Re: Success with Derealization! / dosing after clearance

[Guest guest]

Thanks Margery, I am feeling a bit better having decreased to 75mcg. I will see if I need to drop it more. I think the other issue I am having is to much progesterone. I was using the cream 2x a day but I think I am starting to build up a fair amount since I am starting to high high symtoms. I will skip it tonight and go to once a day. Hope that helps! I keep feeling upset, anxious, weepy, tired.... I wish all the hormones were simpler!

Kitty

To: RT3_T3 Sent: Sat, June 19, 2010 2:55:08 PMSubject: Re: Success with Derealization! / dosing after clearance

Hi Kitty: I read your "not sure how to progress", I've been trying to look up the same thing. Nick's website says: "you may suddenly find resistance clearing and end up hyper with a high temperature and fast pulse. If this happens then drop your dose to nothing or maybe a quarter of what you were on and take your pulse each time you would have taken a tablet, if it's high skip it, if it's near normal then take half what you would have done normally."from:http://www.thyroid-rt3.com/dosing.htmThe rest of that page talks about the "dose finding process", including monitoring pulse & temps. This seems to be the main point, and several of Nick's posts have referred to it...to increase slowly until pulse & temps are a just little high, then decrease a little. It is a process, and other factors may affect it: when I wasn't looking (?) my body's HC requirement changed, so I'm lowering my HC dosage, and that is affecting my temps,

although not my pulse."You will be going through the dose finding process again but this time without T4 in the way so you should be able to find a stable place within a week or so at somewhere between half and 2/3 of what you were on before to feel "non-hypo". from:http://www.thyroid-rt3.com/dosing.htm--- In RT3_T3 , kitty Haindl wrote:>> I used to wake up with adrenaline rushes all the time. I would wake drenched in sweat, shaking, confused.... I still wake constantly but am not sweating like I was Which is great, that was gross! I had only recently started hormone creams for progest, est, and test I think that helped. > I think I also had an RT3 clearnace. I have been

feeling really anxious, upset, tired, fast heart rate, hot, etc. so I decreased my cynomel today from 100mcg to 75mcg, not sure how to progress with that though... > I was on the florinef for about a month before I started to decrease my HC. > I'm not sure why I don't get low cortisol overnight.... maybe I am just oblivious? who knows > I was also diagnosed with mild sleep apnea but refused the cpap machine...> I never tried sleeping meds. I can't tolerate mild things like benadryl, can't imagine the fatigue from ambien!> > Kitty> > > > > ________________________________> > To: RT3_T3 > Sent: Fri, June 18, 2010 3:14:46 PM> Subject: Re: Success with Derealization!>

> > You lucky DOG!!!! :-))) > > I'm glad to find SOMEONE else who can't take t3 at bed, either. I thought I was the only person here. It just wakes me right up.> > I think I got gung ho and lowered the HC too fast once I started Florinef (which you warned me not to do!) and now I am getting adreanline rushes big time at night. So I went back to my old dose of HC today and hopefully I will sleep better now.> > But how could you sleep without HC when you were taking 45 during the day? You didn't get low cortisol at night? Maybe you had enough reserves to get through?> > I thought maybe my HPA axis kicks in at night and makes too high of cortisol but this waking up with heart pounding now seems more like adrenaline to me. Just waking constantly, that might be more high cortisol. Have you tried seriphos?> > I wanted to do a sleep study but it became apparent all they cared

about was sleep apnea and restless leg syndrome, neither of which I have. GRHHH. I was hoping maybe they'd test my cortisol and adrenaline (if you can test that) every time I wake up. I may see if I can get them to do that. If nothing else, it may help me qualify for rx Xyrem from a local GP. It's used for narcolepsy and off label for insomnia, but was undergoing FDA approval for insomnia last I heard.> > Ambien and Lunesta do nothing for me anymore and I read a post once by Val that when you're having an adrenaline rush, NOTHING will put you to sleep, which also makes me suspect adrenline rushes, but who knows. However, Xyrem works every time no matter what. > > Kathleen> > > > > >> > > > That is wonderful! I found great

improvements with florinef as well My BF always talks about sodium in our bodies like a battery with low fluids. Without enough salt nothing can communicate leaving us all foggy, confused, aggitated etc. I am sure it will present differently from person to person but still the same idea generally. > > > > Great to hear you feel so much better Kathleen > > > > > > > > Kitty> > > > > > > > > > > > > > > > > > > > ________________________________> > > > From: keickholt13 <keickholt13@>> > > > To: RT3_T3 > > > > Sent: Wed, June 16, 2010 12:20:55 PM> > > > Subject: Success with Derealization!> > > >

> > > > ÃÆ'‚ÂÂ > > > > I am posting this here and to the NTH Adreanl group since so many seem to suffer from this debilitating condition, which I will abbreviate as DP (for depersonalization, which is pretty much the same thing and most have both).> > > > > > > > Anyway, long story short, it went almost completely away once I increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of shakiness, trembling, feeling spaced out all the time, feeling like I was going to "fade out." None of which helps with the DP of course.> > > > > > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is TOTALLY GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1 and 1/2 hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few moments of anxiety here and there and some spaciness,

which I attribute to the stress of traveling and how hot it was causing some salt loss, but overall, the trip went off without a hitch and I'm home without a trace of DP left.> > > > > > > > I actually think the Florinef helped the DP. Why? I don't know for sure. Maybe it's because Florinef helps with being spaced out or dizzy due to electrolyte imbalances and those sorts of things really aggravate DP. Or maybe it's just that ANY insufficiency of adrenal hormones leads to anxiety and anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.> > > > > > > > Anyway, for anyone suffering from this condition of DP, please hang in there! And get those dern adrenals fixed. :-)> > > > > > > > Kathleen> > > >> > >> >>

[Guest guest]

Kitty,

What symptoms of high PG are you having? THe feeling upset, anxious, weepy,

tired? Maybe that is why you can sleep so much! :-) I know PG is suppoed to help

sleep, not that it ever did for me.

My progesterone seems all screwy right now, too. I've used it for years, but now

suddenly, it's like I don't need so much. I am not sure if it's because I am

getting my thyroid straight or just stupid perimenopouse. I am only using 10 mg

daily during the luteal phase and I just tested high. Not horribly high, but

still high. I know this makes my temps look higher than they really are but

can't say I've experienced anything else from it that I'm aware of. I do feel

tired but only the past couple of days and I had lowered my t3 a tad due to low

ferritin, so I went back up on that yesterday.

Re: stopping the PG tonight. Just thought I'd share my experience doing this. I

tried to cut the PG in half after the labs came back high and my breasts

immediatley got sore, but I think the body just gets used to high progesterone

and gets mad when you take it away. I remember when one doc had me on 200 mg

transdermal. (Yes, stupid I know!) When I came off that, I had huge estrogen

dominance syptoms (engorged breasts, etc.) until after my period and then

everything went back to normal.

For me, it seems if I need to change the PG dose, it works best to just wait

until I stop it for my period anyway and then go to the new dose for the next

cycle.

I hope you are feeling better and can find your optimal t3 dose. I think you are

probably close and just need to do some experimenting. Luckily, things happen

fast with t3 and dose changes. For what it's worth, my rt3 is gone and I think I

will not need much more than 50 t3, maybe 62.5 at most. I just don't seem to

need a lot for whatever reason, so I wouold be open to that possibility.

Kathleen

> > > > >

> > > > > That is wonderful! I found great improvements with florinef as well

My BF always talks about sodium in our bodies like a battery with low fluids.

Without enough salt nothing can communicate leaving us all foggy, confused,

aggitated etc. I am sure it will present differently from person to person but

still the same idea generally.

> > > > > Great to hear you feel so much better Kathleen

> > > > >

> > > > > Kitty

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: keickholt13 <keickholt13@>

> > > > > To: RT3_T3

> > > > > Sent: Wed, June 16, 2010 12:20:55 PM

> > > > > Subject: Success with Derealization!

> > > > >

> > > > > ÃÆ'Æ'‚ÃÆ'‚Â

> > > > > I am posting this here and to the NTH Adreanl group since so many seem

to suffer from this debilitating condition, which I will abbreviate as DP (for

depersonalization, which is pretty much the same thing and most have both).

> > > > >

> > > > > Anyway, long story short, it went almost completely away once I

increased my HC. Unfortunately, I had to take a lot of HC due to my symptoms of

shakiness, trembling, feeling spaced out all the time, feeling like I was going

to " fade out. " None of which helps with the DP of course.

> > > > >

> > > > > Well, I started Florinef about 1 week ago and MY GOD, the DP is

TOTALLY GONE! In fact, I actually FLEW to Dallas and drove on the highway for 1

and 1/2 hours BY MYSELF! I stayed in a hotel by myself. :-) Yes, I had a few

moments of anxiety here and there and some spaciness, which I attribute to the

stress of traveling and how hot it was causing some salt loss, but overall, the

trip went off without a hitch and I'm home without a trace of DP left.

> > > > >

> > > > > I actually think the Florinef helped the DP. Why? I don't know for

sure. Maybe it's because Florinef helps with being spaced out or dizzy due to

electrolyte imbalances and those sorts of things really aggravate DP. Or maybe

it's just that ANY insufficiency of adrenal hormones leads to anxiety and

anxiety = DP. I truly believe that DP CANNOT exist if there is no anxiety.

> > > > >

> > > > > Anyway, for anyone suffering from this condition of DP, please hang in

there! And get those dern adrenals fixed. :-)

> > > > >

> > > > > Kathleen

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Margery,

Did lowering the HC increase your temps? HOw were you able to determine the dose

was too high? I just read a post from Val that when rt3 clears adn you need less

HC, sometimes too high a dose can make you feel sleepy. Interesting.

Kathleen

looking (?) my body's HC requirement changed, so I'm lowering my HC dosage, and

that is affecting my temps, although not my pulse.

>

> " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> from:

> http://www.thyroid-rt3.com/dosing.htm

>

[Guest guest]

Hi Kathleen:

I do believe that my body's HC requirement lessened due to RT3 clearance.

Yes, lowering HC increased my temps dramatically. They are now higher than they

have ever been in my adult life. I am actually getting over 98 sometimes.

Val figured out my HC dose was too high. My FT3 was too high (8.3, range

2.0-4.4, my goal is 6.2) yet I still had hypo-like symptoms: air hunger, leg

pain, weight gain, for example. I still have these but they have improved as

I've decreased HC 2.5mg every 3 days.

My RT3 problem is 100% resolved, but I am still a " work in progress " on my other

medical issues. Sigh.

Margery

>

> Margery,

>

> Did lowering the HC increase your temps? HOw were you able to determine the

dose was too high? I just read a post from Val that when rt3 clears adn you need

less HC, sometimes too high a dose can make you feel sleepy. Interesting.

>

> Kathleen

>

> looking (?) my body's HC requirement changed, so I'm lowering my HC dosage,

and that is affecting my temps, although not my pulse.

> >

> > " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> > from:

> > http://www.thyroid-rt3.com/dosing.htm

> >

>

[Guest guest]

Margery,

i was just curious, when you had thyroid labs that came back with such a high

Ft3, did you also get a TSH? if you did, was it overly supressed? i'm just

wondering what to look out for.

i'm not sure i understand how taking a little too much hc can cause

t3pooling/highFt3/hypo symptoms?? if you have a second, could you explain?

only if you have time...

thanks to you, val, and everyone a million times over. dont think i can say that

enough.

> >

> > Margery,

> >

> > Did lowering the HC increase your temps? HOw were you able to determine the

dose was too high? I just read a post from Val that when rt3 clears adn you need

less HC, sometimes too high a dose can make you feel sleepy. Interesting.

> >

> > Kathleen

> >

> > looking (?) my body's HC requirement changed, so I'm lowering my HC dosage,

and that is affecting my temps, although not my pulse.

> > >

> > > " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> > > from:

> > > http://www.thyroid-rt3.com/dosing.htm

> > >

> >

>

[Guest guest]

Hi is: no, I didn't get a TSH. I have to pay for my own labs, so I really

have to limit which ones I get. I would like to get a TSH in the future, I am

also wondering if it's too suppressed.

Val said a TSH of " .00 anything is too low " , from her post:

http://health.groups.yahoo.com/group/RT3_T3/message/40610

Your HC question...I know it happens, but I'm not positive about the exact

mechanism at the cellular level. Blocking the receptors is my best guess, but

I'm out of my depth here. Perhaps try posting this question on the adrenal

group?

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > >

> > > Margery,

> > >

> > > Did lowering the HC increase your temps? HOw were you able to determine

the dose was too high? I just read a post from Val that when rt3 clears adn you

need less HC, sometimes too high a dose can make you feel sleepy. Interesting.

> > >

> > > Kathleen

> > >

> > > looking (?) my body's HC requirement changed, so I'm lowering my HC

dosage, and that is affecting my temps, although not my pulse.

> > > >

> > > > " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> > > > from:

> > > > http://www.thyroid-rt3.com/dosing.htm

> > > >

> > >

> >

>

[Guest guest]

Hi is: no, I didn't get a TSH. I have to pay for my own labs, so I really

have to limit which ones I get. I would like to get a TSH in the future, I am

also wondering if it's too suppressed.

Val said a TSH of " .00 anything is too low " , from her post:

http://health.groups.yahoo.com/group/RT3_T3/message/40610

Your HC question...I know it happens, but I'm not positive about the exact

mechanism at the cellular level. Blocking the receptors is my best guess, but

I'm out of my depth here. Perhaps try posting this question on the adrenal

group?

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > >

> > > Margery,

> > >

> > > Did lowering the HC increase your temps? HOw were you able to determine

the dose was too high? I just read a post from Val that when rt3 clears adn you

need less HC, sometimes too high a dose can make you feel sleepy. Interesting.

> > >

> > > Kathleen

> > >

> > > looking (?) my body's HC requirement changed, so I'm lowering my HC

dosage, and that is affecting my temps, although not my pulse.

> > > >

> > > > " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> > > > from:

> > > > http://www.thyroid-rt3.com/dosing.htm

> > > >

> > >

> >

>

[Guest guest]

Hi is: no, I didn't get a TSH. I have to pay for my own labs, so I really

have to limit which ones I get. I would like to get a TSH in the future, I am

also wondering if it's too suppressed.

Val said a TSH of " .00 anything is too low " , from her post:

http://health.groups.yahoo.com/group/RT3_T3/message/40610

Your HC question...I know it happens, but I'm not positive about the exact

mechanism at the cellular level. Blocking the receptors is my best guess, but

I'm out of my depth here. Perhaps try posting this question on the adrenal

group?

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > >

> > > Margery,

> > >

> > > Did lowering the HC increase your temps? HOw were you able to determine

the dose was too high? I just read a post from Val that when rt3 clears adn you

need less HC, sometimes too high a dose can make you feel sleepy. Interesting.

> > >

> > > Kathleen

> > >

> > > looking (?) my body's HC requirement changed, so I'm lowering my HC

dosage, and that is affecting my temps, although not my pulse.

> > > >

> > > > " You will be going through the dose finding process again but this time

without T4 in the way so you should be able to find a stable place within a week

or so at somewhere between half and 2/3 of what you were on before to feel

" non-hypo " .

> > > > from:

> > > > http://www.thyroid-rt3.com/dosing.htm

> > > >

> > >

> >

>