Re: new to site, fell off a cliff

[Guest guest]

Hi Zoe

I suppose the best thing to do is to aquire some copies of your films

and send to a couple of resurfacing surgeons to find out what your

options are. Remember that there are lots of THR options and that

people with the large diameter variety seem to be able to do

everything that resurfacing patients can do. Of course we all promote

our own surgeons - so I would definitely recommend sending films to -

or seeing Mr Treacy. He has a reputation (as does de Smet) of dealing

successfully with difficult cases.

How do your toddlers cope? Mine was 15 months at the time of my

surgery - I was amazed at his gentleness and helpfulness.

Very best of luck.

Kathy

LBHR dysplasia 2002

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the

ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want

to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Hi Zoe

I suppose the best thing to do is to aquire some copies of your films

and send to a couple of resurfacing surgeons to find out what your

options are. Remember that there are lots of THR options and that

people with the large diameter variety seem to be able to do

everything that resurfacing patients can do. Of course we all promote

our own surgeons - so I would definitely recommend sending films to -

or seeing Mr Treacy. He has a reputation (as does de Smet) of dealing

successfully with difficult cases.

How do your toddlers cope? Mine was 15 months at the time of my

surgery - I was amazed at his gentleness and helpfulness.

Very best of luck.

Kathy

LBHR dysplasia 2002

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the

ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want

to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Hi Zoe

I suppose the best thing to do is to aquire some copies of your films

and send to a couple of resurfacing surgeons to find out what your

options are. Remember that there are lots of THR options and that

people with the large diameter variety seem to be able to do

everything that resurfacing patients can do. Of course we all promote

our own surgeons - so I would definitely recommend sending films to -

or seeing Mr Treacy. He has a reputation (as does de Smet) of dealing

successfully with difficult cases.

How do your toddlers cope? Mine was 15 months at the time of my

surgery - I was amazed at his gentleness and helpfulness.

Very best of luck.

Kathy

LBHR dysplasia 2002

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the

ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want

to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Zoe,

Read up the stuff on this site of course ... but to short-circuit that

stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

Belgium. If ha can't resurface your hip then I'd guess no one can. If

you are NHS-bound then Cobbat the Middlesex has a good rep but,

you know, it's the NHS with all that means in terms of delay for an as

yet non-NICE-approved procedure.

Chris.

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Zoe,

Read up the stuff on this site of course ... but to short-circuit that

stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

Belgium. If ha can't resurface your hip then I'd guess no one can. If

you are NHS-bound then Cobbat the Middlesex has a good rep but,

you know, it's the NHS with all that means in terms of delay for an as

yet non-NICE-approved procedure.

Chris.

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Zoe,

Read up the stuff on this site of course ... but to short-circuit that

stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

Belgium. If ha can't resurface your hip then I'd guess no one can. If

you are NHS-bound then Cobbat the Middlesex has a good rep but,

you know, it's the NHS with all that means in terms of delay for an as

yet non-NICE-approved procedure.

Chris.

> Hi all, nice to read some of the things on this website.

>

>

> My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> and after fracturing my pelvis in 7 place, 5 where my leg shot

> through the asitablium{ soz about my spelling }I also broke the ball

> right off the top of my femur. This has all been screwwed back

> together and now im leading an active life looking after my two

> highly demanding todlers with little or no help. my doc says i need

> a THR but wants me to limit my exercise to a minimum to delay the

> opp due to my age. Im taking massive amounts of tramedol and want to

> have a resurfacing done as soon as poss but doc says avascular

> necreosis has deteriorated to much due to ball snapping. IS THIS

> RIGHT?? Is the only option available to me a THR???? please is you

> get time can you answer my question thanks Zoe Huddersfield UK xx

[Guest guest]

Zoe/Chris

Hip resurfacing is a NICE-approved procedure - just had it done on Monday,

16th February, at St. Cross Hospital in Rugby, by Mr Krikler using

the Cormet device.

I shall post more about the op and my experiences next week, I think, but

rest assured this is NICE-approved and free of charge on the NHS.

Regards

Dan Milosevic

Re: new to site, fell off a cliff

> Zoe,

> Read up the stuff on this site of course ... but to short-circuit that

> stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> Belgium. If ha can't resurface your hip then I'd guess no one can. If

> you are NHS-bound then Cobbat the Middlesex has a good rep but,

> you know, it's the NHS with all that means in terms of delay for an as

> yet non-NICE-approved procedure.

> Chris.

>

> > Hi all, nice to read some of the things on this website.

> >

> >

> > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > through the asitablium{ soz about my spelling }I also broke the ball

> > right off the top of my femur. This has all been screwwed back

> > together and now im leading an active life looking after my two

> > highly demanding todlers with little or no help. my doc says i need

> > a THR but wants me to limit my exercise to a minimum to delay the

> > opp due to my age. Im taking massive amounts of tramedol and want to

> > have a resurfacing done as soon as poss but doc says avascular

> > necreosis has deteriorated to much due to ball snapping. IS THIS

> > RIGHT?? Is the only option available to me a THR???? please is you

> > get time can you answer my question thanks Zoe Huddersfield UK xx

>

>

>

>

>

>

[Guest guest]

Zoe/Chris

Hip resurfacing is a NICE-approved procedure - just had it done on Monday,

16th February, at St. Cross Hospital in Rugby, by Mr Krikler using

the Cormet device.

I shall post more about the op and my experiences next week, I think, but

rest assured this is NICE-approved and free of charge on the NHS.

Regards

Dan Milosevic

Re: new to site, fell off a cliff

> Zoe,

> Read up the stuff on this site of course ... but to short-circuit that

> stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> Belgium. If ha can't resurface your hip then I'd guess no one can. If

> you are NHS-bound then Cobbat the Middlesex has a good rep but,

> you know, it's the NHS with all that means in terms of delay for an as

> yet non-NICE-approved procedure.

> Chris.

>

> > Hi all, nice to read some of the things on this website.

> >

> >

> > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > through the asitablium{ soz about my spelling }I also broke the ball

> > right off the top of my femur. This has all been screwwed back

> > together and now im leading an active life looking after my two

> > highly demanding todlers with little or no help. my doc says i need

> > a THR but wants me to limit my exercise to a minimum to delay the

> > opp due to my age. Im taking massive amounts of tramedol and want to

> > have a resurfacing done as soon as poss but doc says avascular

> > necreosis has deteriorated to much due to ball snapping. IS THIS

> > RIGHT?? Is the only option available to me a THR???? please is you

> > get time can you answer my question thanks Zoe Huddersfield UK xx

>

>

>

>

>

>

[Guest guest]

Zoe/Chris

Hip resurfacing is a NICE-approved procedure - just had it done on Monday,

16th February, at St. Cross Hospital in Rugby, by Mr Krikler using

the Cormet device.

I shall post more about the op and my experiences next week, I think, but

rest assured this is NICE-approved and free of charge on the NHS.

Regards

Dan Milosevic

Re: new to site, fell off a cliff

> Zoe,

> Read up the stuff on this site of course ... but to short-circuit that

> stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> Belgium. If ha can't resurface your hip then I'd guess no one can. If

> you are NHS-bound then Cobbat the Middlesex has a good rep but,

> you know, it's the NHS with all that means in terms of delay for an as

> yet non-NICE-approved procedure.

> Chris.

>

> > Hi all, nice to read some of the things on this website.

> >

> >

> > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > through the asitablium{ soz about my spelling }I also broke the ball

> > right off the top of my femur. This has all been screwwed back

> > together and now im leading an active life looking after my two

> > highly demanding todlers with little or no help. my doc says i need

> > a THR but wants me to limit my exercise to a minimum to delay the

> > opp due to my age. Im taking massive amounts of tramedol and want to

> > have a resurfacing done as soon as poss but doc says avascular

> > necreosis has deteriorated to much due to ball snapping. IS THIS

> > RIGHT?? Is the only option available to me a THR???? please is you

> > get time can you answer my question thanks Zoe Huddersfield UK xx

>

>

>

>

>

>

[Guest guest]

My resurfacing was also done on the NHS free of charge---Mr. Skinner at

Royal National Orthopaedic Hospital at Stanmore-a Birmingham hip. If

you say you will accept a cancellation at short notice, you may not have

to wait too long. I only waited 7 weeks, even after refusing my first

cancellation. Apparently there are more cancellations in winter,

however, because of people getting ill, or near Xmas, because of people

not wanting to be in for Xmas.

Eleanor

Re: Re: new to site, fell off a cliff

Zoe/Chris

Hip resurfacing is a NICE-approved procedure - just had it done on

Monday,

16th February, at St. Cross Hospital in Rugby, by Mr Krikler

using

the Cormet device.

I shall post more about the op and my experiences next week, I think,

but

rest assured this is NICE-approved and free of charge on the NHS.

Regards

Dan Milosevic

Re: new to site, fell off a cliff

> Zoe,

> Read up the stuff on this site of course ... but to short-circuit that

> stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> Belgium. If ha can't resurface your hip then I'd guess no one can. If

> you are NHS-bound then Cobbat the Middlesex has a good rep but,

> you know, it's the NHS with all that means in terms of delay for an as

> yet non-NICE-approved procedure.

> Chris.

>

> > Hi all, nice to read some of the things on this website.

> >

> >

> > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > through the asitablium{ soz about my spelling }I also broke the ball

> > right off the top of my femur. This has all been screwwed back

> > together and now im leading an active life looking after my two

> > highly demanding todlers with little or no help. my doc says i need

> > a THR but wants me to limit my exercise to a minimum to delay the

> > opp due to my age. Im taking massive amounts of tramedol and want to

> > have a resurfacing done as soon as poss but doc says avascular

> > necreosis has deteriorated to much due to ball snapping. IS THIS

> > RIGHT?? Is the only option available to me a THR???? please is you

> > get time can you answer my question thanks Zoe Huddersfield UK xx

>

>

>

>

>

>

[Guest guest]

Zoe

I've heard of disability living allowance from another hip patient a month

ago, who told me that his claim got back-dated by a year by the authority

that approved it. However, I never claimed.

If I can be of help any other way, please let me know.

Regards

Dan

Re: new to site, fell off a cliff

> Chris/dan

> I've read the NICE recomendation document and it sounds encouraging.

> I really need to get to see a resufacer asap the problem being

> transportation/finance issues. Im having problems convincing the

> social security office that Im disabled and one year

> one still havent got approval for disability living allowance

> benifit.

> I'm sick of moaning and am giving it up for lent{ well trying too

> anyway}

> Thankyou for your Emails your advice is very usefull and uplifting.

> Even if THR is my only option, Im very lucky to be alive.

> Zoe

> ps. how are you feeling Dan? Wishing you a quick and full recovery.

>

>

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only

> 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke

> the ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

> need

> > > > a THR but wants me to limit my exercise to a minimum to delay

> the

> > > > opp due to my age. Im taking massive amounts of tramedol and

> want to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS

> THIS

> > > > RIGHT?? Is the only option available to me a THR???? please

> is you

> > > > get time can you answer my question thanks Zoe Huddersfield UK

> xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Dan:

Was pleased to read your note that resurfacing is an approved procedure in the

UK. My GP thinks it isnt, and Wonford hospital in Exeter only do THR. Anymore on

that would be appreciated.

Phil Exeter UK

Re: new to site, fell off a cliff

> Zoe,

> Read up the stuff on this site of course ... but to short-circuit that

> stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> Belgium. If ha can't resurface your hip then I'd guess no one can. If

> you are NHS-bound then Cobbat the Middlesex has a good rep but,

> you know, it's the NHS with all that means in terms of delay for an as

> yet non-NICE-approved procedure.

> Chris.

>

> > Hi all, nice to read some of the things on this website.

> >

> >

> > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > through the asitablium{ soz about my spelling }I also broke the ball

> > right off the top of my femur. This has all been screwwed back

> > together and now im leading an active life looking after my two

> > highly demanding todlers with little or no help. my doc says i need

> > a THR but wants me to limit my exercise to a minimum to delay the

> > opp due to my age. Im taking massive amounts of tramedol and want to

> > have a resurfacing done as soon as poss but doc says avascular

> > necreosis has deteriorated to much due to ball snapping. IS THIS

> > RIGHT?? Is the only option available to me a THR???? please is you

> > get time can you answer my question thanks Zoe Huddersfield UK xx

>

>

>

>

>

>

[Guest guest]

Phil,if it's any help I had my resurf done in Plymouth in the UK--

Sheila. P.S Let me know if you want more info.

In surfacehippy , " Phil Deem " wrote:

> Hi Dan:

>

> Was pleased to read your note that resurfacing is an approved

procedure in the UK. My GP thinks it isnt, and Wonford hospital in

Exeter only do THR. Anymore on that would be appreciated.

>

> Phil Exeter UK

> Re: new to site, fell off a cliff

>

>

> > Zoe,

> > Read up the stuff on this site of course ... but to short-

circuit that

> > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > Belgium. If ha can't resurface your hip then I'd guess no one

can. If

> > you are NHS-bound then Cobbat the Middlesex has a good

rep but,

> > you know, it's the NHS with all that means in terms of delay

for an as

> > yet non-NICE-approved procedure.

> > Chris.

> >

> > > Hi all, nice to read some of the things on this website.

> > >

> > >

> > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im

only 32

> > > and after fracturing my pelvis in 7 place, 5 where my leg

shot

> > > through the asitablium{ soz about my spelling }I also broke

the ball

> > > right off the top of my femur. This has all been screwwed

back

> > > together and now im leading an active life looking after my

two

> > > highly demanding todlers with little or no help. my doc says

i need

> > > a THR but wants me to limit my exercise to a minimum to

delay the

> > > opp due to my age. Im taking massive amounts of tramedol and

want to

> > > have a resurfacing done as soon as poss but doc says

avascular

> > > necreosis has deteriorated to much due to ball snapping. IS

THIS

> > > RIGHT?? Is the only option available to me a THR???? please

is you

> > > get time can you answer my question thanks Zoe Huddersfield

UK xx

> >

> >

> >

> >

> >

> >

[Guest guest]

Phil

I hope joins this conversation thread - he's the authority, at least

as far as I am concerned, on NHS procedures. In my case all it took was for

me to discover resurfacing as an alternative to THR which I denied on 3

occasions. When I found out about resurfacing I emailed all the details to

my GP and asked him to arrange another appointment with the Consultant who

suggested THR. My GP obliged and I met with the Consultant again and made

my case for resurfacing. He probed very thoroughly and quizzed me in

detail - the killer came when I said that if resurfacing failed I could then

opt for THR. His reply was: " I can't fault that logic. " and he wrote to Mr

Krikler who was an ex student of his. Mr Krikler then saw me in December

and I benefited 12 days ago from someone's cancellation.

That's the long and the short of it. There are hundreds of Orthopaedic

Surgeons in the UK performing hip resurfacing operations ( will correct

me, but I believe that there are more than 200 by now). Not all of them

possibly do it on NHS, but most do. I suggest you try and find an OS nearby

who performs this operation and have your GP write to him. I was operated

way out of my area (North East London) in Rugby, Warwickshire, in a

different NHS Trust. So it's doable.

Good luck.

Let me know if I can be of further help.

Regards

(no longer Desperate) Dan

Re: new to site, fell off a cliff

>

>

> > Zoe,

> > Read up the stuff on this site of course ... but to short-circuit that

> > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > Belgium. If ha can't resurface your hip then I'd guess no one can. If

> > you are NHS-bound then Cobbat the Middlesex has a good rep but,

> > you know, it's the NHS with all that means in terms of delay for an as

> > yet non-NICE-approved procedure.

> > Chris.

> >

> > > Hi all, nice to read some of the things on this website.

> > >

> > >

> > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > through the asitablium{ soz about my spelling }I also broke the ball

> > > right off the top of my femur. This has all been screwwed back

> > > together and now im leading an active life looking after my two

> > > highly demanding todlers with little or no help. my doc says i need

> > > a THR but wants me to limit my exercise to a minimum to delay the

> > > opp due to my age. Im taking massive amounts of tramedol and want to

> > > have a resurfacing done as soon as poss but doc says avascular

> > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > RIGHT?? Is the only option available to me a THR???? please is you

> > > get time can you answer my question thanks Zoe Huddersfield UK xx

> >

> >

> >

> >

> >

> >

[Guest guest]

Phil

I hope joins this conversation thread - he's the authority, at least

as far as I am concerned, on NHS procedures. In my case all it took was for

me to discover resurfacing as an alternative to THR which I denied on 3

occasions. When I found out about resurfacing I emailed all the details to

my GP and asked him to arrange another appointment with the Consultant who

suggested THR. My GP obliged and I met with the Consultant again and made

my case for resurfacing. He probed very thoroughly and quizzed me in

detail - the killer came when I said that if resurfacing failed I could then

opt for THR. His reply was: " I can't fault that logic. " and he wrote to Mr

Krikler who was an ex student of his. Mr Krikler then saw me in December

and I benefited 12 days ago from someone's cancellation.

That's the long and the short of it. There are hundreds of Orthopaedic

Surgeons in the UK performing hip resurfacing operations ( will correct

me, but I believe that there are more than 200 by now). Not all of them

possibly do it on NHS, but most do. I suggest you try and find an OS nearby

who performs this operation and have your GP write to him. I was operated

way out of my area (North East London) in Rugby, Warwickshire, in a

different NHS Trust. So it's doable.

Good luck.

Let me know if I can be of further help.

Regards

(no longer Desperate) Dan

Re: new to site, fell off a cliff

>

>

> > Zoe,

> > Read up the stuff on this site of course ... but to short-circuit that

> > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > Belgium. If ha can't resurface your hip then I'd guess no one can. If

> > you are NHS-bound then Cobbat the Middlesex has a good rep but,

> > you know, it's the NHS with all that means in terms of delay for an as

> > yet non-NICE-approved procedure.

> > Chris.

> >

> > > Hi all, nice to read some of the things on this website.

> > >

> > >

> > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > through the asitablium{ soz about my spelling }I also broke the ball

> > > right off the top of my femur. This has all been screwwed back

> > > together and now im leading an active life looking after my two

> > > highly demanding todlers with little or no help. my doc says i need

> > > a THR but wants me to limit my exercise to a minimum to delay the

> > > opp due to my age. Im taking massive amounts of tramedol and want to

> > > have a resurfacing done as soon as poss but doc says avascular

> > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > RIGHT?? Is the only option available to me a THR???? please is you

> > > get time can you answer my question thanks Zoe Huddersfield UK xx

> >

> >

> >

> >

> >

> >

[Guest guest]

Phil

I hope joins this conversation thread - he's the authority, at least

as far as I am concerned, on NHS procedures. In my case all it took was for

me to discover resurfacing as an alternative to THR which I denied on 3

occasions. When I found out about resurfacing I emailed all the details to

my GP and asked him to arrange another appointment with the Consultant who

suggested THR. My GP obliged and I met with the Consultant again and made

my case for resurfacing. He probed very thoroughly and quizzed me in

detail - the killer came when I said that if resurfacing failed I could then

opt for THR. His reply was: " I can't fault that logic. " and he wrote to Mr

Krikler who was an ex student of his. Mr Krikler then saw me in December

and I benefited 12 days ago from someone's cancellation.

That's the long and the short of it. There are hundreds of Orthopaedic

Surgeons in the UK performing hip resurfacing operations ( will correct

me, but I believe that there are more than 200 by now). Not all of them

possibly do it on NHS, but most do. I suggest you try and find an OS nearby

who performs this operation and have your GP write to him. I was operated

way out of my area (North East London) in Rugby, Warwickshire, in a

different NHS Trust. So it's doable.

Good luck.

Let me know if I can be of further help.

Regards

(no longer Desperate) Dan

Re: new to site, fell off a cliff

>

>

> > Zoe,

> > Read up the stuff on this site of course ... but to short-circuit that

> > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > Belgium. If ha can't resurface your hip then I'd guess no one can. If

> > you are NHS-bound then Cobbat the Middlesex has a good rep but,

> > you know, it's the NHS with all that means in terms of delay for an as

> > yet non-NICE-approved procedure.

> > Chris.

> >

> > > Hi all, nice to read some of the things on this website.

> > >

> > >

> > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > through the asitablium{ soz about my spelling }I also broke the ball

> > > right off the top of my femur. This has all been screwwed back

> > > together and now im leading an active life looking after my two

> > > highly demanding todlers with little or no help. my doc says i need

> > > a THR but wants me to limit my exercise to a minimum to delay the

> > > opp due to my age. Im taking massive amounts of tramedol and want to

> > > have a resurfacing done as soon as poss but doc says avascular

> > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > RIGHT?? Is the only option available to me a THR???? please is you

> > > get time can you answer my question thanks Zoe Huddersfield UK xx

> >

> >

> >

> >

> >

> >

[Guest guest]

Phil

I meant to say that I had declined (not denied) THR on 3 occasions.

Regards

Dan

Re: new to site, fell off a cliff

> >

> >

> > > Zoe,

> > > Read up the stuff on this site of course ... but to short-circuit

that

> > > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > > Belgium. If ha can't resurface your hip then I'd guess no one can.

If

> > > you are NHS-bound then Cobbat the Middlesex has a good rep

but,

> > > you know, it's the NHS with all that means in terms of delay for an

as

> > > yet non-NICE-approved procedure.

> > > Chris.

> > >

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke the

ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

need

> > > > a THR but wants me to limit my exercise to a minimum to delay the

> > > > opp due to my age. Im taking massive amounts of tramedol and want

to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > > RIGHT?? Is the only option available to me a THR???? please is

you

> > > > get time can you answer my question thanks Zoe Huddersfield UK xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Zoe

I think you first need a letter from your GP explaining the extent of

your disability. I had a blue badge for my car for a while - and

needed a doctors letter to apply for it.

Good luck

Kathy

> > > > > Hi all, nice to read some of the things on this website.

> > > > >

> > > > >

> > > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im

only

> > 32

> > > > > and after fracturing my pelvis in 7 place, 5 where my leg

shot

> > > > > through the asitablium{ soz about my spelling }I also broke

> > the ball

> > > > > right off the top of my femur. This has all been screwwed

back

> > > > > together and now im leading an active life looking after my

two

> > > > > highly demanding todlers with little or no help. my doc

says i

> > need

> > > > > a THR but wants me to limit my exercise to a minimum to

delay

> > the

> > > > > opp due to my age. Im taking massive amounts of tramedol and

> > want to

> > > > > have a resurfacing done as soon as poss but doc says

avascular

> > > > > necreosis has deteriorated to much due to ball snapping. IS

> > THIS

> > > > > RIGHT?? Is the only option available to me a THR???? please

> > is you

> > > > > get time can you answer my question thanks Zoe Huddersfield

UK

> > xx

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Dan

I don't know if I like being put on a pedestal. The higher you are off the

ground the further you have to fall :-)

It's nice to have compliments all the same and I reinforce what you say; I

also had my hips done in a different NHS trust area. All so if you are

willing to move area or take up cancellations you can reduce NHS waiting

times substantially. If you have complications however you possibly should

be cautious about doing this.

The number of surgeons now doing resurfacing does seem to be on the

increase. I would suggest that the as yet unpublished data from the Outcome

Centre must be good. I can't imagine that the amount of surgeons doing

resurfacing would be as high as it is if the word of mouth between surgeons

was not good. I believe that the Outcome Centre Report is to be published

this year.

Rog

Re: new to site, fell off a cliff

> >

> >

> > > Zoe,

> > > Read up the stuff on this site of course ... but to short-circuit

that

> > > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > > Belgium. If ha can't resurface your hip then I'd guess no one can.

If

> > > you are NHS-bound then Cobbat the Middlesex has a good rep

but,

> > > you know, it's the NHS with all that means in terms of delay for an

as

> > > yet non-NICE-approved procedure.

> > > Chris.

> > >

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke the

ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

need

> > > > a THR but wants me to limit my exercise to a minimum to delay the

> > > > opp due to my age. Im taking massive amounts of tramedol and want

to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > > RIGHT?? Is the only option available to me a THR???? please is

you

> > > > get time can you answer my question thanks Zoe Huddersfield UK xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Dan

I don't know if I like being put on a pedestal. The higher you are off the

ground the further you have to fall :-)

It's nice to have compliments all the same and I reinforce what you say; I

also had my hips done in a different NHS trust area. All so if you are

willing to move area or take up cancellations you can reduce NHS waiting

times substantially. If you have complications however you possibly should

be cautious about doing this.

The number of surgeons now doing resurfacing does seem to be on the

increase. I would suggest that the as yet unpublished data from the Outcome

Centre must be good. I can't imagine that the amount of surgeons doing

resurfacing would be as high as it is if the word of mouth between surgeons

was not good. I believe that the Outcome Centre Report is to be published

this year.

Rog

Re: new to site, fell off a cliff

> >

> >

> > > Zoe,

> > > Read up the stuff on this site of course ... but to short-circuit

that

> > > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > > Belgium. If ha can't resurface your hip then I'd guess no one can.

If

> > > you are NHS-bound then Cobbat the Middlesex has a good rep

but,

> > > you know, it's the NHS with all that means in terms of delay for an

as

> > > yet non-NICE-approved procedure.

> > > Chris.

> > >

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke the

ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

need

> > > > a THR but wants me to limit my exercise to a minimum to delay the

> > > > opp due to my age. Im taking massive amounts of tramedol and want

to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > > RIGHT?? Is the only option available to me a THR???? please is

you

> > > > get time can you answer my question thanks Zoe Huddersfield UK xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Dan

I don't know if I like being put on a pedestal. The higher you are off the

ground the further you have to fall :-)

It's nice to have compliments all the same and I reinforce what you say; I

also had my hips done in a different NHS trust area. All so if you are

willing to move area or take up cancellations you can reduce NHS waiting

times substantially. If you have complications however you possibly should

be cautious about doing this.

The number of surgeons now doing resurfacing does seem to be on the

increase. I would suggest that the as yet unpublished data from the Outcome

Centre must be good. I can't imagine that the amount of surgeons doing

resurfacing would be as high as it is if the word of mouth between surgeons

was not good. I believe that the Outcome Centre Report is to be published

this year.

Rog

Re: new to site, fell off a cliff

> >

> >

> > > Zoe,

> > > Read up the stuff on this site of course ... but to short-circuit

that

> > > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > > Belgium. If ha can't resurface your hip then I'd guess no one can.

If

> > > you are NHS-bound then Cobbat the Middlesex has a good rep

but,

> > > you know, it's the NHS with all that means in terms of delay for an

as

> > > yet non-NICE-approved procedure.

> > > Chris.

> > >

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke the

ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

need

> > > > a THR but wants me to limit my exercise to a minimum to delay the

> > > > opp due to my age. Im taking massive amounts of tramedol and want

to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > > RIGHT?? Is the only option available to me a THR???? please is

you

> > > > get time can you answer my question thanks Zoe Huddersfield UK xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Zoe,

The Citizen's Advice Bureau are usually very good indeed at helping

people both to know what benefits they are entitled to, helping them to

apply for them and helping them with an appeal if this needed. I'm an

ex-social worker so know this stuff pretty well. As Kathy says, GP

letters are usually pretty helpful and as Dan says, they do usually back

date your claim to the day you first applied so when it eventually comes

through, people tend to get a good big cheque. The benefits system can

be a minefield and endlessly frustrating to deal with. It takes

patience, perseverance and a good advocate like the CAB.

(I have a Canadian accent, although I've lived in England for 34 years.

As a Social Worker, I once phoned the Benefits Office on behalf of a

client for the umpteenth time. They thought they had put me on hold,

but I heard them say,,,,'it's that awful American woman yet again'..!)

Having said that, I know that many Benefit employees are underpaid (many

need income supplement themselves-hence their recent strike) and have to

deal with a myriad of changing benefits and bureaucratic regulations.

Good luck. Hang in there,

Eleanor

Re: new to site, fell off a cliff

Hi Zoe

I think you first need a letter from your GP explaining the extent of

your disability. I had a blue badge for my car for a while - and

needed a doctors letter to apply for it.

Good luck

Kathy

> > > > > Hi all, nice to read some of the things on this website.

> > > > >

> > > > >

> > > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im

only

> > 32

> > > > > and after fracturing my pelvis in 7 place, 5 where my leg

shot

> > > > > through the asitablium{ soz about my spelling }I also broke

> > the ball

> > > > > right off the top of my femur. This has all been screwwed

back

> > > > > together and now im leading an active life looking after my

two

> > > > > highly demanding todlers with little or no help. my doc

says i

> > need

> > > > > a THR but wants me to limit my exercise to a minimum to

delay

> > the

> > > > > opp due to my age. Im taking massive amounts of tramedol and

> > want to

> > > > > have a resurfacing done as soon as poss but doc says

avascular

> > > > > necreosis has deteriorated to much due to ball snapping. IS

> > THIS

> > > > > RIGHT?? Is the only option available to me a THR???? please

> > is you

> > > > > get time can you answer my question thanks Zoe Huddersfield

UK

> > xx

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi eleanor/dan/kathy

Thanks for the advise. My claim is being reconsidered at the moment.

When I rang last they said they were sending out a benefit's doctor

to examine me even though my GP had written a long letter explaining

how my disability affects my day-to-day life and the help/care I

need. The problem is my OS, that I see @once every 6 months, sent a

report that I was NOT experiencing 'extreme discomfort'. For anyone

else trying to claim DLA this and the distance you can walk without

taking a rest is crutial. I'm looking forward to the appointment

{they have not confirmed the date as get}. If this fails I am still

entitled to an appeal.

zoe

> > > > > > Hi all, nice to read some of the things on this

website.

> > > > > >

> > > > > >

> > > > > > My name is Zoe and I fell off a 45ft cliff 1 year ago.

Im

> only

> > > 32

> > > > > > and after fracturing my pelvis in 7 place, 5 where my

leg

> shot

> > > > > > through the asitablium{ soz about my spelling }I also

broke

> > > the ball

> > > > > > right off the top of my femur. This has all been

screwwed

> back

> > > > > > together and now im leading an active life looking after

my

> two

> > > > > > highly demanding todlers with little or no help. my doc

> says i

> > > need

> > > > > > a THR but wants me to limit my exercise to a minimum to

> delay

> > > the

> > > > > > opp due to my age. Im taking massive amounts of tramedol

and

> > > want to

> > > > > > have a resurfacing done as soon as poss but doc says

> avascular

> > > > > > necreosis has deteriorated to much due to ball snapping.

IS

> > > THIS

> > > > > > RIGHT?? Is the only option available to me a THR????

please

> > > is you

> > > > > > get time can you answer my question thanks Zoe

Huddersfield

> UK

> > > xx

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

I am willing to travel anywhere in the UK for hip resurfacing but your GP has

to apply to their local NHS trust for permission to do that for you. If there is

a surgeon in your area who does the work you want/need then you can only have

the work done in another area if you pay for it, and even then you have to have

a referral letter from your GP. The only other way of having surgery elsewhere

is when you have been on the waiting list for 2 years!! or more (well here in

Wales that is the case.)

Re: new to site, fell off a cliff

> >

> >

> > > Zoe,

> > > Read up the stuff on this site of course ... but to short-circuit

that

> > > stuff get your X-rays of the hip sent to Dr. De Smet in Ghent,

> > > Belgium. If ha can't resurface your hip then I'd guess no one can.

If

> > > you are NHS-bound then Cobbat the Middlesex has a good rep

but,

> > > you know, it's the NHS with all that means in terms of delay for an

as

> > > yet non-NICE-approved procedure.

> > > Chris.

> > >

> > > > Hi all, nice to read some of the things on this website.

> > > >

> > > >

> > > > My name is Zoe and I fell off a 45ft cliff 1 year ago. Im only 32

> > > > and after fracturing my pelvis in 7 place, 5 where my leg shot

> > > > through the asitablium{ soz about my spelling }I also broke the

ball

> > > > right off the top of my femur. This has all been screwwed back

> > > > together and now im leading an active life looking after my two

> > > > highly demanding todlers with little or no help. my doc says i

need

> > > > a THR but wants me to limit my exercise to a minimum to delay the

> > > > opp due to my age. Im taking massive amounts of tramedol and want

to

> > > > have a resurfacing done as soon as poss but doc says avascular

> > > > necreosis has deteriorated to much due to ball snapping. IS THIS

> > > > RIGHT?? Is the only option available to me a THR???? please is

you

> > > > get time can you answer my question thanks Zoe Huddersfield UK xx

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Getting a good surgeon on the NHS seems a bit hit and miss and now I

understand the term 'postcode lottery'. I'm lucky in the fact that I

will be moving to sheffield in the near future. We've just deceided

this weekend after visiting family.

I don't know what sheffield has in the way of resurf surgery but

think I should get referred now by my GP to another area, before I

move, if I'm lucky enough to get permission from our NHS trust, then

once I'm with a surgeon, if I move, do I have to change to the

nearest/cheapest option for the government, and can I suggest to my

GP a good resurf surgeon I've heard about, anywhere in the UK???

When I lived in Greece a few years ago I got a job working for

local doctors{ mainly GPs }. They really cared about the best

treatment for their patients not the cost, they used to get paid, if

a patient was short of actual cash, sometimes in fish/wine/olive oil

etc...could you imagon that in the UK????. It will take alot of

salmon to fix my hip though!

Zoe

> > > > > Hi all, nice to read some of the things on this

website.

> > > > >

> > > > >

> > > > > My name is Zoe and I fell off a 45ft cliff 1 year

ago. Im only 32

> > > > > and after fracturing my pelvis in 7 place, 5 where

my leg shot

> > > > > through the asitablium{ soz about my spelling }I

also broke the

> ball

> > > > > right off the top of my femur. This has all been

screwwed back

> > > > > together and now im leading an active life looking

after my two

> > > > > highly demanding todlers with little or no help. my

doc says i

> need

> > > > > a THR but wants me to limit my exercise to a minimum

to delay the

> > > > > opp due to my age. Im taking massive amounts of

tramedol and want

> to

> > > > > have a resurfacing done as soon as poss but doc says

avascular

> > > > > necreosis has deteriorated to much due to ball

snapping. IS THIS

> > > > > RIGHT?? Is the only option available to me a

THR???? please is

> you

> > > > > get time can you answer my question thanks Zoe

Huddersfield UK xx

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >