon (Feb 6). There’s no guarantee that he will have the surgery booked soon, but at least we’re that much closer. Ken’s quality of life has decreased significantly in the last year. He can barely walk (almost not at all without a stick) and I’m surprised that his back isn’t bothering him. When he stands, his left leg dangles helplessly, or he has to stand on his toes. We raise cattle, and he had to put most of the cows out on shares with neighbours and friends because he just isn’t able to get around anymore. As a consequence, he’s put on a lot of weight in the last year. He is 6’2 already, so this isn’t helping his hip any. He eats very sparingly, but because he isn’t able to do much aerobic exercise, his cardio-vascular is suffering. On top of that after 16 years on pain killers, getting progressively stronger, I don’t imagine that’s much good for his stomach either. We were told when he was injured, to wait as long as he possibly could for surgery because new technology was being developed all of the time. Well, I ’m sure glad he waited! I just hope he can have the surgery soon. Have you heard anything about Dr Duncan’s technique? BC does cover the cost of the surgery, but not the hardware ($3,000). Fortunately, my health care coverage through work (Sunlife) will pay 80% of the cost of the hardware too! Unfortunately, not any of the travel, hotels, etc. for either the initial consult or the surgery, but that’s OK. A couple of thousand out of pocket is sure better than the $22,000 originally quoted for the surgery in Alberta. Good luck, maybe our paths will cross! Sandy Kirtzinger catching up Hi all, I've been lurking distantly for a couple of months, awaiting resurf here in Vancouver BC. Had been scheduled for BHR with DeSmet till a local surgeon convinced me to stay put and " promised " he would get to me early in '04. Looks like early Feb, at this point. One of the reasons I stayed home was my local guy (Bas Masri ... Vancouverites will be familiar with him; top reconsructive surgeon at Vancouver General and part of a group of 4 who have started doing resurfs over the past year or so) had reservations about the Birmingham hardware and has introduced something called Centrepulse - Durom (formerly Zimmer). He says MMT plays down the revision side of their story but that ultimately most of us will need one. Masri's priority was finding a resurf device that adapts seamlessly to THR hardware later, if/when it becomes necessary. He says Centrepulse makes a much fuller line than MMT in that regard - ie, better fits. Does anyone have comments about this? I'm very happy to stay home for the op, for a number of reasons (including financially... it will be mostly covered by medicare). The downside is, of course, Masri and colleagues are novices compared to people like McMinn and DeSmet. The VGH team has done some training in England with MMT and in Montreal more recently with docs using Centrepulse, but still... I feel like a bit of a guinea pig. Then again, if this procedure is going to start making serious inroads in North America, they're going to need lots more guinea pigs. Plus I'm a very straightforward case, by all measures. OA in right hip, otherwise very fit, strong bones, 51 yrs young. Other surgeons have told me not to worry so much... it's not a complex procedure in people like me. My husband says he'd like to just do it in his workshop with a drill press, planer and some real strong glue. Takers? cheers, a _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Thanks a, Good luck with that. These sites are great to share information. I don’t know what we would have done without them. Thanks to you and to everyone who has given us such good advice! We’ll keep you posted! Re: catching up > > Have you heard anything about Dr Duncan's technique? Hi Sandy, I'm so glad you figured out a way to get help for Ken. His situation sounds dire! Clive Duncan is considered by many to be B.C.'s top hip surgeon. He's got probably the longest waiting list. I've talked with many patients who rave about him. (I'm a journalist who's done a lot of research in this area.) Ken is in very very good hands! Interesting that your extended health plan will cover the prosthetic cost. I should check with mine. Good luck! a BC does cover the cost > of the surgery, but not the hardware ($3,000). Fortunately, my health care > coverage through work (Sunlife) will pay 80% of the cost of the hardware > too! Unfortunately, not any of the travel, hotels, etc. for either the > initial consult or the surgery, but that's OK. A couple of thousand out of > pocket is sure better than the $22,000 originally quoted for the surgery in > Alberta. > > Good luck, maybe our paths will cross! > > Sandy Kirtzinger > _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Hi Sandy/a, I am two weeks and a day post op (43 yeas). I live in North Vancouver and had my surgery performed at VGH by Dr. Clive Duncan. The whole process has gone tremendously well. I had an extra day in the hospital due to a fever concern that I was told is common and is dependant on how one's body recovers. I do not look at myself as being a " guinea pig " as I have full confidence in the team who performed the surgery. I know Dr. Duncan's track record as a hip surgeon is second to none. I suppose only time will tell as far as how the prosthesis was positioned but again feel confident of my decision. I also tried to wait as long as possible (was diagnosed in '97 and was told I had 2-3 years with my hip) and am glad that I was able to tolerate the conditions. July 2002 was when I was placed on the surgery wait list. When seeing the doctor (on a yearly basis) he always asked if I was still working which I was. I am thinking that although I was on the " list " , this placed me in the category where one must wait for the entire time until their number comes up. Hopefully, for someone in your husbands position there are provisions to speed up this wait period. As my condition worsened starting the middle of 2003 I too put on weight, approx. 25 lbs due to a lack of overall activity. The 5 day stay in the hospital started to remedy all of that as the food is interesting to say the least. :- ) I am on the road to recovery and feel better everyday. a, I went the epidural route and if your husband is looking at doing this in his shop I do recollect a hammer being required. Cheers > Hey a, > > My husband also requires resurfacing (46 years). After a year wait to see > Dr Jim MacKenzie in Alberta, the flights from our home in Northern BC and > return, we found out that Alberta doesn't cover the procedure. I covered > that off in earlier e-mails, but to make a long story short, Ken had our Dr' > s nurse phone all of the clinics we learned of in Vancouver to see if he > could get in. Not hearing from the nurse, Ken also called. His hip is very > bad – he's lost about ¾ ` off his left leg. This all started from an injury > in 1988. Anyway, today, he received a call from Dr Duncan's office. It > seems they thought that we lived in Alberta. > > Needless to say, after Ken's discussion with Dr Duncan's nurse, they've > agreed to see him soon (Feb 6). There's no guarantee that he will have the > surgery booked soon, but at least we're that much closer. > > Ken's quality of life has decreased significantly in the last year. He can > barely walk (almost not at all without a stick) and I'm surprised that his > back isn't bothering him. When he stands, his left leg dangles helplessly, > or he has to stand on his toes. > > We raise cattle, and he had to put most of the cows out on shares with > neighbours and friends because he just isn't able to get around anymore. As > a consequence, he's put on a lot of weight in the last year. He is 6'2 > already, so this isn't helping his hip any. He eats very sparingly, but > because he isn't able to do much aerobic exercise, his cardio- vascular is > suffering. On top of that after 16 years on pain killers, getting > progressively stronger, I don't imagine that's much good for his stomach > either. > > We were told when he was injured, to wait as long as he possibly could for > surgery because new technology was being developed all of the time. Well, I > 'm sure glad he waited! I just hope he can have the surgery soon. > > Have you heard anything about Dr Duncan's technique? BC does cover the cost > of the surgery, but not the hardware ($3,000). Fortunately, my health care > coverage through work (Sunlife) will pay 80% of the cost of the hardware > too! Unfortunately, not any of the travel, hotels, etc. for either the > initial consult or the surgery, but that's OK. A couple of thousand out of > pocket is sure better than the $22,000 originally quoted for the surgery in > Alberta. > > Good luck, maybe our paths will cross! > > Sandy Kirtzinger > > catching up > > Hi all, > I've been lurking distantly for a couple of months, awaiting resurf > here in Vancouver BC. Had been scheduled for BHR with DeSmet till a local > surgeon convinced me to stay put and " promised " he would get to me early in > '04. Looks like early Feb, at this point. One of the reasons I stayed home > was my local guy (Bas Masri ... Vancouverites will be familiar with him; top > reconsructive surgeon at Vancouver General and part of a group of 4 > who have started doing resurfs over the past year or so) had reservations > about the Birmingham hardware and has introduced something called > Centrepulse - Durom (formerly Zimmer). He says MMT plays down the > revision side of their story but that ultimately most of us will need one. > Masri's > priority was finding a resurf device that adapts seamlessly to THR hardware > later, if/when it becomes necessary. He says Centrepulse makes a much > fuller line than MMT in that regard - ie, better fits. Does anyone have > comments about this? > > I'm very happy to stay home for the op, for a number of reasons > (including financially... it will be mostly covered by medicare). The > downside > is, of course, Masri and colleagues are novices compared to people like > McMinn and DeSmet. The VGH team has done some training in England with > MMT and in Montreal more recently with docs using Centrepulse, but > still... I feel like a bit of a guinea pig. Then again, if this procedure is > going to > start making serious inroads in North America, they're going to need lots > more > guinea pigs. Plus I'm a very straightforward case, by all measures. OA in > right > hip, otherwise very fit, strong bones, 51 yrs young. Other surgeons have > told > me not to worry so much... it's not a complex procedure in people like me. > My > husband says he'd like to just do it in his workshop with a drill press, > planer > and some real strong glue. Takers? > > cheers, > a > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 a I am very puzzled as to why Masri would switch to Centrepulse, when BHR has such a good rep, especially given what Jude has described here. Surely we are guinea pigs enough with something as fairly new as resurfs. Personally, when I have to get my other hip done, I will search for a doc who uses a BHR, and hopefully there is one in B.C. Otherwise, it may be back to Belgium, despite the cost.....Cynically, I wonder if Centrepulse is cheaper...anyone know, or know how to find out? I saw Dr. Smit in White Rock in June and he uses the BHR, and hopefully hasn't switched....Anyone know if Dr. Duncan has jumped on this Centrepulse bandwagon? Oh please say no.... Sharry RBHR DE Smet 27/08/2003 From: Judy Toelle To: surfacehippy Sent: Monday, January 19, 2004 10:15 PM Subject: Re: catching up a, I don't believe that the manufacturer of the BHR necessarily " plays down the revision side of their story " . The facts are the facts and can be obtained by perusing McMinns and De Smets published papers on data. While it is true that the early BHR device had some failures we are all certainly aware of that. The centerpulse is manufactured by Sulzer (Swiss) and they also have had a history- remember that awful recall. Zimmer has just acquired the company. And Zimmer is currently in the midst of a ceramic femoral head recall. Unless your surgeon has a crystal ball I don't believe that he or anyone can make any statements about future revisions. I'm glad that you are going in for the resurfacing. The important fact is that you are confident in your surgeon and the device. Just remember that the US devices and the BHR have been around for a number of years. Good Luck. Rock climbin' Jude LBHR De Smet 09/11/02 catching up Hi all, I've been lurking distantly for a couple of months, awaiting resurf here in Vancouver BC. Had been scheduled for BHR with DeSmet till a local surgeon convinced me to stay put and " promised " he would get to me early in '04. Looks like early Feb, at this point. One of the reasons I stayed home was my local guy (Bas Masri ... Vancouverites will be familiar with him; top reconsructive surgeon at Vancouver General and part of a group of 4 who have started doing resurfs over the past year or so) had reservations about the Birmingham hardware and has introduced something called Centrepulse - Durom (formerly Zimmer). He says MMT plays down the revision side of their story but that ultimately most of us will need one Masri's priority was finding a resurf device that adapts seamlessly to THR hardware later, if/when it becomes necessary. He says Centrepulse makes a much fuller line than MMT in that regard - ie, better fits. Does anyone have comments about this? I'm very happy to stay home for the op, for a number of reasons (including financially... it will be mostly covered by medicare). The downside is, of course, Masri and colleagues are novices compared to people like McMinn and DeSmet. The VGH team has done some training in England with MMT and in Montreal more recently with docs using Centrepulse, but still... I feel like a bit of a guinea pig. Then again, if this procedure is going to start making serious inroads in North America, they're going to need lots more guinea pigs. Plus I'm a very straightforward case, by all measures. OA in right hip, otherwise very fit, strong bones, 51 yrs young. Other surgeons have told me not to worry so much... it's not a complex procedure in people like me My husband says he'd like to just do it in his workshop with a drill press, planer and some real strong glue. Takers? cheers, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 This was sent to me and I thought it was cute. :-) GOTTA LOVE THOSE FROGS!!!! A woman was out golfing one day when she hit her ball > > into the woods. She went into the woods to look for > > it and found a frog in a trap. The frog > > said to her, " If you release me from this trap, I will > > grant you three wishes. " > > > > The woman freed the frog and the frog said, " Thank > > you, but I failed to mention that there was a > > condition to your wishes that what ever you wish > > for, your husband will get 10 times more or better! " > > > > The woman said, " That would be okay, " and for her > > first wish, she wanted to be the most beautiful woman > > in the world. The frog warned her, " You do realize > > that this wish will also make your husband the most > > handsome man in the world, an Adonis, that women will > > flock too. " > > > > The woman replied, " That will be okay because I will > > be the most beautiful woman and he will only have eyes > > for me. " So, KAZAM - she's the most beautiful woman > > in the world! > > > > For her second wish, she wanted to be the richest > > woman in the world. The frog said, " That will make > > your husband the richest man in the world and he will > > be ten times richer than you. " The woman said, " That > > will be okay because what is mine is his and what is > > his is mine. " So, KAZAM she's the richest woman in > > the world! > > > > The frog then inquired about her third wish, and she > > answered, " I'd like a mild heart attack. " > > > > Moral of the story: Women are clever -- Don't > > underestimate with them. :-) Get your FREE personalized email signature at My Mail Signature! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Hi !Always a pleasure to hear from you. Your weather is a lot like the weather up here in Canada… My parents woke up to blanket of snow a few days ago – one that probably melted as quickly as it came. They say that is going to be snowing here in Edmonton tonight – the nice wet kind. I'm so sorry that you're having to deal with that horrible MS hug. It hurts like a bitch and you feel little relief until it decides to let go in its own time. I have a friend who has issues with the step spasms, but not from MS. She is a paraplegic due to a spinal infection and her spasms in the chest got so bad that her muscles have started to literally rip from her chest walls. She received the baclofen pump about two or three weeks ago and says it's awesome… only that she had a migraine from hell for a good 10 to 12 days. I love looking at your blackwork that you post online. I used acrostic a lot and had plan on trying some blackwork patterns, but never got around to it and now it's obviously too late. Keep it up! You're very talented with these crafts. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! School is a place where children learn to be stupid " ~ HoltSchooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new. ~ PriesnitzHow to begin to educate a child. First rule: leave him alone. Second rule: leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence First off, prayers for everyone not feeling well, and everyone in the path or the aftermath of these terrible storms - Lord have mercy! Finally feeling up to " talking " - have spent since Saturday night in HALF an MS " hug " - the right side of my chest felt like it was being crushed in a vise, even pulling my right arm backwards at the shoulder. Hallellujah that's let go at last, though I sure have the sore spots to remember it by... going by physical symptoms, it occurs to me that the left side of my brain must look like Swiss cheese... :-O Otherwise, been a typical Wyoming April - sunrainsnowsunrainsnowsunrainsnow. Today is ALMOST sunny, warm enough to open windows, warm enough to make me want to take down all the winter drapes and change out the winter rugs, etc... Slowly slowly working on a new sampler for my blackwork patterns - waiting for the inspiration faerie to show me how to finish off the corner! - and spending way too much time minding my ancestors' bidness on the genealogy front. AM currently working on the " begats " of a gg-grandma everypne always assumed was Irish, and instead have traveled the length of England and hopped over to France... :-D Anyway, that's " me " for the day! T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Hi !Always a pleasure to hear from you. Your weather is a lot like the weather up here in Canada… My parents woke up to blanket of snow a few days ago – one that probably melted as quickly as it came. They say that is going to be snowing here in Edmonton tonight – the nice wet kind. I'm so sorry that you're having to deal with that horrible MS hug. It hurts like a bitch and you feel little relief until it decides to let go in its own time. I have a friend who has issues with the step spasms, but not from MS. She is a paraplegic due to a spinal infection and her spasms in the chest got so bad that her muscles have started to literally rip from her chest walls. She received the baclofen pump about two or three weeks ago and says it's awesome… only that she had a migraine from hell for a good 10 to 12 days. I love looking at your blackwork that you post online. I used acrostic a lot and had plan on trying some blackwork patterns, but never got around to it and now it's obviously too late. Keep it up! You're very talented with these crafts. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! School is a place where children learn to be stupid " ~ HoltSchooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new. ~ PriesnitzHow to begin to educate a child. First rule: leave him alone. Second rule: leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence First off, prayers for everyone not feeling well, and everyone in the path or the aftermath of these terrible storms - Lord have mercy! Finally feeling up to " talking " - have spent since Saturday night in HALF an MS " hug " - the right side of my chest felt like it was being crushed in a vise, even pulling my right arm backwards at the shoulder. Hallellujah that's let go at last, though I sure have the sore spots to remember it by... going by physical symptoms, it occurs to me that the left side of my brain must look like Swiss cheese... :-O Otherwise, been a typical Wyoming April - sunrainsnowsunrainsnowsunrainsnow. Today is ALMOST sunny, warm enough to open windows, warm enough to make me want to take down all the winter drapes and change out the winter rugs, etc... Slowly slowly working on a new sampler for my blackwork patterns - waiting for the inspiration faerie to show me how to finish off the corner! - and spending way too much time minding my ancestors' bidness on the genealogy front. AM currently working on the " begats " of a gg-grandma everypne always assumed was Irish, and instead have traveled the length of England and hopped over to France... :-D Anyway, that's " me " for the day! T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 Hi !Always a pleasure to hear from you. Your weather is a lot like the weather up here in Canada… My parents woke up to blanket of snow a few days ago – one that probably melted as quickly as it came. They say that is going to be snowing here in Edmonton tonight – the nice wet kind. I'm so sorry that you're having to deal with that horrible MS hug. It hurts like a bitch and you feel little relief until it decides to let go in its own time. I have a friend who has issues with the step spasms, but not from MS. She is a paraplegic due to a spinal infection and her spasms in the chest got so bad that her muscles have started to literally rip from her chest walls. She received the baclofen pump about two or three weeks ago and says it's awesome… only that she had a migraine from hell for a good 10 to 12 days. I love looking at your blackwork that you post online. I used acrostic a lot and had plan on trying some blackwork patterns, but never got around to it and now it's obviously too late. Keep it up! You're very talented with these crafts. Lifeportunities: transform your home-based life into freedom.Visit the Practical Homeschooling blog! School is a place where children learn to be stupid " ~ HoltSchooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new. ~ PriesnitzHow to begin to educate a child. First rule: leave him alone. Second rule: leave him alone. Third rule: leave him alone. That is the whole beginning.~D.H. Lawrence First off, prayers for everyone not feeling well, and everyone in the path or the aftermath of these terrible storms - Lord have mercy! Finally feeling up to " talking " - have spent since Saturday night in HALF an MS " hug " - the right side of my chest felt like it was being crushed in a vise, even pulling my right arm backwards at the shoulder. Hallellujah that's let go at last, though I sure have the sore spots to remember it by... going by physical symptoms, it occurs to me that the left side of my brain must look like Swiss cheese... :-O Otherwise, been a typical Wyoming April - sunrainsnowsunrainsnowsunrainsnow. Today is ALMOST sunny, warm enough to open windows, warm enough to make me want to take down all the winter drapes and change out the winter rugs, etc... Slowly slowly working on a new sampler for my blackwork patterns - waiting for the inspiration faerie to show me how to finish off the corner! - and spending way too much time minding my ancestors' bidness on the genealogy front. AM currently working on the " begats " of a gg-grandma everypne always assumed was Irish, and instead have traveled the length of England and hopped over to France... :-D Anyway, that's " me " for the day! T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Ehlers Danlos Syndrome.nTo: MSersLife Sent: Wed, May 25, 2011 12:46:00 PMSubject: Re: Catching up EDS? Wazzat?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- Catching up Prayers and good thoughts for healing to Margaret's mom, Dee'ssquished-deer son,Debbi H, and everybody on the list who needs them, and prayers for all thepeople in the paths of these horrible storms and flooding!Been a little extra gimpy and extra cranky - I think I said before thatmy right knee no longer straightens, making my right leg a good couple ofinches shorter than the left. Now, thanks in part to my EDS, my left anklepronates so far that I'm pretty much walking on the "inside" side of my leftfoot, which throws my left knee and hip out of alignment... I think I'mgoing to have to give up on Cute Shoes and go over to granny orthopedics, ifI can find any I can afford.. and still no doctor, BTW, sigh.On the GOOD side, I have a new design almost ready for publishing ( awedding sampler, and though I say so myself it's gonna be PURDY), I'm makingslow progress on spring cleaning, and on the genealogy front I seem to berelated to pretty much everybody in a castle in medieval Europe (that and $5will get me a giant Dr Pepper at the Quik Shop!), the history isfastinating...That's about all I can remember at the moment! :-) Today is veggie day,so it's going to be a simple dinner of baked potatoes with extra-sharpcheddar cheese and French's fried onions on top, baked beans, and somethinggreen... in WY Practical Blackwork Designs http://practicalblackwork.comhttp://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Yeah, I just googled it and read up on it. Thanks   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- Catching up Prayers and good thoughts for healing to Margaret's mom, Dee'ssquished-deer son,Debbi H, and everybody on the list who needs them, and prayers for all thepeople in the paths of these horrible storms and flooding!Been a little extra gimpy and extra cranky - I think I said before thatmy right knee no longer straightens, making my right leg a good couple ofinches shorter than the left. Now, thanks in part to my EDS, my left anklepronates so far that I'm pretty much walking on the "inside" side of my leftfoot, which throws my left knee and hip out of alignment... I think I'mgoing to have to give up on Cute Shoes and go over to granny orthopedics, ifI can find any I can afford.. and still no doctor, BTW, sigh.On the GOOD side, I have a new design almost ready for publishing ( awedding sampler, and though I say so myself it's gonna be PURDY), I'm makingslow progress on spring cleaning, and on the genealogy front I seem to berelated to pretty much everybody in a castle in medieval Europe (that and $5will get me a giant Dr Pepper at the Quik Shop!), the history isfastinating...That's about all I can remember at the moment! :-) Today is veggie day,so it's going to be a simple dinner of baked potatoes with extra-sharpcheddar cheese and French's fried onions on top, baked beans, and somethinggreen... in WY Practical Blackwork Designs http://practicalblackwork.comhttp://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Ehler-Danlos Syndrome (sp?) I remember we were discussing it a few weeks back... it's a group of connective-tissue disorders. I have what used to be " type 1 " , is now " Classic " (ooooooooOOOOOoooo) - hypermobile joints, fragile skin, lack of clotting factor, so on. Generally not life-threatening, except for when all my blood falls out... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the " inside " side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Fun stuff, huh? ;-) My mommie gave it to me... Luckily I " bred " outside the gene pool, and so far none of my kids/grandkids have it, though probably some are carriers. T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the " inside " side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 wow, what a flavorful dinner you had! thank you for the prayers. I have to ask cause there's always lots of prayers go up. How is that process for you, any of you really, to lift others up in prayer? is it a stop and go through the list type of thing...or do you just lift them up and keep them on your heart so to speak? I only ask because sitting still is a daunting task, topped with remembering who everyone is and what the issue was to lift up in prayer. My heart goes out to all of you, the way you plug along, the way you lighten the issues you're experiencing. I know it is a lot about coping, loving, and reaching out...I also know that the two and a half months of chronic level 8+/- was nearly more than I could bare as I hadn't had the pain issues, only numbness. Had to laugh when my daughter mentioned that she now at 23 gets "cramps"...that before her friends would be struggling and she'd say she was so sorry but she just hadn't any idea what that was like...I hate you they'd jest...well now she gets the cramps that nauseates you and make you want to hide under a blanket for a few days. I suppose before I had the pain episode I was in a similar quandary. Now, with just that small but horrific experience that had me at my worst mental state ever, I am amazed at the way you guys generally push on forwards. thank you for that, all of you. Blessings and calm be with you through your hard times that try your strength.DeeTo: MSersLife Sent: Wed, May 25, 2011 2:40:12 PMSubject: Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the "inside" side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 I think I'm even more cranky because it's spring, I want to do this that and the other, and I always have to wait for someone to TAKE me to do whatever. I miss driving and being energetic enough to go do stuff all day. And yeah, I could use a little cheez with my whine.... ;-D Tomorrow I am making (I hope!) a beef and pasta dish with a gorgonzola sauce. If I make it right, I'll give the recipe... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the " inside " side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 sounds yummy! shall we also call you miss daisy? I cannot imagine not being able to drive, my heart goes out to you on that front~ I do hope you can still find some joy in what you can do!DeeTo: MSersLife Sent: Wed, May 25, 2011 11:26:36 PMSubject: RE: Catching up I think I'm even more cranky because it's spring, I want to do this that and the other, and I always have to wait for someone to TAKE me to do whatever. I miss driving and being energetic enough to go do stuff all day. And yeah, I could use a little cheez with my whine.... ;-D Tomorrow I am making (I hope!) a beef and pasta dish with a gorgonzola sauce. If I make it right, I'll give the recipe... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the "inside" side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Pretty much always joyful, except when I'm (a) having a crybaby day or ( pitching a technicolorbitchfit about something - luckily, the last 2 choices are seldom and short. But I'm half blind and don't always pay attention, so for the sake of everyone else out there, I gave up driving... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the " inside " side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 that's so wonderful Sharon~ prayer is difficult to be consistent with for me. I often spend too much time analyzing things and analyzing myself which interferes with the just 'do it' that would make more sense. I don't often listen to June Hunt but she caught my attention with her topic yesterday. She mentioned in there somewhere that she may not have as much of a 'feeling' of love for God as many people there that just have it pouring out of them (very paraphrased) but she was secure in her salvation and relationship with the Lord. She points toward past hurts and events that have left her guarded or effected her expression of feelings or something like that...but it made me think about the fact that I believe I am saved, I believe in the Lord Jesus Christ, however the 'feelings' of closeness or a relationship isn't felt inside like I admire in others. I have a hard time realizing the issue of Christ dying for me as an individual...that it is something like going to a concert with thousands of people and saying the singer knows me, sees me, and is there just for me...as an individual. I am one that won't fight to be seen, won't push to the front, rather the opposite. This is a big interference for me on the front of spirituality. What denomination are you? I hope you don't mind me asking~ DeeTo: MSersLife Sent: Thu, May 26, 2011 12:34:05 PMSubject: Re: Catching up Dee Does your daughter have endometriosis? I know there can be more painful menstruation with that. Just a thought since the cramping is a new thing for her. Prayer is such an individual thing, isn't it? I love to go to church and say the prayers with the congregation. But mostly my prayer is my own. As a family we always say a prayer before every meal. I pray at bedtime and if I wake up during the night I sometimes pray. When I say to someone on this group that I will pray for them I usually mean I actually pray for blessings for them and say their name. I also ask in prayer for blessings for everyone I said I will pray for. That covers me when my MS-memory issues affect me:) lolshug SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 25, 2011 7:06:35 PMSubject: Re: Catching up wow, what a flavorful dinner you had! thank you for the prayers. I have to ask cause there's always lots of prayers go up. How is that process for you, any of you really, to lift others up in prayer? is it a stop and go through the list type of thing...or do you just lift them up and keep them on your heart so to speak? I only ask because sitting still is a daunting task, topped with remembering who everyone is and what the issue was to lift up in prayer. My heart goes out to all of you, the way you plug along, the way you lighten the issues you're experiencing. I know it is a lot about coping, loving, and reaching out...I also know that the two and a half months of chronic level 8+/- was nearly more than I could bare as I hadn't had the pain issues, only numbness. Had to laugh when my daughter mentioned that she now at 23 gets "cramps"...that before her friends would be struggling and she'd say she was so sorry but she just hadn't any idea what that was like...I hate you they'd jest...well now she gets the cramps that nauseates you and make you want to hide under a blanket for a few days. I suppose before I had the pain episode I was in a similar quandary. Now, with just that small but horrific experience that had me at my worst mental state ever, I am amazed at the way you guys generally push on forwards. thank you for that, all of you. Blessings and calm be with you through your hard times that try your strength.DeeFrom: Thallas To: MSersLife Sent: Wed, May 25, 2011 2:40:12 PMSubject: Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the "inside" side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 I don't mind you asking, Dee. I am Roman Catholic. We have a variety of denominations and faiths on this group. We are diverse:) I love the fact that many of us are very different in faith or no faith but we all respect each other. Isn't that what it's all about? hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, May 26, 2011 12:11:14 PMSubject: Re: Catching up that's so wonderful Sharon~ prayer is difficult to be consistent with for me. I often spend too much time analyzing things and analyzing myself which interferes with the just 'do it' that would make more sense. I don't often listen to June Hunt but she caught my attention with her topic yesterday. She mentioned in there somewhere that she may not have as much of a 'feeling' of love for God as many people there that just have it pouring out of them (very paraphrased) but she was secure in her salvation and relationship with the Lord. She points toward past hurts and events that have left her guarded or effected her expression of feelings or something like that...but it made me think about the fact that I believe I am saved, I believe in the Lord Jesus Christ, however the 'feelings' of closeness or a relationship isn't felt inside like I admire in others. I have a hard time realizing the issue of Christ dying for me as an individual...that it is something like going to a concert with thousands of people and saying the singer knows me, sees me, and is there just for me...as an individual. I am one that won't fight to be seen, won't push to the front, rather the opposite. This is a big interference for me on the front of spirituality. What denomination are you? I hope you don't mind me asking~ DeeTo: MSersLife Sent: Thu, May 26, 2011 12:34:05 PMSubject: Re: Catching up Dee Does your daughter have endometriosis? I know there can be more painful menstruation with that. Just a thought since the cramping is a new thing for her. Prayer is such an individual thing, isn't it? I love to go to church and say the prayers with the congregation. But mostly my prayer is my own. As a family we always say a prayer before every meal. I pray at bedtime and if I wake up during the night I sometimes pray. When I say to someone on this group that I will pray for them I usually mean I actually pray for blessings for them and say their name. I also ask in prayer for blessings for everyone I said I will pray for. That covers me when my MS-memory issues affect me:) lolshug SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 25, 2011 7:06:35 PMSubject: Re: Catching up wow, what a flavorful dinner you had! thank you for the prayers. I have to ask cause there's always lots of prayers go up. How is that process for you, any of you really, to lift others up in prayer? is it a stop and go through the list type of thing...or do you just lift them up and keep them on your heart so to speak? I only ask because sitting still is a daunting task, topped with remembering who everyone is and what the issue was to lift up in prayer. My heart goes out to all of you, the way you plug along, the way you lighten the issues you're experiencing. I know it is a lot about coping, loving, and reaching out...I also know that the two and a half months of chronic level 8+/- was nearly more than I could bare as I hadn't had the pain issues, only numbness. Had to laugh when my daughter mentioned that she now at 23 gets "cramps"...that before her friends would be struggling and she'd say she was so sorry but she just hadn't any idea what that was like...I hate you they'd jest...well now she gets the cramps that nauseates you and make you want to hide under a blanket for a few days. I suppose before I had the pain episode I was in a similar quandary. Now, with just that small but horrific experience that had me at my worst mental state ever, I am amazed at the way you guys generally push on forwards. thank you for that, all of you. Blessings and calm be with you through your hard times that try your strength.DeeFrom: Thallas To: MSersLife Sent: Wed, May 25, 2011 2:40:12 PMSubject: Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the "inside" side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 yes it is~ I volunteer at a community run pregnancy care center that is run and staffed by Catholic ladies and is pro-life~ I laughed at the last luncheon/meeting and said one of these day's they might convert me lol. they all do this memorized prayer and the sign of the cross etc. that of course I don't know the routine being a basic christian~ I have tattoos as well so the gal that runs it and is a spunky 93 year old come June, was taken aback and disgusted. I laughed and asked if I could still volunteer~ by the time she saw them I'd been there and built a relationship of fun fussing at each other for being a trouble maker. she is amazing~She'll be in the counseling with the gals coming in for pregnancy tests and you'll sometimes hear her ask "well why are you having sex then?!" pretty funny and bold gal. Seems she knows or is related to nearly everyone around here. She use to be a teacher and teaches sex ed classes at some of the catholic schools or church groups. To: MSersLife Sent: Thu, May 26, 2011 11:22:22 PMSubject: Re: Catching up I don't mind you asking, Dee. I am Roman Catholic. We have a variety of denominations and faiths on this group. We are diverse:) I love the fact that many of us are very different in faith or no faith but we all respect each other. Isn't that what it's all about? hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, May 26, 2011 12:11:14 PMSubject: Re: Catching up that's so wonderful Sharon~ prayer is difficult to be consistent with for me. I often spend too much time analyzing things and analyzing myself which interferes with the just 'do it' that would make more sense. I don't often listen to June Hunt but she caught my attention with her topic yesterday. She mentioned in there somewhere that she may not have as much of a 'feeling' of love for God as many people there that just have it pouring out of them (very paraphrased) but she was secure in her salvation and relationship with the Lord. She points toward past hurts and events that have left her guarded or effected her expression of feelings or something like that...but it made me think about the fact that I believe I am saved, I believe in the Lord Jesus Christ, however the 'feelings' of closeness or a relationship isn't felt inside like I admire in others. I have a hard time realizing the issue of Christ dying for me as an individual...that it is something like going to a concert with thousands of people and saying the singer knows me, sees me, and is there just for me...as an individual. I am one that won't fight to be seen, won't push to the front, rather the opposite. This is a big interference for me on the front of spirituality. What denomination are you? I hope you don't mind me asking~ DeeTo: MSersLife Sent: Thu, May 26, 2011 12:34:05 PMSubject: Re: Catching up Dee Does your daughter have endometriosis? I know there can be more painful menstruation with that. Just a thought since the cramping is a new thing for her. Prayer is such an individual thing, isn't it? I love to go to church and say the prayers with the congregation. But mostly my prayer is my own. As a family we always say a prayer before every meal. I pray at bedtime and if I wake up during the night I sometimes pray. When I say to someone on this group that I will pray for them I usually mean I actually pray for blessings for them and say their name. I also ask in prayer for blessings for everyone I said I will pray for. That covers me when my MS-memory issues affect me:) lolshug SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 25, 2011 7:06:35 PMSubject: Re: Catching up wow, what a flavorful dinner you had! thank you for the prayers. I have to ask cause there's always lots of prayers go up. How is that process for you, any of you really, to lift others up in prayer? is it a stop and go through the list type of thing...or do you just lift them up and keep them on your heart so to speak? I only ask because sitting still is a daunting task, topped with remembering who everyone is and what the issue was to lift up in prayer. My heart goes out to all of you, the way you plug along, the way you lighten the issues you're experiencing. I know it is a lot about coping, loving, and reaching out...I also know that the two and a half months of chronic level 8+/- was nearly more than I could bare as I hadn't had the pain issues, only numbness. Had to laugh when my daughter mentioned that she now at 23 gets "cramps"...that before her friends would be struggling and she'd say she was so sorry but she just hadn't any idea what that was like...I hate you they'd jest...well now she gets the cramps that nauseates you and make you want to hide under a blanket for a few days. I suppose before I had the pain episode I was in a similar quandary. Now, with just that small but horrific experience that had me at my worst mental state ever, I am amazed at the way you guys generally push on forwards. thank you for that, all of you. Blessings and calm be with you through your hard times that try your strength.DeeFrom: Thallas To: MSersLife Sent: Wed, May 25, 2011 2:40:12 PMSubject: Catching up Prayers and good thoughts for healing to Margaret's mom, Dee's squished-deer son, Debbi H, and everybody on the list who needs them, and prayers for all the people in the paths of these horrible storms and flooding! Been a little extra gimpy and extra cranky - I think I said before that my right knee no longer straightens, making my right leg a good couple of inches shorter than the left. Now, thanks in part to my EDS, my left ankle pronates so far that I'm pretty much walking on the "inside" side of my left foot, which throws my left knee and hip out of alignment... I think I'm going to have to give up on Cute Shoes and go over to granny orthopedics, if I can find any I can afford.. and still no doctor, BTW, sigh. On the GOOD side, I have a new design almost ready for publishing ( a wedding sampler, and though I say so myself it's gonna be PURDY), I'm making slow progress on spring cleaning, and on the genealogy front I seem to be related to pretty much everybody in a castle in medieval Europe (that and $5 will get me a giant Dr Pepper at the Quik Shop!), the history is fastinating... That's about all I can remember at the moment! :-) Today is veggie day, so it's going to be a simple dinner of baked potatoes with extra-sharp cheddar cheese and French's fried onions on top, baked beans, and something green... in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." Quote Link to comment Share on other sites More sharing options...
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