Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 What is LS? Sorry for not knowing what all of these acronyms mean. Thanks for the description of LP. It's very helpful information.spanishmiss430 wrote: Chelle, Lichen Planus...I don't know how much everyone knows so hopefully this won't be too basic. Most of this info. is off handouts from my drs. office. It's an autoimmune skin condition that can affect various mucous membranes (often affects the gums and/or the vulva). Sometimes it is confused with LS; biopsy can help differentiate but is not always accurate and treatment may be the same anyway. Vulvar LP is one of the most difficult to treat and one of the rarest of vulvar skin conditions. Of the 1% of women who have a vulvar skin condition, only 1/4 of those have LP (most have LS). Generally, symptoms are burning, rawness, itching, and painful intercourse, as well as a yellowish discharge (indicating vaginal inflammation). In my case, I had no burning or itching, but had painful intercourse and yellow discharge. I thought this was normal. Many doctors think women with LP have yeast infections (mine all did) because of the inflammation and discharge. Skin will often show erosions or white patterns similar to LS (I never had this either). Unfortunately, LP does often cause fusing/atrophy of the labia and vaginal opening, as well as the clitoral hood. I have lost most of my inner labia to this, but thankfully do not yet have vaginal atrophy and am keeping my vagina open with dilators and frequent lubrication use. Treatment recommended will be similar to LS - topical steroids, usually, and sometimes steroid suppositories for the vagina, as LP notoriously affects the vulva and vagina, where LS only usually affects the vulva and sometimes anal areas. LP is ofetn resistant to topical steroids and many patients end up taking steroid injections or potent oral immunosuppressants (like those give to organ transplant recipients). Interesting side note - LP is noted to crop up as a reaction to a huge number of drugs and vaccines. Mine began shortly after the Hep. B vaccines series and starting birth control pills. Hope this info. helps...it really is a terrible disease and I wouldn't wish it on my worst enemy. The more people know about it, the better...if I had known about it, I wouldn't have gotten to a point where I was this bad off before I sought help! Melinda Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 What is LS? Sorry for not knowing what all of these acronyms mean. Thanks for the description of LP. It's very helpful information.spanishmiss430 wrote: Chelle, Lichen Planus...I don't know how much everyone knows so hopefully this won't be too basic. Most of this info. is off handouts from my drs. office. It's an autoimmune skin condition that can affect various mucous membranes (often affects the gums and/or the vulva). Sometimes it is confused with LS; biopsy can help differentiate but is not always accurate and treatment may be the same anyway. Vulvar LP is one of the most difficult to treat and one of the rarest of vulvar skin conditions. Of the 1% of women who have a vulvar skin condition, only 1/4 of those have LP (most have LS). Generally, symptoms are burning, rawness, itching, and painful intercourse, as well as a yellowish discharge (indicating vaginal inflammation). In my case, I had no burning or itching, but had painful intercourse and yellow discharge. I thought this was normal. Many doctors think women with LP have yeast infections (mine all did) because of the inflammation and discharge. Skin will often show erosions or white patterns similar to LS (I never had this either). Unfortunately, LP does often cause fusing/atrophy of the labia and vaginal opening, as well as the clitoral hood. I have lost most of my inner labia to this, but thankfully do not yet have vaginal atrophy and am keeping my vagina open with dilators and frequent lubrication use. Treatment recommended will be similar to LS - topical steroids, usually, and sometimes steroid suppositories for the vagina, as LP notoriously affects the vulva and vagina, where LS only usually affects the vulva and sometimes anal areas. LP is ofetn resistant to topical steroids and many patients end up taking steroid injections or potent oral immunosuppressants (like those give to organ transplant recipients). Interesting side note - LP is noted to crop up as a reaction to a huge number of drugs and vaccines. Mine began shortly after the Hep. B vaccines series and starting birth control pills. Hope this info. helps...it really is a terrible disease and I wouldn't wish it on my worst enemy. The more people know about it, the better...if I had known about it, I wouldn't have gotten to a point where I was this bad off before I sought help! Melinda Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 What is LS? Sorry for not knowing what all of these acronyms mean. Thanks for the description of LP. It's very helpful information.spanishmiss430 wrote: Chelle, Lichen Planus...I don't know how much everyone knows so hopefully this won't be too basic. Most of this info. is off handouts from my drs. office. It's an autoimmune skin condition that can affect various mucous membranes (often affects the gums and/or the vulva). Sometimes it is confused with LS; biopsy can help differentiate but is not always accurate and treatment may be the same anyway. Vulvar LP is one of the most difficult to treat and one of the rarest of vulvar skin conditions. Of the 1% of women who have a vulvar skin condition, only 1/4 of those have LP (most have LS). Generally, symptoms are burning, rawness, itching, and painful intercourse, as well as a yellowish discharge (indicating vaginal inflammation). In my case, I had no burning or itching, but had painful intercourse and yellow discharge. I thought this was normal. Many doctors think women with LP have yeast infections (mine all did) because of the inflammation and discharge. Skin will often show erosions or white patterns similar to LS (I never had this either). Unfortunately, LP does often cause fusing/atrophy of the labia and vaginal opening, as well as the clitoral hood. I have lost most of my inner labia to this, but thankfully do not yet have vaginal atrophy and am keeping my vagina open with dilators and frequent lubrication use. Treatment recommended will be similar to LS - topical steroids, usually, and sometimes steroid suppositories for the vagina, as LP notoriously affects the vulva and vagina, where LS only usually affects the vulva and sometimes anal areas. LP is ofetn resistant to topical steroids and many patients end up taking steroid injections or potent oral immunosuppressants (like those give to organ transplant recipients). Interesting side note - LP is noted to crop up as a reaction to a huge number of drugs and vaccines. Mine began shortly after the Hep. B vaccines series and starting birth control pills. Hope this info. helps...it really is a terrible disease and I wouldn't wish it on my worst enemy. The more people know about it, the better...if I had known about it, I wouldn't have gotten to a point where I was this bad off before I sought help! Melinda Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 LS stands for Lichen Sclerosus. It is a very similar autoimmune skin disease as LP. Below is a link that explains all about it. http://www.niams.nih.gov/hi/topics/lichen/fflichen.htm nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Halpin Sent: Monday, September 03, 2007 2:26 PM To: VulvarDisorders Subject: Re: Info. on LP What is LS? Sorry for not knowing what all of these acronyms mean. Thanks for the description of LP. It's very helpful information. _,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Melinda, How did they finally dianose your LP? Did they do a biopsy? I used to have itching/rawness inside and have had a yellowish discharge for a while now, and then I got the clitoral ache. The inside issues have gone (except for the discharge) and I am now left just with clitoral pain, and all infections have been ruled out- would it be possible for LP to act like this?spanishmiss430 wrote: Chelle,Lichen Planus...I don't know how much everyone knows so hopefully this won't be too basic. Most of this info. is off handouts from my drs. office.It's an autoimmune skin condition that can affect various mucous membranes (often affects the gums and/or the vulva). Sometimes it is confused with LS; biopsy can help differentiate but is not always accurate and treatment may be the same anyway. Vulvar LP is one of the most difficult to treat and one of the rarest of vulvar skin conditions. Of the 1% of women who have a vulvar skin condition, only 1/4 of those have LP (most have LS). Generally, symptoms are burning, rawness, itching, and painful intercourse, as well as a yellowish discharge (indicating vaginal inflammation). In my case, I had no burning or itching, but had painful intercourse and yellow discharge. I thought this was normal. Many doctors think women with LP have yeast infections (mine all did) because of the inflammation and discharge. Skin will often show erosions or white patterns similar to LS (I never had this either). Unfortunately, LP does often cause fusing/atrophy of the labia and vaginal opening, as well as the clitoral hood. I have lost most of my inner labia to this, but thankfully do not yet have vaginal atrophy and am keeping my vagina open with dilators and frequent lubrication use. Treatment recommended will be similar to LS - topical steroids, usually, and sometimes steroid suppositories for the vagina, as LP notoriously affects the vulva and vagina, where LS only usually affects the vulva and sometimes anal areas. LP is ofetn resistant to topical steroids and many patients end up taking steroid injections or potent oral immunosuppressants (like those give to organ transplant recipients).Interesting side note - LP is noted to crop up as a reaction to a huge number of drugs and vaccines. Mine began shortly after the Hep. B vaccines series and starting birth control pills. Hope this info. helps...it really is a terrible disease and I wouldn't wish it on my worst enemy. The more people know about it, the better...if I had known about it, I wouldn't have gotten to a point where I was this bad off before I sought help! Melinda Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Melinda, How did they finally dianose your LP? Did they do a biopsy? I used to have itching/rawness inside and have had a yellowish discharge for a while now, and then I got the clitoral ache. The inside issues have gone (except for the discharge) and I am now left just with clitoral pain, and all infections have been ruled out- would it be possible for LP to act like this?spanishmiss430 wrote: Chelle,Lichen Planus...I don't know how much everyone knows so hopefully this won't be too basic. Most of this info. is off handouts from my drs. office.It's an autoimmune skin condition that can affect various mucous membranes (often affects the gums and/or the vulva). Sometimes it is confused with LS; biopsy can help differentiate but is not always accurate and treatment may be the same anyway. Vulvar LP is one of the most difficult to treat and one of the rarest of vulvar skin conditions. Of the 1% of women who have a vulvar skin condition, only 1/4 of those have LP (most have LS). Generally, symptoms are burning, rawness, itching, and painful intercourse, as well as a yellowish discharge (indicating vaginal inflammation). In my case, I had no burning or itching, but had painful intercourse and yellow discharge. I thought this was normal. Many doctors think women with LP have yeast infections (mine all did) because of the inflammation and discharge. Skin will often show erosions or white patterns similar to LS (I never had this either). Unfortunately, LP does often cause fusing/atrophy of the labia and vaginal opening, as well as the clitoral hood. I have lost most of my inner labia to this, but thankfully do not yet have vaginal atrophy and am keeping my vagina open with dilators and frequent lubrication use. Treatment recommended will be similar to LS - topical steroids, usually, and sometimes steroid suppositories for the vagina, as LP notoriously affects the vulva and vagina, where LS only usually affects the vulva and sometimes anal areas. LP is ofetn resistant to topical steroids and many patients end up taking steroid injections or potent oral immunosuppressants (like those give to organ transplant recipients).Interesting side note - LP is noted to crop up as a reaction to a huge number of drugs and vaccines. Mine began shortly after the Hep. B vaccines series and starting birth control pills. Hope this info. helps...it really is a terrible disease and I wouldn't wish it on my worst enemy. The more people know about it, the better...if I had known about it, I wouldn't have gotten to a point where I was this bad off before I sought help! Melinda Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2007 Report Share Posted September 5, 2007 > Chelle, > Lichen Planus...I don't know how much everyone knows so hopefully > this won't be too basic. Most of this info. is off handouts from my > drs. office. > It's an autoimmune skin condition that can affect various mucous > membranes (often affects the gums and/or the vulva). Sometimes it is > confused with LS; biopsy can help differentiate but is not always > accurate and treatment may be the same anyway. Vulvar LP is one of > the most difficult to treat and one of the rarest of vulvar skin > conditions. Of the 1% of women who have a vulvar skin condition, only > 1/4 of those have LP (most have LS). Generally, symptoms are burning, > rawness, itching, and painful intercourse, as well as a yellowish > discharge (indicating vaginal inflammation). In my case, I had no > burning or itching, but had painful intercourse and yellow discharge. > I thought this was normal. Many doctors think women with LP have > yeast infections (mine all did) because of the inflammation and > discharge. Skin will often show erosions or white patterns similar to > LS (I never had this either). Unfortunately, LP does often cause > fusing/atrophy of the labia and vaginal opening, as well as the > clitoral hood. I have lost most of my inner labia to this, but > thankfully do not yet have vaginal atrophy and am keeping my vagina > open with dilators and frequent lubrication use. > Treatment recommended will be similar to LS - topical steroids, > usually, and sometimes steroid suppositories for the vagina, as LP > notoriously affects the vulva and vagina, where LS only usually > affects the vulva and sometimes anal areas. LP is ofetn resistant to > topical steroids and many patients end up taking steroid injections > or potent oral immunosuppressants (like those give to organ > transplant recipients). > Interesting side note - LP is noted to crop up as a reaction to a > huge number of drugs and vaccines. Mine began shortly after the Hep. > B vaccines series and starting birth control pills. > > Hope this info. helps...it really is a terrible disease and I > wouldn't wish it on my worst enemy. The more people know about it, > the better...if I had known about it, I wouldn't have gotten to a > point where I was this bad off before I sought help! > Melinda Have you had a biospsy yet? That is how they finally found that I had LP of the vulvar, on the inner labia and the clit. It has caused me severe pain in the clit, but now with the use of topical steroid ointments, I am able to keep it under control. > > > > > > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
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