My own check in

[Guest guest]

I got the greatest news by phone today, just a little bit ago.  The doctor's office that I was having a hard time getting the nurse to call me back called me back.  My JC virus testing was negative!  That means at least for now, I don't really have a risk for PML when I start Tysabri.  There may be one, but it's very small.  I have an appointment with her on July 13, and she wants me to get ophthalmologist checked and checked by a dermatologist.  For what I'm not sure, but she just want me checked before I start the Tysabri. 

I'm a bit stiff today, and nerve pain has kind of ratcheted up.  It's my turn to make dinner (spaghetti) but I really just do not feel like making it.  Well, no scratch that - I talked to hubby and since neither one of us can claim credit for fixing dinner last night (it was just a stick it in the oven thing, I put it in, he pulled it out) he's fixing the spaghetti.  Hopefully I'll feel better and be able to fix whatever tomorrow night - grocery store run needs done tomorrow after the oldest's  band car wash.  Lately I've been sending hubby by himself, and he prefers it that way, but he doesn't always get the extras on the list.  This month we've been careful with our money (he wouldn't even let me get him a father's day present), so we actually have some extra, although gas/electric still has to be paid (it's a combined bill).  This next month I get some extra as part of my SSI back payment, so I'm going to get him his father's day gift with it, and since we have the extra, it's going to a few things - that will also make up for the $15 anniversary gift I was only allowed to give him last month.  We are also going to keep about half of it as a cushion, since my new psychiatrist, new counselor, and new pcp are all through Medicare, and don't take Medicaid, which means I'm responsible for the copays. 

Despite the pain I'm in right now, I'm in a decent mood, probably because of the " the phone call " , lol, although I have a little anxiety about starting Tysabri - the whole infusion process, but I will be VERY glad not to have to give myself injections daily. 

Yesterday/last night I had my weekly chat with my friends (2 from Norway, one from Mesa, Arizona - she sees the smoke from the fires, but that's about it - and one from Michigan) and that went for several hours.  It's a good thing my Norwegian friends are night owls, because our conversations generally start at 10:30 pm Norway time!  But their whole sleeping schedule is off by several hours - they generally go to bed at 5 am or so.  I go to bed late, but never that late, it would screw my med schedule up too badly, since I have meds I have to take at bedtime. 

Wow, my good mood has really got me rambling.  How are all of you?Tina