Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Well, it's been a month since I had the blood test done to check for the JC virus. When the doctor ordered the blood test, she said when the results came in, she would have me in for an appointment and we would discuss Tysabri. She this would take about three weeks. It's been three days shy of a month now, and I haven't heard back. I called in and left a message (because I didn't want to refill my Copaxone if I was just going to be switching to Tysabri, plus I would need a new autoject), and the nurse said I may not get in until my semi-annual check up scheduled for 8/1. So I've called the Copaxone refill in, requested the new autoject. I would rather not mess with the Copaxone at all - it's hard to keep sticking yourself when you know you aren't going to be continuing on that med, but she wants me to continue it until we discuss Tysabri so that I don't go downhill even farther. Now, if I don't see her until August, I'm terrified that I'm going to have another exacerbation, or get worse in some way. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Tina I am sorry you can't get into the dr till Aug. I will keep you in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > Getting into the doctor > > Well, it's been a month since I had the blood test done to check for the > JC > virus. When the doctor ordered the blood test, she said when the results > came in, she would have me in for an appointment and we would discuss > Tysabri. She this would take about three weeks. It's been three days > shy > of a month now, and I haven't heard back. I called in and left a message > (because I didn't want to refill my Copaxone if I was just going to be > switching to Tysabri, plus I would need a new autoject), and the nurse > said > I may not get in until my semi-annual check up scheduled for 8/1. So > I've > called the Copaxone refill in, requested the new autoject. I would > rather > not mess with the Copaxone at all - it's hard to keep sticking yourself > when > you know you aren't going to be continuing on that med, but she wants me > to > continue it until we discuss Tysabri so that I don't go downhill even > farther. Now, if I don't see her until August, I'm terrified that I'm > going > to have another exacerbation, or get worse in some way. > > Tina ____________________________________________________________ Send your photos by email in seconds... TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if3 Works in all emails, instant messengers, blogs, forums and social networks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 This is your MS specialist? August is a long time to wait for the news you want! hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Mon, June 20, 2011 1:12:23 PMSubject: Getting into the doctor Well, it's been a month since I had the blood test done to check for the JC virus. When the doctor ordered the blood test, she said when the results came in, she would have me in for an appointment and we would discuss Tysabri. She this would take about three weeks. It's been three days shy of a month now, and I haven't heard back. I called in and left a message (because I didn't want to refill my Copaxone if I was just going to be switching to Tysabri, plus I would need a new autoject), and the nurse said I may not get in until my semi-annual check up scheduled for 8/1. So I've called the Copaxone refill in, requested the new autoject. I would rather not mess with the Copaxone at all - it's hard to keep sticking yourself when you know you aren't going to be continuing on that med, but she wants me to continue it until we discuss Tysabri so that I don't go downhill even farther. Now, if I don't see her until August, I'm terrified that I'm going to have another exacerbation, or get worse in some way. Tina Quote Link to comment Share on other sites More sharing options...
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