I think the flare's over, but wondering if this symptom is permanent

[Guest guest]

Okay, so I haven't had the really, really acute nerve skin pain (the type that makes me want to not wear clothing) for about 5 days, I'm just having some of the pain in my arms and legs, either like it had been scraped or light sun burn, or the (and this description doesn't make sense to me even, but it's the best that I could describe it) type of feelings in my arms and legs, almost like tingling, except it hurts and itches, like if you've been standing in one place for way too long (but I don't think this is  circulation issue as it just came on in both arms and legs).  So we (my husband and I) are thinking the exacerbation is over with, and what I'm left with is either permanent, or will settle down in time. 

Truthfully, I'm terrified that it might be permanent, as it affects everything I do, all day long.  It's even happening when I'm sitting down and relaxing.  I'm a casual gamer for relaxation, and it affects what I do there, too, and I have a night (Thursday) where I sit down and use MSN to chat with some friends from Norway, and across the US (usually for a very long time), and I had to bail yesterday.

Tina

[Guest guest]

Tina you will be in my prayers that its not permanent.

Hugs

nne

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> I think the flare's over, but wondering if this symptom

> is permanent

>

> Okay, so I haven't had the really, really acute nerve skin pain (the type

> that makes me want to not wear clothing) for about 5 days, I'm just

> having

> some of the pain in my arms and legs, either like it had been scraped or

> light sun burn, or the (and this description doesn't make sense to me

> even,

> but it's the best that I could describe it) type of feelings in my arms

> and

> legs, almost like tingling, except it hurts and itches, like if you've

> been

> standing in one place for way too long (but I don't think this is

> circulation issue as it just came on in both arms and legs). So we (my

> husband and I) are thinking the exacerbation is over with, and what I'm

> left

> with is either permanent, or will settle down in time.

>

> Truthfully, I'm terrified that it might be permanent, as it affects

> everything I do, all day long. It's even happening when I'm sitting down

> and relaxing. I'm a casual gamer for relaxation, and it affects what I

> do

> there, too, and I have a night (Thursday) where I sit down and use MSN to

> chat with some friends from Norway, and across the US (usually for a very

> long time), and I had to bail yesterday.

>

> Tina

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[Guest guest]

Something very like that was a " leftover " from my last big flare a couple of

years ago - felt like my entire skin was attached to one of those " joy

buzzer " things, I expected to see myself vibrating every time I walked by a

mirror.

It gradually faded to a barely-noticeable " buzz " , unless I'm really tired or

stressed and then it intensifies a bit. Sometimes it stops all together for

a little while, which now feels WEIRD because I've gotten used to buzzing!

Hope it fades for you quick!

in WY

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I think the flare's over, but wondering if this symptom is

permanent

 

Okay, so I haven't had the really, really acute nerve skin pain (the type

that makes me want to not wear clothing) for about 5 days, I'm just having

some of the pain in my arms and legs, either like it had been scraped or

light sun burn, or the (and this description doesn't make sense to me even,

but it's the best that I could describe it) type of feelings in my arms and

legs, almost like tingling, except it hurts and itches, like if you've been

standing in one place for way too long (but I don't think this is 

circulation issue as it just came on in both arms and legs).  So we (my

husband and I) are thinking the exacerbation is over with, and what I'm left

with is either permanent, or will settle down in time. 

Truthfully, I'm terrified that it might be permanent, as it affects

everything I do, all day long.  It's even happening when I'm sitting down

and relaxing.  I'm a casual gamer for relaxation, and it affects what I do

there, too, and I have a night (Thursday) where I sit down and use MSN to

chat with some friends from Norway, and across the US (usually for a very

long time), and I had to bail yesterday.

Tina

[Guest guest]

Sometimes symptoms just stay put, after an exacerbation, sometimes they fade away, sometimes they go away just as fast as the flare itself, and some times they come and go (this is was has experienced the most). There is just no telling which way it'll go (but I guess you know this already). Anyway, I hope it'll get better with time!love/Reb>> Okay, so I haven't had the really, really acute nerve skin pain (the type> that makes me want to not wear clothing) for about 5 days, I'm just having> some of the pain in my arms and legs, either like it had been scraped or> light sun burn, or the (and this description doesn't make sense to me even,> but it's the best that I could describe it) type of feelings in my arms and> legs, almost like tingling, except it hurts and itches, like if you've been> standing in one place for way too long (but I don't think this is> circulation issue as it just came on in both arms and legs). So we (my> husband and I) are thinking the exacerbation is over with, and what I'm left> with is either permanent, or will settle down in time.> > Truthfully, I'm terrified that it might be permanent, as it affects> everything I do, all day long. It's even happening when I'm sitting down> and relaxing. I'm a casual gamer for relaxation, and it affects what I do> there, too, and I have a night (Thursday) where I sit down and use MSN to> chat with some friends from Norway, and across the US (usually for a very> long time), and I had to bail yesterday.> > Tina>