Re: My very unusual situation-Kristy

[Guest guest]

Kristy, no need to explain...if you don't want to 'try' PT for whatever reason(s) you don't have to. I was just throwing it out there. I think 'most' of us are pretty in tune with our bodies by now...pain has a way 'making' you pay attention! *sigh* This is just my opinion here, but I think of PT's as 'doctors' of the muscles. It's amazing to me that medical docs (especially ob/gyn's) 'never' check the status of a woman's pelvic floor muscles. I mean, all of their work is directly related to the pelvic floor, it's a shame the muscles are ignored! Unfortunately there are not a whole lot of PT's that specialize in Pelvic floor dysfunction, but the word is spreading and more are getting trained. I will no longer 'stay' in a medical box. I went last week to a Chiropractor for the first time in my life. He uncovered a lot that I'm shocked no doctor ever has so far!!! So, I guess the

moral of this story is if you have access to a good PT...don't rule it out without an evaluation, but if you don't think it's right for you, no problem.... Hugs, Chelle

[Guest guest]

Chelle,

Yes, I needed to explain because you think that it's that " I

don't want to " and that's not it at all. Even if I thought I

had a problem with my pelvic floor muscles I can't because I'm

very limited as to what I can do and how I can do it if I can do

some of the things.

But in my case, the issue of pelvic floor muscle problems and

connecting to my vulvodynia does not apply but based on

something Molly said (which is why I'm asking her if she knows

how a surgery to the labia minora would affect the pelvic floor

muscles when all I had done was remove excess skin) I may have

figured out something in relation to my bowel. But in order to

find out if I'm right in my thinking I have to tend to a

hemorrhoid first.

Depending on what that turns out it may explain some things I

have going on with my bowel.

But see, you helped me by making me aware of what laparoscopy

can do for some women if it happens again and again because now

I have a question I'm going to ask one of the endo lists I'm on.

Now that I know that a physiatrist might be able to help me

based on the discussion with my rheumatologist who knows. I

just have to make sure that whatever they do for me that they

have to be very gentle and not make my pain problems worse,

especially with my fibro.

People who have fibro have to be handled very gently because of

the things that fibro can do when the person is treated roughly.

That info you gave me about what laparoscopies can do to some

women is very helpful and will pass that info on too. It ties

in with what another girl I know has said she has seen among

some other women with endo, but we have a lot of new people on

that list that they may not be aware of this info.

Thanks for the info. It may help someone else.

May you continue to do well too hon.

Kristy

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[Guest guest]

Kristy, believe it or not, stubbing your toe could be the straw that broke the pelvic floor's back. It doesn't need to be much. If you have been holding your PF tightly all your life which you probably have then it just takes one day too many. We all have our threshold and yours may well have been toppled when you had that surgery. There also may have been a nerve ending cut which set off your PF muscles to contract more than they already were. love, MollyKristy Sokoloski wrote: Chelle,Yes, I needed to explain because you think that it's that "Idon't want to" and that's not it at all. Even if I thought Ihad a problem with my pelvic floor muscles I can't because I'mvery limited as to what I can do and how I can do it if I can dosome of the things.But in my case, the issue of pelvic floor muscle problems andconnecting to my vulvodynia does not apply but based onsomething Molly said (which is why I'm asking her if she knowshow a surgery to the labia minora would affect the pelvic floormuscles when all I had done was remove excess skin) I may havefigured out something in relation to my bowel. But in order tofind out if I'm right in my thinking I have to tend to ahemorrhoid first.Depending on what that turns out it may explain some things Ihave going on with my bowel.But see, you helped me by making me aware

of what laparoscopycan do for some women if it happens again and again because nowI have a question I'm going to ask one of the endo lists I'm on.Now that I know that a physiatrist might be able to help mebased on the discussion with my rheumatologist who knows. Ijust have to make sure that whatever they do for me that theyhave to be very gentle and not make my pain problems worse,especially with my fibro.People who have fibro have to be handled very gently because ofthe things that fibro can do when the person is treated roughly.That info you gave me about what laparoscopies can do to somewomen is very helpful and will pass that info on too. It tiesin with what another girl I know has said she has seen amongsome other women with endo, but we have a lot of new people onthat list that they may not be aware of this info.Thanks for the info. It may help someone else.May you continue to do well

too hon.Kristy __________________________________________________

[Guest guest]

Kristy Sokoloski sokokl@... >>>>>>>>>Even if I thought Ihad a problem with my pelvic floor muscles I can't because I'mvery limited as to what I can do and how I can do it if I can dosome of the things. Kristy, I can see where the Fibro might create a challenge for you. And of course you have to weigh everything out, because only you can decide what's good to try and what's not. I'm just trying to pass along info that I've learned, hoping it might be of benefit to you. Here is a thought: does your ob/gyn have a biofeedback machine in her office? Maybe you could try getting a reading with one of those. It cannot definitively diagnosis a person with pelvic floor dysfunction, but in your case it might be worth a

shot. Molly used a home biofeedback machine in addition to the home PT in order to 'teach' her muscles how to relax. Hugs, Chelle