Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Tina I will continue to keep you in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > My own check in > > I got the greatest news by phone today, just a little bit ago. The > doctor's > office that I was having a hard time getting the nurse to call me back > called me back. My JC virus testing was negative! That means at least > for > now, I don't really have a risk for PML when I start Tysabri. There may > be > one, but it's very small. I have an appointment with her on July 13, and > she wants me to get ophthalmologist checked and checked by a > dermatologist. > For what I'm not sure, but she just want me checked before I start the > Tysabri. > > I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my > turn to make dinner (spaghetti) but I really just do not feel like making > it. Well, no scratch that - I talked to hubby and since neither one of > us > can claim credit for fixing dinner last night (it was just a stick it in > the > oven thing, I put it in, he pulled it out) he's fixing the spaghetti. > Hopefully I'll feel better and be able to fix whatever tomorrow night - > grocery store run needs done tomorrow after the oldest's band car wash. > Lately I've been sending hubby by himself, and he prefers it that way, > but > he doesn't always get the extras on the list. This month we've been > careful > with our money (he wouldn't even let me get him a father's day present), > so > we actually have some extra, although gas/electric still has to be paid > (it's a combined bill). This next month I get some extra as part of my > SSI > back payment, so I'm going to get him his father's day gift with it, and > since we have the extra, it's going to a few things - that will also make > up > for the $15 anniversary gift I was only allowed to give him last month. > We > are also going to keep about half of it as a cushion, since my new > psychiatrist, new counselor, and new pcp are all through Medicare, and > don't > take Medicaid, which means I'm responsible for the copays. > > Despite the pain I'm in right now, I'm in a decent mood, probably because > of > the " the phone call " , lol, although I have a little anxiety about > starting > Tysabri - the whole infusion process, but I will be VERY glad not to have > to > give myself injections daily. > > Yesterday/last night I had my weekly chat with my friends (2 from Norway, > one from Mesa, Arizona - she sees the smoke from the fires, but that's > about > it - and one from Michigan) and that went for several hours. It's a good > thing my Norwegian friends are night owls, because our conversations > generally start at 10:30 pm Norway time! But their whole sleeping > schedule > is off by several hours - they generally go to bed at 5 am or so. I go > to > bed late, but never that late, it would screw my med schedule up too > badly, > since I have meds I have to take at bedtime. > > Wow, my good mood has really got me rambling. How are all of you? > > Tina ____________________________________________________________ Share photos & screenshots in seconds... TRY FREE IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if1 Works in all emails, instant messengers, blogs, forums and social networks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Excellent news on your negative test!!! I'm glad you will get a chance at Tysabri. I wonder what the reason is for the dermatologist and ophthalmologist? If you find out please let me know. I'm curious.I enjoyed your long chatty update, Tina. You sound really upbeat and that is kinda infectious. I feel better already:)hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Fri, June 24, 2011 3:01:17 PMSubject: My own check in I got the greatest news by phone today, just a little bit ago. The doctor's office that I was having a hard time getting the nurse to call me back called me back. My JC virus testing was negative! That means at least for now, I don't really have a risk for PML when I start Tysabri. There may be one, but it's very small. I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist. For what I'm not sure, but she just want me checked before I start the Tysabri. I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my turn to make dinner (spaghetti) but I really just do not feel like making it. Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti. Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's band car wash. Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list. This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill). This next month I get some extra as part of my SSI back payment, so I'm going to get him his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month. We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays. Despite the pain I'm in right now, I'm in a decent mood, probably because of the "the phone call", lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily. Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours. It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time! But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so. I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime. Wow, my good mood has really got me rambling. How are all of you?Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Well, I found out that my current eye doctor is an optometrist, not an ophthalmologist, so Monday I'm gong to be making some phone calls looking for one in the area that takes my Medicaid. I could have sworn that when I got my eyes checked last time I asked if they were, and was told yes (I wanted to be seen by an ophthalmologist because of the MS) but I just checked their website and they are all optometrists. I'm going to call tomorrow and double check, simply because it's so easy to get in with them. If they aren't, that's a little worrisome, because I've never in three years of having MS, had an exam with an ophthalmologist. Glad I could help you feel better! Tina Excellent news on your negative test!!! I'm glad you will get a chance at Tysabri. I wonder what the reason is for the dermatologist and ophthalmologist? If you find out please let me know. I'm curious. I enjoyed your long chatty update, Tina. You sound really upbeat and that is kinda infectious. I feel better already:)hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Fri, June 24, 2011 3:01:17 PMSubject: My own check in I got the greatest news by phone today, just a little bit ago. The doctor's office that I was having a hard time getting the nurse to call me back called me back. My JC virus testing was negative! That means at least for now, I don't really have a risk for PML when I start Tysabri. There may be one, but it's very small. I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist. For what I'm not sure, but she just want me checked before I start the Tysabri. I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my turn to make dinner (spaghetti) but I really just do not feel like making it. Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti. Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's band car wash. Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list. This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill). This next month I get some extra as part of my SSI back payment, so I'm going to get him his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month. We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays. Despite the pain I'm in right now, I'm in a decent mood, probably because of the " the phone call " , lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily. Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours. It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time! But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so. I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime. Wow, my good mood has really got me rambling. How are all of you?Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2011 Report Share Posted June 25, 2011 lol Tina, you do sound wonderful~ You are on copaxone? with daily shots I couldn't remember but figure perhaps. You also mentioned dermatologist...why curiously I ask because I believe the copaxone is causing me to have pimple breakouts all on my chest and face. I don't have 'hives' or a rash per se, think they're just pimples like I'm going through puberty for crying out loud. Not sure if I should give up just because of that but gosh that is a big ding not in it's favor IMO. This is my third month almost done, am figuring I should stick it out 6 mo at least. sigh. Hard to motivate to medicate when the symptoms of ms are not happening and the side effects are. So pleased that the med. office returned your call, sounds like you're making some progress finally. My daughter's still hasn't called back about getting the appropriate referral since the one they gave her for counseling is for pediatrics and she's 23! grief what are they thinking?Deesw IllinoisTo: mserslife <mserslife >Sent: Fri, June 24, 2011 5:01:17 PMSubject: My own check in I got the greatest news by phone today, just a little bit ago. The doctor's office that I was having a hard time getting the nurse to call me back called me back. My JC virus testing was negative! That means at least for now, I don't really have a risk for PML when I start Tysabri. There may be one, but it's very small. I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist. For what I'm not sure, but she just want me checked before I start the Tysabri. I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my turn to make dinner (spaghetti) but I really just do not feel like making it. Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti. Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's band car wash. Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list. This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill). This next month I get some extra as part of my SSI back payment, so I'm going to get him his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month. We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays. Despite the pain I'm in right now, I'm in a decent mood, probably because of the "the phone call", lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily. Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours. It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time! But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so. I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime. Wow, my good mood has really got me rambling. How are all of you?Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2011 Report Share Posted June 25, 2011 what is the difference with the ophthalmologist vs ophthalmologist?To: MSersLife Sent: Fri, June 24, 2011 6:28:34 PMSubject: Re: My own check in Well, I found out that my current eye doctor is an optometrist, not an ophthalmologist, so Monday I'm gong to be making some phone calls looking for one in the area that takes my Medicaid. I could have sworn that when I got my eyes checked last time I asked if they were, and was told yes (I wanted to be seen by an ophthalmologist because of the MS) but I just checked their website and they are all optometrists. I'm going to call tomorrow and double check, simply because it's so easy to get in with them. If they aren't, that's a little worrisome, because I've never in three years of having MS, had an exam with an ophthalmologist. Glad I could help you feel better! Tina Excellent news on your negative test!!! I'm glad you will get a chance at Tysabri. I wonder what the reason is for the dermatologist and ophthalmologist? If you find out please let me know. I'm curious. I enjoyed your long chatty update, Tina. You sound really upbeat and that is kinda infectious. I feel better already:)hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Fri, June 24, 2011 3:01:17 PMSubject: My own check in I got the greatest news by phone today, just a little bit ago. The doctor's office that I was having a hard time getting the nurse to call me back called me back. My JC virus testing was negative! That means at least for now, I don't really have a risk for PML when I start Tysabri. There may be one, but it's very small. I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist. For what I'm not sure, but she just want me checked before I start the Tysabri. I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my turn to make dinner (spaghetti) but I really just do not feel like making it. Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti. Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's band car wash. Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list. This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill). This next month I get some extra as part of my SSI back payment, so I'm going to get him his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month. We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays. Despite the pain I'm in right now, I'm in a decent mood, probably because of the "the phone call", lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily. Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours. It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time! But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so. I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime. Wow, my good mood has really got me rambling. How are all of you?Tina Quote Link to comment Share on other sites More sharing options...
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