Re: - more Venofer questions

[Guest guest]

I was taking a b complex 100 daily for years, so all my b levels were within

normal ranges at the time of the infusion.

My infusion was a one time thing. They planned on infusing 500 mg. They

did the test dose and I seemed to tolerate it fine so they proceeded with

the infusion. I fell asleep and in about am hour I awoke to a swollen,

blotchy body and I could not catch my breath. I hit the nurses button and

passed out. When I woke up, there were people all around me, like 7-10

nurses & 3 doctors. They said I had an allergic reaction to the iron and

they had administered 500 mg benadryl. After it was all over, I still have

about 200 mg. lft in the bag, so we figure I actually got a dose ofabout 300

mg. I was in the hospital for something else and the anemia was found

while testing. Because of my reaction, we didnt discuss any future

infusions.

My ferritin was 7 at the time of the infusion. 2 months later we tested and

it was 54. I had no iron since the infusion at all, so I know the raise was

only from that big dose. I hope I answered your questions ok and I hope you

are able to find what will work for you.

Blessings,

- more Venofer questions

> >

>> , With a ferritin of 4, I would not leave her office unless she

>> ordered an infusion. You have to be feeling horrible.

>

> Also, if you are having heavy periods, you

>> most likely need a regualar prescription dose of iron even after the

>> infusion so you dont drop again.

>

>

> Yes, I feel pretty yucky. Extremely tired and foggy, yet I don't sleep

> well.

>

> I do have extremely heavy periods - according to the research I've done

> online, it's technically hemorraghing at times. Haven't gone to the

> ER, but all the docs so far (even the good ones) haven't picked up on

> the anemia.

>

> I don't tolerate oral iron supps at all. I have tried every single

> type out there. The one you are on is a chelated iron, supposedly one

> of the most gentle, but it gave me a migraine that put me in bed for

> three days. It was gentle on my stomach, though. =-)

>

> Because of my reactions to the supps, I suspect I am absorbing

> somewhat, but then my body isn't doing what it needs to with the iron.

> I also can't get enough into circulation due to the side effects.

>

> I expect I'll at least get a headache from the infusions, but I'll be

> prepared with some ibuprofen and sleep meds.

>

> I have a couple of questions: You mentioned your level went up fairly

> quickly - were you scheduled for the five infusions over two weeks or

> the more intense two infusions? Also, were you taking B vitamins at

> the time?

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