Re: Re: Jackie T's update----went to see ---very long

[Guest guest]

--

>

> She prescribed HC for me and wants me to do a taper. I'm a little

nervous about taking 60mg, so I have just been experimenting with how

HC feels to me so far. I had a follow-up phone consult with

yesterday, and she gave me some ideas on how to ease into it. She said

it's important to do the taper and give the adrenals a good rest. I'm

suppose to do a week at 60mg, a week at 40mg, and then a week at 20mg.

She said how I feel when I drop to 20mg will help tell how much I need

on an ongoing basis.

TK--- pay attention doing the taper and make sure it is hycortisone and

not prednisone which is 4 times as strong. I did two tapers - the

first helped a lot the second did not and actually weakened my immune

system somewhat.

-----------------------------------------------------------

Thanks TK. It is a Hydrocortisone taper, not prednisone. I have been using

Isocort for 7-8 months prior to this. Since this was my first experience with

HC, I wanted to take some smaller doses to see how it felt before I jumped in

and took 60mg all at once. said I could take 40 for a couple days then go

up to 60, or take 40 in the am and another 20 at noon. I have been working up

to this and took 30 in the am and 20 at noon yesterday, and today I took 40 this

morning and will take another 20 at noon and see how I do. I feel a little

jittery, but not bad. She said that feeling might go away after 2-3 days on the

higher dose. She really wants me to give my adrenals a good rest with this

taper. Hopefully it'll be the only one I'll have to do.

Where both your tapers with prednisone? How did it weaken your immune system,

or how did you know, did you just get sick more often?

Jackie T.

[Guest guest]

Hi Joanne, some comments below. Thanks for sharing your thoughts on

this.-----------Jackie

In frequent-dose-chelation , rick laabs wrote:

I, too, am very selective about who I speak to about this. We've all gone

through too much, as it is, to be subjecting ourselves to ignorant judgments

made by others. I do talk to my closest friends & family members, and they say I

put up a pretty good 'front' according to what I describe in terms of symptoms

both now & in the past.

-------------One of my sisters said the same thing, that I covered it up quite

well. I hid alot of it for years.------------Jackie

Because the illness came on so slowly, symptoms became a natural part of me,

and there were too many to comprehend, I seldom spoke of them.

--------------I agree. I believe I also wasn't honest with myself about them,

because it didn't make any sense and I couldn't understand why it was happening.

And alot of it happens or worsens so slowly, that you just get used to it as

being normal, yet deep down, you know its not normal. It was a big relief to

finally figure out what was causing all of this. Now if others would believe it

also!-------------Jackie

I also felt embarrassed by the symptoms and didn't want to be a shut-in.

Socially with dementia, I could handle first-time meetings or once a year

parties where recollections of others didn't matter, but that doesn't help

credibility with this illness once you know what's going on. It didn't help that

I was fairly young & self-conscious through much of this. I'm confident my

mother always had a fairly high level of amalgam toxicity with symptoms

including dosing off easily when she sits down,

constant muscular pain, OCD behaviors, repetitive conversation, &

insensitivity to others. Since she's muddled through life with symptoms, I'm

certain she used to think I should stick with a steady intake of ibuprofen &

caffeine as she did.

---------------My mother had a mouth full of metal, amalgam and gold, and has

Parkinson's Disease and colon cancer. I think alot of her symptoms were passed

off as PD, but I now believe they are at least partly metal poisoning. So her

current condition scares me about what my future holds. I am sick at a much

younger age than her, and scared I could end up like her. So that is a strong

motivation for me to keep chelating for as long as it takes, and its looking

like years for me.------Jackie

What I am doing is being more open and talking about this as I heal. When

people hear your story after the fact, they are very, very interested in amalgam

toxicity, especially by the time they're in their upper 30's-40's. I was very

open about it when I had such remarkable improvements in the early months

following amalgam removal, but there was a quite a setback at about the 5-6

month point and 18 months later I hadn't improved.

--------------Yes, I'm sure I talked about it much more when I was improving.

I had the honeymoon period right after amalgam removal, and I was also feeling

pretty good last summer and thinking I was on my way, so it was easier to share

my story when you are having success. But I had a huge setback last fall and

haven't recovered yet, so that makes it hard to convince others that I'm doing

the right thing and that this was really whats wrong with me. They probably

think that if this was really my problem, that I should probably be well by now.

So it's hard to promote your story when you have a huge setback. I would like

nothing better than to fully recover from this and shout it from the mountain

tops, but that will have to wait. I sure hope that day comes, because I am

starting to wonder myself.------------Jackie

It's exciting to feel my body lightening up & strengthening since starting

DMSA only one month ago. My mental energy is changing rapidly, too, so I'm

beginning to open up and tell the story again.

------------That's great to hear Joanne, I hope you keep improving. And yes,

keep sharing your story, the awareness can only help and will hopefully open

some people's eyes.---------------Jackie

Joanne

rosesarebeautiful54 rosesarebeautiful54@...> wrote:

> So, can you see why I'm feeling a little overwhelmed? I'm glad I went

to see and it was confirmation that I was sick, but I may be worse

off than I was allowing myself to believe? And I still have people

telling me that maybe all I need is antidepressants! (Just happened

again last weekend!) Uggghhhh!!!!!! So how have the rest of you dealt

with these kind of people?

>

That's a good question. I hope that others will share how they deal with

this kind of stuff. For myself, I am very selective as to who I share

my recovery from amalgam illness with. This forum , as well as Adult

Metal Chelation forum, are the two safe places that I learn how to deal

with mercury detox. Others are, sometimes, just going to say something

foolish anyway. They might even think that they are helping.

Uggghhhh!!!! is a good way to put it.

[Guest guest]

Hi Joanne, some comments below. Thanks for sharing your thoughts on

this.-----------Jackie

In frequent-dose-chelation , rick laabs wrote:

I, too, am very selective about who I speak to about this. We've all gone

through too much, as it is, to be subjecting ourselves to ignorant judgments

made by others. I do talk to my closest friends & family members, and they say I

put up a pretty good 'front' according to what I describe in terms of symptoms

both now & in the past.

-------------One of my sisters said the same thing, that I covered it up quite

well. I hid alot of it for years.------------Jackie

Because the illness came on so slowly, symptoms became a natural part of me,

and there were too many to comprehend, I seldom spoke of them.

--------------I agree. I believe I also wasn't honest with myself about them,

because it didn't make any sense and I couldn't understand why it was happening.

And alot of it happens or worsens so slowly, that you just get used to it as

being normal, yet deep down, you know its not normal. It was a big relief to

finally figure out what was causing all of this. Now if others would believe it

also!-------------Jackie

I also felt embarrassed by the symptoms and didn't want to be a shut-in.

Socially with dementia, I could handle first-time meetings or once a year

parties where recollections of others didn't matter, but that doesn't help

credibility with this illness once you know what's going on. It didn't help that

I was fairly young & self-conscious through much of this. I'm confident my

mother always had a fairly high level of amalgam toxicity with symptoms

including dosing off easily when she sits down,

constant muscular pain, OCD behaviors, repetitive conversation, &

insensitivity to others. Since she's muddled through life with symptoms, I'm

certain she used to think I should stick with a steady intake of ibuprofen &

caffeine as she did.

---------------My mother had a mouth full of metal, amalgam and gold, and has

Parkinson's Disease and colon cancer. I think alot of her symptoms were passed

off as PD, but I now believe they are at least partly metal poisoning. So her

current condition scares me about what my future holds. I am sick at a much

younger age than her, and scared I could end up like her. So that is a strong

motivation for me to keep chelating for as long as it takes, and its looking

like years for me.------Jackie

What I am doing is being more open and talking about this as I heal. When

people hear your story after the fact, they are very, very interested in amalgam

toxicity, especially by the time they're in their upper 30's-40's. I was very

open about it when I had such remarkable improvements in the early months

following amalgam removal, but there was a quite a setback at about the 5-6

month point and 18 months later I hadn't improved.

--------------Yes, I'm sure I talked about it much more when I was improving.

I had the honeymoon period right after amalgam removal, and I was also feeling

pretty good last summer and thinking I was on my way, so it was easier to share

my story when you are having success. But I had a huge setback last fall and

haven't recovered yet, so that makes it hard to convince others that I'm doing

the right thing and that this was really whats wrong with me. They probably

think that if this was really my problem, that I should probably be well by now.

So it's hard to promote your story when you have a huge setback. I would like

nothing better than to fully recover from this and shout it from the mountain

tops, but that will have to wait. I sure hope that day comes, because I am

starting to wonder myself.------------Jackie

It's exciting to feel my body lightening up & strengthening since starting

DMSA only one month ago. My mental energy is changing rapidly, too, so I'm

beginning to open up and tell the story again.

------------That's great to hear Joanne, I hope you keep improving. And yes,

keep sharing your story, the awareness can only help and will hopefully open

some people's eyes.---------------Jackie

Joanne

rosesarebeautiful54 rosesarebeautiful54@...> wrote:

> So, can you see why I'm feeling a little overwhelmed? I'm glad I went

to see and it was confirmation that I was sick, but I may be worse

off than I was allowing myself to believe? And I still have people

telling me that maybe all I need is antidepressants! (Just happened

again last weekend!) Uggghhhh!!!!!! So how have the rest of you dealt

with these kind of people?

>

That's a good question. I hope that others will share how they deal with

this kind of stuff. For myself, I am very selective as to who I share

my recovery from amalgam illness with. This forum , as well as Adult

Metal Chelation forum, are the two safe places that I learn how to deal

with mercury detox. Others are, sometimes, just going to say something

foolish anyway. They might even think that they are helping.

Uggghhhh!!!! is a good way to put it.

[Guest guest]

Hi Joanne, some comments below. Thanks for sharing your thoughts on

this.-----------Jackie

In frequent-dose-chelation , rick laabs wrote:

I, too, am very selective about who I speak to about this. We've all gone

through too much, as it is, to be subjecting ourselves to ignorant judgments

made by others. I do talk to my closest friends & family members, and they say I

put up a pretty good 'front' according to what I describe in terms of symptoms

both now & in the past.

-------------One of my sisters said the same thing, that I covered it up quite

well. I hid alot of it for years.------------Jackie

Because the illness came on so slowly, symptoms became a natural part of me,

and there were too many to comprehend, I seldom spoke of them.

--------------I agree. I believe I also wasn't honest with myself about them,

because it didn't make any sense and I couldn't understand why it was happening.

And alot of it happens or worsens so slowly, that you just get used to it as

being normal, yet deep down, you know its not normal. It was a big relief to

finally figure out what was causing all of this. Now if others would believe it

also!-------------Jackie

I also felt embarrassed by the symptoms and didn't want to be a shut-in.

Socially with dementia, I could handle first-time meetings or once a year

parties where recollections of others didn't matter, but that doesn't help

credibility with this illness once you know what's going on. It didn't help that

I was fairly young & self-conscious through much of this. I'm confident my

mother always had a fairly high level of amalgam toxicity with symptoms

including dosing off easily when she sits down,

constant muscular pain, OCD behaviors, repetitive conversation, &

insensitivity to others. Since she's muddled through life with symptoms, I'm

certain she used to think I should stick with a steady intake of ibuprofen &

caffeine as she did.

---------------My mother had a mouth full of metal, amalgam and gold, and has

Parkinson's Disease and colon cancer. I think alot of her symptoms were passed

off as PD, but I now believe they are at least partly metal poisoning. So her

current condition scares me about what my future holds. I am sick at a much

younger age than her, and scared I could end up like her. So that is a strong

motivation for me to keep chelating for as long as it takes, and its looking

like years for me.------Jackie

What I am doing is being more open and talking about this as I heal. When

people hear your story after the fact, they are very, very interested in amalgam

toxicity, especially by the time they're in their upper 30's-40's. I was very

open about it when I had such remarkable improvements in the early months

following amalgam removal, but there was a quite a setback at about the 5-6

month point and 18 months later I hadn't improved.

--------------Yes, I'm sure I talked about it much more when I was improving.

I had the honeymoon period right after amalgam removal, and I was also feeling

pretty good last summer and thinking I was on my way, so it was easier to share

my story when you are having success. But I had a huge setback last fall and

haven't recovered yet, so that makes it hard to convince others that I'm doing

the right thing and that this was really whats wrong with me. They probably

think that if this was really my problem, that I should probably be well by now.

So it's hard to promote your story when you have a huge setback. I would like

nothing better than to fully recover from this and shout it from the mountain

tops, but that will have to wait. I sure hope that day comes, because I am

starting to wonder myself.------------Jackie

It's exciting to feel my body lightening up & strengthening since starting

DMSA only one month ago. My mental energy is changing rapidly, too, so I'm

beginning to open up and tell the story again.

------------That's great to hear Joanne, I hope you keep improving. And yes,

keep sharing your story, the awareness can only help and will hopefully open

some people's eyes.---------------Jackie

Joanne

rosesarebeautiful54 rosesarebeautiful54@...> wrote:

> So, can you see why I'm feeling a little overwhelmed? I'm glad I went

to see and it was confirmation that I was sick, but I may be worse

off than I was allowing myself to believe? And I still have people

telling me that maybe all I need is antidepressants! (Just happened

again last weekend!) Uggghhhh!!!!!! So how have the rest of you dealt

with these kind of people?

>

That's a good question. I hope that others will share how they deal with

this kind of stuff. For myself, I am very selective as to who I share

my recovery from amalgam illness with. This forum , as well as Adult

Metal Chelation forum, are the two safe places that I learn how to deal

with mercury detox. Others are, sometimes, just going to say something

foolish anyway. They might even think that they are helping.

Uggghhhh!!!! is a good way to put it.