Re: TN/ MS brain needs help

[Guest guest]

Thanks for the encouragement. It is better today. Margaret A. CoteTo: MSersLife Sent: Wednesday, May 18, 2011 10:39 AMSubject: Re: TN/ MS brain needs help

Mine is also on the right side of my face, Margaret. It can be quite painful. I hope yours subsides soon.

gentle hugs,

Kate

To: "MSersLife " <MSersLife >Sent: Wed, May 18, 2011 11:13:07 AMSubject: Re: TN/ MS brain needs help

Thanks for the information about TN. I have been having some of that same type of pain on my right side of my face.

Margaret A. Cote

To: MSersLife Sent: Wednesday, May 18, 2011 7:18 AMSubject: Re: TN/ MS brain needs help

There are 3 branches to the Trigeminal Nerve, which is the 5th cranial nerve. (Hence the name Tri-geminal). There are as follows: ocular (the eye), maxillary (the sinus/cheek area) and the mandibular (jaw and teeth). When I get strikes in all 3 areas I'm about ready to jump off a bridge! It's really bad.Love to you Akiba, n and the rest of the crew

To: MSersLife Sent: Tue, May 17, 2011 5:25:23 PMSubject: Re: TN/ MS brain needs help

Ah geez you're gonna strain what is left of my brain!

  ~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-- TN

I am in a TN flare! It is so awful that I called my neuro to see if there is a med he could add to my neurontin and lamictal. The pain is so bad that my face is spasm-um-ing (don't know how to spell that word, if is even a word!) I am getting zings and zaps in my forehead, eye, cheek and jaw. It's incredibly bad. Haven't felt this bad in years. I think the weather might have something to do with it. We've had rain here since late Sunday. It's 57 out, but feels so raw and heavy. I think the barometric pressure is going wonky. Send some good thoughts my neuro calls me back soon with a solution!love to all,Kate

[Guest guest]

Margaret,

Sorry this is late, I'm playing Ketchup again..

I am sooooo very sorry that you are having facial pain.. I

wanted to pretty much crawl in a hole for the first few days

after they extracted that tooth that was infected.. that was

painful enough.. I can't imagine having to deal with TN for any

length of time..

I'll be praying that all you guys suffering with this right now,

will clear up quickly

HUGS

|)onna

Thanks for the information about TN. I have been

having some of that same type of pain on my right side of my

face.

 

Margaret A. Cote

From:

Kate Rothschild

To:

MSersLife

Sent:

Wednesday, May 18, 2011 7:18 AM

Subject:

Re: TN/ MS brain needs help

There are 3 branches to the Trigeminal

Nerve, which is the 5th cranial nerve. (Hence the name

Tri-geminal). There are as follows: ocular (the eye),

maxillary (the sinus/cheek area) and the mandibular (jaw

and teeth). When I get strikes in all 3 areas I'm about

ready to jump off a bridge! It's really bad.

Love to you Akiba, n and the rest of the crew

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011 5:25:23 PM

Subject:

Re: TN/ MS brain needs help

 

Ah geez you're gonna strain what

is left of my brain! 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic

Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From: marion

j rojas

Date:

5/17/2011 5:14:59 PM

To: MSersLife

Subject:

Re: TN/ MS brain needs

help

 

Sooooo, what is the name of the

name of the jaw/nerve pain?

n, the truly dense; my MRI

proves it

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011 2:10:01 PM

Subject:

Re: TN/ MS brain needs

help

 

TranscenDENTAL

Needmedication...

It is a tooth

thing.... 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From:

marion

j rojas

Date:

5/17/2011

5:00:06 PM

To:

MSersLife

Subject:

Re:

TN/ MS brain

needs help

 

 

I just

cannot seem to

remember what

"TN" stands

for--

the exact

words, I mean.

Help!

Love,

n

From:

Kate

Rothschild

To:

MSersLife

Sent:

Tue, May 17,

2011 12:18:12

PM

Subject:

Re: TN

 

Just

spoke to my

neuro; he's

putting me on

5 mgs of

baclofen. That

doesn't sound

like much, but

I'm unfamiliar

with it. Then

he said after

4 days to

increase it up

to 10mgs.

Hopefully, the

pharmacy will

have it soon!

love,

Kate

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17,

2011 1:08:38

PM

Subject:

Re: TN

 

I am SO

sorry honey!

Healing vibes

sent

sweetie...keep

us up on how

you're doing,

ok? 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From:

Kate

Rothschild

Date:

5/17/2011

12:22:51 PM

To:

MSersLife

Subject:

TN

 

 

I am in

a TN flare! It

is so awful

that I called

my neuro to

see if there

is a med he

could add to

my neurontin

and lamictal.

The pain is so

bad that my

face is

spasm-um-ing

(don't know

how to spell

that word, if

is even a

word!) I am

getting zings

and zaps in my

forehead, eye,

cheek and jaw.

It's

incredibly

bad. Haven't

felt this bad

in years. I

think the

weather might

have something

to do with it.

We've had rain

here since

late Sunday.

It's 57 out,

but feels so

raw and heavy.

I think the

barometric

pressure is

going wonky.

Send some good

thoughts my

neuro calls me

back soon with

a solution!

love to all,

Kate

 

 

 

[Guest guest]

Dee,

Sorry this reply is late.. I am catching up though.. slowly but

surely.. provided my phone doesn't ring again..

I understand your fears about the strong pain medications.. I

did have those, or pretty close, same fears after.. well in high

school taking General Psychology and then reinforced when taking

Psych 101 in my first semester of college... Being as my father

is an alcoholic (non-admitted, therefore classed "dry drunk" by

the psych pros -- but dry for 30 years now)..

Anyway, those classes told me that with him having an

"addictive" personality, and then my older brother doing drugs

(some pretty nasty ones) in the late 60s early 70s, and then

being at Camp LeJeune when they were doing that drug testing

that caused the scandal.. well his drug usage really exacerbated

his paranoid schizophrenia.. SO.. I was leery about taking too

many pain medications myself.... and tried to "tough it out"..

and do without them as much as possible...

Until.. don't remember exactly "who" it was that explained to

me.. (it was a medical professional.. might have been my

orthopedic surgeon that started the dawning of my knowledge)...

When it comes to narcotic/addictive type drugs.. IF you get a

"buzz" from the medication.. then the dose is too high.. The

body will USE what it needs to stop the pain, anything more than

what the body needs is what produces that "buzz".. So if you

develop that buzz with the first dose you take, then you will

KNOW it's too much.. and you need to reduce the dosage, by

cutting the pill in half to start with.. if the half pill is not

enough to completely do the job.. try cutting the other half in

half again (1/4 pill).. need to wait 20 to 30 minutes to give

the first half a chance to work.. if it doesn't.. maybe add 1

tylenol or 1 advil (Tylenol seems to work on my headaches, but

not spasms and things.. Advil works better, for me, for those)..

Adding one of the OTC drugs might just be enough with the half

dose narcotic

If you don't get the "buzz" there's not really a chance of

becoming addicted.. that's not to say that you won't need to

take the stuff for a longer period of time.. until the TN or

whatever is causing the pain goes away..

And you should never ever wait until the pain becomes more than

moderate to take the next dose  -- for instance... if the script

calls for 1 pill every 4 hours.. but at 3.5 hours the pain has

gotten to moderate.. do not wait until the 4 hours is up to take

the next dose (even if your cutting them in half.. in which

case, if you've cut the pill in half and at 2 hours the pain

starts to return... don't wait for 2 hours to take the next

half... the script was for 1 whole pill every 4 hours.. so half

a pill every 2 hours is fine..

What all this blabber amounts to is.. If you wait too long into

the pain, the medication will not be as effective as it would

have if you'd have taken the medication at the onset of the

pain, or shortly thereafter.. And I've never had a doctor tell

me that there is anything wrong with the way I do things.. When

I had that molar extracted back at the end of April or beginning

of May.. dentist prescribed Vicodin.. 1 every 2 to 4 hours "as

needed".. I STILL have two of those left.. maybe more if you

count halvsies.. LOL.. and I DID have to cut those in half --

Had to have the plates & screws removed when they

malfunctioned following the bone graft.. Orthopedic prescribed

Percocette for the pain then... I told him that it wasn't

Percocette pain, it was Tylenol or Advil pain.. but I did have

the script filled on the way home.. X was working afternoon

shift, and there wasn't anybody to get it filled for me IF the

pain got worse in the evening.. surgery was in 1990.. tossed the

full script out in 1992 when we moved back to PA... I never

opened the bottle.. but I had the security of knowing that it

was there if I needed it..

Another novel, of course.. but you might want to try my method

of taking pain medications.. cut those babies in half if you

catch a buzz on a full pill.. The only thing you can't play with

are capsules.. fortunately, most strong pain medications don't

come in capsules.. at least none that I remember every having..

(could be off on the Percocette from way back when) -- I do know

that Percocette or Percodan was prescribed when I originally

broke that ankle.. and my cousin told me that if I wasn't

sleeping, I was babbling.. so maybe it was a capsule, or about

that time I realized that cutting the pill in half was the best

solution for me..

These are just suggestions, from things that I've learned, over

the years, that work for me.. Heck a month's script for Xanax

lasts close a year for me.. <grin>

HUGS

|)onna

funny you should say that kate~ for some reason I have a

pkg of prednisone, a bottle of celebrex, a small bottle of

valium, and just got rid of a bottle of pain meds the gave me

for my elbow that I cannot remember the name of that I think

starts with a z...bill engval uses that in a skit with his

bahama mama's and his pain meds for surgery he had just before

going on vacation. anyways, I didn't use it cause it dried me

out. vicodin I think it was! funny the road we have to travel

to retrieve something! am lucky haven't had to use the wrong

word like some of you have mentioned...just have blank spots

that I have to track down...sometimes hours later! so anyways,

I'm loaded with stuff but don't take it because of my own

fears. However, did try the valium to see if it would relax

the spasms at my collar/throat, which was nope, the dope

didn't do it. oh well. suppose if I had a pad time of it again

I would go for one of the other's though~ there is only so

much one can stand! Sure hope it stops soon kate!

Dee

From:

Kate Rothschild

To:

MSersLife

Sent: Thu,

May 19, 2011 7:23:43 AM

Subject:

Re: TN/ MS brain needs help

It's

still bad today, Sharon. I think you wrote this on

Wednesday, but it's Thursday today, and I'm still 'under

attack'! I took an oxycodone last night, and it took the

edge off, but already this a.m. I am getting zings.

Thank you for asking, Sharon. I don't want to get hooked

on the pain med, but I don't know what else to do,

before the baclofen starts to work. What would YOU do? I

know you'd take prednisone, but what if  you didn't have

that at your disposal...?

love,

Kate

From:

Sharon

To:

MSersLife

Sent:

Wed, May 18, 2011 8:37:48 PM

Subject:

Re: TN/ MS brain needs help

How is your TN

today, dear Kate???

 

Sharon

This

email is a natural hand made product. The

slight variations in spelling and grammar

enhance its individual character and beauty

and in no way are to be considered flaws or

defects.

 

 

From: Kate Rothschild

To:

MSersLife

Sent:

Wed, May 18, 2011 5:18:40 AM

Subject:

Re: TN/ MS brain needs help

There are

3 branches to the Trigeminal Nerve, which is

the 5th cranial nerve. (Hence the name

Tri-geminal). There are as follows: ocular

(the eye), maxillary (the sinus/cheek area)

and the mandibular (jaw and teeth). When I get

strikes in all 3 areas I'm about ready to jump

off a bridge! It's really bad.

Love to you Akiba, n and the rest of the

crew

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011 5:25:23 PM

Subject:

Re: TN/ MS brain needs help

 

Ah geez you're gonna

strain what is left of

my brain! 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic

Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From:

marion

j rojas

Date:

5/17/2011 5:14:59 PM

To:

MSersLife

Subject:

Re: TN/ MS

brain needs help

 

Sooooo, what is the

name of the name of

the jaw/nerve pain?

n, the truly

dense; my MRI proves

it

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011

2:10:01 PM

Subject:

Re: TN/ MS

brain needs help

 

TranscenDENTAL

Needmedication...

It is a tooth

thing.... 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From:

marion

j rojas

Date:

5/17/2011

5:00:06 PM

To:

MSersLife

Subject:

Re:

TN/ MS brain

needs help

 

 

I just

cannot seem to

remember what

"TN" stands

for--

the exact

words, I mean.

Help!

Love,

n

From:

Kate

Rothschild

To:

MSersLife

Sent:

Tue, May 17,

2011 12:18:12

PM

Subject:

Re: TN

 

Just

spoke to my

neuro; he's

putting me on

5 mgs of

baclofen. That

doesn't sound

like much, but

I'm unfamiliar

with it. Then

he said after

4 days to

increase it up

to 10mgs.

Hopefully, the

pharmacy will

have it soon!

love,

Kate

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17,

2011 1:08:38

PM

Subject:

Re: TN

 

I am SO

sorry honey!

Healing vibes

sent

sweetie...keep

us up on how

you're doing,

ok? 

 

 

 

 





 ~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

 

From:

Kate

Rothschild

Date:

5/17/2011

12:22:51 PM

To:

MSersLife

Subject:

TN

 

 

I am in

a TN flare! It

is so awful

that I called

my neuro to

see if there

is a med he

could add to

my neurontin

and lamictal.

The pain is so

bad that my

face is

spasm-um-ing

(don't know

how to spell

that word, if

is even a

word!) I am

getting zings

and zaps in my

forehead, eye,

cheek and jaw.

It's

incredibly

bad. Haven't

felt this bad

in years. I

think the

weather might

have something

to do with it.

We've had rain

here since

late Sunday.

It's 57 out,

but feels so

raw and heavy.

I think the

barometric

pressure is

going wonky.

Send some good

thoughts my

neuro calls me

back soon with

a solution!

love to all,

Kate

 

 

 

[Guest guest]

Hi Donna, Thanks for the prays. Margaret A. CoteTo: MSersLife Sent: Wed, May 25, 2011 12:55:38 PMSubject: Re: TN/ MS brain needs help

Margaret,

Sorry this is late, I'm playing Ketchup again..

I am sooooo very sorry that you are having facial pain.. I

wanted to pretty much crawl in a hole for the first few days

after they extracted that tooth that was infected.. that was

painful enough.. I can't imagine having to deal with TN for any

length of time..

I'll be praying that all you guys suffering with this right now,

will clear up quickly

HUGS

|)onna

Thanks for the information about TN. I have been

having some of that same type of pain on my right side of my

face.

Margaret A. Cote

From:

Kate Rothschild

To:

MSersLife

Sent:

Wednesday, May 18, 2011 7:18 AM

Subject:

Re: TN/ MS brain needs help

There are 3 branches to the Trigeminal

Nerve, which is the 5th cranial nerve. (Hence the name

Tri-geminal). There are as follows: ocular (the eye),

maxillary (the sinus/cheek area) and the mandibular (jaw

and teeth). When I get strikes in all 3 areas I'm about

ready to jump off a bridge! It's really bad.

Love to you Akiba, n and the rest of the crew

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011 5:25:23 PM

Subject:

Re: TN/ MS brain needs help

Ah geez you're gonna strain what

is left of my brain!





~*~Hugs~*~

~*~Akiba~*~

Pragmatic

Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

From: marion

j rojas

Date:

5/17/2011 5:14:59 PM

To: MSersLife

Subject:

Re: TN/ MS brain needs

help

Sooooo, what is the name of the

name of the jaw/nerve pain?

n, the truly dense; my MRI

proves it

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17, 2011 2:10:01 PM

Subject:

Re: TN/ MS brain needs

help

TranscenDENTAL

Needmedication...

It is a tooth

thing....





~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

From:

marion

j rojas

Date:

5/17/2011

5:00:06 PM

To:

MSersLife

Subject:

Re:

TN/ MS brain

needs help

I just

cannot seem to

remember what

"TN" stands

for--

the exact

words, I mean.

Help!

Love,

n

From:

Kate

Rothschild

To:

MSersLife

Sent:

Tue, May 17,

2011 12:18:12

PM

Subject:

Re: TN

Just

spoke to my

neuro; he's

putting me on

5 mgs of

baclofen. That

doesn't sound

like much, but

I'm unfamiliar

with it. Then

he said after

4 days to

increase it up

to 10mgs.

Hopefully, the

pharmacy will

have it soon!

love,

Kate

From:

Akiba

To:

MSersLife

Sent:

Tue, May 17,

2011 1:08:38

PM

Subject:

Re: TN

I am SO

sorry honey!

Healing vibes

sent

sweetie...keep

us up on how

you're doing,

ok?





~*~Hugs~*~

~*~Akiba~*~

Pragmatic Visionary

http://www.affiliates-natural-salt-lamps.com/pages/156.php

-------Original

Message-------

From:

Kate

Rothschild

Date:

5/17/2011

12:22:51 PM

To:

MSersLife

Subject:

TN

I am in

a TN flare! It

is so awful

that I called

my neuro to

see if there

is a med he

could add to

my neurontin

and lamictal.

The pain is so

bad that my

face is

spasm-um-ing

(don't know

how to spell

that word, if

is even a

word!) I am

getting zings

and zaps in my

forehead, eye,

cheek and jaw.

It's

incredibly

bad. Haven't

felt this bad

in years. I

think the

weather might

have something

to do with it.

We've had rain

here since

late Sunday.

It's 57 out,

but feels so

raw and heavy.

I think the

barometric

pressure is

going wonky.

Send some good

thoughts my

neuro calls me

back soon with

a solution!

love to all,

Kate