Re: RE: pain

[Guest guest]

Hi again Sharon. I knew that pain could be a symptom but haven't heard anyone describe it. The pain I had was in my my feet, hips, shoulders, elbows, wrists, hands, then the painful skin in the back started like when I use to take avonex which is what made me say "oh dear" and realize it may be related. My tendons seize up briefly, which could be muscles...not sure if I am describing it correctly. My tendons easily get "tendonitis pain" when doing pretty much anything. Like light weight lifting, walking more than 15-20 min, knitting for about a half hour, grating cheese for crying out loud! Holding a book, playing kinects, throwing toys/balls for the dogs,you name it...if it has repetitive moves I'm done in a very short time. My collar area has seized up for numerous years off and on through

the day...was told it's just "use it or lose it" issues. unfortunately that is a bunch of nonsense as I do use them, did work out, was active. I've never had the optic issues like many thankfully. I still have the pain in the hips, feet, and shoulders but to a lesser degree thank the episode last fall. Today my skin on the back hurts for some reason. So strange, nobody to relate to it it seems. It can be so isolating when others don't understand and it's invisible, as you all know too well. Preoccupation with pain makes me just be that much more disgusted with myself...like watching obituaries~ ugh. I'm generally pretty active so the limitations stink something awful. I do have a wonderful example to turn to every day and that is my husband who lost half of his leg over 18 years ago. He has done a fantastic job restructuring his lifestyle and re-prioritizing, not letting it sour him. And while he has a visible issue, he still carries invisible issues

such as the fatigue of the knee joint and any sores/blisters from the prosthesis that may be there that we wouldn't know about unless he speaks up. So he is my hero and inspiration to adapt and move fwd in just a different manner. I must say we are well matched for tolerance of physical things most of the time which is nice. would be more difficult on the relationship if he was hugely more active than I could be or the other way around. We're both active by nature but have to curve it due to circumstances. oh, pain meds...I've done tylenol, motrin, celebrex, asprin, hot tub, massage, Vicodin, none of it helps. Occasionally celebrex will work for a day or two, and massage and hot tub is always nice but not a resolution. The best vacation from pain was the first two weeks of the prednisone series I took. was about 2.5 days before I realized things were not hurting. was awsome.

[Guest guest]

DQ... I am curious what your doctors say about the pain. Do you have fibromyalgia as well? Do you take any medication for tight MS muscles such as klonopin or baclofen? Your husband is an inspiration! It sounds like he has done a wonderful job with his life. That reminds me of my nephew, Greg. Greg was dxed with Muscular Dystrophy when he was 21. His type is an early adult onset disease. Anyway, Greg is my hero. He is in a wheelchair full time now and is upbeat, positive and fun. He has heart problems from the MD but never feels sorry for himself. Ever. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 4, 2011 6:47:45 PMSubject: Re: RE: pain

Hi again Sharon. I knew that pain could be a symptom but haven't heard anyone describe it. The pain I had was in my my feet, hips, shoulders, elbows, wrists, hands, then the painful skin in the back started like when I use to take avonex which is what made me say "oh dear" and realize it may be related. My tendons seize up briefly, which could be muscles...not sure if I am describing it correctly. My tendons easily get "tendonitis pain" when doing pretty much anything. Like light weight lifting, walking more than 15-20 min, knitting for about a half hour, grating cheese for crying out loud! Holding a book, playing kinects, throwing toys/balls for the dogs,you name it...if it has repetitive moves I'm done in a very short time. My collar area has seized up for numerous years off and on through

the day...was told it's just "use it or lose it" issues. unfortunately that is a bunch of nonsense as I do use them, did work out, was active. I've never had the optic issues like many thankfully. I still have the pain in the hips, feet, and shoulders but to a lesser degree thank the episode last fall. Today my skin on the back hurts for some reason. So strange, nobody to relate to it it seems. It can be so isolating when others don't understand and it's invisible, as you all know too well. Preoccupation with pain makes me just be that much more disgusted with myself...like watching obituaries~ ugh. I'm generally pretty active so the limitations stink something awful. I do have a wonderful example to turn to every day and that is my husband who lost half of his leg over 18 years ago. He has done a fantastic job restructuring his lifestyle and re-prioritizing, not letting it sour him. And while he has a visible issue, he still carries invisible issues

such as the fatigue of the knee joint and any sores/blisters from the prosthesis that may be there that we wouldn't know about unless he speaks up. So he is my hero and inspiration to adapt and move fwd in just a different manner. I must say we are well matched for tolerance of physical things most of the time which is nice. would be more difficult on the relationship if he was hugely more active than I could be or the other way around. We're both active by nature but have to curve it due to circumstances. oh, pain meds...I've done tylenol, motrin, celebrex, asprin, hot tub, massage, Vicodin, none of it helps. Occasionally celebrex will work for a day or two, and massage and hot tub is always nice but not a resolution. The best vacation from pain was the first two weeks of the prednisone series I took. was about 2.5 days before I realized things were not hurting. was awsome.