Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Thank you all for having me 'over' ~ Sharon, love the disclaimer you have at the end of your email, very fun! My husband gave me a card that said I was his favorite song~ which is funny since I sing along to most of the music I listen to...mp3 are the greatest creation aren't they? So I've just reordered my 3rd box of copaxone...not really thrilled as most would imagine with a daily shot. I am grateful the response isn't like with the avonex. However, I think it is causing me to feel 'run down' but not necessarily in a fatigue type of way. The site reactions are pitiful as well, can only guess what I'll look like after a year of it. I'm in my mid 40's, married with 2 grown kids and several pets. I am blessed to be home and not out working or looking for work. The ms has not caused a disability really, and I suspect another issue going on though my neuro does not. The fact that symptoms are different for everyone, besides interpretation of those symptoms themselves differ, make it hard to determine if they are ms related. My original dx came out of months of numbness up to the waist and the buzzing when the head is tilted fwd...no pain. While off avonex for a year and a half I had nearly 3 months of chronic pain on a level of a 6-8 constant. Tendonitis has become my world with anything I do pretty much in a symmetrical manner throughout my structure. So, being the pain issue, I didn't relate it to my ms dx. Off to the neuro they referred me. mri again of the c & t spine and nothing new going on. steroid series, wonderful relief for first two weeks, tapering brought hints of pains back and skin breakouts like no tomorrow. glad to be done with that. So the neuro thinks ms still, I think perhaps polymyalgia because of symmetry, tendons/muscles, anemia, well no weight loss by any stretch but I just don't think it's the ms. I'm not the neuro though~ That is where I'm at. Looking for someone with any similarities to my tale regarding pain and tendon issues with ms...also with copaxone and feeling run down. Thank you agian for your 'welcomes' to the group~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Hi again. Though I cannot relate to much of what you are referring to, pain-wise, I can relate to the Copaxone injections. It's really not fun to have a daily injection, however, if it is keeping the MS at bay, I'll take them. As far as feeling run-down, I do feel very fatigued, however, I think that is more from the MS, than the Copaxone. Just my 2 cents. Again, welcome to the group! I hope your pain subsides some. hugs, Kate To: MSersLife Sent: Wed, May 4, 2011 8:49:52 AMSubject: RE: welcome Thank you all for having me 'over' ~ Sharon, love the disclaimer you have at the end of your email, very fun! My husband gave me a card that said I was his favorite song~ which is funny since I sing along to most of the music I listen to...mp3 are the greatest creation aren't they? So I've just reordered my 3rd box of copaxone...not really thrilled as most would imagine with a daily shot. I am grateful the response isn't like with the avonex. However, I think it is causing me to feel 'run down' but not necessarily in a fatigue type of way. The site reactions are pitiful as well, can only guess what I'll look like after a year of it. I'm in my mid 40's, married with 2 grown kids and several pets. I am blessed to be home and not out working or looking for work. The ms has not caused a disability really, and I suspect another issue going on though my neuro does not. The fact that symptoms are different for everyone, besides interpretation of those symptoms themselves differ, make it hard to determine if they are ms related. My original dx came out of months of numbness up to the waist and the buzzing when the head is tilted fwd...no pain. While off avonex for a year and a half I had nearly 3 months of chronic pain on a level of a 6-8 constant. Tendonitis has become my world with anything I do pretty much in a symmetrical manner throughout my structure. So, being the pain issue, I didn't relate it to my ms dx. Off to the neuro they referred me. mri again of the c & t spine and nothing new going on. steroid series, wonderful relief for first two weeks, tapering brought hints of pains back and skin breakouts like no tomorrow. glad to be done with that. So the neuro thinks ms still, I think perhaps polymyalgia because of symmetry, tendons/muscles, anemia, well no weight loss by any stretch but I just don't think it's the ms. I'm not the neuro though~ That is where I'm at. Looking for someone with any similarities to my tale regarding pain and tendon issues with ms...also with copaxone and feeling run down. Thank you agian for your 'welcomes' to the group~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Is it DQ? Is that for Dairy Queen? lol Where is your pain? And you said the pain is symmetrical? I had symmetrical pain in my legs for months that was extremely bad. It hurt mostly at night. My neuro did nerve testing on my legs and then told me nothing new showed up that would be the cause. He said the pain was from MS. He thought I would always have the pain but it did go away eventually. The pain was so severe that I would wake up at night crying and would have dreams about suicide. What do you take for your pain? Does anything help it?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 4, 2011 5:49:52 AMSubject: RE: welcome Thank you all for having me 'over' ~ Sharon, love the disclaimer you have at the end of your email, very fun! My husband gave me a card that said I was his favorite song~ which is funny since I sing along to most of the music I listen to...mp3 are the greatest creation aren't they? So I've just reordered my 3rd box of copaxone...not really thrilled as most would imagine with a daily shot. I am grateful the response isn't like with the avonex. However, I think it is causing me to feel 'run down' but not necessarily in a fatigue type of way. The site reactions are pitiful as well, can only guess what I'll look like after a year of it. I'm in my mid 40's, married with 2 grown kids and several pets. I am blessed to be home and not out working or looking for work. The ms has not caused a disability really, and I suspect another issue going on though my neuro does not. The fact that symptoms are different for everyone, besides interpretation of those symptoms themselves differ, make it hard to determine if they are ms related. My original dx came out of months of numbness up to the waist and the buzzing when the head is tilted fwd...no pain. While off avonex for a year and a half I had nearly 3 months of chronic pain on a level of a 6-8 constant. Tendonitis has become my world with anything I do pretty much in a symmetrical manner throughout my structure. So, being the pain issue, I didn't relate it to my ms dx. Off to the neuro they referred me. mri again of the c & t spine and nothing new going on. steroid series, wonderful relief for first two weeks, tapering brought hints of pains back and skin breakouts like no tomorrow. glad to be done with that. So the neuro thinks ms still, I think perhaps polymyalgia because of symmetry, tendons/muscles, anemia, well no weight loss by any stretch but I just don't think it's the ms. I'm not the neuro though~ That is where I'm at. Looking for someone with any similarities to my tale regarding pain and tendon issues with ms...also with copaxone and feeling run down. Thank you agian for your 'welcomes' to the group~ Quote Link to comment Share on other sites More sharing options...
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