Teri, eye docs.... Re: My own check in

[Guest guest]

I have a really good opthamologist--wish I could share:) Well, I could share but you would have to come to Arizona. lol Last summer I started having eye pain. I called it "eye ball pain" and thought it was from cataracts. Then n told me there isn't supposed to be pain with cataracts. In September the pain got pretty bad and I was seeing flashing lights, especially in the dark. I went to my eye doc and was diagnosed with my first optic neuritis attack. My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS. I had never heard that before. Since then I have almost always had that feeling of ON. When I'm tired

it's worse. Anyway, that's not what you were talking about! rofl SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, June 24, 2011 4:28:34 PMSubject: Re: My own check in

Well, I found out that my current eye doctor is an optometrist, not an ophthalmologist, so Monday I'm gong to be making some phone calls looking for one in the area that takes my Medicaid. I could have sworn that when I got my eyes checked last time I asked if they were, and was told yes (I wanted to be seen by an ophthalmologist because of the MS) but I just checked their website and they are all optometrists. I'm going to call tomorrow and double check, simply because it's so easy to get in with them. If they aren't, that's a little worrisome, because I've never in three years of having MS, had an exam with an ophthalmologist. Glad I could help you feel better!

Tina

Excellent news on your negative test!!! I'm glad you will get a chance at Tysabri. I wonder what the reason is for the dermatologist and ophthalmologist? If you find out please let me know. I'm curious.

I enjoyed your long chatty update, Tina. You sound really upbeat and that is kinda infectious. I feel better already:)hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: mserslife <mserslife >

Sent: Fri, June 24, 2011 3:01:17 PMSubject: My own check in

I got the greatest news by phone today, just a little bit ago. The doctor's office that I was having a hard time getting the nurse to call me back called me back. My JC virus testing was negative! That means at least for now, I don't really have a risk for PML when I start Tysabri. There may be one, but it's very small. I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist. For what I'm not sure, but she just want me checked before I start the Tysabri.

I'm a bit stiff today, and nerve pain has kind of ratcheted up. It's my turn to make dinner (spaghetti) but I really just do not feel like making it. Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti. Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's band car wash. Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list. This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill). This next month I get some extra as part of my SSI back payment, so I'm going to get him

his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month. We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays.

Despite the pain I'm in right now, I'm in a decent mood, probably because of the "the phone call", lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily.

Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours. It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time! But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so. I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime.

Wow, my good mood has really got me rambling. How are all of you?Tina

[Guest guest]

You know, I've had a couple of episodes that I thought were, but the optometrist told me it sinuses when I KNEW I didn't have a sinus problem.  Tina

 

I have a really good opthamologist--wish I could share:)  Well, I could share but you would have to come to Arizona.   lol  Last summer I started having eye pain.  I called it " eye ball pain " and thought it was from cataracts.  Then n told me there isn't supposed to be pain with cataracts.  In September the pain got pretty bad and I was seeing flashing lights, especially in the dark.  I went to my eye doc and was diagnosed with my first optic neuritis attack.  My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS.  I had never heard that before.  Since then I have almost always had that feeling of ON.  When I'm tired

it's worse.  Anyway, that's not what you were talking about!  rofl 

[Guest guest]

I have interpreted my eye pain with allergies as it's not often and the headache that accompanies them is incredible~ If I push on the back of the neck in pressure points it can be so uncomfortable that I almost get 'sick'. I do hope it is just that, don't care to have ON thank you~ dear oh dear...Deesw ILTo: MSersLife Sent: Fri, June 24, 2011 11:56:17 PMSubject: Re: Teri, eye docs.... Re: My own check in

You know, I've had a couple of episodes that I thought were, but the optometrist told me it sinuses when I KNEW I didn't have a sinus problem. Tina

I have a really good opthamologist--wish I could share:) Well, I could share but you would have to come to Arizona. lol Last summer I started having eye pain. I called it "eye ball pain" and thought it was from cataracts. Then n told me there isn't supposed to be pain with cataracts. In September the pain got pretty bad and I was seeing flashing lights, especially in the dark. I went to my eye doc and was diagnosed with my first optic neuritis attack. My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS. I had never heard that before. Since then I have almost always had that feeling of ON. When I'm tired

it's worse. Anyway, that's not what you were talking about! rofl

[Guest guest]

I'm glad you are going to an ophthalmologist then, Tina. What were your episodes like?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, June 24, 2011 9:56:17 PMSubject: Re: Teri, eye docs.... Re: My own check in

You know, I've had a couple of episodes that I thought were, but the optometrist told me it sinuses when I KNEW I didn't have a sinus problem. Tina

I have a really good opthamologist--wish I could share:) Well, I could share but you would have to come to Arizona. lol Last summer I started having eye pain. I called it "eye ball pain" and thought it was from cataracts. Then n told me there isn't supposed to be pain with cataracts. In September the pain got pretty bad and I was seeing flashing lights, especially in the dark. I went to my eye doc and was diagnosed with my first optic neuritis attack. My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS. I had never heard that before. Since then I have almost always had that feeling of ON. When I'm tired

it's worse. Anyway, that's not what you were talking about! rofl

[Guest guest]

Just massive pain in my eyes.  I know one episode was when I had a flare, and that was the symptom that lasted longest, and why I ended up on oral steroids.  I can remember going Christmas shopping with my mother and just being wiped out.

Tina

 

I'm glad you are going to an ophthalmologist then, Tina.  What were your episodes like?hugs 

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: MSersLife

Sent: Fri, June 24, 2011 9:56:17 PMSubject: Re: Teri, eye docs.... Re: My own check in

You know, I've had a couple of episodes that I thought were, but the optometrist told me it sinuses when I KNEW I didn't have a sinus problem.  Tina

 

I have a really good opthamologist--wish I could share:)  Well, I could share but you would have to come to Arizona.   lol  Last summer I started having eye pain.  I called it " eye ball pain " and thought it was from cataracts.  Then n told me there isn't supposed to be pain with cataracts.  In September the pain got pretty bad and I was seeing flashing lights, especially in the dark.  I went to my eye doc and was diagnosed with my first optic neuritis attack.  My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS.  I had never heard that before.  Since then I have almost always had that feeling of ON.  When I'm tired

it's worse.  Anyway, that's not what you were talking about!  rofl 

[Guest guest]

It does sound like optic neuritis. It got better with the steroids?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sat, June 25, 2011 1:17:14 PMSubject: Re: Teri, eye docs.... Re: My own check in

Just massive pain in my eyes. I know one episode was when I had a flare, and that was the symptom that lasted longest, and why I ended up on oral steroids. I can remember going Christmas shopping with my mother and just being wiped out.

Tina

I'm glad you are going to an ophthalmologist then, Tina. What were your episodes like?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife

Sent: Fri, June 24, 2011 9:56:17 PMSubject: Re: Teri, eye docs.... Re: My own check in

You know, I've had a couple of episodes that I thought were, but the optometrist told me it sinuses when I KNEW I didn't have a sinus problem. Tina

I have a really good opthamologist--wish I could share:) Well, I could share but you would have to come to Arizona. lol Last summer I started having eye pain. I called it "eye ball pain" and thought it was from cataracts. Then n told me there isn't supposed to be pain with cataracts. In September the pain got pretty bad and I was seeing flashing lights, especially in the dark. I went to my eye doc and was diagnosed with my first optic neuritis attack. My doc showed me some info he had in one of his 'doctor books' saying the majority of MSers will have an optic neuritis attack in the first 15 years after diagnosis with MS. I had never heard that before. Since then I have almost always had that feeling of ON. When I'm tired

it's worse. Anyway, that's not what you were talking about! rofl

[Guest guest]

It took some time, but yes it did.Tina

 

It does sound like optic neuritis.  It got better with the steroids?hugs 

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.