Guest guest Posted June 1, 2011 Report Share Posted June 1, 2011 welcome to the club - I have had the monster and fibro since I was 17 and was not dx ed until I was 55 - still fight it ever day not sure if it is being and Okie (born and raised in Oklahoma) or just a Whit (family nickname) must just be me God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there. To: MSersLife ; tmic-list@...Sent: Wed, June 1, 2011 9:24:06 AMSubject: the run around hello,i havnt posted on here in years,recognise most of you and see alot of new names,just thought i would throw this out there and see what you all think.in feb 2000,i fell through a staircase fighting a fire and landed on my heels,i had a shockwave go up my spine and went over on my head.had no sighns of numbness or the pins and needles untill 3 weeks later,it got so bad i started falling on my face and became so weak the wheelchair was the only other option,i was given all the ms test and came up neg,but they found lesions on my c spine and were extremely quick to call what i had transverse myelitis ( inflamation of the spinal chord ).through the course of 5 years,i went through all the crap that comes with ms,everything from spasms,bladderdisfunct,sexual problems etc etc and experienced every range of emotion there is.in 2005 i was dx with ms after a positive lp and a small lesion on the brain,the lesions on the c spine were gone and i thought i was finally going to get some answers.well in jan i had a repeat mri done and found the spot on the brain is still there,but was told the spinal fluid they took in 2005 showed no sighns of demyl and they changed my dx back to tm.now how frustrating is that? 11 years,22 doctors,3 major hospital centers and 15 therapy centers later to be put back to square 1 with still no answers.what a circus. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2011 Report Share Posted June 1, 2011 Hi JeffIt's good to hear from you once again!! You have been undiagnosed, huh? I have heard of that happening to others. I have had two neuros tell me I don't have MS and a host of others that said I do. I was dxed with transverse myelitis in 1997 and then MS in 1998. Recently a member of this group was told that TM and MS are related. Here's a link for that:http://www.myelitis.org/rnd-overview.htmI hate to even suggest getting yet another opinion. Have you tried s Hopkins? They have the premier TM center there but I can't think of anything else to suggest.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife ; tmic-list@...Sent: Wed, June 1, 2011 7:24:06 AMSubject: the run around hello,i havnt posted on here in years,recognise most of you and see alot of new names,just thought i would throw this out there and see what you all think.in feb 2000,i fell through a staircase fighting a fire and landed on my heels,i had a shockwave go up my spine and went over on my head.had no sighns of numbness or the pins and needles untill 3 weeks later,it got so bad i started falling on my face and became so weak the wheelchair was the only other option,i was given all the ms test and came up neg,but they found lesions on my c spine and were extremely quick to call what i had transverse myelitis ( inflamation of the spinal chord ).through the course of 5 years,i went through all the crap that comes with ms,everything from spasms,bladderdisfunct,sexual problems etc etc and experienced every range of emotion there is.in 2005 i was dx with ms after a positive lp and a small lesion on the brain,the lesions on the c spine were gone and i thought i was finally going to get some answers.well in jan i had a repeat mri done and found the spot on the brain is still there,but was told the spinal fluid they took in 2005 showed no sighns of demyl and they changed my dx back to tm.now how frustrating is that? 11 years,22 doctors,3 major hospital centers and 15 therapy centers later to be put back to square 1 with still no answers.what a circus. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2011 Report Share Posted June 1, 2011 Jeff I am so sorry you are back to where you started from. How aggravating. You are in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > the run around > > > hello,i havnt posted on here in years,recognise most of you and see alot > of new > names,just thought i would throw this out there and see what you all > think. > in feb 2000,i fell through a staircase fighting a fire and landed on my > heels,i had a shockwave go up my spine and went over on my head.had no > sighns > of numbness or the pins and needles untill 3 weeks later,it got so bad i > started falling on my face and became so weak the wheelchair was the > only other > option,i was given all the ms test and came up neg,but they found > lesions on my > c spine and were extremely quick to call what i had transverse myelitis > ( > inflamation of the spinal chord ).through the course of 5 years,i went > through > all the crap that comes with ms,everything from > spasms,bladderdisfunct,sexual > problems etc etc and experienced every range of emotion there is.in 2005 > i was > dx with ms after a positive lp and a small lesion on the brain,the > lesions on > the c spine were gone and i thought i was finally going to get some > answers.well in jan i had a repeat mri done and found the spot on the > brain is > still there,but was told the spinal fluid they took in 2005 showed no > sighns of > demyl and they changed my dx back to tm.now how frustrating is that? 11 > years,22 doctors,3 major hospital centers and 15 therapy centers later > to be > put back to square 1 with still no answers.what a circus. > > DIPLOMACY DOES NOT > WORK WHEN DEALING WITH > NUT'S HELL BENT ON > DESTROYING US. ____________________________________________________________ TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if5 Capture screenshots, upload images, edit and send them to your friends through IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2011 Report Share Posted June 2, 2011 just wondering jeff why they didn't attribute it to injury from your original fall...strange. sorry to hear you've gotten nowhere aside from the idiocy of the medical profession. Like being on an episode of "house" I would imagine, just without any resolution.Deesw Illinois.To: MSersLife ; tmic-list@...Sent: Wed, June 1, 2011 9:24:06 AMSubject: the run around hello,i havnt posted on here in years,recognise most of you and see alot of new names,just thought i would throw this out there and see what you all think.in feb 2000,i fell through a staircase fighting a fire and landed on my heels,i had a shockwave go up my spine and went over on my head.had no sighns of numbness or the pins and needles untill 3 weeks later,it got so bad i started falling on my face and became so weak the wheelchair was the only other option,i was given all the ms test and came up neg,but they found lesions on my c spine and were extremely quick to call what i had transverse myelitis ( inflamation of the spinal chord ).through the course of 5 years,i went through all the crap that comes with ms,everything from spasms,bladderdisfunct,sexual problems etc etc and experienced every range of emotion there is.in 2005 i was dx with ms after a positive lp and a small lesion on the brain,the lesions on the c spine were gone and i thought i was finally going to get some answers.well in jan i had a repeat mri done and found the spot on the brain is still there,but was told the spinal fluid they took in 2005 showed no sighns of demyl and they changed my dx back to tm.now how frustrating is that? 11 years,22 doctors,3 major hospital centers and 15 therapy centers later to be put back to square 1 with still no answers.what a circus. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. Quote Link to comment Share on other sites More sharing options...
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