Re: Kristy/ what/who to believe?-nne

[Guest guest]

nne,

Thanks. I wish your friends well with their recovery.

Have you thought of starting a group for those that might be

dealing with PNE and Pudenal Neuralgia? The reason I ask is

because I thought about what you said about that it's not as

rare as we might have previously thought. I think you would be

a great group leader.

On the thing Dr. Conway told me, I had never heard that either

and I may ask my Pain Management doctor about that when I see

her next month because I thought that in a lot of cases of

neuropathy (other than Diabetic Neuropathy which my one uncle

has) you always felt some kind of pain. I've had the zapping

kind of pain you mentioned but not my pudenal nerve but in my

genitofemoral nerve.

Also, would you please keep my mom in your thoughts? She got

her tests done yesterday and we will get the results on Mon and

they are going to run another PET Scan because it's time. The

stress of all this has had some affect on my fibro but not my

vulvodynia yet thank goodness. I'm trying to make sure I make

it to every doctor's appt she goes to for all this so that we

can both learn. And the visits to Mayo Clinic ville have

been much better than the doctors we started out with.

Will keep everyone posted on how things go.

Kristy

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[Guest guest]

Kristy,

'

If you think you might have fibro, I would consider skin rolling your whole body or finding someone to do it for you.

I think it helps or even solves the problem.

love, Molly

Re: Kristy/ what/who to believe?-nne

nne,Thanks. I wish your friends well with their recovery.Have you thought of starting a group for those that might bedealing with PNE and Pudenal Neuralgia? The reason I ask isbecause I thought about what you said about that it's not asrare as we might have previously thought. I think you would bea great group leader.On the thing Dr. Conway told me, I had never heard that eitherand I may ask my Pain Management doctor about that when I seeher next month because I thought that in a lot of cases ofneuropathy (other than Diabetic Neuropathy which my one unclehas) you always felt some kind of pain. I've had the zappingkind of pain you mentioned but not my pudenal nerve but in mygenitofemoral nerve.Also, would you please keep my mom in your thoughts? She gother tests done yesterday and we will get the results on Mon andthey are going to run another PET Scan because it's

time. Thestress of all this has had some affect on my fibro but not myvulvodynia yet thank goodness. I'm trying to make sure I makeit to every doctor's appt she goes to for all this so that wecan both learn. And the visits to Mayo Clinic ville havebeen much better than the doctors we started out with.Will keep everyone posted on how things go.Kristy ____________ _________ _________ _________ _________ _________ _Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.http://autos. yahoo.com/ index.html

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[Guest guest]

Molly,

I already have fibromyalgia but thank you for the suggestion.

Kristy

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