Guest guest Posted July 3, 2012 Report Share Posted July 3, 2012 The Feds are Failing the Autism Community More Info Demonstration at IACC, July 10, Wash. DC The IACC is failing the autism community. Join us in protest on July 10th!! On Tuesday, July 10th at 9am, the Interagency Autism Coordinating Committee will be holding the first meeting of the newly empaneled members. The Autism community will be showing up to let them know they have completely failed in their responsibilities. In 2006, Congress passed the Combating Autism Act, giving the federal government almost a billion dollars to find ways to prevent and treat autism. The head of NIMH, Insel, was appointed to lead the IACC in coordinating that effort. Six years and almost a billion dollars later, Insel has not only failed to produce even one medical intervention or recommendation to prevent or treat autism, the autism rate has DOUBLED on his watch. Tens of thousands of reports of improvements and recoveries via biomedical intervention have been ignored and gone uninvestigated. He broke federal committee rules and strip vaccine research out of the autism research agenda. Every year the complaints of Insel's malfeasance have become louder and louder in the autism community. His abuse of his position came to fruition this past April when he announced the new members of the IACC. The authentic autism community that is seeking to bring an end to the autism epidemic had nominated well respected researchers, doctors and advocates with impressive histories and large followings, however Insel ignored every one of the nominations, and instead seated a panel consisting of purely political appointees, four of whom publicly state that they do not believe that autism should be prevented or medically treated. That was when we reached our breaking point. A coalition of advocacy groups representing tens of thousands of families held a press conference and demanded that Insel be fired, that the current mockery of a an IACC panel be disbanded, and that HHS Secretary Kathleen Sibelius meet with leaders of the coalition to chart a path forward to actually address the autism epidemic. The only response that we received was what amounts to a form letter signed by NIH chief Francis , that was clearly written by a staffer, and that did not address any of the points made to Secretary Sibelius. We have had enough. Join us for a demonstration of our contempt for the health atrocity that is being waged on a generation of children, which is now fully enabled by the Department of Health and Human Services. July 10th, 9:00am L'Enfant Plaza Hotel 408 L'Enfant Plaza, SW Washington , DC 20024 Map and Directions We will be telling the new committee that we believe that the IACC is a farce and a fraud during their public comments portion of the meeting mid day, followed by a demonstration in front of the Department of Health and Human Services in the afternoon. We strongly encourage you to give your own public comments. The procedure is as follows: Notification of intent to present oral comments: July 3th by 5:00 p.m. Eastern Submission of written/electronic statement for oral comments: July 5th by 5:00 p.m. Eastern Submission of written comments: July 5th by 5:00 p.m. Eastern Send notifications to: Ms. Lina Office of Autism Research Coordination National Institute of Mental Health, NIH 6001 Executive Boulevard, NSC Room 6182S Rockville, land 20892-9669 Phone: E-mail: IACCPublicInquiries@... Details on the IACC meeting can be found here: http://iacc.hhs.gov/events/2012/full-committee-mtg-announcement-july10.shtml Bring your signs, your children and your righteous anger. More details coming soon. If you no longer wish to receive e-mail from us, please click here. Quote Link to comment Share on other sites More sharing options...
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