Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I just cannot seem to remember what "TN" stands for--the exact words, I mean.Help!Love,nTo: MSersLife Sent: Tue, May 17, 2011 12:18:12 PMSubject: Re: TN Just spoke to my neuro; he's putting me on 5 mgs of baclofen. That doesn't sound like much, but I'm unfamiliar with it. Then he said after 4 days to increase it up to 10mgs.Hopefully, the pharmacy will have it soon!love,KateTo: MSersLife Sent: Tue, May 17, 2011 1:08:38 PMSubject: Re: TN I am SO sorry honey! Healing vibes sent sweetie...keep us up on how you're doing, ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 I just cannot seem to remember what "TN" stands for--the exact words, I mean.Help!Love,nTo: MSersLife Sent: Tue, May 17, 2011 12:18:12 PMSubject: Re: TN Just spoke to my neuro; he's putting me on 5 mgs of baclofen. That doesn't sound like much, but I'm unfamiliar with it. Then he said after 4 days to increase it up to 10mgs.Hopefully, the pharmacy will have it soon!love,KateTo: MSersLife Sent: Tue, May 17, 2011 1:08:38 PMSubject: Re: TN I am SO sorry honey! Healing vibes sent sweetie...keep us up on how you're doing, ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Sooooo, what is the name of the name of the jaw/nerve pain?n, the truly dense; my MRI proves itTo: MSersLife Sent: Tue, May 17, 2011 2:10:01 PMSubject: Re: TN/ MS brain needs help TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Sooooo, what is the name of the name of the jaw/nerve pain?n, the truly dense; my MRI proves itTo: MSersLife Sent: Tue, May 17, 2011 2:10:01 PMSubject: Re: TN/ MS brain needs help TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Sooooo, what is the name of the name of the jaw/nerve pain?n, the truly dense; my MRI proves itTo: MSersLife Sent: Tue, May 17, 2011 2:10:01 PMSubject: Re: TN/ MS brain needs help TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Trigeminal Neuralgia HUGS |)onna Ah geez you're gonna strain what is left of my brain!        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message-------  From: marion j rojas Date: 5/17/2011 5:14:59 PM To: MSersLife Subject: Re: TN/ MS brain needs help  Sooooo, what is the name of the name of the jaw/nerve pain? n, the truly dense; my MRI proves it From: Akiba To: MSersLife Sent: Tue, May 17, 2011 2:10:01 PM Subject: Re: TN/ MS brain needs help  TranscenDENTAL Needmedication... It is a tooth thing....        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message-------  From: marion j rojas Date: 5/17/2011 5:00:06 PM To: MSersLife Subject: Re: TN/ MS brain needs help   I just cannot seem to remember what "TN" stands for-- the exact words, I mean. Help! Love, n From: Kate Rothschild To: MSersLife Sent: Tue, May 17, 2011 12:18:12 PM Subject: Re: TN  Just spoke to my neuro; he's putting me on 5 mgs of baclofen. That doesn't sound like much, but I'm unfamiliar with it. Then he said after 4 days to increase it up to 10mgs. Hopefully, the pharmacy will have it soon! love, Kate From: Akiba To: MSersLife Sent: Tue, May 17, 2011 1:08:38 PM Subject: Re: TN  I am SO sorry honey! Healing vibes sent sweetie...keep us up on how you're doing, ok?        ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message-------  From: Kate Rothschild Date: 5/17/2011 12:22:51 PM To: MSersLife Subject: TN   I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution! love to all, Kate    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 Oh I would rather not go down this path! To: MSersLife Sent: Tue, May 17, 2011 7:06:49 PMSubject: Re: TN/ MS brain needs help Trigeminal Neuralgia HUGS |)onna Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message------- From: marion j rojas Date: 5/17/2011 5:14:59 PM To: MSersLife Subject: Re: TN/ MS brain needs help Sooooo, what is the name of the name of the jaw/nerve pain? n, the truly dense; my MRI proves it From: Akiba To: MSersLife Sent: Tue, May 17, 2011 2:10:01 PM Subject: Re: TN/ MS brain needs help TranscenDENTAL Needmedication... It is a tooth thing....   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message------- From: marion j rojas Date: 5/17/2011 5:00:06 PM To: MSersLife Subject: Re: TN/ MS brain needs help I just cannot seem to remember what "TN" stands for-- the exact words, I mean. Help! Love, n From: Kate Rothschild To: MSersLife Sent: Tue, May 17, 2011 12:18:12 PM Subject: Re: TN Just spoke to my neuro; he's putting me on 5 mgs of baclofen. That doesn't sound like much, but I'm unfamiliar with it. Then he said after 4 days to increase it up to 10mgs. Hopefully, the pharmacy will have it soon! love, Kate From: Akiba To: MSersLife Sent: Tue, May 17, 2011 1:08:38 PM Subject: Re: TN I am SO sorry honey! Healing vibes sent sweetie...keep us up on how you're doing, ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -------Original Message------- From: Kate Rothschild Date: 5/17/2011 12:22:51 PM To: MSersLife Subject: TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution! love to all, Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Trigeminal Neuralgia dear n.love,KateTo: MSersLife Sent: Tue, May 17, 2011 4:59:55 PMSubject: Re: TN/ MS brain needs help I just cannot seem to remember what "TN" stands for--the exact words, I mean.Help!Love,nTo: MSersLife Sent: Tue, May 17, 2011 12:18:12 PMSubject: Re: TN Just spoke to my neuro; he's putting me on 5 mgs of baclofen. That doesn't sound like much, but I'm unfamiliar with it. Then he said after 4 days to increase it up to 10mgs.Hopefully, the pharmacy will have it soon!love,KateTo: MSersLife Sent: Tue, May 17, 2011 1:08:38 PMSubject: Re: TN I am SO sorry honey! Healing vibes sent sweetie...keep us up on how you're doing, ok?   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Thanks for the information about TN. I have been having some of that same type of pain on my right side of my face. Margaret A. CoteTo: MSersLife Sent: Wednesday, May 18, 2011 7:18 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 Mine is also on the right side of my face, Margaret. It can be quite painful. I hope yours subsides soon. gentle hugs, Kate To: "MSersLife " <MSersLife >Sent: Wed, May 18, 2011 11:13:07 AMSubject: Re: TN/ MS brain needs help Thanks for the information about TN. I have been having some of that same type of pain on my right side of my face. Margaret A. Cote To: MSersLife Sent: Wednesday, May 18, 2011 7:18 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crew To: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2011 Report Share Posted May 18, 2011 How is your TN today, dear Kate??? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 18, 2011 5:18:40 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 It's still bad today, Sharon. I think you wrote this on Wednesday, but it's Thursday today, and I'm still 'under attack'! I took an oxycodone last night, and it took the edge off, but already this a.m. I am getting zings. Thank you for asking, Sharon. I don't want to get hooked on the pain med, but I don't know what else to do, before the baclofen starts to work. What would YOU do? I know you'd take prednisone, but what if you didn't have that at your disposal...?love,KateFrom: Sharon To: MSersLife Sent: Wed, May 18, 2011 8:37:48 PMSubject: Re: TN/ MS brain needs help How is your TN today, dear Kate??? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 18, 2011 5:18:40 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Kate I am so sorry to hear you are still in so much pain. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > TN > > I am in a TN flare! It is so awful that I called my neuro to see if there > is a > med he could add to my neurontin and lamictal. The pain is so bad that my > face > is spasm-um-ing (don't know how to spell that word, if is even a word!) I > am > getting zings and zaps in my forehead, eye, cheek and jaw. It's > incredibly bad. > Haven't felt this bad in years. I think the weather might have something > to do > with it. We've had rain here since late Sunday. It's 57 out, but feels so > raw > and heavy. I think the barometric pressure is going wonky. > > Send some good thoughts my neuro calls me back soon with a solution! > love to all, > Kate ____________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.inbox.com/earth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Thank you, nne. As usual, I appreciate the prayers very much.love to you and ChuckKateTo: mserslife Sent: Thu, May 19, 2011 8:30:01 AMSubject: Re: TN/ MS brain needs help Kate I am so sorry to hear you are still in so much pain. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world" "May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever" Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > TN > > I am in a TN flare! It is so awful that I called my neuro to see if there > is a > med he could add to my neurontin and lamictal. The pain is so bad that my > face > is spasm-um-ing (don't know how to spell that word, if is even a word!) I > am > getting zings and zaps in my forehead, eye, cheek and jaw. It's > incredibly bad. > Haven't felt this bad in years. I think the weather might have something > to do > with it. We've had rain here since late Sunday. It's 57 out, but feels so > raw > and heavy. I think the barometric pressure is going wonky. > > Send some good thoughts my neuro calls me back soon with a solution! > love to all, > Kate __________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.inbox.com/earth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011  my pain is on the left side of the face left eye and ear. roof of the mouth on left. now i have a crown on the lower right wisdom, that will zap me. thinking on a root canal before the pain started less frequent. one tooth extracted. i've been to the dentist. which start started all this zapping pain. TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 funny you should say that kate~ for some reason I have a pkg of prednisone, a bottle of celebrex, a small bottle of valium, and just got rid of a bottle of pain meds the gave me for my elbow that I cannot remember the name of that I think starts with a z...bill engval uses that in a skit with his bahama mama's and his pain meds for surgery he had just before going on vacation. anyways, I didn't use it cause it dried me out. vicodin I think it was! funny the road we have to travel to retrieve something! am lucky haven't had to use the wrong word like some of you have mentioned...just have blank spots that I have to track down...sometimes hours later! so anyways, I'm loaded with stuff but don't take it because of my own fears. However, did try the valium to see if it would relax the spasms at my collar/throat, which was nope, the dope didn't do it. oh well. suppose if I had a pad time of it again I would go for one of the other's though~ there is only so much one can stand! Sure hope it stops soon kate!DeeTo: MSersLife Sent: Thu, May 19, 2011 7:23:43 AMSubject: Re: TN/ MS brain needs help It's still bad today, Sharon. I think you wrote this on Wednesday, but it's Thursday today, and I'm still 'under attack'! I took an oxycodone last night, and it took the edge off, but already this a.m. I am getting zings. Thank you for asking, Sharon. I don't want to get hooked on the pain med, but I don't know what else to do, before the baclofen starts to work. What would YOU do? I know you'd take prednisone, but what if you didn't have that at your disposal...?love,KateFrom: Sharon To: MSersLife Sent: Wed, May 18, 2011 8:37:48 PMSubject: Re: TN/ MS brain needs help How is your TN today, dear Kate??? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 18, 2011 5:18:40 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Thanks, Dee. I'm a bit tempted to call my neuro to ask what I'm supposed to do before the baclofen starts working. I have way too many episodes of pain.I hope your collar spasms stop soon!gentle hugs,KateTo: MSersLife Sent: Thu, May 19, 2011 10:53:51 AMSubject: Re: TN/ MS brain needs help funny you should say that kate~ for some reason I have a pkg of prednisone, a bottle of celebrex, a small bottle of valium, and just got rid of a bottle of pain meds the gave me for my elbow that I cannot remember the name of that I think starts with a z...bill engval uses that in a skit with his bahama mama's and his pain meds for surgery he had just before going on vacation. anyways, I didn't use it cause it dried me out. vicodin I think it was! funny the road we have to travel to retrieve something! am lucky haven't had to use the wrong word like some of you have mentioned...just have blank spots that I have to track down...sometimes hours later! so anyways, I'm loaded with stuff but don't take it because of my own fears. However, did try the valium to see if it would relax the spasms at my collar/throat, which was nope, the dope didn't do it. oh well. suppose if I had a pad time of it again I would go for one of the other's though~ there is only so much one can stand! Sure hope it stops soon kate!DeeTo: MSersLife Sent: Thu, May 19, 2011 7:23:43 AMSubject: Re: TN/ MS brain needs help It's still bad today, Sharon. I think you wrote this on Wednesday, but it's Thursday today, and I'm still 'under attack'! I took an oxycodone last night, and it took the edge off, but already this a.m. I am getting zings. Thank you for asking, Sharon. I don't want to get hooked on the pain med, but I don't know what else to do, before the baclofen starts to work. What would YOU do? I know you'd take prednisone, but what if you didn't have that at your disposal...?love,KateFrom: Sharon To: MSersLife Sent: Wed, May 18, 2011 8:37:48 PMSubject: Re: TN/ MS brain needs help How is your TN today, dear Kate??? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 18, 2011 5:18:40 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 If I didn't have any predisone at my disposal I would try to get some. lol I do have some emergency pain pills (vicodan) that I could take. But I would really try to get the prednisone. Prednisone works for me--it knocks the TN pain/zings/zaps back to something I can stand and then it eases off...... sending you love and understanding! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, May 19, 2011 5:23:43 AMSubject: Re: TN/ MS brain needs help It's still bad today, Sharon. I think you wrote this on Wednesday, but it's Thursday today, and I'm still 'under attack'! I took an oxycodone last night, and it took the edge off, but already this a.m. I am getting zings. Thank you for asking, Sharon. I don't want to get hooked on the pain med, but I don't know what else to do, before the baclofen starts to work. What would YOU do? I know you'd take prednisone, but what if you didn't have that at your disposal...?love,KateFrom: Sharon To: MSersLife Sent: Wed, May 18, 2011 8:37:48 PMSubject: Re: TN/ MS brain needs help How is your TN today, dear Kate??? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, May 18, 2011 5:18:40 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crewTo: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Going to the dentist always starts up my TN pain. I'm sorry to hear you are hurting, Margaret! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, May 19, 2011 6:41:30 AMSubject: Re: TN/ MS brain needs help  my pain is on the left side of the face left eye and ear. roof of the mouth on left. now i have a crown on the lower right wisdom, that will zap me. thinking on a root canal before the pain started less frequent. one tooth extracted. i've been to the dentist. which start started all this zapping pain. TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Thanks for the encouragement. It is better today. Margaret A. CoteTo: MSersLife Sent: Wednesday, May 18, 2011 10:39 AMSubject: Re: TN/ MS brain needs help Mine is also on the right side of my face, Margaret. It can be quite painful. I hope yours subsides soon. gentle hugs, Kate To: "MSersLife " <MSersLife >Sent: Wed, May 18, 2011 11:13:07 AMSubject: Re: TN/ MS brain needs help Thanks for the information about TN. I have been having some of that same type of pain on my right side of my face. Margaret A. Cote To: MSersLife Sent: Wednesday, May 18, 2011 7:18 AMSubject: Re: TN/ MS brain needs help There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crew To: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help Ah geez you're gonna strain what is left of my brain!   ~*~Hugs~*~ ~*~Akiba~*~ Pragmatic Visionary http://www.affiliates-natural-salt-lamps.com/pages/156.php -- TN I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.