Re: MS fatigue and meds.....Re: little update

[Guest guest]

Thanks Sharon,

My long term memory doesn't seem to be too far gone.. it's the

short term that's the killer!.. I'm trying now to remember where

I had read that Adderall was now being used as well.. it might

have been the R.E.M.S. list because it's still being evaluated

or something...

Has Challis had any of the CIS episodes that the researchers (or

someone) are talking about.. looks like, but can't be sure it is

type thing.. where they can get her on one of the CRAB's...

Supposedly, according to current research, it delays onset of

Definite for at least two years, and in some cases even more.

Of course I guess it really doesn't matter too much, so long as

she doesn't stop moving. I did have some loss of some things,

and wasn't able to run laundry baskets down 19 steps, then spend

3-4 hours in a hot laundromat and then run those same baskets

back up those 19 steps, just after the Dx.. but until I lost my

job at Charter, I was still going pretty strong mobility wise...

it was after losing the job, that I started to notice

progression a bit more.. because I was spending more time

sitting than moving..

How is she doing these days anyway?.. and have you gotten any

summerlike weather yet?

HUGS

|)onna

You have an excellent memory Donna! I'm

impressed. I was on Provigil samples but my insurance would

never approve it so I went on Ritalin. It worked for me but my

severe dry mouth made me give it up. The amantadine stopped

working for Challis so she is now on Adderall. She still doesn't

have a diagnosis.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

April 28, 2011 7:11:54 AM

Subject:

Re: little update

Kate,

Not all of us do so well on something that some of us do

well with.. I know that didn't make any sense.. LOL.. If

I'm not mistaken... Challis was given Amantadine for

fatigue (though no Dx) and the Amantadine worked for

her.. I didn't have any luck with it.. Provigil works

for me instead.. and if I'm not completely off the

mark.. Sharon was given Ritalin for her fatigue at one

point, and that worked for her, for awhile... Can't

remember exactly if it stopped working, or if she

stopped taking it because of the dry mouth

side-effects..

I'm not sure if there's anything else out there that is

being used for MS fatigue or not.. Something I haven't

checked out in ages... There could well be though, as

they seem to be making progress in all directions these

days.

HUGS

|)onna

Thanks,

Donna. I appreciate the advice. Yes, I knew that if I

were to make more than $1000 I'd lose benefits. That's

why I'm going to stick with 20 or 25 hrs max.. I do

have some Provigil, I could give that a try although

in the past I never found much help from it.

Thanks again!

love,

Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, April 27, 2011 3:47:40 PM

Subject:

Re: little update

Kate,

Think about asking your neurologist for

something to help with the fatigue during

school hours.. I know when I was working,

the summer months were killers.. and

sometimes the fatigue would start by 10

a.m.. at that point in time I'd take half of

a Provigil.. would get me kick started and

through the day.. if I absolutely needed

another half later in the day, or if the

first half didn't work within a half hour of

my taking it.. I could always use the 2nd

half of the pill.. Worked wonders and kept

me alert as well..

As for the part-time job.. this on the

advice from my buddy at SS... do NOT get

close the SGA (which happens to be 1,000 a

month this year) in your gross earnings..

not net.. and watch the hours you take as

well.. 25 a week would probably be the max..

you get closer to 40.. they'll do a medical

review and tell you that since you're

working that close to 40.. you can work 40..

and if you work 40.. you're out of your

disability check again.. The 2 for 1 thing

that you read about in the pamphlets &

on the website.. doesn't really fly the same

way it reads.. People receiving SSI benefits

get the twofer deal.. people receiving SSDI

don't really.. and that came from a "big

boss" in the local SS office (that we dealt

with daily) when my boss called him to check

into giving me more hours.... She needed me

more hours, but didn't want to jeopardize

the disability I was receiving.. she ended

up hiring another gal and we kind of sort of

"shared" the full time position.. She kept

her disability, I kept mine... the office

work got done, and we had a little extra

cash in our pockets.. (but $800 a month

extra earning is really nothing to sneeze

at.. it's sure missed when it's gone!)

HUGS

|)onna

I think

I told ya'll that I was having vocational

testing done. Well, the results are all

in, and it was a very positive report. My

typing speed is 46wpm, with a 100%

accuracy, not too shabby, though I'm sure

if I was practiced, I could reach 50 or

perhaps even 55. Next week I start 'QUIP'

training. Don't ask me what it stands

for...I don't know! All I DO know is that

it is a computer training class. I believe

I'll learn Office/Word/Excel, etc. VESID

(Vocational/Educational Support for

Individuals with Disabilities) will pay

($1800) for the course; I pay nothing. The

major drawback of this is--it's

Monday-Friday from 10am to 4pm! I think my

fatigue level is going to skyrocket. I'm

going to inform them of it (fatigue), and

see if I could possibly have an extended

lunch or break. I'm thinking I could nap

in my car fo 45 min of my hour lunch. The

course runs from May 2 to about the 2nd

week of June. Add to this, little

Munchkin. I think we may need to have

someone come in; play with her, and walk

her. Even if it was once during the day,

that would probably suffice.

I'm thinking I won't be going on the

computer too much during this time, not

sure, but might be a bit quiet during this

time.

Hopefully, this will help me get a p/t job

in some sort of clerical position.

love to all,

Kate

[Guest guest]

Thanks Sharon,

My long term memory doesn't seem to be too far gone.. it's the

short term that's the killer!.. I'm trying now to remember where

I had read that Adderall was now being used as well.. it might

have been the R.E.M.S. list because it's still being evaluated

or something...

Has Challis had any of the CIS episodes that the researchers (or

someone) are talking about.. looks like, but can't be sure it is

type thing.. where they can get her on one of the CRAB's...

Supposedly, according to current research, it delays onset of

Definite for at least two years, and in some cases even more.

Of course I guess it really doesn't matter too much, so long as

she doesn't stop moving. I did have some loss of some things,

and wasn't able to run laundry baskets down 19 steps, then spend

3-4 hours in a hot laundromat and then run those same baskets

back up those 19 steps, just after the Dx.. but until I lost my

job at Charter, I was still going pretty strong mobility wise...

it was after losing the job, that I started to notice

progression a bit more.. because I was spending more time

sitting than moving..

How is she doing these days anyway?.. and have you gotten any

summerlike weather yet?

HUGS

|)onna

You have an excellent memory Donna! I'm

impressed. I was on Provigil samples but my insurance would

never approve it so I went on Ritalin. It worked for me but my

severe dry mouth made me give it up. The amantadine stopped

working for Challis so she is now on Adderall. She still doesn't

have a diagnosis.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

April 28, 2011 7:11:54 AM

Subject:

Re: little update

Kate,

Not all of us do so well on something that some of us do

well with.. I know that didn't make any sense.. LOL.. If

I'm not mistaken... Challis was given Amantadine for

fatigue (though no Dx) and the Amantadine worked for

her.. I didn't have any luck with it.. Provigil works

for me instead.. and if I'm not completely off the

mark.. Sharon was given Ritalin for her fatigue at one

point, and that worked for her, for awhile... Can't

remember exactly if it stopped working, or if she

stopped taking it because of the dry mouth

side-effects..

I'm not sure if there's anything else out there that is

being used for MS fatigue or not.. Something I haven't

checked out in ages... There could well be though, as

they seem to be making progress in all directions these

days.

HUGS

|)onna

Thanks,

Donna. I appreciate the advice. Yes, I knew that if I

were to make more than $1000 I'd lose benefits. That's

why I'm going to stick with 20 or 25 hrs max.. I do

have some Provigil, I could give that a try although

in the past I never found much help from it.

Thanks again!

love,

Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, April 27, 2011 3:47:40 PM

Subject:

Re: little update

Kate,

Think about asking your neurologist for

something to help with the fatigue during

school hours.. I know when I was working,

the summer months were killers.. and

sometimes the fatigue would start by 10

a.m.. at that point in time I'd take half of

a Provigil.. would get me kick started and

through the day.. if I absolutely needed

another half later in the day, or if the

first half didn't work within a half hour of

my taking it.. I could always use the 2nd

half of the pill.. Worked wonders and kept

me alert as well..

As for the part-time job.. this on the

advice from my buddy at SS... do NOT get

close the SGA (which happens to be 1,000 a

month this year) in your gross earnings..

not net.. and watch the hours you take as

well.. 25 a week would probably be the max..

you get closer to 40.. they'll do a medical

review and tell you that since you're

working that close to 40.. you can work 40..

and if you work 40.. you're out of your

disability check again.. The 2 for 1 thing

that you read about in the pamphlets &

on the website.. doesn't really fly the same

way it reads.. People receiving SSI benefits

get the twofer deal.. people receiving SSDI

don't really.. and that came from a "big

boss" in the local SS office (that we dealt

with daily) when my boss called him to check

into giving me more hours.... She needed me

more hours, but didn't want to jeopardize

the disability I was receiving.. she ended

up hiring another gal and we kind of sort of

"shared" the full time position.. She kept

her disability, I kept mine... the office

work got done, and we had a little extra

cash in our pockets.. (but $800 a month

extra earning is really nothing to sneeze

at.. it's sure missed when it's gone!)

HUGS

|)onna

I think

I told ya'll that I was having vocational

testing done. Well, the results are all

in, and it was a very positive report. My

typing speed is 46wpm, with a 100%

accuracy, not too shabby, though I'm sure

if I was practiced, I could reach 50 or

perhaps even 55. Next week I start 'QUIP'

training. Don't ask me what it stands

for...I don't know! All I DO know is that

it is a computer training class. I believe

I'll learn Office/Word/Excel, etc. VESID

(Vocational/Educational Support for

Individuals with Disabilities) will pay

($1800) for the course; I pay nothing. The

major drawback of this is--it's

Monday-Friday from 10am to 4pm! I think my

fatigue level is going to skyrocket. I'm

going to inform them of it (fatigue), and

see if I could possibly have an extended

lunch or break. I'm thinking I could nap

in my car fo 45 min of my hour lunch. The

course runs from May 2 to about the 2nd

week of June. Add to this, little

Munchkin. I think we may need to have

someone come in; play with her, and walk

her. Even if it was once during the day,

that would probably suffice.

I'm thinking I won't be going on the

computer too much during this time, not

sure, but might be a bit quiet during this

time.

Hopefully, this will help me get a p/t job

in some sort of clerical position.

love to all,

Kate

[Guest guest]

Thanks Sharon,

My long term memory doesn't seem to be too far gone.. it's the

short term that's the killer!.. I'm trying now to remember where

I had read that Adderall was now being used as well.. it might

have been the R.E.M.S. list because it's still being evaluated

or something...

Has Challis had any of the CIS episodes that the researchers (or

someone) are talking about.. looks like, but can't be sure it is

type thing.. where they can get her on one of the CRAB's...

Supposedly, according to current research, it delays onset of

Definite for at least two years, and in some cases even more.

Of course I guess it really doesn't matter too much, so long as

she doesn't stop moving. I did have some loss of some things,

and wasn't able to run laundry baskets down 19 steps, then spend

3-4 hours in a hot laundromat and then run those same baskets

back up those 19 steps, just after the Dx.. but until I lost my

job at Charter, I was still going pretty strong mobility wise...

it was after losing the job, that I started to notice

progression a bit more.. because I was spending more time

sitting than moving..

How is she doing these days anyway?.. and have you gotten any

summerlike weather yet?

HUGS

|)onna

You have an excellent memory Donna! I'm

impressed. I was on Provigil samples but my insurance would

never approve it so I went on Ritalin. It worked for me but my

severe dry mouth made me give it up. The amantadine stopped

working for Challis so she is now on Adderall. She still doesn't

have a diagnosis.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

April 28, 2011 7:11:54 AM

Subject:

Re: little update

Kate,

Not all of us do so well on something that some of us do

well with.. I know that didn't make any sense.. LOL.. If

I'm not mistaken... Challis was given Amantadine for

fatigue (though no Dx) and the Amantadine worked for

her.. I didn't have any luck with it.. Provigil works

for me instead.. and if I'm not completely off the

mark.. Sharon was given Ritalin for her fatigue at one

point, and that worked for her, for awhile... Can't

remember exactly if it stopped working, or if she

stopped taking it because of the dry mouth

side-effects..

I'm not sure if there's anything else out there that is

being used for MS fatigue or not.. Something I haven't

checked out in ages... There could well be though, as

they seem to be making progress in all directions these

days.

HUGS

|)onna

Thanks,

Donna. I appreciate the advice. Yes, I knew that if I

were to make more than $1000 I'd lose benefits. That's

why I'm going to stick with 20 or 25 hrs max.. I do

have some Provigil, I could give that a try although

in the past I never found much help from it.

Thanks again!

love,

Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, April 27, 2011 3:47:40 PM

Subject:

Re: little update

Kate,

Think about asking your neurologist for

something to help with the fatigue during

school hours.. I know when I was working,

the summer months were killers.. and

sometimes the fatigue would start by 10

a.m.. at that point in time I'd take half of

a Provigil.. would get me kick started and

through the day.. if I absolutely needed

another half later in the day, or if the

first half didn't work within a half hour of

my taking it.. I could always use the 2nd

half of the pill.. Worked wonders and kept

me alert as well..

As for the part-time job.. this on the

advice from my buddy at SS... do NOT get

close the SGA (which happens to be 1,000 a

month this year) in your gross earnings..

not net.. and watch the hours you take as

well.. 25 a week would probably be the max..

you get closer to 40.. they'll do a medical

review and tell you that since you're

working that close to 40.. you can work 40..

and if you work 40.. you're out of your

disability check again.. The 2 for 1 thing

that you read about in the pamphlets &

on the website.. doesn't really fly the same

way it reads.. People receiving SSI benefits

get the twofer deal.. people receiving SSDI

don't really.. and that came from a "big

boss" in the local SS office (that we dealt

with daily) when my boss called him to check

into giving me more hours.... She needed me

more hours, but didn't want to jeopardize

the disability I was receiving.. she ended

up hiring another gal and we kind of sort of

"shared" the full time position.. She kept

her disability, I kept mine... the office

work got done, and we had a little extra

cash in our pockets.. (but $800 a month

extra earning is really nothing to sneeze

at.. it's sure missed when it's gone!)

HUGS

|)onna

I think

I told ya'll that I was having vocational

testing done. Well, the results are all

in, and it was a very positive report. My

typing speed is 46wpm, with a 100%

accuracy, not too shabby, though I'm sure

if I was practiced, I could reach 50 or

perhaps even 55. Next week I start 'QUIP'

training. Don't ask me what it stands

for...I don't know! All I DO know is that

it is a computer training class. I believe

I'll learn Office/Word/Excel, etc. VESID

(Vocational/Educational Support for

Individuals with Disabilities) will pay

($1800) for the course; I pay nothing. The

major drawback of this is--it's

Monday-Friday from 10am to 4pm! I think my

fatigue level is going to skyrocket. I'm

going to inform them of it (fatigue), and

see if I could possibly have an extended

lunch or break. I'm thinking I could nap

in my car fo 45 min of my hour lunch. The

course runs from May 2 to about the 2nd

week of June. Add to this, little

Munchkin. I think we may need to have

someone come in; play with her, and walk

her. Even if it was once during the day,

that would probably suffice.

I'm thinking I won't be going on the

computer too much during this time, not

sure, but might be a bit quiet during this

time.

Hopefully, this will help me get a p/t job

in some sort of clerical position.

love to all,

Kate

[Guest guest]

Hi DonnaChallis has little episodes but nothing major. This past week she had more numbing in her arms and face with more fatigue. The closest neurologist is 3 hours one way so neither of us see one. We had two days in the 80s and then it dropped back down. Today we are under a wind advisory and it feels like I may end up in OZ. lolhugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: MSersLife Sent: Thu, April 28, 2011 2:54:08 PMSubject: Re: MS fatigue and

meds.....Re: little update

Thanks Sharon,

My long term memory doesn't seem to be too far gone.. it's the

short term that's the killer!.. I'm trying now to remember where

I had read that Adderall was now being used as well.. it might

have been the R.E.M.S. list because it's still being evaluated

or something...

Has Challis had any of the CIS episodes that the researchers (or

someone) are talking about.. looks like, but can't be sure it is

type thing.. where they can get her on one of the CRAB's...

Supposedly, according to current research, it delays onset of

Definite for at least two years, and in some cases even more.

Of course I guess it really doesn't matter too much, so long as

she doesn't stop moving. I did have some loss of some things,

and wasn't able to run laundry baskets down 19 steps, then spend

3-4 hours in a hot laundromat and then run those same baskets

back up those 19 steps, just after the Dx.. but until I lost my

job at Charter, I was still going pretty strong mobility wise...

it was after losing the job, that I started to notice

progression a bit more.. because I was spending more time

sitting than moving..

How is she doing these days anyway?.. and have you gotten any

summerlike weather yet?

HUGS

|)onna

You have an excellent memory Donna! I'm

impressed. I was on Provigil samples but my insurance would

never approve it so I went on Ritalin. It worked for me but my

severe dry mouth made me give it up. The amantadine stopped

working for Challis so she is now on Adderall. She still doesn't

have a diagnosis.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

April 28, 2011 7:11:54 AM

Subject:

Re: little update

Kate,

Not all of us do so well on something that some of us do

well with.. I know that didn't make any sense.. LOL.. If

I'm not mistaken... Challis was given Amantadine for

fatigue (though no Dx) and the Amantadine worked for

her.. I didn't have any luck with it.. Provigil works

for me instead.. and if I'm not completely off the

mark.. Sharon was given Ritalin for her fatigue at one

point, and that worked for her, for awhile... Can't

remember exactly if it stopped working, or if she

stopped taking it because of the dry mouth

side-effects..

I'm not sure if there's anything else out there that is

being used for MS fatigue or not.. Something I haven't

checked out in ages... There could well be though, as

they seem to be making progress in all directions these

days.

HUGS

|)onna

Thanks,

Donna. I appreciate the advice. Yes, I knew that if I

were to make more than $1000 I'd lose benefits. That's

why I'm going to stick with 20 or 25 hrs max.. I do

have some Provigil, I could give that a try although

in the past I never found much help from it.

Thanks again!

love,

Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, April 27, 2011 3:47:40 PM

Subject:

Re: little update

Kate,

Think about asking your neurologist for

something to help with the fatigue during

school hours.. I know when I was working,

the summer months were killers.. and

sometimes the fatigue would start by 10

a.m.. at that point in time I'd take half of

a Provigil.. would get me kick started and

through the day.. if I absolutely needed

another half later in the day, or if the

first half didn't work within a half hour of

my taking it.. I could always use the 2nd

half of the pill.. Worked wonders and kept

me alert as well..

As for the part-time job.. this on the

advice from my buddy at SS... do NOT get

close the SGA (which happens to be 1,000 a

month this year) in your gross earnings..

not net.. and watch the hours you take as

well.. 25 a week would probably be the max..

you get closer to 40.. they'll do a medical

review and tell you that since you're

working that close to 40.. you can work 40..

and if you work 40.. you're out of your

disability check again.. The 2 for 1 thing

that you read about in the pamphlets &

on the website.. doesn't really fly the same

way it reads.. People receiving SSI benefits

get the twofer deal.. people receiving SSDI

don't really.. and that came from a "big

boss" in the local SS office (that we dealt

with daily) when my boss called him to check

into giving me more hours.... She needed me

more hours, but didn't want to jeopardize

the disability I was receiving.. she ended

up hiring another gal and we kind of sort of

"shared" the full time position.. She kept

her disability, I kept mine... the office

work got done, and we had a little extra

cash in our pockets.. (but $800 a month

extra earning is really nothing to sneeze

at.. it's sure missed when it's gone!)

HUGS

|)onna

I think

I told ya'll that I was having vocational

testing done. Well, the results are all

in, and it was a very positive report. My

typing speed is 46wpm, with a 100%

accuracy, not too shabby, though I'm sure

if I was practiced, I could reach 50 or

perhaps even 55. Next week I start 'QUIP'

training. Don't ask me what it stands

for...I don't know! All I DO know is that

it is a computer training class. I believe

I'll learn Office/Word/Excel, etc. VESID

(Vocational/Educational Support for

Individuals with Disabilities) will pay

($1800) for the course; I pay nothing. The

major drawback of this is--it's

Monday-Friday from 10am to 4pm! I think my

fatigue level is going to skyrocket. I'm

going to inform them of it (fatigue), and

see if I could possibly have an extended

lunch or break. I'm thinking I could nap

in my car fo 45 min of my hour lunch. The

course runs from May 2 to about the 2nd

week of June. Add to this, little

Munchkin. I think we may need to have

someone come in; play with her, and walk

her. Even if it was once during the day,

that would probably suffice.

I'm thinking I won't be going on the

computer too much during this time, not

sure, but might be a bit quiet during this

time.

Hopefully, this will help me get a p/t job

in some sort of clerical position.

love to all,

Kate

[Guest guest]

Sharon,

I'm sorry to hear that Challis is having some problems.. and

it's really a shame that you don't have a neurologist closer.

If there were, then she might be able to get started on one of

the CRABs.. But then again, it's a very good possibility, that

she won't have anything major happen (even though the numbing is

annoying as all get out) for many many years to come, if ever..

I still have that friend in CT, that 20 plus years later...

hasn't had ANY symptoms other than the original episode that got

her a "possible" decision..

So.. I'll just keep saying my prayers that Challis won't ever

experience anything more than she has already..

HUGS

|)onna

Hi Donna

Challis has little episodes but nothing major. This past week

she had more numbing in her arms and face with more fatigue.

The closest neurologist is 3 hours one way so neither of us see

one.

We had two days in the 80s and then it dropped back down. Today

we are under a wind advisory and it feels like I may end up in

OZ. lol

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

April 28, 2011 2:54:08 PM

Subject:

Re: MS fatigue and meds.....Re: little update

Thanks Sharon,

My long term memory doesn't seem to be too far gone..

it's the short term that's the killer!.. I'm trying now

to remember where I had read that Adderall was now being

used as well.. it might have been the R.E.M.S. list

because it's still being evaluated or something...

Has Challis had any of the CIS episodes that the

researchers (or someone) are talking about.. looks like,

but can't be sure it is type thing.. where they can get

her on one of the CRAB's... Supposedly, according to

current research, it delays onset of Definite for at

least two years, and in some cases even more.

Of course I guess it really doesn't matter too much, so

long as she doesn't stop moving. I did have some loss of

some things, and wasn't able to run laundry baskets down

19 steps, then spend 3-4 hours in a hot laundromat and

then run those same baskets back up those 19 steps, just

after the Dx.. but until I lost my job at Charter, I was

still going pretty strong mobility wise... it was after

losing the job, that I started to notice progression a

bit more.. because I was spending more time sitting than

moving..

How is she doing these days anyway?.. and have you

gotten any summerlike weather yet?

HUGS

|)onna

You have an

excellent memory Donna! I'm impressed. I was on

Provigil samples but my insurance would never approve it

so I went on Ritalin. It worked for me but my severe

dry mouth made me give it up. The amantadine stopped

working for Challis so she is now on Adderall. She still

doesn't have a diagnosis.

hugs

Sharon

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From:

|)onna

To:

MSersLife

Sent:

Thu, April 28, 2011 7:11:54 AM

Subject:

Re: little update

Kate,

Not all of us do so well on something that some

of us do well with.. I know that didn't make any

sense.. LOL.. If I'm not mistaken... Challis was

given Amantadine for fatigue (though no Dx) and

the Amantadine worked for her.. I didn't have

any luck with it.. Provigil works for me

instead.. and if I'm not completely off the

mark.. Sharon was given Ritalin for her fatigue

at one point, and that worked for her, for

awhile... Can't remember exactly if it stopped

working, or if she stopped taking it because of

the dry mouth side-effects..

I'm not sure if there's anything else out there

that is being used for MS fatigue or not..

Something I haven't checked out in ages... There

could well be though, as they seem to be making

progress in all directions these days.

HUGS

|)onna

Thanks, Donna. I

appreciate the advice. Yes, I knew that if I

were to make more than $1000 I'd lose

benefits. That's why I'm going to stick with

20 or 25 hrs max.. I do have some Provigil, I

could give that a try although in the past I

never found much help from it.

Thanks again!

love,

Kate

To:

MSersLife

Sent:

Wed, April 27, 2011 3:47:40 PM

Subject:

Re: little update

Kate,

Think about asking your neurologist

for something to help with the

fatigue during school hours.. I know

when I was working, the summer

months were killers.. and sometimes

the fatigue would start by 10 a.m..

at that point in time I'd take half

of a Provigil.. would get me kick

started and through the day.. if I

absolutely needed another half later

in the day, or if the first half

didn't work within a half hour of my

taking it.. I could always use the

2nd half of the pill.. Worked

wonders and kept me alert as well..

As for the part-time job.. this on

the advice from my buddy at SS... do

NOT get close the SGA (which happens

to be 1,000 a month this year) in

your gross earnings.. not net.. and

watch the hours you take as well..

25 a week would probably be the

max.. you get closer to 40.. they'll

do a medical review and tell you

that since you're working that close

to 40.. you can work 40.. and if you

work 40.. you're out of your

disability check again.. The 2 for 1

thing that you read about in the

pamphlets & on the website..

doesn't really fly the same way it

reads.. People receiving SSI

benefits get the twofer deal..

people receiving SSDI don't really..

and that came from a "big boss" in

the local SS office (that we dealt

with daily) when my boss called him

to check into giving me more

hours.... She needed me more hours,

but didn't want to jeopardize the

disability I was receiving.. she

ended up hiring another gal and we

kind of sort of "shared" the full

time position.. She kept her

disability, I kept mine... the

office work got done, and we had a

little extra cash in our pockets..

(but $800 a month extra earning is

really nothing to sneeze at.. it's

sure missed when it's gone!)

HUGS

|)onna

On 4/27/2011 3:17 PM, Kate Rothschild

wrote:

I

think I told ya'll that I was

having vocational testing done.

Well, the results are all in, and

it was a very positive report. My

typing speed is 46wpm, with a 100%

accuracy, not too shabby, though

I'm sure if I was practiced, I

could reach 50 or perhaps even 55.

Next week I start 'QUIP' training.

Don't ask me what it stands

for...I don't know! All I DO know

is that it is a computer training

class. I believe I'll learn

Office/Word/Excel, etc. VESID

(Vocational/Educational Support

for Individuals with Disabilities)

will pay ($1800) for the course; I

pay nothing. The major drawback of

this is--it's Monday-Friday from

10am to 4pm! I think my fatigue

level is going to skyrocket. I'm

going to inform them of it

(fatigue), and see if I could

possibly have an extended lunch or

break. I'm thinking I could nap in

my car fo 45 min of my hour lunch.

The course runs from May 2 to

about the 2nd week of June. Add to

this, little Munchkin. I think we

may need to have someone come in;

play with her, and walk her. Even

if it was once during the day,

that would probably suffice.

I'm thinking I won't be going on

the computer too much during this

time, not sure, but might be a bit

quiet during this time.

Hopefully, this will help me get a

p/t job in some sort of clerical

position.

love to all,

Kate