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Breaking the news

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Hi,

Puneet was asking how to break the news to

his family. I can’t really help with that I am afraid. My parents live

abroad and I broke the news in a few phone calls, explaining more and more by

answering the questions they had as well as I could.

My question is about work. Should I break

the news at work? Might it be bad for my career to tell exactly what is wrong

with me? So far I don’t think anyone there grabs what potential PSC has,

and how it may affect my future performance. The reason I ask is that my wife

and I have been working on a translation of the Partners Seeking Sure brochure

in Hebrew and I would like to show it to some people at work. Good idea or not?

Chaim Boermeester, Israel

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I was worried about telling people at work so I held off until my symtoms got noticeable. At that point I told my manager and a few good friends. I didn't go into details with them I only told them the basics. Iwas always careful of what I said and to who because I didn't want anyone in human resources to find out or for my insurance company to know. I guess I was afraid of losing my job and my insurance coverage. As it turns out my manager was very understanding. He did everything he could to keep me from getting overwhelmed and stressed out at work. He allowed me to take the time off that I needed without giving me a hassle about it. We started having our daily working briefings outside while we were walking around the block, I think he was trying to help me stay strong. After I got put on the transplant list more people found out about what was going on with me. It was at this point that I

found out how caring everyone was. I had several people volunteer to drive me to the hospital when the call came. My manager and several of my friends were always intrested to hear how my lastest blood test results were. I ended up working until the week before my transplant. I was on my way into work when I got a call from UCLA (the hospital I was going to have my transplant at) informing me that my INR was a 6.0. They wanted me to stop work and move closer to the hospital. I was crying in the elevator up to my office. When I got near my desk everyone knew something was wrong and they all chipped in to get all the loose ends tied up so I could go. I even had several people volunteer to drive me home. My manager actual came to the hospital 4 days after sugery to see me. Everyone at work had signed a card and taken up a collection for me. I was surprized to find out that several people hadn't known what was wrong with me until they got the

e-mail message saing that I was out of surgery and doing good. After 5 months recovery I went back to work. My manager had left in the meantime and I had a new manager and was working on a new project (I'm a software engineer) but everyone was very happy to see me. I even got flowers to welcome me back. Pat (CA) UC-1991, PSC-2000, Tx-2005 Chaim Boermeester wrote: Hi, Puneet was asking how to break the news to his family. I can’t really help with that I am afraid. My parents live abroad and I broke the news in a few phone calls, explaining more and more by answering the questions they had as well as I could. My question is about work. Should I break the news at work? Might it be bad for my

career to tell exactly what is wrong with me? So far I don’t think anyone there grabs what potential PSC has, and how it may affect my future performance. The reason I ask is that my wife and I have been working on a translation of the Partners Seeking Sure brochure in Hebrew and I would like to show it to some people at work. Good idea or not? Chaim Boermeester, Israel

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I was worried about telling people at work so I held off until my symtoms got noticeable. At that point I told my manager and a few good friends. I didn't go into details with them I only told them the basics. Iwas always careful of what I said and to who because I didn't want anyone in human resources to find out or for my insurance company to know. I guess I was afraid of losing my job and my insurance coverage. As it turns out my manager was very understanding. He did everything he could to keep me from getting overwhelmed and stressed out at work. He allowed me to take the time off that I needed without giving me a hassle about it. We started having our daily working briefings outside while we were walking around the block, I think he was trying to help me stay strong. After I got put on the transplant list more people found out about what was going on with me. It was at this point that I

found out how caring everyone was. I had several people volunteer to drive me to the hospital when the call came. My manager and several of my friends were always intrested to hear how my lastest blood test results were. I ended up working until the week before my transplant. I was on my way into work when I got a call from UCLA (the hospital I was going to have my transplant at) informing me that my INR was a 6.0. They wanted me to stop work and move closer to the hospital. I was crying in the elevator up to my office. When I got near my desk everyone knew something was wrong and they all chipped in to get all the loose ends tied up so I could go. I even had several people volunteer to drive me home. My manager actual came to the hospital 4 days after sugery to see me. Everyone at work had signed a card and taken up a collection for me. I was surprized to find out that several people hadn't known what was wrong with me until they got the

e-mail message saing that I was out of surgery and doing good. After 5 months recovery I went back to work. My manager had left in the meantime and I had a new manager and was working on a new project (I'm a software engineer) but everyone was very happy to see me. I even got flowers to welcome me back. Pat (CA) UC-1991, PSC-2000, Tx-2005 Chaim Boermeester wrote: Hi, Puneet was asking how to break the news to his family. I can’t really help with that I am afraid. My parents live abroad and I broke the news in a few phone calls, explaining more and more by answering the questions they had as well as I could. My question is about work. Should I break the news at work? Might it be bad for my

career to tell exactly what is wrong with me? So far I don’t think anyone there grabs what potential PSC has, and how it may affect my future performance. The reason I ask is that my wife and I have been working on a translation of the Partners Seeking Sure brochure in Hebrew and I would like to show it to some people at work. Good idea or not? Chaim Boermeester, Israel

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I was worried about telling people at work so I held off until my symtoms got noticeable. At that point I told my manager and a few good friends. I didn't go into details with them I only told them the basics. Iwas always careful of what I said and to who because I didn't want anyone in human resources to find out or for my insurance company to know. I guess I was afraid of losing my job and my insurance coverage. As it turns out my manager was very understanding. He did everything he could to keep me from getting overwhelmed and stressed out at work. He allowed me to take the time off that I needed without giving me a hassle about it. We started having our daily working briefings outside while we were walking around the block, I think he was trying to help me stay strong. After I got put on the transplant list more people found out about what was going on with me. It was at this point that I

found out how caring everyone was. I had several people volunteer to drive me to the hospital when the call came. My manager and several of my friends were always intrested to hear how my lastest blood test results were. I ended up working until the week before my transplant. I was on my way into work when I got a call from UCLA (the hospital I was going to have my transplant at) informing me that my INR was a 6.0. They wanted me to stop work and move closer to the hospital. I was crying in the elevator up to my office. When I got near my desk everyone knew something was wrong and they all chipped in to get all the loose ends tied up so I could go. I even had several people volunteer to drive me home. My manager actual came to the hospital 4 days after sugery to see me. Everyone at work had signed a card and taken up a collection for me. I was surprized to find out that several people hadn't known what was wrong with me until they got the

e-mail message saing that I was out of surgery and doing good. After 5 months recovery I went back to work. My manager had left in the meantime and I had a new manager and was working on a new project (I'm a software engineer) but everyone was very happy to see me. I even got flowers to welcome me back. Pat (CA) UC-1991, PSC-2000, Tx-2005 Chaim Boermeester wrote: Hi, Puneet was asking how to break the news to his family. I can’t really help with that I am afraid. My parents live abroad and I broke the news in a few phone calls, explaining more and more by answering the questions they had as well as I could. My question is about work. Should I break the news at work? Might it be bad for my

career to tell exactly what is wrong with me? So far I don’t think anyone there grabs what potential PSC has, and how it may affect my future performance. The reason I ask is that my wife and I have been working on a translation of the Partners Seeking Sure brochure in Hebrew and I would like to show it to some people at work. Good idea or not? Chaim Boermeester, Israel

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I tried to keep my diagnosis quiet and continue to work. I work in the

medical field when there is a premium on confidentialty but where

people know that jaundice is not a good thing. I remembered the

shocked look on the faces of my colleges when they noticed my yellow

eyes. We would be talking about something else and I could see by

their facial expression that they noticed. I remember talking with a

nurse about a different subject and she got the " look " . She teared up

and said " I hope you are seeing a good doctor. "

Once I let everyone know my situation, everyone was so supportive and

there were fewer akward moments.

Von

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I tried to keep my diagnosis quiet and continue to work. I work in the

medical field when there is a premium on confidentialty but where

people know that jaundice is not a good thing. I remembered the

shocked look on the faces of my colleges when they noticed my yellow

eyes. We would be talking about something else and I could see by

their facial expression that they noticed. I remember talking with a

nurse about a different subject and she got the " look " . She teared up

and said " I hope you are seeing a good doctor. "

Once I let everyone know my situation, everyone was so supportive and

there were fewer akward moments.

Von

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Share on other sites

I tried to keep my diagnosis quiet and continue to work. I work in the

medical field when there is a premium on confidentialty but where

people know that jaundice is not a good thing. I remembered the

shocked look on the faces of my colleges when they noticed my yellow

eyes. We would be talking about something else and I could see by

their facial expression that they noticed. I remember talking with a

nurse about a different subject and she got the " look " . She teared up

and said " I hope you are seeing a good doctor. "

Once I let everyone know my situation, everyone was so supportive and

there were fewer akward moments.

Von

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