Re: Exacerbation - three and a half weeks now

[Guest guest]

Have you been treated with prednisone? I normally take oral prednisone and it almost always pulls me out of a flare.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Mon, June 6, 2011 11:08:44 AMSubject: Exacerbation - three and a half weeks now

I posted before, this exacerbation is very atypical for me. The nerve pain in my skin I had only previously had when I had a fever - or if there was any nerve pain going on, my dose of amitryptiline I guess blocked it before I felt it. I didn't even realize it was an exacerbation at first. I just thought I had a fever, but after taking my temperature day after day, and it was never higher than 100.3 (I generally don't go outside unless I have to, so I don't think any of this is heat related, plus this has lasted through heat, cool periods, etc.). I didn't pay attention and notice the numbness spreading in my hands, and it really isn't so bad (the numbness) and I'm not getting a whole lot of tingling. It was 10 days into it, when I finally was able to see my MS doc, that she told me it sounded like an exacerbation. Since then I've been trying to take notice of other symptoms.

Between getting my 50 mg dose raised to 75 mg (before I saw the doctor) my nerve pain ebbed and flowed, and the day before I saw the doctor, I thought that maybe the amitryptiline was dealing with it. Then I woke up the day of the appointment much worse. That day (Monday) and Tuesday were hell days for me. Was having the issue of needing to go to the bathroom and very little being there, so I decided to check with my primary doc about whether I had a UTI on top of it. Wednesday I woke up with less pain, but still slight UTI symptoms, and went in to see him. I had a very slight UTI. He gave me a three day course of Cipro, with 1 refill on it. As of Thursday (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve pain had increased again, so I took the refill just in case, and saw the doctor last Tuesday just to double check that the UTI was completely gone. It was.

I should add that when I saw my MS doc, she increased my amitryptiline to 100 mg permanently. Now, by the time the UTI was over, the nerve pain had changed somewhat - instead of the burning skin hurts if anything touches it nerve pain, I was having what I can only describe as like when you feel something is tingling, but it was painful. That was almost exclusive to my arms, legs and feet. And it itched. The only way I got through the Memorial Day parade, where my son's marching band was marching in, was that it was this kind of pain and not the "don't touch me it hurts" kind of pain. But then a couple days ago, it switched back. I actually asked my husband yesterday if we could kick the kids over to my in-laws' house (they live a block away) so I could walk around naked, or at least from the waist up, because the pain was worse in my back. That didn't fly over very well. In addition to my nerve

pain medication, I've been taking Fiorecet and iburpofen to combat the pain.

I woke up at 7:30 in the morning this morning in pain, couldn't get back to sleep. I generally function on close to 12 hours of sleep. Last night I got 4 hours of sleep. I've never had an exacerbation bother me this much - I mean, they bother me, but in this much pain, and it's one of those where you feel like you can't take it anymore, but it's still there so of course you do. I just don't know what to do anymore.

Tina

[Guest guest]

Tina I am so sorry to hear you are in such pain. I sure hope they can give you

something that will help. You are in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Exacerbation - three and a half weeks now

>

> I posted before, this exacerbation is very atypical for me. The nerve

> pain

> in my skin I had only previously had when I had a fever - or if there was

> any nerve pain going on, my dose of amitryptiline I guess blocked it

> before

> I felt it. I didn't even realize it was an exacerbation at first. I

> just

> thought I had a fever, but after taking my temperature day after day, and

> it

> was never higher than 100.3 (I generally don't go outside unless I have

> to,

> so I don't think any of this is heat related, plus this has lasted

> through

> heat, cool periods, etc.). I didn't pay attention and notice the

> numbness

> spreading in my hands, and it really isn't so bad (the numbness) and I'm

> not

> getting a whole lot of tingling. It was 10 days into it, when I finally

> was

> able to see my MS doc, that she told me it sounded like an exacerbation.

> Since then I've been trying to take notice of other symptoms.

>

> Between getting my 50 mg dose raised to 75 mg (before I saw the doctor)

> my

> nerve pain ebbed and flowed, and the day before I saw the doctor, I

> thought

> that maybe the amitryptiline was dealing with it. Then I woke up the day

> of

> the appointment much worse. That day (Monday) and Tuesday were hell days

> for me. Was having the issue of needing to go to the bathroom and very

> little being there, so I decided to check with my primary doc about

> whether

> I had a UTI on top of it. Wednesday I woke up with less pain, but still

> slight UTI symptoms, and went in to see him. I had a very slight UTI.

> He

> gave me a three day course of Cipro, with 1 refill on it. As of Thursday

> (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve

> pain

> had increased again, so I took the refill just in case, and saw the

> doctor

> last Tuesday just to double check that the UTI was completely gone. It

> was.

>

> I should add that when I saw my MS doc, she increased my amitryptiline to

> 100 mg permanently. Now, by the time the UTI was over, the nerve pain

> had

> changed somewhat - instead of the burning skin hurts if anything touches

> it

> nerve pain, I was having what I can only describe as like when you feel

> something is tingling, but it was painful. That was almost exclusive to

> my

> arms, legs and feet. And it itched. The only way I got through the

> Memorial Day parade, where my son's marching band was marching in, was

> that

> it was this kind of pain and not the " don't touch me it hurts " kind of

> pain. But then a couple days ago, it switched back. I actually asked my

> husband yesterday if we could kick the kids over to my in-laws' house

> (they

> live a block away) so I could walk around naked, or at least from the

> waist

> up, because the pain was worse in my back. That didn't fly over very

> well.

> In addition to my nerve pain medication, I've been taking Fiorecet and

> iburpofen to combat the pain.

>

> I woke up at 7:30 in the morning this morning in pain, couldn't get back

> to

> sleep. I generally function on close to 12 hours of sleep. Last night I

> got 4 hours of sleep. I've never had an exacerbation bother me this much

> -

> I mean, they bother me, but in this much pain, and it's one of those

> where

> you feel like you can't take it anymore, but it's still there so of

> course

> you do. I just don't know what to do anymore.

>

> Tina

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[Guest guest]

Tina I am so sorry to hear you are in such pain. I sure hope they can give you

something that will help. You are in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Exacerbation - three and a half weeks now

>

> I posted before, this exacerbation is very atypical for me. The nerve

> pain

> in my skin I had only previously had when I had a fever - or if there was

> any nerve pain going on, my dose of amitryptiline I guess blocked it

> before

> I felt it. I didn't even realize it was an exacerbation at first. I

> just

> thought I had a fever, but after taking my temperature day after day, and

> it

> was never higher than 100.3 (I generally don't go outside unless I have

> to,

> so I don't think any of this is heat related, plus this has lasted

> through

> heat, cool periods, etc.). I didn't pay attention and notice the

> numbness

> spreading in my hands, and it really isn't so bad (the numbness) and I'm

> not

> getting a whole lot of tingling. It was 10 days into it, when I finally

> was

> able to see my MS doc, that she told me it sounded like an exacerbation.

> Since then I've been trying to take notice of other symptoms.

>

> Between getting my 50 mg dose raised to 75 mg (before I saw the doctor)

> my

> nerve pain ebbed and flowed, and the day before I saw the doctor, I

> thought

> that maybe the amitryptiline was dealing with it. Then I woke up the day

> of

> the appointment much worse. That day (Monday) and Tuesday were hell days

> for me. Was having the issue of needing to go to the bathroom and very

> little being there, so I decided to check with my primary doc about

> whether

> I had a UTI on top of it. Wednesday I woke up with less pain, but still

> slight UTI symptoms, and went in to see him. I had a very slight UTI.

> He

> gave me a three day course of Cipro, with 1 refill on it. As of Thursday

> (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve

> pain

> had increased again, so I took the refill just in case, and saw the

> doctor

> last Tuesday just to double check that the UTI was completely gone. It

> was.

>

> I should add that when I saw my MS doc, she increased my amitryptiline to

> 100 mg permanently. Now, by the time the UTI was over, the nerve pain

> had

> changed somewhat - instead of the burning skin hurts if anything touches

> it

> nerve pain, I was having what I can only describe as like when you feel

> something is tingling, but it was painful. That was almost exclusive to

> my

> arms, legs and feet. And it itched. The only way I got through the

> Memorial Day parade, where my son's marching band was marching in, was

> that

> it was this kind of pain and not the " don't touch me it hurts " kind of

> pain. But then a couple days ago, it switched back. I actually asked my

> husband yesterday if we could kick the kids over to my in-laws' house

> (they

> live a block away) so I could walk around naked, or at least from the

> waist

> up, because the pain was worse in my back. That didn't fly over very

> well.

> In addition to my nerve pain medication, I've been taking Fiorecet and

> iburpofen to combat the pain.

>

> I woke up at 7:30 in the morning this morning in pain, couldn't get back

> to

> sleep. I generally function on close to 12 hours of sleep. Last night I

> got 4 hours of sleep. I've never had an exacerbation bother me this much

> -

> I mean, they bother me, but in this much pain, and it's one of those

> where

> you feel like you can't take it anymore, but it's still there so of

> course

> you do. I just don't know what to do anymore.

>

> Tina

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Thank you, to both of you that responded so quickly.  I think I'm going to call the doctor after I get home from my new psychiatrist's visit.  The thing is, I heard steroids only help if they are started in the first 14 days of a flare, I'm not sure where I heard that.  But I can't go on like this, so I'm going to call her (my MS doc).  Likely I won't get a response until tomorrow, and I don't know if there is anything she can do, but I have to try.  When I've had exacerbations before, well, they didn't involve pain, and well, after four years of sometimes chronic pain, I don't handle it well anymore.

tina

 

Have you been treated with prednisone?  I normally take oral prednisone and it almost always pulls me out of a flare.hugs

 SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: mserslife <mserslife >

Sent: Mon, June 6, 2011 11:08:44 AMSubject: Exacerbation - three and a half weeks now

I posted before, this exacerbation is very atypical for me.  The nerve pain in my skin I had only previously had when I had a fever - or if there was any nerve pain going on, my dose of amitryptiline I guess blocked it before I felt it.  I didn't even realize it was an exacerbation at first.  I just thought I had a fever, but after taking my temperature day after day, and it was never higher than 100.3 (I generally don't go outside unless I have to, so I don't think any of this is heat related, plus this has lasted through heat, cool periods, etc.).  I didn't pay attention and notice the numbness spreading in my hands, and it really isn't so bad (the numbness) and I'm not getting a whole lot of tingling.  It was 10 days into it, when I finally was able to see my MS doc, that she told me it sounded like an exacerbation.  Since then I've been trying to take notice of other symptoms. 

Between getting my 50 mg dose raised to 75 mg (before I saw the doctor) my nerve pain ebbed and flowed, and the day before I saw the doctor, I thought that maybe the amitryptiline was dealing with it.  Then I woke up the day of the appointment much worse.  That day (Monday) and Tuesday were hell days for me.  Was having the issue of needing to go to the bathroom and very little being there, so I decided to check with my primary doc about whether I had a UTI on top of it.  Wednesday I woke up with less pain, but still slight UTI symptoms, and went in to see him.  I had a very slight UTI.  He gave me a three day course of Cipro, with 1 refill on it.  As of Thursday (5/26), I had no UTI symptoms.  Even though I had no symptoms, my nerve pain had increased again, so I took the refill just in case, and saw the doctor last Tuesday just to double check that the UTI was completely gone.  It was.

I should add that when I saw my MS doc, she increased my amitryptiline to 100 mg permanently.  Now, by the time the UTI was over, the nerve pain had changed somewhat - instead of the burning skin hurts if anything touches it nerve pain, I was having what I can only describe as like when you feel something is tingling, but it was painful.  That was almost exclusive to my arms,  legs and feet.  And it itched.  The only way I got through the Memorial Day parade, where my son's marching band was marching in, was that it was this kind of pain and not the " don't touch me it hurts " kind of pain.  But then a couple days ago, it switched back.  I actually asked my husband yesterday if we could kick the kids over to my in-laws' house (they live a block away) so I could walk around naked, or at least from the waist up, because the pain was worse in my back.  That didn't fly over very well.  In addition to my nerve

pain medication, I've been taking Fiorecet and iburpofen to combat the pain. 

I woke up at 7:30 in the morning this morning in pain, couldn't get back to sleep.  I generally function on close to 12 hours of sleep.  Last night I got 4 hours of sleep.  I've never had an exacerbation bother me this much - I mean, they bother me, but in this much pain, and it's one of those where you feel like you can't take it anymore, but it's still there so of course you do.  I just don't know what to do anymore.

Tina

[Guest guest]

Let us all know what the MS doc says. Good luck getting the help you clearly need. hugs! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, June 6, 2011 11:45:03 AMSubject: Re: Exacerbation - three and a half weeks now

Thank you, to both of you that responded so quickly. I think I'm going to call the doctor after I get home from my new psychiatrist's visit. The thing is, I heard steroids only help if they are started in the first 14 days of a flare, I'm not sure where I heard that. But I can't go on like this, so I'm going to call her (my MS doc). Likely I won't get a response until tomorrow, and I don't know if there is anything she can do, but I have to try. When I've had exacerbations before, well, they didn't involve pain, and well, after four years of sometimes chronic pain, I don't handle it well anymore.

tina

Have you been treated with prednisone? I normally take oral prednisone and it almost always pulls me out of a flare.hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: mserslife <mserslife >

Sent: Mon, June 6, 2011 11:08:44 AMSubject: Exacerbation - three and a half weeks now

I posted before, this exacerbation is very atypical for me. The nerve pain in my skin I had only previously had when I had a fever - or if there was any nerve pain going on, my dose of amitryptiline I guess blocked it before I felt it. I didn't even realize it was an exacerbation at first. I just thought I had a fever, but after taking my temperature day after day, and it was never higher than 100.3 (I generally don't go outside unless I have to, so I don't think any of this is heat related, plus this has lasted through heat, cool periods, etc.). I didn't pay attention and notice the numbness spreading in my hands, and it really isn't so bad (the numbness) and I'm not getting a whole lot of tingling. It was 10 days into it, when I finally was able to see my MS doc, that she told me it sounded like an exacerbation. Since then I've been trying to take notice of other symptoms.

Between getting my 50 mg dose raised to 75 mg (before I saw the doctor) my nerve pain ebbed and flowed, and the day before I saw the doctor, I thought that maybe the amitryptiline was dealing with it. Then I woke up the day of the appointment much worse. That day (Monday) and Tuesday were hell days for me. Was having the issue of needing to go to the bathroom and very little being there, so I decided to check with my primary doc about whether I had a UTI on top of it. Wednesday I woke up with less pain, but still slight UTI symptoms, and went in to see him. I had a very slight UTI. He gave me a three day course of Cipro, with 1 refill on it. As of Thursday (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve pain had increased again, so I took the refill just in case, and saw the doctor last Tuesday just to double check that the UTI was completely gone. It was.

I should add that when I saw my MS doc, she increased my amitryptiline to 100 mg permanently. Now, by the time the UTI was over, the nerve pain had changed somewhat - instead of the burning skin hurts if anything touches it nerve pain, I was having what I can only describe as like when you feel something is tingling, but it was painful. That was almost exclusive to my arms, legs and feet. And it itched. The only way I got through the Memorial Day parade, where my son's marching band was marching in, was that it was this kind of pain and not the "don't touch me it hurts" kind of pain. But then a couple days ago, it switched back. I actually asked my husband yesterday if we could kick the kids over to my in-laws' house (they live a block away) so I could walk around naked, or at least from the waist up, because the pain was worse in my back. That didn't fly over very well. In addition to my nerve

pain medication, I've been taking Fiorecet and iburpofen to combat the pain.

I woke up at 7:30 in the morning this morning in pain, couldn't get back to sleep. I generally function on close to 12 hours of sleep. Last night I got 4 hours of sleep. I've never had an exacerbation bother me this much - I mean, they bother me, but in this much pain, and it's one of those where you feel like you can't take it anymore, but it's still there so of course you do. I just don't know what to do anymore.

Tina

[Guest guest]

Tina, ah pain, I don't handle it well either any more. I use to pride myself on toughness, alas those days are gone. I was not familiar with ms pain until my second bout with what they believe was ms. After nearly three months of a level 7-9 on a scale of 10 constantly, I was pretty messed up emotionally. Increased my effexor xr, found a counselor, was finally sent back to a neuro, and had a hard time coping with life overall and hope for the future. It is very hard to see that pain ever ending when the Drs don't know what it's from. By the time I got to the neuro it was like March and the pain was down to about a 3-4 constant. I was put on a prednisone series (first time) and wow, what a vacation from alllll my pains, ms or not. I didn't have pain with my first round of an ms flare so I

didn't think it was ms. My current neuro is a narrowminded ms specialist that won't really consider anything else and didn't even do a brain scan, only t & c spine. So I'm leaving him this summer for my previous one and will make the nearly hour trip to see her periodically. I left her very positive regardless of my circumstances, whereas with him I am negative even with my questions answered. I don't think prednisone is dependent on a time, perhaps the iv steriods are? I'm glad you're keeping your appts and attempting to move forward in treatment of your mh and ms stuff. DeeFrom: Tina Schmidt

To: MSersLife Sent: Mon, June 6, 2011 1:45:03 PMSubject: Re: Exacerbation - three and a half weeks now

Thank you, to both of you that responded so quickly. I think I'm going to call the doctor after I get home from my new psychiatrist's visit. The thing is, I heard steroids only help if they are started in the first 14 days of a flare, I'm not sure where I heard that. But I can't go on like this, so I'm going to call her (my MS doc). Likely I won't get a response until tomorrow, and I don't know if there is anything she can do, but I have to try. When I've had exacerbations before, well, they didn't involve pain, and well, after four years of sometimes chronic pain, I don't handle it well anymore.

tina

Have you been treated with prednisone? I normally take oral prednisone and it almost always pulls me out of a flare.hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: mserslife <mserslife >

Sent: Mon, June 6, 2011 11:08:44 AMSubject: Exacerbation - three and a half weeks now

I posted before, this exacerbation is very atypical for me. The nerve pain in my skin I had only previously had when I had a fever - or if there was any nerve pain going on, my dose of amitryptiline I guess blocked it before I felt it. I didn't even realize it was an exacerbation at first. I just thought I had a fever, but after taking my temperature day after day, and it was never higher than 100.3 (I generally don't go outside unless I have to, so I don't think any of this is heat related, plus this has lasted through heat, cool periods, etc.). I didn't pay attention and notice the numbness spreading in my hands, and it really isn't so bad (the numbness) and I'm not getting a whole lot of tingling. It was 10 days into it, when I finally was able to see my MS doc, that she told me it sounded like an exacerbation. Since then I've been trying to take notice of other symptoms.

Between getting my 50 mg dose raised to 75 mg (before I saw the doctor) my nerve pain ebbed and flowed, and the day before I saw the doctor, I thought that maybe the amitryptiline was dealing with it. Then I woke up the day of the appointment much worse. That day (Monday) and Tuesday were hell days for me. Was having the issue of needing to go to the bathroom and very little being there, so I decided to check with my primary doc about whether I had a UTI on top of it. Wednesday I woke up with less pain, but still slight UTI symptoms, and went in to see him. I had a very slight UTI. He gave me a three day course of Cipro, with 1 refill on it. As of Thursday (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve pain had increased again, so I took the refill just in case, and saw the doctor last Tuesday just to double check that the UTI was completely gone. It was.

I should add that when I saw my MS doc, she increased my amitryptiline to 100 mg permanently. Now, by the time the UTI was over, the nerve pain had changed somewhat - instead of the burning skin hurts if anything touches it nerve pain, I was having what I can only describe as like when you feel something is tingling, but it was painful. That was almost exclusive to my arms, legs and feet. And it itched. The only way I got through the Memorial Day parade, where my son's marching band was marching in, was that it was this kind of pain and not the "don't touch me it hurts" kind of pain. But then a couple days ago, it switched back. I actually asked my husband yesterday if we could kick the kids over to my in-laws' house (they live a block away) so I could walk around naked, or at least from the waist up, because the pain was worse in my back. That didn't fly over very well. In addition to my nerve

pain medication, I've been taking Fiorecet and iburpofen to combat the pain.

I woke up at 7:30 in the morning this morning in pain, couldn't get back to sleep. I generally function on close to 12 hours of sleep. Last night I got 4 hours of sleep. I've never had an exacerbation bother me this much - I mean, they bother me, but in this much pain, and it's one of those where you feel like you can't take it anymore, but it's still there so of course you do. I just don't know what to do anymore.

Tina

[Guest guest]

Oh Tina,I'm sorry you are going through this. How about a cool bath? Maybe with Epsom salts; that might sounds simplistic, but perhaps it would soothe you a bit. Does your neuro think you should go on corticosteroids? It might be one idea to combat this. Keep us posted. I hope you are feeling better real soon!love,KateTo: mserslife

<mserslife >Sent: Mon, June 6, 2011 2:08:44 PMSubject: Exacerbation - three and a half weeks now

I posted before, this exacerbation is very atypical for me. The nerve pain in my skin I had only previously had when I had a fever - or if there was any nerve pain going on, my dose of amitryptiline I guess blocked it before I felt it. I didn't even realize it was an exacerbation at first. I just thought I had a fever, but after taking my temperature day after day, and it was never higher than 100.3 (I generally don't go outside unless I have to, so I don't think any of this is heat related, plus this has lasted through heat, cool periods, etc.). I didn't pay attention and notice the numbness spreading in my hands, and it really isn't so bad (the numbness) and I'm not getting a whole lot of tingling. It was 10 days into it, when I finally was able to see my MS doc, that she told me it sounded like an exacerbation. Since then I've been trying to take notice of other symptoms.

Between getting my 50 mg dose raised to 75 mg (before I saw the doctor) my nerve pain ebbed and flowed, and the day before I saw the doctor, I thought that maybe the amitryptiline was dealing with it. Then I woke up the day of the appointment much worse. That day (Monday) and Tuesday were hell days for me. Was having the issue of needing to go to the bathroom and very little being there, so I decided to check with my primary doc about whether I had a UTI on top of it. Wednesday I woke up with less pain, but still slight UTI symptoms, and went in to see him. I had a very slight UTI. He gave me a three day course of Cipro, with 1 refill on it. As of Thursday (5/26), I had no UTI symptoms. Even though I had no symptoms, my nerve pain had increased again, so I took the refill just in case, and saw the doctor last Tuesday just to double check that the UTI was completely gone. It was.

I should add that when I saw my MS doc, she increased my amitryptiline to 100 mg permanently. Now, by the time the UTI was over, the nerve pain had changed somewhat - instead of the burning skin hurts if anything touches it nerve pain, I was having what I can only describe as like when you feel something is tingling, but it was painful. That was almost exclusive to my arms, legs and feet. And it itched. The only way I got through the Memorial Day parade, where my son's marching band was marching in, was that it was this kind of pain and not the "don't touch me it hurts" kind of pain. But then a couple days ago, it switched back. I actually asked my husband yesterday if we could kick the kids over to my in-laws' house (they live a block away) so I could walk around naked, or at least from the waist up, because the pain was worse in my back. That didn't fly over very well. In addition to my nerve

pain medication, I've been taking Fiorecet and iburpofen to combat the pain.

I woke up at 7:30 in the morning this morning in pain, couldn't get back to sleep. I generally function on close to 12 hours of sleep. Last night I got 4 hours of sleep. I've never had an exacerbation bother me this much - I mean, they bother me, but in this much pain, and it's one of those where you feel like you can't take it anymore, but it's still there so of course you do. I just don't know what to do anymore.

Tina