Re: Lots about Ankylosing Spondylitis (was my success story)

[Guest guest]

Hi ,

Yes i'm glad i found someone with the same problems as well:)

I'll keep it short now but this is my history;

My cracking joints first dissapeared " completely " 1.5 years ago by

drinking drinking lots of water for just 2 days and cutting out

sugars.This only lasted for a few weeks though. I went to an

alternative practitioner and he told me to take more magnesium and

MSM. This didnt do alot for me and i got weaker although i didnt

really feel worse because of the MSM.

Later i found out that Glucosamine helped my joints alot. Are you

taking this? I took melatomin as well, not for sleeping but it also

helped repair the joints. I'm still taking both.

There was no real change until i got involved in real health food

without the transfats etc etc and it helped enormously for atleast

half a year. My health was like never before and i felt great.

I was also still taking magnesium. This probably was because all these

fruits and vegetables kick started my heath and now was trying to get

the mercury out. Anyway after a while the stiffnes and weakness came

back and tre joint really were locking together now. I also had small

irritations in the jaw. Thats when i bought the A.Cutlet book.

I had a hair test done and even before i had the results i had my

amalgams removed, i was sure because i had the symptoms.

My hair test is number 80 if you want to have a look.

Do you have a hair test to look at?

I'm going to try B12 sublingual when i get it in. What supplements

have helped you most?

I have lots more questions but i'll post them later.

Thanks,

Collin

>

> Collin,

>

> Its great to have another AS around to compare stories. Sorry that

> you have it though. Cutler says there's an 80% cure rate with

> autoimmune disease so I've had great hope. There is little in the

> archives about AS at this point.

>

>

> > Could you please tell me more about your experiences with ankylosing

> > spondylitis and how chelating effected this?

> > I havent done ALA yet, is it any different than DMSA?

> >

> > Thanks,

> >

> > COllin

> >

> Before discovering the problem with mercury, I cut out junk food and

> it nearly eliminated the pain of spondylitis. After a year of on and

> off of this diet I took out fillings and began chelating. This

> caused a massive increase in all of my symptoms. At the same time, I

> began a strict candida diet (virtually no carbs). I think the

> exposure, chelators and starting candida diet at the same time was

> hard on me.

>

> Over the past year I have been weaning off minor cheats on the diet

> and cheating less frequently. It seems that the candida finds a new

> way to survive over time. I was pain free while eating fruit, then I

> had to cut that out. A minor cheat would cause more and more pain

> and fatigue. Currently, I am having to give up coffee as it's

> causing symptoms after going 2 months without a cheat or any simple

> sugars. Sometimes I am disturbed by this trend, but the " Candida

> people " talk frequently of this happening. Enough time on the strict

> diet and you can be cured of it. I believe the difference for us is

> that by ridding ourselves of the mercury we can KEEP it gone.

>

> Also over time the location of joint pain has changed. It started 5

> years ago as slowly progressing pain in sacroiliac joints. After

> becoming excruciating, it diminished and began in lower back at

> night, forcing me to get up at about 4 am to walk it out. Next I got

> a sudden pain in one shoulder where I was diagnosed with rotator cuff

> tear. I couldn't move my shoulder at all from the pain. After 4

> days of that it disappeared almost as suddenly, then showed up in the

> other shoulder. Now it made sense- just another joint affected. Now

> with coffee it affects the balls of my feet at the metatarsotarsal

> joints. If I were to fall off the wagon, I would suddenly have hip

> and back pain again as well.

>

> ALA hasn't done much to me, but I have gone real slow after starting

> the DMSA too soon and getting so screwed up. I do know that I can't

> do ALA alone and that I can't go up to 50 mg yet. I haven't noticed

> a correlation to AS with dose changes- just anxiety, fogginess, word

> retrieval, etc.

>

> My steady improvement in all aspects I do atribute to following the

> protocol using DMSA and ALA.

>

> Feel free with other questions or comparing stories.

>

>

[Guest guest]

Hi ,

Yes i'm glad i found someone with the same problems as well:)

I'll keep it short now but this is my history;

My cracking joints first dissapeared " completely " 1.5 years ago by

drinking drinking lots of water for just 2 days and cutting out

sugars.This only lasted for a few weeks though. I went to an

alternative practitioner and he told me to take more magnesium and

MSM. This didnt do alot for me and i got weaker although i didnt

really feel worse because of the MSM.

Later i found out that Glucosamine helped my joints alot. Are you

taking this? I took melatomin as well, not for sleeping but it also

helped repair the joints. I'm still taking both.

There was no real change until i got involved in real health food

without the transfats etc etc and it helped enormously for atleast

half a year. My health was like never before and i felt great.

I was also still taking magnesium. This probably was because all these

fruits and vegetables kick started my heath and now was trying to get

the mercury out. Anyway after a while the stiffnes and weakness came

back and tre joint really were locking together now. I also had small

irritations in the jaw. Thats when i bought the A.Cutlet book.

I had a hair test done and even before i had the results i had my

amalgams removed, i was sure because i had the symptoms.

My hair test is number 80 if you want to have a look.

Do you have a hair test to look at?

I'm going to try B12 sublingual when i get it in. What supplements

have helped you most?

I have lots more questions but i'll post them later.

Thanks,

Collin

>

> Collin,

>

> Its great to have another AS around to compare stories. Sorry that

> you have it though. Cutler says there's an 80% cure rate with

> autoimmune disease so I've had great hope. There is little in the

> archives about AS at this point.

>

>

> > Could you please tell me more about your experiences with ankylosing

> > spondylitis and how chelating effected this?

> > I havent done ALA yet, is it any different than DMSA?

> >

> > Thanks,

> >

> > COllin

> >

> Before discovering the problem with mercury, I cut out junk food and

> it nearly eliminated the pain of spondylitis. After a year of on and

> off of this diet I took out fillings and began chelating. This

> caused a massive increase in all of my symptoms. At the same time, I

> began a strict candida diet (virtually no carbs). I think the

> exposure, chelators and starting candida diet at the same time was

> hard on me.

>

> Over the past year I have been weaning off minor cheats on the diet

> and cheating less frequently. It seems that the candida finds a new

> way to survive over time. I was pain free while eating fruit, then I

> had to cut that out. A minor cheat would cause more and more pain

> and fatigue. Currently, I am having to give up coffee as it's

> causing symptoms after going 2 months without a cheat or any simple

> sugars. Sometimes I am disturbed by this trend, but the " Candida

> people " talk frequently of this happening. Enough time on the strict

> diet and you can be cured of it. I believe the difference for us is

> that by ridding ourselves of the mercury we can KEEP it gone.

>

> Also over time the location of joint pain has changed. It started 5

> years ago as slowly progressing pain in sacroiliac joints. After

> becoming excruciating, it diminished and began in lower back at

> night, forcing me to get up at about 4 am to walk it out. Next I got

> a sudden pain in one shoulder where I was diagnosed with rotator cuff

> tear. I couldn't move my shoulder at all from the pain. After 4

> days of that it disappeared almost as suddenly, then showed up in the

> other shoulder. Now it made sense- just another joint affected. Now

> with coffee it affects the balls of my feet at the metatarsotarsal

> joints. If I were to fall off the wagon, I would suddenly have hip

> and back pain again as well.

>

> ALA hasn't done much to me, but I have gone real slow after starting

> the DMSA too soon and getting so screwed up. I do know that I can't

> do ALA alone and that I can't go up to 50 mg yet. I haven't noticed

> a correlation to AS with dose changes- just anxiety, fogginess, word

> retrieval, etc.

>

> My steady improvement in all aspects I do atribute to following the

> protocol using DMSA and ALA.

>

> Feel free with other questions or comparing stories.

>

>

[Guest guest]

Hi ,

Yes i'm glad i found someone with the same problems as well:)

I'll keep it short now but this is my history;

My cracking joints first dissapeared " completely " 1.5 years ago by

drinking drinking lots of water for just 2 days and cutting out

sugars.This only lasted for a few weeks though. I went to an

alternative practitioner and he told me to take more magnesium and

MSM. This didnt do alot for me and i got weaker although i didnt

really feel worse because of the MSM.

Later i found out that Glucosamine helped my joints alot. Are you

taking this? I took melatomin as well, not for sleeping but it also

helped repair the joints. I'm still taking both.

There was no real change until i got involved in real health food

without the transfats etc etc and it helped enormously for atleast

half a year. My health was like never before and i felt great.

I was also still taking magnesium. This probably was because all these

fruits and vegetables kick started my heath and now was trying to get

the mercury out. Anyway after a while the stiffnes and weakness came

back and tre joint really were locking together now. I also had small

irritations in the jaw. Thats when i bought the A.Cutlet book.

I had a hair test done and even before i had the results i had my

amalgams removed, i was sure because i had the symptoms.

My hair test is number 80 if you want to have a look.

Do you have a hair test to look at?

I'm going to try B12 sublingual when i get it in. What supplements

have helped you most?

I have lots more questions but i'll post them later.

Thanks,

Collin

>

> Collin,

>

> Its great to have another AS around to compare stories. Sorry that

> you have it though. Cutler says there's an 80% cure rate with

> autoimmune disease so I've had great hope. There is little in the

> archives about AS at this point.

>

>

> > Could you please tell me more about your experiences with ankylosing

> > spondylitis and how chelating effected this?

> > I havent done ALA yet, is it any different than DMSA?

> >

> > Thanks,

> >

> > COllin

> >

> Before discovering the problem with mercury, I cut out junk food and

> it nearly eliminated the pain of spondylitis. After a year of on and

> off of this diet I took out fillings and began chelating. This

> caused a massive increase in all of my symptoms. At the same time, I

> began a strict candida diet (virtually no carbs). I think the

> exposure, chelators and starting candida diet at the same time was

> hard on me.

>

> Over the past year I have been weaning off minor cheats on the diet

> and cheating less frequently. It seems that the candida finds a new

> way to survive over time. I was pain free while eating fruit, then I

> had to cut that out. A minor cheat would cause more and more pain

> and fatigue. Currently, I am having to give up coffee as it's

> causing symptoms after going 2 months without a cheat or any simple

> sugars. Sometimes I am disturbed by this trend, but the " Candida

> people " talk frequently of this happening. Enough time on the strict

> diet and you can be cured of it. I believe the difference for us is

> that by ridding ourselves of the mercury we can KEEP it gone.

>

> Also over time the location of joint pain has changed. It started 5

> years ago as slowly progressing pain in sacroiliac joints. After

> becoming excruciating, it diminished and began in lower back at

> night, forcing me to get up at about 4 am to walk it out. Next I got

> a sudden pain in one shoulder where I was diagnosed with rotator cuff

> tear. I couldn't move my shoulder at all from the pain. After 4

> days of that it disappeared almost as suddenly, then showed up in the

> other shoulder. Now it made sense- just another joint affected. Now

> with coffee it affects the balls of my feet at the metatarsotarsal

> joints. If I were to fall off the wagon, I would suddenly have hip

> and back pain again as well.

>

> ALA hasn't done much to me, but I have gone real slow after starting

> the DMSA too soon and getting so screwed up. I do know that I can't

> do ALA alone and that I can't go up to 50 mg yet. I haven't noticed

> a correlation to AS with dose changes- just anxiety, fogginess, word

> retrieval, etc.

>

> My steady improvement in all aspects I do atribute to following the

> protocol using DMSA and ALA.

>

> Feel free with other questions or comparing stories.

>

>

[Guest guest]

>

>

> Later i found out that Glucosamine helped my joints alot. Are you

> taking this?

()It contains glucose to feed the joints, so its problems

outweigh the benefits. I haven't tried MSM or melatonin yet.

>

> There was no real change until i got involved in real health food

> without the transfats etc etc and it helped enormously for atleast

> half a year. My health was like never before and i felt great.

> I was also still taking magnesium. This probably was because all

these

> fruits and vegetables kick started my heath and now was trying to

get

> the mercury out.

()Good nutrition certainly helps.

> I had a hair test done and even before i had the results i had my

> amalgams removed, i was sure because i had the symptoms.

> My hair test is number 80 if you want to have a look.

> Do you have a hair test to look at?

() No hair test, which I regret. I was certainly toxic due to

my exposure and I was in a big hurry to get started. I will do one

eventually to see how I am doing.

> I'm going to try B12 sublingual when i get it in. What supplements

> have helped you most?

I take B12 sublingual but it may cause me more fatigue (Probably too

high of a dose too soon. 5000mcg per day) I also take 8 to 12g vit

C daily, divided in 2 doses. Others: milk thistle,

phosphatidylserine, vinpocetine, b complex, Magnesium, 2.5 mg pred in

morning, DHEA, pregnenolone, 4,000mg vitamin D daily, sometimes

selenium.

Vitamin D did have a measurable effect early on. I have been

following the research closely about vitamin d- lots of benefits and

we don't get near enough. Conservative publishings recommend about

2,000 IU for adults. My rheumatologist is currently studying higher

doses based on some other studies. Otherwise, supplements in general

don't seem to affect me much. I just take in faith that I feel

better than I would without them.

[Guest guest]

> ()It contains glucose to feed the joints, so its problems

> outweigh the benefits. I haven't tried MSM or melatonin yet.

OOps, I meant glucose feeds the YEAST not joints. I am a believer in

glucosamine for osteoarthritis, but it feeds the source of the problem

here.

[Guest guest]

> > Later i found out that Glucosamine helped my joints alot. Are you

> > taking this?

>

> ()It contains glucose to feed the joints, so its problems

> outweigh the benefits. I haven't tried MSM or melatonin yet.

Yes its a sugar but i FEEL it working after just 1 days use.

Dont take MSM if your still mercury toxic, it's a weak chelator.

I just recently found out that Glucosamine could be working so well

because its also part sulfer that helps in te methylation cycle which

detoxes the body. Melatonin had the same effect on me te first time i

used it. Maybe it was killing some bugs and let the joints heal

better. This melatomin also has B6 though.

> > There was no real change until i got involved in real health food

> > without the transfats etc etc and it helped enormously for atleast

> > half a year. My health was like never before and i felt great.

> > I was also still taking magnesium. This probably was because all

> these

> > fruits and vegetables kick started my heath and now was trying to

> get

> > the mercury out.

>

> ()Good nutrition certainly helps.

>

> > I had a hair test done and even before i had the results i had my

> > amalgams removed, i was sure because i had the symptoms.

> > My hair test is number 80 if you want to have a look.

> > Do you have a hair test to look at?

>

> () No hair test, which I regret. I was certainly toxic due to

> my exposure and I was in a big hurry to get started. I will do one

> eventually to see how I am doing.

>

> > I'm going to try B12 sublingual when i get it in. What supplements

> > have helped you most?

>

> I take B12 sublingual but it may cause me more fatigue (Probably too

> high of a dose too soon. 5000mcg per day) I also take 8 to 12g vit

> C daily, divided in 2 doses. Others: milk thistle,

> phosphatidylserine, vinpocetine, b complex, Magnesium, 2.5 mg pred in

> morning, DHEA, pregnenolone, 4,000mg vitamin D daily, sometimes

> selenium.

I have read that B6 must also be taken along with B12 for it to have a

good effect.

>

> Vitamin D did have a measurable effect early on. I have been

> following the research closely about vitamin d- lots of benefits and

> we don't get near enough. Conservative publishings recommend about

> 2,000 IU for adults. My rheumatologist is currently studying higher

> doses based on some other studies.

Have you tried full body sunbathing to get the D's ? This should be a

much higher dosis than doing it orally.

You should read this if you havent already;

http://www.newstarget.com/rr-sunlight.html

Its a real great health info site. You will get the newsletter but you

can always unsubscribe.

Collin

[Guest guest]

Hi I have been chelating for 16 months, 70 rounds, nearly all

50ala/25dmsa. I started tolerating squashes, pumpkin, butternut after

5 months, garlic, leeks 8 months, rice 11 months and now potatos and

non gluten pasta. Still cannot tolerate gluten grains or cow based

dairy, fine with goats. Hope that maybe I get over this last hurdle

this year

Phil

>

> Collin,

>

> Its great to have another AS around to compare stories. Sorry that

> you have it though. Cutler says there's an 80% cure rate with

> autoimmune disease so I've had great hope. There is little in the

> archives about AS at this point.

>

>

> > Could you please tell me more about your experiences with

ankylosing

> > spondylitis and how chelating effected this?

> > I havent done ALA yet, is it any different than DMSA?

> >

> > Thanks,

> >

> > COllin

> >

> Before discovering the problem with mercury, I cut out junk food

and

> it nearly eliminated the pain of spondylitis. After a year of on

and

> off of this diet I took out fillings and began chelating. This

> caused a massive increase in all of my symptoms. At the same time,

I

> began a strict candida diet (virtually no carbs). I think the

> exposure, chelators and starting candida diet at the same time was

> hard on me.

>

> Over the past year I have been weaning off minor cheats on the diet

> and cheating less frequently. It seems that the candida finds a

new

> way to survive over time. I was pain free while eating fruit, then

I

> had to cut that out. A minor cheat would cause more and more pain

> and fatigue. Currently, I am having to give up coffee as it's

> causing symptoms after going 2 months without a cheat or any simple

> sugars. Sometimes I am disturbed by this trend, but the " Candida

> people " talk frequently of this happening. Enough time on the

strict

> diet and you can be cured of it. I believe the difference for us

is

> that by ridding ourselves of the mercury we can KEEP it gone.

>

> Also over time the location of joint pain has changed. It started

5

> years ago as slowly progressing pain in sacroiliac joints. After

> becoming excruciating, it diminished and began in lower back at

> night, forcing me to get up at about 4 am to walk it out. Next I

got

> a sudden pain in one shoulder where I was diagnosed with rotator

cuff

> tear. I couldn't move my shoulder at all from the pain. After 4

> days of that it disappeared almost as suddenly, then showed up in

the

> other shoulder. Now it made sense- just another joint affected.

Now

> with coffee it affects the balls of my feet at the metatarsotarsal

> joints. If I were to fall off the wagon, I would suddenly have hip

> and back pain again as well.

>

> ALA hasn't done much to me, but I have gone real slow after

starting

> the DMSA too soon and getting so screwed up. I do know that I

can't

> do ALA alone and that I can't go up to 50 mg yet. I haven't

noticed

> a correlation to AS with dose changes- just anxiety, fogginess,

word

> retrieval, etc.

>

> My steady improvement in all aspects I do atribute to following the

> protocol using DMSA and ALA.

>

> Feel free with other questions or comparing stories.

>

>

[Guest guest]

hi phil and scott

i am curious - why do you think the Me makes us sensitive to these

starchy foods?

thanks

monique

[Guest guest]

hi phil and scott

i am curious - why do you think the Me makes us sensitive to these

starchy foods?

thanks

monique

[Guest guest]

>

> hi phil and scott

>

> i am curious - why do you think the Me makes us sensitive to these

> starchy foods?

>

> thanks

> monique

>

() I think the mercury is responsible for the Candida, which

causes many of the acute symptoms. This happens through immune system

derangement and some believe that candida is used by the body to mop up

heavy metals like mercury.

[Guest guest]

>

> hi phil and scott

>

> i am curious - why do you think the Me makes us sensitive to these

> starchy foods?

>

> thanks

> monique

>

() I think the mercury is responsible for the Candida, which

causes many of the acute symptoms. This happens through immune system

derangement and some believe that candida is used by the body to mop up

heavy metals like mercury.

[Guest guest]

Personally my understanding of this is because mercury disrupts the

immune system, enzymes to digest food, metabolic pathways, liver

functions and the endocrine system which control the metabolism and

many other things. So as you remove it things just start to work again.

For me I did not tolerate many supplements to begin with and many

foods, this cleared quite quickly even though I had the issue for a

couple of yrs.

Phil

>

> hi phil and scott

>

> i am curious - why do you think the Me makes us sensitive to these

> starchy foods?

>

> thanks

> monique

>

[Guest guest]

Personally my understanding of this is because mercury disrupts the

immune system, enzymes to digest food, metabolic pathways, liver

functions and the endocrine system which control the metabolism and

many other things. So as you remove it things just start to work again.

For me I did not tolerate many supplements to begin with and many

foods, this cleared quite quickly even though I had the issue for a

couple of yrs.

Phil

>

> hi phil and scott

>

> i am curious - why do you think the Me makes us sensitive to these

> starchy foods?

>

> thanks

> monique

>