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Re: Re: Crohn's Disease

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Dana:

Well, I don't have to worry about the husband thing anymore, as I am

now single.

In '01, I presented to the ER with what I thought was an ulcer. I have

a high pressure job so I really wasn't surprised. It felt as if someone

had a fist around my stomach and chest. When they got my LFT's back

they said that it was my gallbladder and not an ulcer so they did

surgery. There was nothing else done except sending me to a Gastro to

find out why my LFT's were so high and why there were strictures in the

bile ducts. There was no rebuilding. I guess each case is different.

I have not had any problems with my liver except for one stent about

three years ago.

The week before Christmas I was in the Hospital for the entire week

with what I thought was a Crohn's flare up but after a colonoscopy they

said that was not the problem. My potassium level wouldn't stay up and

the most they could tell me is that I have a couple of disease processes

going on and these things are going to happen. I don't know if that

means the liver is now acting up or not. I have a doctor's appt next

week and plan to ask. I do know that bouncing back from this latest

illness has been very difficult. I still look sick and I have been out

of the Hospital about three weeks now. I am feeling much more like

myself but I still tire out easily. If anybody out there has any

knowledge of potassium level problems and this sort of flare up, please

let me know.

Don't be a basket case because of this disease. All that does is take

away time from your husband and sons. Enjoy every second. I spent the

first couple of years getting my affairs in order because I thought that

death was right around the corner. I got tired of that and decided to

live and I really do enjoy life......probably more now than I did when I

thought I was perfectly healthy. Don't get me wrong, everybody should

have their affairs in order, just in case. You just don't want to make

it your entire focus. In my case............I work full time, I go to

school part-time and I am a foster mom to a beautiful 17 year old girl.

I do get depressed when I get sick but I make myself move past it. It

takes a lot of effort at times but I refuse to let my life be over

because of PSC (which I refer to as " this stupid disease " ). :)

Good Luck

>>> " Dana Rados " 1/15/2007 5:03 PM >>>

Hi . I am Dana. New to the group. I had to smile at your entry,

cause I have had crohns since 7. The scenerio with your husband and his

pants has happened here. My poor husband has learned to do everything,

including feed me when i cant stomach cooking. I have two teen boys. I

have never taken entercort. I was diagnosed with PSC three years ago

and have been a basket case since. My question to you. is, I was

diagnosed during an ercp, due to a gall stone. I was told that the

gallbladder could not come out bec. they would have to rebuild the bile

ducts. I continually have swelling and pain in the gallbladder, unless

it is the PSC. How did you have yours out? did they rebuild your

ducts? Any help would be great. I am so new to this and am confrused

by gallblatter vs. bile duct pain. symptoms....

thanks Dana

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