Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 OMG so true.. That's a great line Its funny too how many of your responses are just like ones I have had to use with my sons autism diagnoses -- Re: Family & Fibro Aimee: I laughed out loud when I read your " you don't look diabetic. " What a perfect response. I pretty much avoid talking about my FMS with any family - many of my family members don't know what my dx is (I've been dx'd since 2000) because frankly I don't want to have to explain or hear any nonsense. Try not to let the family stuff get you down - as you know stress is no good for us - I have this t-shirt that says " I'd love to help you out, but I can't fix stupid. " That's what I tell myself when someone says something ignorant about FMS. They are stupid, and I can't fix that so I don't even try. Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 > > I told my sister about my fibro... she said I didn't look sick... I told her in response that she > didn't look diabetic. (this was a few weeks ago)... > > Well, I was having a bad flare up that had me in bed for several days (last week). She called > during this time to chat, she asked how I was doing so I told her.... big mistake... > > she called me a " drama queen " and said it was all in my head. I was royally ticked off with > her, still am. I told her to do some research on the disease herself - go to webmd or perform > a google search, or better yet go to the firbo.org website. She wasn't the least bit receptive > to the comments. got off the phone with her as quickly as possible and haven't heard from > her since. > > It's frustrating trying to deal with family and the disease. This Easter Sunday isn't going to be > easy as my sister will be there as well as my aunts, uncles, father and cousins. I am expected > to be there, yet, I am leery. Trying not to get stressed out about this weekend (a trigger for > me). I see my family 3 or 4 times a year (at most) and it's not like we live far apart. > > Any suggestions???? Please post responses for all to see, as I am sure I'm not the only one > stressed about this weekend. > Thanks, Aimee > Aimee, i can understand deeply were you are coming from, it will be 2 yrs ago in Nov when my grand daughter was born, take in mind they all ready had a 1yr old, so after the baby was born, I went home at 4 am went to bed, got up at 8 when my daughter brought the 1 yr old home for me to take over, I had her all day long, and all night long, I think i got about 8 hrs of sleep in a 24 hr period, well...... my twin sister calls the day mom and baby came home from the hospital, to ask me if i was going to make it to her grandsons b-day party, when i told her " NO " because i hadn't gotten a whole lot of sleep, and i had a migraine, she then made the statement " I just want to thank you, for every time you don't want to do anything, you use your fibro for an excuse! " at that time i hung up on her, as i didn't need to hear the comments, i didn't speak to her for a little less then a month, when we ran into one another at my dads house at Christmas,well needless to say, we still are not real close any more, thank god i have another sister whom has the same disease, and can understand where I'm coming from! it really hurts to think that " our " own family members don't care, and won't even take the time to understand our " disease " good luck and keep us posted on how your Easter goes! Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Well if it was me, I would go and if I started feeling stressed or had someone make a derogatory comment I would tell them to their face that I do not appreciate their attitude towards my illness and when they decide they can accept my illness as real then they can call me. Then I'd turn around, leave and go home. I believe in being honest with family. If I have one that doesn't believe me (like my brother in law) then I told him, fine, you don't have to believe me BUT you are NOT allowed to make negative comments to me about it. And the few times he did pop off and said something I did not appreciate I flat out told him what I thought about it. We have come to a don't ask-don't tell kind of agreement. The subject really does not come up often at family gatherings. I have never been one to discuss my illnesses at family events or even in length with family so that has probably kept more problems at bay. I think that when family does't accept the illness you just have to stand up for yourself and even though you can not make them understand and accept it, you CAN make them agree to the " we will agree to disagree " type arrangement, if that makes sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Aimee: I laughed out loud when I read your " you don't look diabetic. " What a perfect response. I pretty much avoid talking about my FMS with any family - many of my family members don't know what my dx is (I've been dx'd since 2000) because frankly I don't want to have to explain or hear any nonsense. Try not to let the family stuff get you down - as you know stress is no good for us - I have this t-shirt that says " I'd love to help you out, but I can't fix stupid. " That's what I tell myself when someone says something ignorant about FMS. They are stupid, and I can't fix that so I don't even try. Blessings, Quote Link to comment Share on other sites More sharing options...
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