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Caroline,

My husband the acupuncturist is routinely called to do inductions by the

obstetric nurses at the local hospital. Works like a charm.

Terry

>

> Reply-To: graves_support

> Date: Sat, 07 Sep 2002 17:33:48 +1000

> To: " graves_support " graves_support >

> Subject: Update

>

> Dear All

>

> Thought I'd let you all know how I was doing. The baby is now 2 days

> late. I really wish she would hurry it up. My husband has already had

> his first week of leave (he has 4 weeks long service leave). This is OK

> because it's a great help for me with Dylan, but it would be nice for

> the other baby to be here too.

>

> I'm feeling well overall. No thyroid or GD type problems at all - just

> need to have this baby! I'm told that hot curry, hot baths and sex can

> bring on labour - been tying them all - any other ideas????

>

> I've been following the posts from the group but not really able to

> contribute much to the discussions - but I'm thinking about you all and

> wish you all the best.

>

> My husband will post when the baby is born.

>

> Cheers

> Caroline

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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  • 2 months later...

I just got off of the phone with my Doctor. She finally returned my

call after several weeks.

Here's what she said.

1. I'll never be stable.

2. There's no sense in testing TSI or TPO antibodies because there's

nothing to be done about them

3. PTU does NOT bring down antibodies

4. PTU combined with a hormone supplement is not a viable treatment

5. You can't have Hashi's and GD concurrently.

6. The only way to get the kind of overall stability that I am looking

for is to have RAI and then go on synthroid.

For all of you hear these types of comments or worse. FIND ANOTHER

DOCTOR.

God willing I will have good luck the new dr. I am scheduled to see in

Portland. I wanted to send this out to all of you so you can remember

that even if you hit a wall in this journey, you can always take a new

direction. This has been a very hard 5 months for me since discovering

that I was never in remission at all.

I should have been more vigilant with my Doctor, I trusted her when I

shouldn't have, I didn't know enough..I could beat myself up until

I'm blue, but I'm not going to. I'm just going to persevere!

Taking the ups with the downs,

Val

dx Nov. 00

on PTU 1 yr

Told I was in remission

off PTU 1 year

WILDLY fluctuating!

Half crazy but still kicking!

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  • 8 months later...
  • 1 month later...

what kind of fertility meds did you take , my doctor told me it going to give

some but wih your result i think i will like to try it. thank you and good

luck . i had a misscarriege this sept and im desperate to try again. thank you

mabel

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mabel, usually most doc's start with clomid as it has pretty good results for

most within 6 months i have always gotten pg within 2 months on it at least

with the first 3 this is month 3 and waiting to see. good luck to you.

apryl

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  • 4 months later...

Dear Jim,

Thanks for e-mailing us about this. Are you forwarding these messages

on to Tom, in case personal ones don't get through?

As a 12 week and 5 day post op person who still has groin pain and

clunks, and wound aches, and sometimes pain going down the front of the

leg to the toe (probably referred) and bad in the middle of the night,

and who's x-ray shows everything is fine, I feel he should not give up

hope, nor stop posting here. As someone else has said and as we see,

this site is for everyone with all different recovery rates.

Personally, I find it useful to know that there are others who still are

struggling or have struggled at this stage, and that it will take time.

It feels complicated---how much to do, how little, alternative therapies

(I do Technique and go to my osteopath, both which help), how

much/ little of pain medication? Everyone on this site and elsewhere

says patience, patience, patience and don't push too hard. This feels

right.

It is also good to notice what one is doing, that we tend not to notice

when feeling dispondent. A friend just visited who hadn't seen me for 2

weeks and saw a big difference in my walking, in spite of my pain. I

hadn't realized it had improved. I am also now driving into work ( one

hour each way commute) and although going in late and coming home early,

am pleased that I am managing it.

Has anyone done any research into recovery patterns----men v women; fit

v non-fit; age; pre-opt problems; method of surgery, etc. etc.? Maybe

there are too many variables? There must be some studies there for some

keen registrars.

Eleanor

Update

For you oldtimers that remember San Francisco Tom, he needs some

cheering up.

I've been in contact with him to see what's happening with his

predicament. i

havent had the surgery yet so I'm following his with interest. At 12

weeks he

had to go back to see Dr Mont because the pain in his hip is just as bad

as

before the surgery. They tried their best to figure it out but it hasn't

helped. Doctor Mont said the surgery was a success but he's still in

pain. He's very

depressed and needs some cheering up. He doesn't post / read here

anymore

because he knows people don't want to see when surgery doesn't work. So

for those

of you who remember him send him an email. He's the one that fought Blue

Cross for a year and won. this website won't let you print email

addresse so his

is t3man at aol dot com.

Jim

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  • 5 years later...
Guest guest

Mara,

Do you know how long you have to be off of immuno-suppressants before you can

take LDN? I'm going to bring LDN up at my next GI appointment to start laying

the groundwork. I don't know if she'll be game for it or not, especially since

I'm doing okay with Humira. I really need something to get over this fatigue

hump though, and LDN could be it! I'll also need to figure out how I'm going to

pay for it (I currently get Humira free from Abbott's Patient Assistance

Program). I'm already stretched financially, so I'll have to give up buying

something, like maybe my Prozymes and coconut oil.

Holly

Crohn's

SCD 12/01/08

>

> LDN is your best bet medicine wise.

>

> Don't let your doctors talk you into an immuno-suppressant because

> that is the protocol they are familiar with.

>

> Mara

>

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