Re: Getting into the doctor- reply to n

[Guest guest]

Yes, that was the first med that I was on.  I was having relapses about every six months on it, plus the flu like side effects never went away - I would be down 3 or 4 days a week.  I also had seizures while I was on it, so my MS doc ruled out all interferons because of that.

Tina

 

Tina, have you ever been on Avonex?  I know--just " typing out loud again! " Love,n

To: mserslife <mserslife >Sent: Mon, June 20, 2011 1:12:23 PM

Subject: Getting into the doctor

 

Well, it's been a month since I had the blood test done to check for the JC virus.  When the doctor ordered the blood test, she said when the results came in, she would have me in for an appointment and we would discuss Tysabri.  She this would take about three weeks.  It's been three days shy of a month now, and I haven't heard back.  I called in and left a message (because I didn't want to refill my Copaxone if I was just going to be switching to Tysabri, plus I would need a new autoject), and the nurse said I may not get in until my semi-annual check up scheduled for 8/1.  So I've called the Copaxone refill in, requested the new autoject.  I would rather not mess with the Copaxone at all - it's hard to keep sticking yourself when you know you aren't going to be continuing on that med, but she wants me to continue it until we discuss Tysabri so that I don't go downhill even farther.  Now, if I don't see her

until August, I'm terrified that I'm going to have another exacerbation, or get worse in some way.

Tina

[Guest guest]

I really hope so.  Throughout all of this, I haven't had a single MRI that hasn't shown more lesions, and every exacerbation gives more progression, though this last exacerbation went in a completely new direction....every time I have an exacerbation I get a little more depressed.  With Tysabri's results, I'm hoping I'll have a period of time (hopefully longer than a year) with no relapses and no changes in my MRI.

Tina 

 

Good reasons to give it up!  I developed skin infections from the Copaxoneinjections.  Let us hope for Tysabri for you!Love,

n

To: MSersLife

Sent: Mon, June 20, 2011 2:38:35 PMSubject: Re: Getting into the doctor- reply to

n

 

Yes, that was the first med that I was on.  I was having relapses about every six months on it, plus the flu like side effects never went away - I would be down 3 or 4 days a week.  I also had seizures while I was on it, so my MS doc ruled out all interferons because of that.

Tina

 

Tina, have you ever been on Avonex?  I know--just " typing out loud again! " Love,n

To: mserslife <mserslife >Sent: Mon, June 20, 2011 1:12:23 PM

Subject: Getting into the doctor

 

Well, it's been a month since I had the blood test done to check for the JC virus.  When the doctor ordered the blood test, she said when the results came in, she would have me in for an appointment and we would discuss Tysabri.  She this would take about three weeks.  It's been three days shy of a month now, and I haven't heard back.  I called in and left a message (because I didn't want to refill my Copaxone if I was just going to be switching to Tysabri, plus I would need a new autoject), and the nurse said I may not get in until my semi-annual check up scheduled for 8/1.  So I've called the Copaxone refill in, requested the new autoject.  I would rather not mess with the Copaxone at all - it's hard to keep sticking yourself when you know you aren't going to be continuing on that med, but she wants me to continue it until we discuss Tysabri so that I don't go downhill even farther.  Now, if I don't see her

until August, I'm terrified that I'm going to have another exacerbation, or get worse in some way.

Tina