Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Dear ,We are all anxiously waiting to hear from athan !!!Thank you for emailing us.Give him all our best !LeeHe asked me to send this update to his support group. Please keep him in your thoughts and/or prayers this week! He has done really well but it is only the first day. We, his family, appreciate your support of him through the years. He will probably type the next update himself, as soon as he is able to get on a computer. Blessings, (for athan)_ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Yeah! Fantastic news...We'll keep prayin'!! Deb in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 : Continued good news. Give athan our best. Praise! dee wife of Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Great News!!! Thanks so much for updating us. Just reading the post brought tears to my eyes. Way to go athan! Joanne (mom of Todd) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Dear athan, Congratulations on your NEW LIFE. Every day will be better than you can imagine. Just relax and enjoy the ride. Love, Ali Save Life - Be A Live Donor and An Organ and Tissue DonorAli Lingerfelt-Tait180 Blackberry Inn Rd.Weaverville, N.C. 28787www.caringbridge.compassword - alilingerfelttaitalso check out :www.//health.groups.yahoo.com/group/Livertx-PSC/It's a new sister site from the PSC Support Group that is for transplant issues.See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 athan, Such great news. It's an unbelievable feeling getting a new liver and a new life. If you're anything like me, you will be very emotional for the next few weeks / months. I'm sure the procedure has a lot to do with it, but also the hope of great things to come. Waking up to the new liver, also means the fear of colangiocarcinoma is gone. Recover well. I don't know what other centers do, but the IU Med. Center in Indianapolis keeps the facia open but just closes up the skin. After a few days, they go in for a return visit to close up the muscles. If they do that, try to get the muscles closed up sooner rather than later. I was open for 4-5 days. That meant a lot of time for the muscles to retract. It sure hurt after the second procedure. Indy also administered Thymoglobulin in 3 regiments after a day of letting the body attack the liver. This let the immune system think it did it's job before the " Thymo " kills off all the T-Cells. I had a sever case of the chills, shaking pretty hard, but meds calmed me down right away. Blessings!!! Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Thanks for writing back. My husband didn't have any of the swelling post transplant. That was why I was asking about them leaving the muscle facia open. It just seems that the risk of infection would be greater doing this type of procedure. Thanks Again Tina Re: athan 's transplant> > athan,> > Such great news. It's an unbelievable feeling getting a new liver > and a new life. If you're anything like me, you will be very > emotional for the next few weeks / months. I'm sure the procedure > has a lot to do with it, but also the hope of great things to come. > Waking up to the new liver, also means the fear of colangiocarcinoma > is gone. Recover well. > > I don't know what other centers do, but the IU Med. Center in > Indianapolis keeps the facia open but just closes up the skin. After > a few days, they go in for a return visit to close up the muscles. > If they do that, try to get the muscles closed up sooner rather than > later. I was open for 4-5 days. That meant a lot of time for the > muscles to retract. It sure hurt after the second procedure.> > Indy also administered Thymoglobulin in 3 regiments after a day of > letting the body attack the liver. This let the immune system think > it did it's job before the "Thymo" kills off all the T-Cells.> > I had a sever case of the chills, shaking pretty hard, but meds > calmed me down right away.> > Blessings!!!> > Dan> > > > > ____________ _________ _________ _________ _________ __> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Thanks for writing back. My husband didn't have any of the swelling post transplant. That was why I was asking about them leaving the muscle facia open. It just seems that the risk of infection would be greater doing this type of procedure. Thanks Again Tina Re: athan 's transplant> > athan,> > Such great news. It's an unbelievable feeling getting a new liver > and a new life. If you're anything like me, you will be very > emotional for the next few weeks / months. I'm sure the procedure > has a lot to do with it, but also the hope of great things to come. > Waking up to the new liver, also means the fear of colangiocarcinoma > is gone. Recover well. > > I don't know what other centers do, but the IU Med. Center in > Indianapolis keeps the facia open but just closes up the skin. After > a few days, they go in for a return visit to close up the muscles. > If they do that, try to get the muscles closed up sooner rather than > later. I was open for 4-5 days. That meant a lot of time for the > muscles to retract. It sure hurt after the second procedure.> > Indy also administered Thymoglobulin in 3 regiments after a day of > letting the body attack the liver. This let the immune system think > it did it's job before the "Thymo" kills off all the T-Cells.> > I had a sever case of the chills, shaking pretty hard, but meds > calmed me down right away.> > Blessings!!!> > Dan> > > > > ____________ _________ _________ _________ _________ __> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2007 Report Share Posted May 2, 2007 Thanks for writing back. My husband didn't have any of the swelling post transplant. That was why I was asking about them leaving the muscle facia open. It just seems that the risk of infection would be greater doing this type of procedure. Thanks Again Tina Re: athan 's transplant> > athan,> > Such great news. It's an unbelievable feeling getting a new liver > and a new life. If you're anything like me, you will be very > emotional for the next few weeks / months. I'm sure the procedure > has a lot to do with it, but also the hope of great things to come. > Waking up to the new liver, also means the fear of colangiocarcinoma > is gone. Recover well. > > I don't know what other centers do, but the IU Med. Center in > Indianapolis keeps the facia open but just closes up the skin. After > a few days, they go in for a return visit to close up the muscles. > If they do that, try to get the muscles closed up sooner rather than > later. I was open for 4-5 days. That meant a lot of time for the > muscles to retract. It sure hurt after the second procedure.> > Indy also administered Thymoglobulin in 3 regiments after a day of > letting the body attack the liver. This let the immune system think > it did it's job before the "Thymo" kills off all the T-Cells.> > I had a sever case of the chills, shaking pretty hard, but meds > calmed me down right away.> > Blessings!!!> > Dan> > > > > ____________ _________ _________ _________ _________ __> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Tina, I don't know if I had any swelling or not. There is no increased risk of infection because the skin is sewn up. Looking at me you wouldn't have known the muscles weren't tied back together. After a couple of days, though, my back hurt because it was doing all the work of supporting my torso. This is just a practice to minimize the trauma on the body. Dan > > > > Dan, > > > > Did they give you a reason why they did your operation that way. > Did you have complications of some sort that caused them to do this > type of operation where they go back in to close up the muscles. My > husband had his transplant at UC and they never > > did this to him. I do know that they did this to another patient > where they didn't close him up for a week or so because of > complications. I can't remember exactly what the complications were > but, just curious why they would do that? Thanks Tina > > > > > > Re: athan 's transplant > > > > athan, > > > > Such great news. It's an unbelievable feeling getting a new liver > > and a new life. If you're anything like me, you will be very > > emotional for the next few weeks / months. I'm sure the procedure > > has a lot to do with it, but also the hope of great things to come. > > Waking up to the new liver, also means the fear of > colangiocarcinoma > > is gone. Recover well. > > > > I don't know what other centers do, but the IU Med. Center in > > Indianapolis keeps the facia open but just closes up the skin. > After > > a few days, they go in for a return visit to close up the muscles. > > If they do that, try to get the muscles closed up sooner rather > than > > later. I was open for 4-5 days. That meant a lot of time for the > > muscles to retract. It sure hurt after the second procedure. > > > > Indy also administered Thymoglobulin in 3 regiments after a day of > > letting the body attack the liver. This let the immune system think > > it did it's job before the " Thymo " kills off all the T-Cells. > > > > I had a sever case of the chills, shaking pretty hard, but meds > > calmed me down right away. > > > > Blessings!!! > > > > Dan > > > > > > > > > > ____________ _________ _________ _________ _________ __ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Tina, I don't know if I had any swelling or not. There is no increased risk of infection because the skin is sewn up. Looking at me you wouldn't have known the muscles weren't tied back together. After a couple of days, though, my back hurt because it was doing all the work of supporting my torso. This is just a practice to minimize the trauma on the body. Dan > > > > Dan, > > > > Did they give you a reason why they did your operation that way. > Did you have complications of some sort that caused them to do this > type of operation where they go back in to close up the muscles. My > husband had his transplant at UC and they never > > did this to him. I do know that they did this to another patient > where they didn't close him up for a week or so because of > complications. I can't remember exactly what the complications were > but, just curious why they would do that? Thanks Tina > > > > > > Re: athan 's transplant > > > > athan, > > > > Such great news. It's an unbelievable feeling getting a new liver > > and a new life. If you're anything like me, you will be very > > emotional for the next few weeks / months. I'm sure the procedure > > has a lot to do with it, but also the hope of great things to come. > > Waking up to the new liver, also means the fear of > colangiocarcinoma > > is gone. Recover well. > > > > I don't know what other centers do, but the IU Med. Center in > > Indianapolis keeps the facia open but just closes up the skin. > After > > a few days, they go in for a return visit to close up the muscles. > > If they do that, try to get the muscles closed up sooner rather > than > > later. I was open for 4-5 days. That meant a lot of time for the > > muscles to retract. It sure hurt after the second procedure. > > > > Indy also administered Thymoglobulin in 3 regiments after a day of > > letting the body attack the liver. This let the immune system think > > it did it's job before the " Thymo " kills off all the T-Cells. > > > > I had a sever case of the chills, shaking pretty hard, but meds > > calmed me down right away. > > > > Blessings!!! > > > > Dan > > > > > > > > > > ____________ _________ _________ _________ _________ __ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Tina, I don't know if I had any swelling or not. There is no increased risk of infection because the skin is sewn up. Looking at me you wouldn't have known the muscles weren't tied back together. After a couple of days, though, my back hurt because it was doing all the work of supporting my torso. This is just a practice to minimize the trauma on the body. Dan > > > > Dan, > > > > Did they give you a reason why they did your operation that way. > Did you have complications of some sort that caused them to do this > type of operation where they go back in to close up the muscles. My > husband had his transplant at UC and they never > > did this to him. I do know that they did this to another patient > where they didn't close him up for a week or so because of > complications. I can't remember exactly what the complications were > but, just curious why they would do that? Thanks Tina > > > > > > Re: athan 's transplant > > > > athan, > > > > Such great news. It's an unbelievable feeling getting a new liver > > and a new life. If you're anything like me, you will be very > > emotional for the next few weeks / months. I'm sure the procedure > > has a lot to do with it, but also the hope of great things to come. > > Waking up to the new liver, also means the fear of > colangiocarcinoma > > is gone. Recover well. > > > > I don't know what other centers do, but the IU Med. Center in > > Indianapolis keeps the facia open but just closes up the skin. > After > > a few days, they go in for a return visit to close up the muscles. > > If they do that, try to get the muscles closed up sooner rather > than > > later. I was open for 4-5 days. That meant a lot of time for the > > muscles to retract. It sure hurt after the second procedure. > > > > Indy also administered Thymoglobulin in 3 regiments after a day of > > letting the body attack the liver. This let the immune system think > > it did it's job before the " Thymo " kills off all the T-Cells. > > > > I had a sever case of the chills, shaking pretty hard, but meds > > calmed me down right away. > > > > Blessings!!! > > > > Dan > > > > > > > > > > ____________ _________ _________ _________ _________ __ > > Quote Link to comment Share on other sites More sharing options...
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